Guest guest Posted August 22, 2004 Report Share Posted August 22, 2004 Yes she has had an ABR in April. Her left ear measured at 80-90 and the audiologist said she didn't pick up anything in her right ear. We live in Houston, TX. Do infants (14 months) learn to lip read - even though they can't hear words? I'm so new to this, that I don't even know if I'm asking the " right questions " How do I keep her from pulling her hearing aid out? I've tried the head bands - but she doesn't like those either. The audiologist never told me how to deal with the loud noise it makes sometimes. Thank you for the encouragement to send more questions. I will! Mother of Kaila - 14 months severe to profound hearing loss & Tara 6 years old - normal hearing. > Welcome to the group . > I've found this group to be very supportive and highly informative. Let us know what state you are in -- there could very well be some parents who live or have lived in the past in your state. Services vary from state to sate so this information will help. > > I cannot supply specific info on CI's; my daughter has a moderate loss and wears HAs. But, when I read your post, I wondered if your daughter might be reading lips and has learned to say mamamam this way. My daughter gets wonderful benefit from her aids but also is a self taught lip reader. She can her in the tub/pool if I really project my voice but really relies in the lip reading then. My daughter is 3. > > Did your daughter have an ABR test? I would make sure this is done, especially if you suspect that she might be hearing better than diagnosed. > > I'm sure others will supply some helpful CI info. The whole process is overwhelming at first; and you have been through a lot already. Keep the questions coming. > > H > Mom to Jessie 3, moderate loss. HA > introduction > > > > Hello > > My name is and my daughter was born June 2, 2003 on June 11, > 2003 she had open heart surgery and we finally got to bring her home > on July 22. She is repaired, and we thought the road to the Medical > Center here in Houston was in the past. > > She was diagnosed in April with severe to profound hearing loss, > after many test and 2 different ENT's - we finally found out why she > could not hear. Kaila's cochlea's did not fully develop. I found out > Monday August 16th that she has been referred for cochlear implants. > > She was wearing one hearing aid (a loaner) - when she would leave it > alone. Now the ENT has advised me not to invest in hearing aids yet. > I've done some reading and know that it is very important for her to > hear sounds. (by the way I know she can hear sounds, because I taught > her to say mamamama - and that's about all she says)the hearing aid > we have has a very loud ringing noise and she cries when I put it > into her " good " ear. > I'm not happy with her audiologist, I found out more information from > another parent I spotted at Chuck E Cheese. My insurance does not pay > for hearing aids or hearing test. And we are still trying to pay off > the hospital bills from her heart surgery. > > I would like to know more about cochlear implants before her > appointments, so I can bring up any questions to the doctor. From > what I've read, I really want her to have them - but after everything > she has been through I am a little apprehensive. > > > Mother of Kaila 14 months - severe to profound hearing loss > & Tara 6 yrs old - normal hearing > > > > > > > All messages posted to this list are private and confidential. Each post is the intellectual property of the author and therefore subject to copyright restrictions. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2004 Report Share Posted August 22, 2004 Yes she has had an ABR in April. Her left ear measured at 80-90 and the audiologist said she didn't pick up anything in her right ear. We live in Houston, TX. Do infants (14 months) learn to lip read - even though they can't hear words? I'm so new to this, that I don't even know if I'm asking the " right questions " How do I keep her from pulling her hearing aid out? I've tried the head bands - but she doesn't like those either. The audiologist never told me how to deal with the loud noise it makes sometimes. Thank you for the encouragement to send more questions. I will! Mother of Kaila - 14 months severe to profound hearing loss & Tara 6 years old - normal hearing. > Welcome to the group . > I've found this group to be very supportive and highly informative. Let us know what state you are in -- there could very well be some parents who live or have lived in the past in your state. Services vary from state to sate so this information will help. > > I cannot supply specific info on CI's; my daughter has a moderate loss and wears HAs. But, when I read your post, I wondered if your daughter might be reading lips and has learned to say mamamam