Questions

[Guest guest]

Laurie,

That's a good idea. I used to have the handi-snacks with

crackers or pretzels with cheese. Those did help better. I will pick

some up when I am out. Or the already made cheese crackers (although,

ironically enough, some are made with peanut ingredients) :-)

Thanks and smiles,

a

[Guest guest]

a

I know with children, they can put a ring (don't know the material) around

the esophagus to narrow it down. It can cause problems if too tight a ring

or not work if it is too large.

laurie

>

> Reply-To:

> Date: Fri, 25 Jul 2003 08:47:42 -0500

> To:

> Subject: Re: Questions

>

> Ruth, I am not sure what all can be done. When the valve wasn't closing

> all the way, surgery was suggested, but the gastroenterologist said that

> he wouldn't recommend it, as it would be risky on me and it doesn't

> always work. So now, I am not sure where we will go from here. I guess

> we will just pray that the Protonix plus the antacids help! Thanks!

> Smiles,

> a

>

> Hi a, What can be done when the value quits working? Can

> something be done surgically to prevent up flow of acid? Ruth

[Guest guest]

a

I know with children, they can put a ring (don't know the material) around

the esophagus to narrow it down. It can cause problems if too tight a ring

or not work if it is too large.

laurie

>

> Reply-To:

> Date: Fri, 25 Jul 2003 08:47:42 -0500

> To:

> Subject: Re: Questions

>

> Ruth, I am not sure what all can be done. When the valve wasn't closing

> all the way, surgery was suggested, but the gastroenterologist said that

> he wouldn't recommend it, as it would be risky on me and it doesn't

> always work. So now, I am not sure where we will go from here. I guess

> we will just pray that the Protonix plus the antacids help! Thanks!

> Smiles,

> a

>

> Hi a, What can be done when the value quits working? Can

> something be done surgically to prevent up flow of acid? Ruth

[Guest guest]

-Dear a, Acid reflux comes part and parcel with the

gastroparesis. Standard treatment for the latter involves taking a

ppi, like prevacid with a prokinetic drug. Also , avoiding acidic,

spicy food helps and sleeping with the head of the bed elevated. have

a nice day, Celia

> Service.

[Guest guest]

Hi Again a, I meant to say that the prokinetics drugs (like

domperidone) may have a good effect on helping your valve to

tighten up some, Celia

> Hi Ruth,

> Thanks for the message. It does sound familiar. I have

been on

> Prilosec, Previcid and Nexium, over the past seven years. I was

started

> on Protonix today as the others are not helping now that the valve

has

> stopped closing. The sugar problem sounds like mine. I can be high

and

> then crash, but I have never been diagnosed with a sugar problem.

My

> doctor did say I need to get more protein, which I do, but I can't

> eliminate carbs. I am one of the strange birds who does better with

high

> carbs low protein. If I do the opposite, I can barely get out of

bed.

> Thanks and I am glad this works for you!

> Smiles,

> a

>

> Hi a, I have had the problems with the acid and it caused

> incredible burning, nausea, coughing and occasional vomiting. I

have

> been on Prevacid for a couple of years now because of it and it

helps a

> lot. I have had the other problems you mention as a result of

eating

> food high in carbohydrates. I would eat something like what you did

and

> then a few minutes/hours later I get very weak, shaky, and faint.

> Everything around me seemed very unreal. I started to take my blood

> sugar readings on my own as I wasn't diagnosed with a sugar problem

of

> any kind. I would watch my sugar go way up to 210 and then dip way

down

> to 60 in a matter of a few minutes, or hours. Once I eliminated

carbs

> from my diet as much as possible my blood sugar became more stable

and

> balanced out. I stopped having those symptoms. Right now the only

carbs

> I have been getting come from vegetables. I have not had any fruit,

> potatoes, bread, etc. Along with all of this came a reduction in

the

> feeling that I needed to eat all of the time to get rid of the light

> headedness.

