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Hi all, it's me, . I have been away too long! I miss this group

very much. But, I am still working a demanding job from home and being

a Mom so I can't get as involved as I used to. I still read your posts.

But I must admit, I can't keep up there are so many new members! I wish

you all success in your journeys with this fight. There are many of us

(including me) who were given very bad prognoses and then went on to

have a healthy child. So hang in there. If there is any advice I could

give, is to go to an A list doc if you have moderate to severe

Ashermans. And joining this group is the best thing you ever did.

There is no better way to learn about this affliction and its treatment

and to find hope. This group was always so good to give me hope

throughout all the disappointments I had in almost 2 years of this

struggle.

After my first very poor prognosis, I switched to Dr. Indman and I owe

my daughter to him. And guess what this wonderful man just did? He

sent me flowers for my Birthday! He wanted to thank me (can you believe

this?) for all the wonderful Ashermans patients I have sent his way.

All I can think of is how will I thank him and then he goes and sends me

flowers. Imagine! What a wonderful man!

Corinna, it was wonderful to talk to you by phone the other day. You

truly are an ambassador for Europe. I am awaiting to hear of Lesia's

appointment. I hope it went better then anticipated.

Indman's video. Well now that I have an excuse to call Dr. Indman to

thank him for the flowers, I will ask him about the video he had taken

during my surgery.

Everyone, I feel all your disappointments and your fear and I feel all

your joy when the miracles happen. I am still here...I just read

rather then engage right now. I would love to get back into helping,

but I simply can't right now. Take care and I wish you all good luck

and strength from the deepest part of my heart.

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Hi all, it's me, . I have been away too long! I miss this group

very much. But, I am still working a demanding job from home and being

a Mom so I can't get as involved as I used to. I still read your posts.

But I must admit, I can't keep up there are so many new members! I wish

you all success in your journeys with this fight. There are many of us

(including me) who were given very bad prognoses and then went on to

have a healthy child. So hang in there. If there is any advice I could

give, is to go to an A list doc if you have moderate to severe

Ashermans. And joining this group is the best thing you ever did.

There is no better way to learn about this affliction and its treatment

and to find hope. This group was always so good to give me hope

throughout all the disappointments I had in almost 2 years of this

struggle.

After my first very poor prognosis, I switched to Dr. Indman and I owe

my daughter to him. And guess what this wonderful man just did? He

sent me flowers for my Birthday! He wanted to thank me (can you believe

this?) for all the wonderful Ashermans patients I have sent his way.

All I can think of is how will I thank him and then he goes and sends me

flowers. Imagine! What a wonderful man!

Corinna, it was wonderful to talk to you by phone the other day. You

truly are an ambassador for Europe. I am awaiting to hear of Lesia's

appointment. I hope it went better then anticipated.

Indman's video. Well now that I have an excuse to call Dr. Indman to

thank him for the flowers, I will ask him about the video he had taken

during my surgery.

Everyone, I feel all your disappointments and your fear and I feel all

your joy when the miracles happen. I am still here...I just read

rather then engage right now. I would love to get back into helping,

but I simply can't right now. Take care and I wish you all good luck

and strength from the deepest part of my heart.

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Hi all, it's me, . I have been away too long! I miss this group

very much. But, I am still working a demanding job from home and being

a Mom so I can't get as involved as I used to. I still read your posts.

But I must admit, I can't keep up there are so many new members! I wish

you all success in your journeys with this fight. There are many of us

(including me) who were given very bad prognoses and then went on to

have a healthy child. So hang in there. If there is any advice I could

give, is to go to an A list doc if you have moderate to severe

Ashermans. And joining this group is the best thing you ever did.

There is no better way to learn about this affliction and its treatment

and to find hope. This group was always so good to give me hope

throughout all the disappointments I had in almost 2 years of this

struggle.

After my first very poor prognosis, I switched to Dr. Indman and I owe

my daughter to him. And guess what this wonderful man just did? He

sent me flowers for my Birthday! He wanted to thank me (can you believe

this?) for all the wonderful Ashermans patients I have sent his way.