this way. My daughter gets wonderful benefit from her aids but also is a self taught lip reader. She can her in the tub/pool if I really project my voice but really relies in the lip reading then. My daughter is 3. > > Did your daughter have an ABR test? I would make sure this is done, especially if you suspect that she might be hearing better than diagnosed. > > I'm sure others will supply some helpful CI info. The whole process is overwhelming at first; and you have been through a lot already. Keep the questions coming. > > H > Mom to Jessie 3, moderate loss. HA > introduction > > > > Hello > > My name is and my daughter was born June 2, 2003 on June 11, > 2003 she had open heart surgery and we finally got to bring her home > on July 22. She is repaired, and we thought the road to the Medical > Center here in Houston was in the past. > > She was diagnosed in April with severe to profound hearing loss, > after many test and 2 different ENT's - we finally found out why she > could not hear. Kaila's cochlea's did not fully develop. I found out > Monday August 16th that she has been referred for cochlear implants. > > She was wearing one hearing aid (a loaner) - when she would leave it > alone. Now the ENT has advised me not to invest in hearing aids yet. > I've done some reading and know that it is very important for her to > hear sounds. (by the way I know she can hear sounds, because I taught > her to say mamamama - and that's about all she says)the hearing aid > we have has a very loud ringing noise and she cries when I put it > into her " good " ear. > I'm not happy with her audiologist, I found out more information from > another parent I spotted at Chuck E Cheese. My insurance does not pay > for hearing aids or hearing test. And we are still trying to pay off > the hospital bills from her heart surgery. > > I would like to know more about cochlear implants before her > appointments, so I can bring up any questions to the doctor. From > what I've read, I really want her to have them - but after everything > she has been through I am a little apprehensive. > > > Mother of Kaila 14 months - severe to profound hearing loss > & Tara 6 yrs old - normal hearing > > > > > > > All messages posted to this list are private and confidential. Each post is the intellectual property of the author and therefore subject to copyright restrictions. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2004 Report Share Posted August 22, 2004 Yes she has had an ABR in April. Her left ear measured at 80-90 and the audiologist said she didn't pick up anything in her right ear. We live in Houston, TX. Do infants (14 months) learn to lip read - even though they can't hear words? I'm so new to this, that I don't even know if I'm asking the " right questions " How do I keep her from pulling her hearing aid out? I've tried the head bands - but she doesn't like those either. The audiologist never told me how to deal with the loud noise it makes sometimes. Thank you for the encouragement to send more questions. I will! Mother of Kaila - 14 months severe to profound hearing loss & Tara 6 years old - normal hearing. > Welcome to the group . > I've found this group to be very supportive and highly informative. Let us know what state you are in -- there could very well be some parents who live or have lived in the past in your state. Services vary from state to sate so this information will help. > > I cannot supply specific info on CI's; my daughter has a moderate loss and wears HAs. But, when I read your post, I wondered if your daughter might be reading lips and has learned to say mamamam this way. My daughter gets wonderful benefit from her aids but also is a self taught lip reader. She can her in the tub/pool if I really project my voice but really relies in the lip reading then. My daughter is 3. > > Did your daughter have an ABR test? I would make sure this is done, especially if you suspect that she might be hearing better than diagnosed. > > I'm sure others will supply some helpful CI info. The whole process is overwhelming at first; and you have been through a lot already. Keep the questions coming. > > H > Mom to Jessie 3, moderate loss. HA > introduction > > > > Hello > > My name is and my daughter was born June 2, 2003 on June 11, > 2003 she had open heart surgery and we finally got to bring her home > on July 22. She is repaired, and we thought the road to the Medical > Center here in Houston was in the past. > > She was diagnosed in April with severe to profound hearing loss, > after many test and 2 different ENT's - we finally found out why she > could not hear. Kaila's cochlea's did not fully develop. I found out > Monday August 16th that she has been referred for cochlear implants. > > She was wearing one hearing aid (a loaner) - when she would leave it > alone. Now the ENT