> I don't know if any of this is the same as what you are dealing

with, but

> it sure seems similar. Hope you resolve the problems and feel

better

> soon. Cheers,Ruth

[Guest guest]

Hi Again a, I meant to say that the prokinetics drugs (like

domperidone) may have a good effect on helping your valve to

tighten up some, Celia

> Hi Ruth,

> Thanks for the message. It does sound familiar. I have

been on

> Prilosec, Previcid and Nexium, over the past seven years. I was

started

> on Protonix today as the others are not helping now that the valve

has

> stopped closing. The sugar problem sounds like mine. I can be high

and

> then crash, but I have never been diagnosed with a sugar problem.

My

> doctor did say I need to get more protein, which I do, but I can't

> eliminate carbs. I am one of the strange birds who does better with

high

> carbs low protein. If I do the opposite, I can barely get out of

bed.

> Thanks and I am glad this works for you!

> Smiles,

> a

>

> Hi a, I have had the problems with the acid and it caused

> incredible burning, nausea, coughing and occasional vomiting. I

have

> been on Prevacid for a couple of years now because of it and it

helps a

> lot. I have had the other problems you mention as a result of

eating

> food high in carbohydrates. I would eat something like what you did

and

> then a few minutes/hours later I get very weak, shaky, and faint.

> Everything around me seemed very unreal. I started to take my blood

> sugar readings on my own as I wasn't diagnosed with a sugar problem

of

> any kind. I would watch my sugar go way up to 210 and then dip way

down

> to 60 in a matter of a few minutes, or hours. Once I eliminated

carbs

> from my diet as much as possible my blood sugar became more stable

and

> balanced out. I stopped having those symptoms. Right now the only

carbs

> I have been getting come from vegetables. I have not had any fruit,

> potatoes, bread, etc. Along with all of this came a reduction in

the

> feeling that I needed to eat all of the time to get rid of the light

> headedness.

> I don't know if any of this is the same as what you are dealing

with, but

> it sure seems similar. Hope you resolve the problems and feel

better

> soon. Cheers,Ruth

[Guest guest]

a,

Other than eating smaller more frequent meals, I'm not sure that

anything could be done. I know you said that protien makes you feel

worse. I wonder if it is really the protien or because your body needs

to use more energy to break down the protien than it does the carbs.

Maybe you could try a protien powder that could be added to water or

juice and see if getting some protien that way was any better. It

shouldn't take as much energy to break that down as meat, etc. Just

thinking out load here.

a C Koch wrote:

,

You are right, we do! I wish I could get my doctor to

listen though! Is there anything that can be done, if he would

listen? I am quite naive in this area as you can tell! :-)

Smiles,

a

It stands to reason that if we are energy deficient to begin

with, that low values for some are REALLY low values for us. We need a

mito glucose scale.

Medical advice, information, opinions, data and statements contained

herein are not necessarily those of the list moderators. The author of

this e mail is entirely responsible for its content. List members are

reminded of their responsibility to evaluate the content of the

postings and consult with their physicians regarding changes in their

own treatment.

[Guest guest]

,

Thanks for the hugs. I do know I am dehydrated, and have thought about IV, but have no doctor who would suggest it and really don't know how to bring it up.

My blood sugar was definitely low that day, I usually do really well on carbs, and not well on protein. If I had yogurt, I would be lightheaded within the hour. I know I am backwards of most people with that!

Smiles,

a

I agree with the person who suggested it may be the dehydration that iscausing the lightheadedness. Maybe you need to be hooked up to an iv for awhile each day for a few days? This could be done at home, with proper homehealth type orders, so you could just do it at night, and for a while in theafternoon say, until your valve starts doing better?Another possibility is blood sugar. I know that if I just had a muffin andgrapes for breakfast, that much earlier in the day especially, I would befeeling weak and shaky by the time you did! I have to eat fewer carbs, andmore protein or I get shaky way too frequently. give me a serving of plainyogurt and protein powder mixed together, and I can last for hours, butnothing but carbs, and I sink fast!HUGS sounds like lately has been the real pits!