All I can think of is how will I thank him and then he goes and sends me

flowers. Imagine! What a wonderful man!

Corinna, it was wonderful to talk to you by phone the other day. You

truly are an ambassador for Europe. I am awaiting to hear of Lesia's

appointment. I hope it went better then anticipated.

Indman's video. Well now that I have an excuse to call Dr. Indman to

thank him for the flowers, I will ask him about the video he had taken

during my surgery.

Everyone, I feel all your disappointments and your fear and I feel all

your joy when the miracles happen. I am still here...I just read

rather then engage right now. I would love to get back into helping,

but I simply can't right now. Take care and I wish you all good luck

and strength from the deepest part of my heart.

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Hi Steph,

Welcome to the group! The pain that you are having sounds like a

salivary gland. When I had this problem after my RAI, I used warm compresses

(I actually went between the hot water bottle and the heating pad), but you

could also use warm washclothes and massage it gently to get the glands to

open. I hope this helps! Good luck to you and stick with this group! They

are WONDERFUL people and they are very helpful in any way they can!!

Take care,

land

*Currently waiting for thyrogen to get to Endo's office to begin the LID and

go for my first WBS

*Pathology report for biopsy that was done on knee--benign!!! YEAH!!

*Thyroid Ultrasound (June 01) 6 nodules found; 3 on right and 3 on left

*Uptake Scan (end June 01) nodules found to be solid

*FNB (October 01) suspicious for cancer

*TT (Dec 01) papillary cancer, spreading to lymph nodes in neck and muscle

*RAI (Jan 02)

*Levoxyl-175mcg (Mon.-Friday); 200 mcg (Sat. & Sun.)

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Hi Steph,

Welcome to the group! The pain that you are having sounds like a

salivary gland. When I had this problem after my RAI, I used warm compresses

(I actually went between the hot water bottle and the heating pad), but you

could also use warm washclothes and massage it gently to get the glands to

open. I hope this helps! Good luck to you and stick with this group! They

are WONDERFUL people and they are very helpful in any way they can!!

Take care,

land

*Currently waiting for thyrogen to get to Endo's office to begin the LID and

go for my first WBS

*Pathology report for biopsy that was done on knee--benign!!! YEAH!!

*Thyroid Ultrasound (June 01) 6 nodules found; 3 on right and 3 on left

*Uptake Scan (end June 01) nodules found to be solid

*FNB (October 01) suspicious for cancer

*TT (Dec 01) papillary cancer, spreading to lymph nodes in neck and muscle

*RAI (Jan 02)

*Levoxyl-175mcg (Mon.-Friday); 200 mcg (Sat. & Sun.)

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Guest guest

Hi Steph,

Welcome to the group! The pain that you are having sounds like a

salivary gland. When I had this problem after my RAI, I used warm compresses

(I actually went between the hot water bottle and the heating pad), but you

could also use warm washclothes and massage it gently to get the glands to

open. I hope this helps! Good luck to you and stick with this group! They

are WONDERFUL people and they are very helpful in any way they can!!

Take care,

land

*Currently waiting for thyrogen to get to Endo's office to begin the LID and

go for my first WBS

*Pathology report for biopsy that was done on knee--benign!!! YEAH!!

*Thyroid Ultrasound (June 01) 6 nodules found; 3 on right and 3 on left

*Uptake Scan (end June 01) nodules found to be solid

*FNB (October 01) suspicious for cancer

*TT (Dec 01) papillary cancer, spreading to lymph nodes in neck and muscle

*RAI (Jan 02)

*Levoxyl-175mcg (Mon.-Friday); 200 mcg (Sat. & Sun.)

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> Hello everyone, I am new here. Also new w/ thyroid cancer. I

> have a quick question, I had RAI on 12-17-02, and now for the past 3

> days I have this pain just under my jawbone, in my throat. It is

> very painful!!! I believe that it may be a salivary gland....any

> thoughts?

>

> Steph

Hi, Steph - and welcome!

