Re: HE'S SMILING! HE'S SMILING!

[Guest guest]

GREAT CLEO - thanks for sharing. God IS Good!

Kathy - 's Mom

On Fri, 16 Jan 2004 00:27:42 -0000 " csecretangel "

writes:

> Hi,

>

> Im still in the hospital with joziah.

> and alot has happened since my last posting but, as of yesterday

> afternoon, Praise God, has been smiling and giggling and is the

> loveable little boy that i have missed for two months since Nov 10.

>

> ( first seizure on Nov 11)

>

> He is 4:1 975Fluid, and Topomax 100 mg /3@day and has had very high

>

> fevers 101 to 103, and was very tachycardic 200 to 230bpm. He was

> very badly dehydrated, skin rashes, lethargic, and developed a blood

>

> infection from the central line ( we think) So i got them to lift

> the Fluid restriction, give antibiotics, and tylenol And Boom, His

>

> fevers went away, his heart is coming back to normal, and hasnt had

>

> a seizure in over 36 hours... and counting....

> He isnt spilling ketones, but as long as we have seizure control Im

>

> happy, dietician is happy, and Neuro is happy.

> She cried today when she heard him laugh for the first time.

>

>

> I just wanted to share this with all of you, seeing my son come to

> life again is ..... I cant find a word that expresses what my

> husband and I feel. God Is Good

>

> I Hope from the bottom of my heart that you all get to experience

> this success ( even if its just a small one) and joy with your

> children.

>

> God Bless,

> Cleo

>

>

>

>

>

>

> " The Ketogenic Diet....a realistic treatment option, NOT just a

> last resort! "

>

> List is for parent to parent support only.

> It is important to get medical advice from a

> professional keto team!

> Subscribe: ketogenic-subscribe

> Unsubscribe: ketogenic-unsubscribe

>

>

>

>

[Guest guest]

Glad to hear the good news! Hoping Joziah continues to amaze all of

you! Yes, God is good!

Glenna

[Guest guest]

V happy to read this Cleo - hope things are still ok with Joziah and that

he has continued to improve,

----- Original Message -----

> Hi,

>

> Im still in the hospital with joziah.

> and alot has happened since my last posting but, as of yesterday

> afternoon, Praise God, has been smiling and giggling and is the

> loveable little boy that i have missed for two months since Nov 10.

> ( first seizure on Nov 11)

>

> He is 4:1 975Fluid, and Topomax 100 mg /3@day and has had very high

> fevers 101 to 103, and was very tachycardic 200 to 230bpm. He was

> very badly dehydrated, skin rashes, lethargic, and developed a blood

> infection from the central line ( we think) So i got them to lift

> the Fluid restriction, give antibiotics, and tylenol And Boom, His

> fevers went away, his heart is coming back to normal, and hasnt had

> a seizure in over 36 hours... and counting....

> He isnt spilling ketones, but as long as we have seizure control Im

> happy, dietician is happy, and Neuro is happy.

> She cried today when she heard him laugh for the first time.

>

>

> I just wanted to share this with all of you, seeing my son come to

> life again is ..... I cant find a word that expresses what my

> husband and I feel. God Is Good

>

> I Hope from the bottom of my heart that you all get to experience

> this success ( even if its just a small one) and joy with your

> children.

>

> God Bless,

> Cleo

[Guest guest]

Cleo,

Wonderful to see that you are making progress.

You say that he is on 4:1 ratio and yet he is not spilling ketones. How

is this possible?

Bill

csecretangel wrote:

> Hi,

>

> Im still in the hospital with joziah.

> and alot has happened since my last posting but, as of yesterday

> afternoon, Praise God, has been smiling and giggling and is the

> loveable little boy that i have missed for two months since Nov 10.

> ( first seizure on Nov 11)

>

> He is 4:1 975Fluid, and Topomax 100 mg /3@day and has had very high

> fevers 101 to 103, and was very tachycardic 200 to 230bpm. He was

> very badly dehydrated, skin rashes, lethargic, and developed a blood

> infection from the central line ( we think) So i got them to lift

> the Fluid restriction, give antibiotics, and tylenol And Boom, His

> fevers went away, his heart is coming back to normal, and hasnt had

> a seizure in over 36 hours... and counting....

> He isnt spilling ketones, but as long as we have seizure control Im

> happy, dietician is happy, and Neuro is happy.

> She cried today when she heard him laugh for the first time.

>

>

> I just wanted to share this with all of you, seeing my son come to

> life again is ..... I cant find a word that expresses what my

> husband and I feel. God Is Good

>

> I Hope from the bottom of my heart that you all get to experience

> this success ( even if its just a small one) and joy with your

> children.

>

> God Bless,

> Cleo

>

>

>

>

>

>

> " The Ketogenic Diet....a realistic treatment option, NOT just a last

resort! "

>

> List is for parent to parent support only.

> It is important to get medical advice from a professional

keto team!

> Subscribe: ketogenic-subscribe

> Unsubscribe: ketogenic-unsubscribe

>

>

>

>

[Guest guest]

Hi,

Actually,

He is now spilling +2,

Still seizure free for 1 week and counting...

Thanks,

Cleo

>

>

> Date: 2004/01/19 Mon PM 08:04:37 CST

> To: ketogenic

> Subject: Re: HE'S SMILING! HE'S SMILING!

>

>