has advised me not to invest in hearing aids yet. > I've done some reading and know that it is very important for her to > hear sounds. (by the way I know she can hear sounds, because I taught > her to say mamamama - and that's about all she says)the hearing aid > we have has a very loud ringing noise and she cries when I put it > into her " good " ear. > I'm not happy with her audiologist, I found out more information from > another parent I spotted at Chuck E Cheese. My insurance does not pay > for hearing aids or hearing test. And we are still trying to pay off > the hospital bills from her heart surgery. > > I would like to know more about cochlear implants before her > appointments, so I can bring up any questions to the doctor. From > what I've read, I really want her to have them - but after everything > she has been through I am a little apprehensive. > > > Mother of Kaila 14 months - severe to profound hearing loss > & Tara 6 yrs old - normal hearing > > > > > > > All messages posted to this list are private and confidential. Each post is the intellectual property of the author and therefore subject to copyright restrictions. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2004 Report Share Posted August 23, 2004 I don't think an infant with limited or no access to sound could pick up much from lip reading, but if you face her and say " mamama " , she might be able to repeat it just based on what she is seeing. Especially since this is a word we tend to say over and over to a baby and the " M " sound is made with the front of the mouth and lips, as opposed to say the " G " sound which is made at the back of the mouth. If she visually sees you saying Mama, and is praised for any attempts, she might learn how to say it, and what it means without hearing it. This is just a guess though and something I wanted to make you aware of. You could try having a friend say Mama with their mouth completely covered (with their closed hand or a paper) and see if she looks or points at you. This is definitely not a fool proof test but might shed a little light on whether she can hear this word or not. As far as keeping the aids in; that is always a challenge. With my daughter, the longer they were in, the easier it got. So, if I could distract her immediately after I put the aids in, with a game or activity, then she would forget they were there. Jessie started wearing HA in the fall and that first winter I would often put a light winter hat on and bring her with me to get coffee. By the time she was home 20 min later, she forgot about the aids for a while. I could never use any type of string or clips w/ string because Jessie was always touching her hair and would pull the aids out by the string much more than she would ordinarily. It is a challenge and I spent so much time the first 1 1/2 years just hunting for the aids. You could try a summer hat with a string under the chin to keep her hands off. The listen-up web site has lots of tips and products to help but its never easy. As far as the noise goes, do you know if it is feed-back? This is the high pitch noise that happens at a concert or lecture when the speaker gets to close to the amplifier. It is a high pitched squeal and that is actually what happens to the HA as well. The ear mold prevents the fed-back. If they were not made to fit well, or if she has outgrown them, which can happen fast, they need to be replaced. Jessie's come with a 30 day guarantee. Are the molds pressed all the way into the ear? They are made to fit tight, but should not rub against the ear. If the aids are making a different noise, a buzz or static, then they need to be repaired. We have personally never had much problem with feedback unless Jessie really crushes her ear up against something, like in a big hug -- this can't be avoided. But they should not squeal when she is just sitting or walking around. Hope this helps. introduction > > > > Hello > > My name is and my daughter was born June 2, 2003 on June 11, > 2003 she had open heart surgery and we finally got to bring her home > on July 22. She is repaired, and we thought the road to the Medical > Center here in Houston was in the past. > > She was diagnosed in April with severe to profound hearing loss, > after many test and 2 different ENT's - we finally found out why she > could not hear. Kaila's cochlea's did not fully develop. I found out > Monday August 16th that she has been referred for cochlear implants. > > She was wearing one hearing aid (a loaner) - when she would leave it > alone. Now the ENT has advised me not to invest in hearing aids yet. > I've done some reading and know that it is very important for her to > hear sounds. (by the way I know she can hear sounds, because I taught > her to say mamamama - and that's about all she says)the hearing aid > we have has a