[Guest guest]

a,,

Thanks for the idea of the protein powder. I never thought of it taking more energy to break down the protein, but thinking back, that could be it. Thanks for all your help!

Smiles,

a

Other than eating smaller more frequent meals, I'm not sure that anything could be done. I know you said that protien makes you feel worse. I wonder if it is really the protien or because your body needs to use more energy to break down the protien than it does the carbs. Maybe you could try a protien powder that could be added to water or juice and see if getting some protien that way was any better. It shouldn't take as much energy to break that down as meat, etc. Just thinking out load here.

[Guest guest]

Thanks Celia!

Smiles,a

Dear a, i do agree that protein has more stayng power, but I think with the Gp it is harder to digest thus increasing the nausea, discomfort etc. I mix apple sauce with plain(low fat) yogurt and find that a fairly good blood sugar booster!, Celia--- In

[Guest guest]

a,

I am backwards also in that if I have only yogurt or cheese or salad I get lightheaded much sooner than with carbs.

My favorite lunch is a baked potato--skin and all. Everyone at work laughed at me but it worked for me to loose a little extra weight and my gp said it may have helped with my leg cramps. There is a lot of potassium. I also eat bananas a lot. Of course, I lod on the sour cream but use the light kind so I guess that is better than butter. I also use cucumber flavored or ranch salad dressing.

Since I have not been working and getting my baked potato from 's, Arby's or Burger King I am having cramps again. The bananas themselves are not helping.

Of course, I do have potatoes here I could and should microwave or bake myself.

Hope you figure out something that will help you.

Janet Sample

Re: Questions

,

Thanks for the hugs. I do know I am dehydrated, and have thought about IV, but have no doctor who would suggest it and really don't know how to bring it up.

My blood sugar was definitely low that day, I usually do really well on carbs, and not well on protein. If I had yogurt, I would be lightheaded within the hour. I know I am backwards of most people with that!

Smiles,

a

I agree with the person who suggested it may be the dehydration that iscausing the lightheadedness. Maybe you need to be hooked up to an iv for awhile each day for a few days? This could be done at home, with proper homehealth type orders, so you could just do it at night, and for a while in theafternoon say, until your valve starts doing better?Another possibility is blood sugar. I know that if I just had a muffin andgrapes for breakfast, that much earlier in the day especially, I would befeeling weak and shaky by the time you did! I have to eat fewer carbs, andmore protein or I get shaky way too frequently. give me a serving of plainyogurt and protein powder mixed together, and I can last for hours, butnothing but carbs, and I sink fast!HUGS sounds like lately has been the real pits!

Medical advice, information, opinions, data and statements contained herein are not necessarily those of the list moderators. The author of this e mail is entirely responsible for its content. List members are reminded of their responsibility to evaluate the content of the postings and consult with their physicians regarding changes in their own treatment.

[Guest guest]

a,

I am backwards also in that if I have only yogurt or cheese or salad I get lightheaded much sooner than with carbs.

My favorite lunch is a baked potato--skin and all. Everyone at work laughed at me but it worked for me to loose a little extra weight and my gp said it may have helped with my leg cramps. There is a lot of potassium. I also eat bananas a lot. Of course, I lod on the sour cream but use the light kind so I guess that is better than butter. I also use cucumber flavored or ranch salad dressing.

Since I have not been working and getting my baked potato from 's, Arby's or Burger King I am having cramps again. The bananas themselves are not helping.

Of course, I do have potatoes here I could and should microwave or bake myself.

Hope you figure out something that will help you.

Janet Sample

Re: Questions

,

Thanks for the hugs. I do know I am dehydrated, and have thought about IV, but have no doctor who would suggest it and really don't know how to bring it up.

My blood sugar was definitely low that day, I usually do really well on carbs, and not well on protein. If I had yogurt, I would be lightheaded within the hour. I know I am backwards of most people with that!

