teething as seizure trigger?

[Guest guest]

4 months on diet. My 16 month old has DS and IS. Still on topomax and

valproic acid. Gideon " woke up " about 2 months ago as far as smiling

and laughing daily. But we just can't seem to kick the seizures. We

have an " occasional " good day. But for the most part still 50-100

plus spasms a day. Mostly in a single cluster. He is teething, but he

most likely will be teething for a long time since only 2 have come

through. What are my options? I hate upping his meds and I don't want

to abandon the diet, but I know the damage infantile spasms can

cause. Any input greatly appreciated.

[Guest guest]

Hi there, I just wanted to say hello. My daughter Kristan is 13

months and has been on the diet since August 2003, she use to have

150-200 seizures a day, complex partial seizures. We took her off

all meds as they just made her worse. We still can't stop the

seizures, she is down to about 15 a day at the moment, and that is

always going up and down. Kristan just also started teething and I

think it makes it worse for her too.

I don't have any answers for you, I just wanted to share my story as

I know what you must be going through seeing your little one have so

many spasms. Have you considered stopping all meds? Your lucky your

little one smiles and laughs, my Kristan stopped smiling and laughing

when she started having seizures at 4.5 months of age, I'm hoping she

will start to smile/laugh again soon. Good luck.

*******

Satnam, mom to Kristan, 13 months

Keto since August 2003

> 4 months on diet. My 16 month old has DS and IS. Still on topomax

and

> valproic acid. Gideon " woke up " about 2 months ago as far as

smiling

> and laughing daily. But we just can't seem to kick the seizures. We

> have an " occasional " good day. But for the most part still 50-100

> plus spasms a day. Mostly in a single cluster. He is teething, but

he

> most likely will be teething for a long time since only 2 have come

> through. What are my options? I hate upping his meds and I don't

want

> to abandon the diet, but I know the damage infantile spasms can

> cause. Any input greatly appreciated.

[Guest guest]

Post his stats - age, height, weight, calories, ratio, amount of protien

per day and where he sits on the growth chart

bartons15 wrote:

> 4 months on diet. My 16 month old has DS and IS. Still on topomax and

>

> valproic acid. Gideon " woke up " about 2 months ago as far as smiling

> and laughing daily. But we just can't seem to kick the seizures. We

> have an " occasional " good day. But for the most part still 50-100

> plus spasms a day. Mostly in a single cluster. He is teething, but he

> most likely will be teething for a long time since only 2 have come

> through. What are my options? I hate upping his meds and I don't want

> to abandon the diet, but I know the damage infantile spasms can

> cause. Any input greatly appreciated.

>

>

>

> " The Ketogenic Diet....a realistic treatment option, NOT just a last

> resort! "

>

> List is for parent to parent support only.

> It is important to get medical advice from a

> professional keto team!

> Subscribe: ketogenic-subscribe

> Unsubscribe: ketogenic-unsubscribe

>

>

>

>

>

[Guest guest]

Post his stats - age, height, weight, calories, ratio, amount of protien

per day and where he sits on the growth chart

bartons15 wrote:

> 4 months on diet. My 16 month old has DS and IS. Still on topomax and

>

> valproic acid. Gideon " woke up " about 2 months ago as far as smiling

> and laughing daily. But we just can't seem to kick the seizures. We

> have an " occasional " good day. But for the most part still 50-100

> plus spasms a day. Mostly in a single cluster. He is teething, but he

> most likely will be teething for a long time since only 2 have come

> through. What are my options? I hate upping his meds and I don't want

> to abandon the diet, but I know the damage infantile spasms can

> cause. Any input greatly appreciated.

>

>

>

> " The Ketogenic Diet....a realistic treatment option, NOT just a last

> resort! "

>

> List is for parent to parent support only.

> It is important to get medical advice from a

> professional keto team!

> Subscribe: ketogenic-subscribe

> Unsubscribe: ketogenic-unsubscribe

>

>

>

>

>

[Guest guest]

Post his stats - age, height, weight, calories, ratio, amount of protien

per day and where he sits on the growth chart

bartons15 wrote:

> 4 months on diet. My 16 month old has DS and IS. Still on topomax and

>

> valproic acid. Gideon " woke up " about 2 months ago as far as smiling

> and laughing daily. But we just can't seem to kick the seizures. We

> have an " occasional " good day. But for the most part still 50-100

> plus spasms a day. Mostly in a single cluster. He is teething, but he

> most likely will be teething for a long time since only 2 have come

> through. What are my options? I hate upping his meds and I don't want

> to abandon the diet, but I know the damage infantile spasms can

> cause. Any input greatly appreciated.

>

>

>

> " The Ketogenic Diet....a realistic treatment option, NOT just a last

> resort! "

>

> List is for parent to parent support only.

> It is important to get medical advice from a

> professional keto team!

> Subscribe: ketogenic-subscribe

> Unsubscribe: ketogenic-unsubscribe

>

>

>

>

>