very loud ringing noise and she cries when I put it > into her " good " ear. > I'm not happy with her audiologist, I found out more information from > another parent I spotted at Chuck E Cheese. My insurance does not pay > for hearing aids or hearing test. And we are still trying to pay off > the hospital bills from her heart surgery. > > I would like to know more about cochlear implants before her > appointments, so I can bring up any questions to the doctor. From > what I've read, I really want her to have them - but after everything > she has been through I am a little apprehensive. > > > Mother of Kaila 14 months - severe to profound hearing loss > & Tara 6 yrs old - normal hearing > > > > > > > All messages posted to this list are private and confidential. Each post is the intellectual property of the author and therefore subject to copyright restrictions. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2005 Report Share Posted December 14, 2005 Hi , I'm not an expert by far yet, but I've been reading every hypothyroid book I can get my hands on since September of this year when I found out I was hypothyroid. One thing that caught my attention was that you said you started having these noticeable problems after the birth of your son. From what I recall reading, many women are diagnosed hypothyroid after giving birth, something to do with the hormones fluxuating post-partum. Have you had your Free T4, Free T3, and TSH checked since your son was born? How long ago was that? What is the date and results of your most recent thyroid labs? It's possible that you just need a dosage increase now. If it has been a while since your last blood work, your first step would be to get that done and find out what your body is doing. (stewlis)ville, NC, USA Hi, my name is , and I was diagnosed with Hypothyroidism in May 2001. It really didn't bother me until recently, mostly because I didn't care about losing weight before, but I do now. For months now, I have noticed that not only can I not lose any weight regardless of what I do, but my symptoms do not seem to go away. They don't even decrease. I have started taking a T3 supplement, so maybe that will help. I am so fed up with going to the doctor, explaining what I am dealing with, and being told, " you need to see the nutritionist " I do not eat badly. I have been on an organic diet for two months now, working out 6 days a week, and have seen no benefit from it. Up until I started taking the T3, I wasn't sleeping well at all. I didn't really feel the " pain " of being hypothyroid, I wasn't overweight, wasn't really noticing the symptoms, but then I had my son, and suddenly it was staring me in the face. Any suggestions would be great. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2005 Report Share Posted December 14, 2005 Hi , I'm not an expert by far yet, but I've been reading every hypothyroid book I can get my hands on since September of this year when I found out I was hypothyroid. One thing that caught my attention was that you said you started having these noticeable problems after the birth of your son. From what I recall reading, many women are diagnosed hypothyroid after giving birth, something to do with the hormones fluxuating post-partum. Have you had your Free T4, Free T3, and TSH checked since your son was born? How long ago was that? What is the date and results of your most recent thyroid labs? It's possible that you just need a dosage increase now. If it has been a while since your last blood work, your first step would be to get that done and find out what your body is doing. (stewlis)ville, NC, USA Hi, my name is , and I was diagnosed with Hypothyroidism in May 2001. It really didn't bother me until recently, mostly because I didn't care about losing weight before, but I do now. For months now, I have noticed that not only can I not lose any weight regardless of what I do, but my symptoms do not seem to go away. They don't even decrease. I have started taking a T3 supplement, so maybe that will help. I am so fed up with going to the doctor, explaining what I am dealing with, and being told, " you need to see the nutritionist " I do not eat badly. I have been on an organic diet for two months now, working out 6 days a week, and have seen no benefit from it. Up until I started taking the T3, I wasn't sleeping well at all. I didn't really feel the " pain " of being hypothyroid, I wasn't overweight, wasn't really noticing the symptoms, but then I had my son, and suddenly it was staring me in the face. Any suggestions would be great. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2005 Report Share Posted December 14, 2005 Hi , I'm not an expert by far yet, but I've been reading every hypothyroid book I can get my hands on since September of this year when I found out I was hypothyroid. One thing that caught my attention was that you said you started having these noticeable problems after the birth of your son. From what I recall reading, many women are diagnosed hypothyroid after giving birth, something to do with the hormones fluxuating post-partum. Have you had your Free T4, Free T3, and TSH checked since your son was born? How long ago was that? What is the date and results of your most recent thyroid labs? It's possible that you just need a dosage increase now. If it has been a while since your last blood work, your first step would be to get that done and find out what your body is doing. (stewlis)ville, NC, USA Hi, my name is , and I was diagnosed with Hypothyroidism in May 2001. It really didn't bother me until recently, mostly because I didn't care about losing weight before, but I do now. For months now, I have noticed that not only can I not lose any weight regardless of what I do, but my symptoms do not seem to go away. They don't even decrease. I have started taking a T3 supplement, so maybe that will help. I am so fed up with going to the doctor, explaining what I am dealing with, and being told, " you need to see the nutritionist " I do not eat badly. I have been on an organic diet for two months now, working out 6 days a week, and have seen no benefit from it. Up until I started taking the T3, I wasn't sleeping well at all. I didn't really feel the " pain " of being hypothyroid, I wasn't overweight, wasn't really noticing the symptoms, but then I had my son, and suddenly it was staring me in the face. Any suggestions would be great. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2005 Report Share Posted December 14, 2005 One thing that caught my attention was that you said you started having these noticeable problems after the birth of your son. I became hypo after a miscarraige. I have heard many times it can happen from pregnancy. Carol "-) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2005 Report Share Posted December 14, 2005 I just recently had all of that checked. My son will be three on Friday, and I was actually diagnosed before I got pregnant with him. I would understand where the doctors were coming from if it was only the weight, but the other symptoms are actually worse than the weight. It is so frustrating. I am hoping that these T3 pills will help. Any info on those? > > > > Hi, my name is , and I was diagnosed with Hypothyroidism in > > May 2001. It really didn't bother me until recently, mostly because I > > didn't care about losing weight before, but I do now. For months now, > > I have noticed that not only can I not lose any weight regardless of > > what I do, but my symptoms do not seem to go away. They don't even > > decrease. I have started taking a T3 supplement, so maybe that will > > help. I am so fed up with going to the doctor, explaining what I am > > dealing with, and being told, " you need to see the nutritionist " I do > > not eat badly. I have been on an organic diet for two months now, > > working out 6 days a week, and have seen no benefit from it. Up until > > I started taking the T3, I wasn't sleeping well at all. > > I didn't really feel the " pain " of being hypothyroid, I wasn't > > overweight, wasn't really noticing the symptoms, but then I had my > > son, and suddenly it was staring me in the face. Any suggestions > > would be great. > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2005 Report Share Posted December 14, 2005 I just recently had all of that checked. My son will be three on Friday, and I was actually diagnosed before I got pregnant with him. I would understand where the doctors were coming from if it was only the weight, but the other symptoms are actually worse than the weight. It is so frustrating. I am hoping that these T3 pills will help. Any info on those? > > > > Hi, my name is , and I was diagnosed with Hypothyroidism in > > May 2001. It really didn't bother me until recently, mostly because I > > didn't care about losing weight before, but I do now. For months now, > > I have noticed that not only can I not lose any weight regardless of > > what I do, but my symptoms do not seem to go away. They don't even > > decrease. I have started taking a T3 supplement, so maybe that will > > help. I am so fed up with going to the doctor, explaining what I am > > dealing with, and being told, " you need to see the nutritionist " I do > > not eat badly. I have been on an organic diet for two months now, > > working out 6 days a week, and have seen no benefit from it. Up until > > I started taking the T3, I wasn't sleeping well at all. > > I didn't really feel the " pain " of being hypothyroid, I wasn't > > overweight, wasn't really noticing the symptoms, but then I had my > > son, and suddenly it was staring me in the face. Any suggestions > > would be great. > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2005 Report Share Posted December 14, 2005 I just recently had all of that checked. My son will be three on Friday, and I was actually diagnosed before I got pregnant with him. I would understand where the doctors were coming from if it was only the weight, but the other symptoms are actually worse than the weight. It is so frustrating. I am hoping that these T3 pills will help. Any info on those? > > > > Hi, my name is , and I was diagnosed with Hypothyroidism in > > May 2001. It really didn't bother me until recently, mostly because I > > didn't care about losing weight before, but I do now. For months now, > > I have noticed that not only can I not lose any weight regardless of > > what I do, but my symptoms do not seem to go away. They don't even > > decrease. I have started taking a T3 supplement, so maybe that will > > help. I am so fed up with going to the doctor, explaining what I am > > dealing with, and being told, " you need to see the nutritionist " I do > > not eat badly. I have been on an organic diet for two months now, > > working out 6 days a week, and have seen no benefit from it. Up until > > I started taking the T3, I wasn't sleeping well at all. > > I didn't really feel the " pain " of being hypothyroid, I wasn't > > overweight, wasn't really noticing the symptoms, but then I had my > > son, and suddenly it was staring me in the face. Any suggestions > > would be great. > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2005 Report Share Posted December 14, 2005 It is so frustrating. I am hoping that these T3 pills > will help. Any info on those? > Some thyroid basics.. The thyroid gland mainly produces two hormones, 80% T4 and 20% T3.( these exact numbers vary depending on the source but you get the idea) 95 % of these hormones are considered bound and unusable by the body in that form. T4 is considered the storage hormone. T3 is considered the active hormone that is usable by the body. The body binds and unbinds hormone as needed and converts T4 to T3 as needed by the body. Some people are great converters, you can tell by the labwork for those that have a low T4 and a high T3..although generally they feel good as the T3 is the actual hormone the body uses. Some people are poor converters. you can usually tell by the labwork that shows a high or normal range T4 but a low T3.. When someone is taking a T4 only replacement hormone such as Synthroid they are relying on the body's own ability to convert from T4 to T3 to make the hormone actually usable by the body. By taking a T3 replacement you are skipping this step. It has its disadvantages as your body is getting it as a now dose instead of as a needed dose and this is why some multidose the T3 instead of once a day like T4. It does have its advantage though as your body will recieve the much needed T3 it needs with out having to rely on poor conversion to produce it. Kats3boys Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2005 Report Share Posted December 14, 2005 It is so frustrating. I am hoping that these T3 pills > will help. Any info on those? > Some thyroid basics.. The thyroid gland mainly produces two hormones, 80% T4 and 20% T3.( these exact numbers vary depending on the source but you get the idea) 95 % of these hormones are considered bound and unusable by the body in that form. T4 is considered the storage hormone. T3 is considered the active hormone that is usable by the body. The body binds and unbinds hormone as needed and converts T4 to T3 as needed by the body. Some people are great converters, you can tell by the labwork for those that have a low T4 and a high T3..although generally they feel good as the T3 is the actual hormone the body uses. Some people are poor converters. you can usually tell by the labwork that shows a high or normal range T4 but a low T3.. When someone is taking a T4 only replacement hormone such as Synthroid they are relying on the body's own ability to convert from T4 to T3 to make the hormone actually usable by the body. By taking a T3 replacement you are skipping this step. It has its disadvantages as your body is getting it as a now dose instead of as a needed dose and this is why some multidose the T3 instead of once a day like T4. It does have its advantage though as your body will recieve the much needed T3 it needs with out having to rely on poor conversion to produce it. Kats3boys Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2005 Report Share Posted December 14, 2005 It is so frustrating. I am hoping that these T3 pills > will help. Any info on those? > Some thyroid basics.. The thyroid gland mainly produces two hormones, 80% T4 and 20% T3.