Sounds like it may be salivary gland problems. Definitely no fun :-(

Here are some links to posts that may be of help:

salivary gland solutions (includes link to members' suggestions)

http://groups.yahoo.com/group/Thyca/message/16624

Nick's collection of doctors' letters

http://groups.yahoo.com/group/Thyca/message/13119

Sharon's doctor's suggestions

http://groups.yahoo.com/group/Thyca/message/17961

's plan of action to ease her salivary gland woes

http://groups.yahoo.com/group/Thyca/message/21389

Cheers,

Alisa

Currently - 140mcg Levoxyl

2/15/2002: Nodule found 2/27/2002: FNA

3/4/2002: Hysterectomy/oopherectomy-possible ovarian cancer - BENIGN!!

4/9/2002: TT - Stage 2 pap 2.5 x 2 x 1.6 cm nodule, dx Hashimotos

5/28/2002: WBS (2 mCi) and 100 mCi RAI --- 6/6/2002: WBS - No mets

12/16/02: WBS (5 mCi): clean scan - no thyroid tissue in body!!!

Age: 49 -- Location: near Seattle WA --- Check out my posts:

Radioactive Girl - http://groups.yahoo.com/group/Thyca/message/19472

My LID - http://groups.yahoo.com/group/Thyca/message/15872

My RAI - http://groups.yahoo.com/group/Thyca/message/15873

LID thoughts, tips, ideas -

http://groups.yahoo.com/group/Thyca/message/25430

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> Hello everyone, I am new here. Also new w/ thyroid cancer. I

> have a quick question, I had RAI on 12-17-02, and now for the past 3

> days I have this pain just under my jawbone, in my throat. It is

> very painful!!! I believe that it may be a salivary gland....any

> thoughts?

>

> Steph

Hi, Steph - and welcome!

Sounds like it may be salivary gland problems. Definitely no fun :-(

Here are some links to posts that may be of help:

salivary gland solutions (includes link to members' suggestions)

http://groups.yahoo.com/group/Thyca/message/16624

Nick's collection of doctors' letters

http://groups.yahoo.com/group/Thyca/message/13119

Sharon's doctor's suggestions

http://groups.yahoo.com/group/Thyca/message/17961

's plan of action to ease her salivary gland woes

http://groups.yahoo.com/group/Thyca/message/21389

Cheers,

Alisa

Currently - 140mcg Levoxyl

2/15/2002: Nodule found 2/27/2002: FNA

3/4/2002: Hysterectomy/oopherectomy-possible ovarian cancer - BENIGN!!

4/9/2002: TT - Stage 2 pap 2.5 x 2 x 1.6 cm nodule, dx Hashimotos

5/28/2002: WBS (2 mCi) and 100 mCi RAI --- 6/6/2002: WBS - No mets

12/16/02: WBS (5 mCi): clean scan - no thyroid tissue in body!!!

Age: 49 -- Location: near Seattle WA --- Check out my posts:

Radioactive Girl - http://groups.yahoo.com/group/Thyca/message/19472

My LID - http://groups.yahoo.com/group/Thyca/message/15872

My RAI - http://groups.yahoo.com/group/Thyca/message/15873

LID thoughts, tips, ideas -

http://groups.yahoo.com/group/Thyca/message/25430

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> Hi Ladies,

>

> I just joined this post today after hearing of it on another site.

> I'm a 24 year old female and am actually at home recovering from

> laparascopy for endometriosis right now. I wanted to reach out for

> some input from some who are perhaps more experienced in this area

> than I. I went to my doctor this summer for pelvic pain. I'll

spare

> you the long boring details but after tons of tests, both GI and

> female related it was determined likely endoemtriosis, and also

> during all the testing a septate uterus was found. That was not

the

> reason for the pain, as I'm told that a septate in itself would not

> cause any pain.

Hello Keli,

Glad you found us.

Actually, a septum can be a cause for menstrual pain. And since

there is a correlation between müllerian anomalies and endometriosis,

the septum might possibly contribute to the endo. Some theories

about retrograde menstruation hold up fairly well, and septa tend to

cause menstrual blood to back up into the tubes more so than in an

open uterus.

