What is the reality of my conditon?

[Guest guest]

Hi all,

here I am again grasping at any shred of information. Has anyone on

the list had recurrence with liver mets, adrenal met and

retroperitoneal lymphadenopathy. If so what did you have done and

what can I expect. I want to see my kids get through high school and

college and I will do whatever it takes to get me well and see that.

I need some real advice and real hope. I am so tired of them telling

me that I only have a possible of 2-3 years at best. I want more, I

want to be here alive well and with my family. I guess I need some

assurance that it is possible and that the fight I have will get me

there.

Jennie

[Guest guest]

More…

There’s a man in Utah who was written off by his doctors with Stage 4. This

was a LONG time ago, I forgot how long. He is alive and has written a book.

When Mom was first diagnosed I got the two of them on the phone, and I

ordered his book for her. I have lost his contact information, but when I go

to visit her next I will look for the book and post his info. He is a very

kind person. I found him through some kind of internet search, but cannot

remember how.

M

Hi all,

here I am again grasping at any shred of information. Has anyone on

the list had recurrence with liver mets, adrenal met and

retroperitoneal lymphadenopathy. If so what did you have done and

what can I expect. I want to see my kids get through high school and

college and I will do whatever it takes to get me well and see that.

I need some real advice and real hope. I am so tired of them telling

me that I only have a possible of 2-3 years at best. I want more, I

want to be here alive well and with my family. I guess I need some

assurance that it is possible and that the fight I have will get me

there.

Jennie

[Guest guest]

Hi ,

The best chance of going for a cure and/or extending your time is

with aggressive surgery. Unfortunately, not many surgeons will

operate when their is metastasis to the lymph nodes. If your

surgeon is offering to do it, I would advise you to have the surgery

as soon as possible.

My sister's condition is similar to yours. Through this wonderful

support group I found the name of a surgeon who is willing to be

very aggressive and will operate on the main sites and also take out

the lymph nodes. He operated on my sister in November,and since it

has come back, he has agreed to operate again in late May or June.

His name is Steckler. His # is . He is located

at Medical City in Dallas, Texas. We had to fly there from the

Chicago area, but it was worth the expense since could find no other

surgeon willing to operate. He will review films and reports if you

send them to him in the mail. This way he can evaluate what is

possible for him to do. This is just an FYI for you and anyone else

who might need it.

> Hi all,

> here I am again grasping at any shred of information. Has anyone

on

> the list had recurrence with liver mets, adrenal met and

> retroperitoneal lymphadenopathy. If so what did you have done and

> what can I expect. I want to see my kids get through high school

and

> college and I will do whatever it takes to get me well and see

that.

> I need some real advice and real hope. I am so tired of them

telling

> me that I only have a possible of 2-3 years at best. I want more,

I

> want to be here alive well and with my family. I guess I need some

> assurance that it is possible and that the fight I have will get

me

> there.

>

> Jennie

[Guest guest]

,

There was an error in my earlier message. The surgeon's name is

Steckler.

> > Hi all,

> > here I am again grasping at any shred of information. Has

anyone

> on

> > the list had recurrence with liver mets, adrenal met and

> > retroperitoneal lymphadenopathy. If so what did you have done

and

> > what can I expect. I want to see my kids get through high school

> and

> > college and I will do whatever it takes to get me well and see

> that.

> > I need some real advice and real hope. I am so tired of them

> telling

> > me that I only have a possible of 2-3 years at best. I want

more,

> I

> > want to be here alive well and with my family. I guess I need

some

> > assurance that it is possible and that the fight I have will get

> me

> > there.

> >

> > Jennie