Smiles,

a

I agree with the person who suggested it may be the dehydration that iscausing the lightheadedness. Maybe you need to be hooked up to an iv for awhile each day for a few days? This could be done at home, with proper homehealth type orders, so you could just do it at night, and for a while in theafternoon say, until your valve starts doing better?Another possibility is blood sugar. I know that if I just had a muffin andgrapes for breakfast, that much earlier in the day especially, I would befeeling weak and shaky by the time you did! I have to eat fewer carbs, andmore protein or I get shaky way too frequently. give me a serving of plainyogurt and protein powder mixed together, and I can last for hours, butnothing but carbs, and I sink fast!HUGS sounds like lately has been the real pits!

Medical advice, information, opinions, data and statements contained herein are not necessarily those of the list moderators. The author of this e mail is entirely responsible for its content. List members are reminded of their responsibility to evaluate the content of the postings and consult with their physicians regarding changes in their own treatment.

[Guest guest]

Janet,

It is nice to know I have this in common with others, although I wish you didn't have to go through it either. I am also a baked potato fan, skin and all. If I have a baked potato, I have long lasting energy. I usually do melt cheese and put in on, which, I know, I probably could do without, but it is better that

way :-) I have problems with low potassium, so the baked potato really help with that. Since I have started eating more potatoes and bananas, I was able to go off of my potassium pills. If I miss two days of one of the foods though, my potassium drops. It also helps me with the leg cramps. We have a lot in common!

Smiles,

a

a,

I am backwards also in that if I have only yogurt or cheese or salad I get lightheaded much sooner than with carbs.

My favorite lunch is a baked potato--skin and all. Everyone at work laughed at me but it worked for me to loose a little extra weight and my gp said it may have helped with my leg cramps. There is a lot of potassium. I also eat bananas a lot. Of course, I lod on the sour cream but use the light kind so I guess that is better than butter. I also use cucumber flavored or ranch salad dressing.

Since I have not been working and getting my baked potato from 's, Arby's or Burger King I am having cramps again. The bananas themselves are not helping.

Of course, I do have potatoes here I could and should microwave or bake myself.

Hope you figure out something that will help you.

Janet Sample

[Guest guest]

Janet,

It is nice to know I have this in common with others, although I wish you didn't have to go through it either. I am also a baked potato fan, skin and all. If I have a baked potato, I have long lasting energy. I usually do melt cheese and put in on, which, I know, I probably could do without, but it is better that

way :-) I have problems with low potassium, so the baked potato really help with that. Since I have started eating more potatoes and bananas, I was able to go off of my potassium pills. If I miss two days of one of the foods though, my potassium drops. It also helps me with the leg cramps. We have a lot in common!

Smiles,

a

a,

I am backwards also in that if I have only yogurt or cheese or salad I get lightheaded much sooner than with carbs.

My favorite lunch is a baked potato--skin and all. Everyone at work laughed at me but it worked for me to loose a little extra weight and my gp said it may have helped with my leg cramps. There is a lot of potassium. I also eat bananas a lot. Of course, I lod on the sour cream but use the light kind so I guess that is better than butter. I also use cucumber flavored or ranch salad dressing.

Since I have not been working and getting my baked potato from 's, Arby's or Burger King I am having cramps again. The bananas themselves are not helping.

Of course, I do have potatoes here I could and should microwave or bake myself.

Hope you figure out something that will help you.

Janet Sample

[Guest guest]

Dear janet, i have to admit that baked potato is on e of my best and

most enjoyed foods also, Celia--

In , " Janet Sample " <thesamples@h...>

wrote:

> a,

>

> I am backwards also in that if I have only yogurt or cheese or salad

I get lightheaded much sooner than with carbs.

>

> My favorite lunch is a baked potato--skin and all. Everyone at work

laughed at me but it worked for me to loose a little extra weight and

my gp said it may have helped with my leg cramps. There is a lot of

potassium. I also eat bananas a lot. Of course, I lod on the sour

cream but use the light kind so I guess that is better than butter. I

also use cucumber flavored or ranch salad dressing.