( these exact numbers vary depending on the source but you get the idea) 95 % of these hormones are considered bound and unusable by the body in that form. T4 is considered the storage hormone. T3 is considered the active hormone that is usable by the body. The body binds and unbinds hormone as needed and converts T4 to T3 as needed by the body. Some people are great converters, you can tell by the labwork for those that have a low T4 and a high T3..although generally they feel good as the T3 is the actual hormone the body uses. Some people are poor converters. you can usually tell by the labwork that shows a high or normal range T4 but a low T3.. When someone is taking a T4 only replacement hormone such as Synthroid they are relying on the body's own ability to convert from T4 to T3 to make the hormone actually usable by the body. By taking a T3 replacement you are skipping this step. It has its disadvantages as your body is getting it as a now dose instead of as a needed dose and this is why some multidose the T3 instead of once a day like T4. It does have its advantage though as your body will recieve the much needed T3 it needs with out having to rely on poor conversion to produce it. Kats3boys Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2006 Report Share Posted March 30, 2006 Hello Group - I introduced myself to nne, but not to the group. My name is and I'm 48. I'm divorced, but have the loving support of my daughter and boyfriend. I discovered the cancer myself. I had gone for a mammogram and it didn't show up - so they sent me for an ultrasound. From there the sent me to a surgeon who did a biopsy and gave me the bad news. We first tried a lumpectomy, but the cancer had spread to the surrounding tissue. The good news was that my lymph nodes were clear. I had a mastectomy in December combined with reconstrutive surgeon (don't know if I'd do that again). As I joined your list I've been through 2 treatments of chemo and had just shaved my head. Thank you for the care guide you provided. It was like all my questions were answered without even having to ask. I look forward to further shares and what I can see is loving support from this group. Be one of the first to try Windows Live Mail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2006 Report Share Posted March 30, 2006 Hi , Glad you introduced yourself. We have ladies here waiting to find out if the have breast cancer to ladies that are long time survivors. I don't know if I told you but I will be a 16 yr survivor in May. There are ladies farther along than I am. I will keep you in my prayers. Hugs nne Breast Cancer Patients Soul Mates for Lifehttp://www.geocities.com/chucky5741/breastcancerpatients.html Check out my breast cancer ornaments at:http://www.geocities.com/chucky5741/bcornament.htmlalso check out my other ornaments and lots of nice gifts at:http://www.cancerclub.com Introduction Hello Group - I introduced myself to nne, but not to the group. My name is and I'm 48. I'm divorced, but have the loving support of my daughter and boyfriend. I discovered the cancer myself. I had gone for a mammogram and it didn't show up - so they sent me for an ultrasound. From there the sent me to a surgeon who did a biopsy and gave me the bad news. We first tried a lumpectomy, but the cancer had spread to the surrounding tissue. The good news was that my lymph nodes were clear. I had a mastectomy in December combined with reconstrutive surgeon (don't know if I'd do that again). As I joined your list I've been through 2 treatments of chemo and had just shaved my head. Thank you for the care guide you provided. It was like all my questions were answered without even having to ask. I look forward to further shares and what I can see is loving support from this group. Be one of the first to try Windows Live Mail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2006 Report Share Posted March 30, 2006 . Hugs, Trisha -- Introduction Hello Group - I introduced myself to nne, but not to the group. My name is and I'm 48. I'm divorced, but have the loving support of my daughter and boyfriend. I discovered the cancer myself. I had gone for a mammogram and it didn't show up - so they sent me for an ultrasound. From there the sent me to a surgeon who did a biopsy and gave me the bad news. We first tried a lumpectomy, but the cancer had spread to the surrounding tissue. The good news was that my lymph nodes were clear. I had a mastectomy in December combined with reconstrutive surgeon (don't know if I'd do that again). As I joined your list I've been through 2 treatments of chemo and had just shaved my head. Thank you for the care guide you provided. It was like all my questions were answered without even having to ask. I look forward to further shares and what I can see is loving support from this group. Be one of the first to try Windows Live Mail Quote Link to comment Share on other sites More sharing options...
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