Re: New twist on my condition or reality of it!

[Guest guest]

Oh Jennie,,,this is Good news Looking forward to hearing more positive and

great results. Praying for success. Love Nick & Jane

[Guest guest]

Seize the opportunity Jennie!!!

I am so glad you have found someone who will do a thorough exam and

is open to more possibilities for you.I'll pray that this works for

you so you can have a long long time to watch your children growup.

You deserve the best so go for it!

Hugs and Prayers,

> Hey,

> I have just heard from the National Cancer Institute in Bethesda

and

> they want me to come down next Thurs/Fri to work me up for what

they

> say are a few protocols ( and some of them include surgery). I am

> going and I know I will at least get a second opinion on what I am

> currently doing and if there is anything better out there or as I

> said what is the reality of my condition. They feel I fit the

> criteria so far for one of the surgical procedures for de-

bulking/re-

> section. I am a little scared because I am so far to date

responding

> to my protocol but my Oncologist gives me little or no hope of re-

> section. Is it the concensus of the group that de-bulking/re-

section

> is the best option for a longer stay of static disease or possible

> cure. I hope that I can find some good answers there and I promise

I

> will let you all know what they say. They say I will get a full

> workup including MRI of chest,abdomen, pelvis and an MRI of my

liver

> only. They will do all the bloodwork and run me through the wringer.

>

> Will keep you all posted and let you know what happens

>

> Jennie

[Guest guest]

Seize the opportunity Jennie!!!

I am so glad you have found someone who will do a thorough exam and

is open to more possibilities for you.I'll pray that this works for

you so you can have a long long time to watch your children growup.

You deserve the best so go for it!

Hugs and Prayers,

> Hey,

> I have just heard from the National Cancer Institute in Bethesda

and

> they want me to come down next Thurs/Fri to work me up for what

they

> say are a few protocols ( and some of them include surgery). I am

> going and I know I will at least get a second opinion on what I am

> currently doing and if there is anything better out there or as I

> said what is the reality of my condition. They feel I fit the

> criteria so far for one of the surgical procedures for de-

bulking/re-

> section. I am a little scared because I am so far to date

responding

> to my protocol but my Oncologist gives me little or no hope of re-

> section. Is it the concensus of the group that de-bulking/re-

section

> is the best option for a longer stay of static disease or possible

> cure. I hope that I can find some good answers there and I promise

I

> will let you all know what they say. They say I will get a full

> workup including MRI of chest,abdomen, pelvis and an MRI of my

liver

> only. They will do all the bloodwork and run me through the wringer.

>

> Will keep you all posted and let you know what happens

>

> Jennie

[Guest guest]

You go for it Jeannie and yes, please do keep us posted. Hear what

they have to say and if you like what you hear, make your choice

then. I don't know much about de-bulking. Personally, I've never

heard of the term, but I do know that surgery remains the best shot

at cure so if you can have it..........

I'm so glad you got some great news. Hope all goes well in Bethesda.

Hugs,

Monika

> Hey,

> I have just heard from the National Cancer Institute in Bethesda

and

> they want me to come down next Thurs/Fri to work me up for what

they

> say are a few protocols ( and some of them include surgery). I am

> going and I know I will at least get a second opinion on what I am

> currently doing and if there is anything better out there or as I

> said what is the reality of my condition. They feel I fit the

> criteria so far for one of the surgical procedures for de-

bulking/re-

> section. I am a little scared because I am so far to date

responding

> to my protocol but my Oncologist gives me little or no hope of re-

> section. Is it the concensus of the group that de-bulking/re-

section

> is the best option for a longer stay of static disease or possible

> cure. I hope that I can find some good answers there and I promise

I

> will let you all know what they say. They say I will get a full

> workup including MRI of chest,abdomen, pelvis and an MRI of my

liver

> only. They will do all the bloodwork and run me through the wringer.

>

> Will keep you all posted and let you know what happens

>

> Jennie

[Guest guest]

Jennie- Best wishes for your trip. As I said earlier, I was

evaluated by Dr. for the surgery/intraoperative

chemotherapy protecol. They were kind and efficient. Other than

getting having to get your car searched when you enter the NIH

campus, it was not intimidating.

I was responding to chemotherapy at the time I went for surgery

consultations, because eventually most tumors do become resistant to

drugs. Because of this, I think you are doing the right thing to

investigate to see if there are other options.

Best wishes,

Kris