>

> Since I have not been working and getting my baked potato from

's, Arby's or Burger King I am having cramps again. The bananas

themselves are not helping.

>

> Of course, I do have potatoes here I could and should microwave or

bake myself.

>

> Hope you figure out something that will help you.

>

> Janet Sample

> Re: Questions

>

>

> ,

> Thanks for the hugs. I do know I am dehydrated, and have

thought about IV, but have no doctor who would suggest it and really

don't know how to bring it up.

> My blood sugar was definitely low that day, I usually do

really well on carbs, and not well on protein. If I had yogurt, I

would be lightheaded within the hour. I know I am backwards of most

people with that!

>

> Smiles,

> a

>

> I agree with the person who suggested it may be the dehydration

that is

> causing the lightheadedness. Maybe you need to be hooked up to

an iv for a

> while each day for a few days? This could be done at home, with

proper home

> health type orders, so you could just do it at night, and for a

while in the

> afternoon say, until your valve starts doing better?

>

> Another possibility is blood sugar. I know that if I just had a

muffin and

> grapes for breakfast, that much earlier in the day especially, I

would be

> feeling weak and shaky by the time you did! I have to eat fewer

carbs, and

> more protein or I get shaky way too frequently. give me a serving

of plain

> yogurt and protein powder mixed together, and I can last for

hours, but

> nothing but carbs, and I sink fast!

>

> HUGS sounds like lately has been the real pits!

>

>

>

>

>

>

[Guest guest]

Wonderful,this is what we had asked about here at home, one time they had

lowered the doseage(weight loss) and administered it over a longer period via

the pump. So glad to hear your Bert is responding. Hugs and prayers Nick &

Jane

[Guest guest]

Wonderful,this is what we had asked about here at home, one time they had

lowered the doseage(weight loss) and administered it over a longer period via

the pump. So glad to hear your Bert is responding. Hugs and prayers Nick &

Jane

[Guest guest]

Thanks to Ed and . I'm stumbling in the dark and appreciate the

help.

Sharon

> Hi Sharon,

> Here's the list of major cancer centers again:

> http://www3.cancer.gov/cancercenters/centerslist.html#L10

>

> From this list, Duke Comprehensive Cancer Center telephone no.

> is: 919/684-5613

>

> I don't think you will need a referral, and if you call them I

> think they will answer all your questions. Hope this helps

>

> Best Regards,

> Ed

[Guest guest]

Thanks to Ed and . I'm stumbling in the dark and appreciate the

help.

Sharon

> Hi Sharon,

> Here's the list of major cancer centers again:

> http://www3.cancer.gov/cancercenters/centerslist.html#L10

>

> From this list, Duke Comprehensive Cancer Center telephone no.

> is: 919/684-5613

>

> I don't think you will need a referral, and if you call them I

> think they will answer all your questions. Hope this helps

>

> Best Regards,

> Ed

[Guest guest]

Hello Cliff,

I'm a Cliff also. I was Dx'd with rectal cancer 2 years ago, T2N0

(0/42nodes)M0. I presently have no evidence of disease. I was told

that the 5 year survival rate for my tumor type was 85-90%. The

bottom line is that at the early stages, Chemo is unnecessary and

surgery is the much preferred option that will most of the

time " cure " the disease.

No, surgery is not a picnic. It hurts, but not near as much as bone

surgery. Yes, your abdomen is weak if they open you up but then

again, I learned to compensate by using the oblique muscles (in the

side of the abdomen) to sit up. I'd just roll onto my side an push

myself up.

I had radiation/chemo for ~6 weeks as a just in case. The radiation

caused me more problems that required surgery to fix (small bowel

radiation enteritis). If it had not been for that, I would have been

home free much earlier.

I guess my point is that surgery has a high likelyhood of cure if the

tumor is in the early stages. Look around and you might be able to

find a surgeon to do the tumor removal laproscopically. That surgery

is easier to recover from (I had a hernia repair that way).

It is my impression that chemo is only curative on tumors about half

the time. I'd take the odds of surgery. I've seen what incurable

cancer can do to a person and I wouldn't recommend anyone

experiencing it.

By all means, do the dietary changes but research things until you

are convinced you are correct. As Davy Crockett said, " Be sure

you're right, then go ahead! " .

Good luck to you and remember, miracles happen!

Cliff H.

> Thanks to all for their advice and support. I should have asked my

> questions seperately from the body of my email. It probably is

better

> to ask them one at a time, too. Number one: Is chemo ever given in

> place of surgery? I am an early stage cancer.

>

> Cliff

[Guest guest]

Hello Cliff,

I'm a Cliff also. I was Dx'd with rectal cancer 2 years ago, T2N0

(0/42nodes)M0. I presently have no evidence of disease. I was told

that the 5 year survival rate for my tumor type was 85-90%. The

bottom line is that at the early stages, Chemo is unnecessary and

surgery is the much preferred option that will most of the

time " cure " the disease.

No, surgery is not a picnic. It hurts, but not near as much as bone

surgery. Yes, your abdomen is weak if they open you up but then

again, I learned to compensate by using the oblique muscles (in the

side of the abdomen) to sit up. I'd just roll onto my side an push

myself up.

I had radiation/chemo for ~6 weeks as a just in case. The radiation

caused me more problems that required surgery to fix (small bowel

radiation enteritis). If it had not been for that, I would have been

home free much earlier.

I guess my point is that surgery has a high likelyhood of cure if the

tumor is in the early stages. Look around and you might be able to

find a surgeon to do the tumor removal laproscopically. That surgery

is easier to recover from (I had a hernia repair that way).

It is my impression that chemo is only curative on tumors about half

the time. I'd take the odds of surgery. I've seen what incurable

cancer can do to a person and I wouldn't recommend anyone

experiencing it.

By all means, do the dietary changes but research things until you

are convinced you are correct. As Davy Crockett said, " Be sure

you're right, then go ahead! " .

Good luck to you and remember, miracles happen!

Cliff H.

> Thanks to all for their advice and support. I should have asked my

> questions seperately from the body of my email. It probably is

better

> to ask them one at a time, too. Number one: Is chemo ever given in

> place of surgery? I am an early stage cancer.

>

> Cliff

[Guest guest]

Hello Cliff,

I'm a Cliff also. I was Dx'd with rectal cancer 2 years ago, T2N0

(0/42nodes)M0. I presently have no evidence of disease. I was told

that the 5 year survival rate for my tumor type was 85-90%. The

bottom line is that at the early stages, Chemo is unnecessary and

surgery is the much preferred option that will most of the

time " cure " the disease.

No, surgery is not a picnic. It hurts, but not near as much as bone

surgery. Yes, your abdomen is weak if they open you up but then

again, I learned to compensate by using the oblique muscles (in the

side of the abdomen) to sit up. I'd just roll onto my side an push

myself up.

I had radiation/chemo for ~6 weeks as a just in case. The radiation

caused me more problems that required surgery to fix (small bowel

radiation enteritis). If it had not been for that, I would have been

home free much earlier.

I guess my point is that surgery has a high likelyhood of cure if the

tumor is in the early stages. Look around and you might be able to

find a surgeon to do the tumor removal laproscopically. That surgery

is easier to recover from (I had a hernia repair that way).

It is my impression that chemo is only curative on tumors about half

the time. I'd take the odds of surgery. I've seen what incurable

cancer can do to a person and I wouldn't recommend anyone

experiencing it.

By all means, do the dietary changes but research things until you

are convinced you are correct. As Davy Crockett said, " Be sure

you're right, then go ahead! " .

Good luck to you and remember, miracles happen!

Cliff H.

> Thanks to all for their advice and support. I should have asked my

> questions seperately from the body of my email. It probably is

better

> to ask them one at a time, too. Number one: Is chemo ever given in

> place of surgery? I am an early stage cancer.

>

> Cliff