>So anyways, just this past week I had surgery to

> remove the endometriosis. My doctor debated with the idea to

remove

> the septate at the time as well. However, I am not currently

trying

> to get pregnant, nor have I ever before, and since we don't know

that

> septum will automatically be a problem for me, he decided that for

> now it was probably in my best interest to leave it alone.

You can't go wrong leaving well enough alone, especially since you do

not want to TTC for now.

How long is your septum, by the way? The ones that come all the way

down the uterus cause the most trouble, including losses later in

pregnancy, or prematurity. Shorter septa tend not to cause as much

loss. Aside from their association with increased incidence of early

miscarriage, septa do not cause infertility per se, but they do have

the poorest pregnancy outcome compared to other uterine anomalies.

The consensus seems to be that it is better to get a septum out of

the way if it is large, or if infertility treatments also need to be

done, to minimize the risk of loss.

And if you get the septum taken care of now, you'll have the

recuperation and follow-up testing (and repeat resection, if

necessary) out of the way ahead of time. Believe me, it is crazy-

making to have to wait before getting the green light :-)

Just trying to give you a pro to go along with the con.

> He sought

> the advice of many reproductive specialists in this area and nobody

> seemed to really have a 100% sure answer as to what the right thing

> was to do.

No one will ever have an absolutely certain answer. My own decision

was made for me because I had multiple losses and a full-length

septum (and other infertility factors). Took me four years to get

our baby boy. Started TTC when I was 33 and will be 40 before I can

try for a second baby--if my FSH level isn't shot by then.

> It seems that my chances are slightly

> above 50% right now, and if they would have removed it now there

was

> always the risk of further damage. Just wondering if anyone out

> there has had any situation similiar and could offer me some

> insight. I think I'm just wanting reassurance that I did the right

> thing for the time being. Thanks to all!

Let me just say that risk of decreasing fertility by having a septum

out is minimal.

Sorry I can't reassure you more. I personally would choose to have

the septum out (unless it was tiny) and TTC right now while fertility

was high and endometriosis has not had a chance to progress. I

should also say that my mother and her three sisters all had endo and

only my mother was blessed with normal fertility. The other three

had extreme difficulty.

Hope you get plenty of opinions here and much comfort and good

information.

Beth

SU, resected x 2

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> Hi Ladies,

>

> I just joined this post today after hearing of it on another site.

> I'm a 24 year old female and am actually at home recovering from

> laparascopy for endometriosis right now. I wanted to reach out for

> some input from some who are perhaps more experienced in this area

> than I. I went to my doctor this summer for pelvic pain. I'll

spare

> you the long boring details but after tons of tests, both GI and

> female related it was determined likely endoemtriosis, and also

> during all the testing a septate uterus was found. That was not

the

> reason for the pain, as I'm told that a septate in itself would not

> cause any pain.

Hello Keli,

Glad you found us.

Actually, a septum can be a cause for menstrual pain. And since

there is a correlation between müllerian anomalies and endometriosis,

the septum might possibly contribute to the endo. Some theories

about retrograde menstruation hold up fairly well, and septa tend to

cause menstrual blood to back up into the tubes more so than in an

open uterus.

>So anyways, just this past week I had surgery to

> remove the endometriosis. My doctor debated with the idea to

remove

> the septate at the time as well. However, I am not currently

trying

> to get pregnant, nor have I ever before, and since we don't know

that

> septum will automatically be a problem for me, he decided that for

> now it was probably in my best interest to leave it alone.

You can't go wrong leaving well enough alone, especially since you do

not want to TTC for now.

How long is your septum, by the way? The ones that come all the way

down the uterus cause the most trouble, including losses later in

pregnancy, or prematurity. Shorter septa tend not to cause as much

loss. Aside from their association with increased incidence of early

miscarriage, septa do not cause infertility per se, but they do have

the poorest pregnancy outcome compared to other uterine anomalies.

The consensus seems to be that it is better to get a septum out of

the way if it is large, or if infertility treatments also need to be

done, to minimize the risk of loss.

And if you get the septum taken care of now, you'll have the

recuperation and follow-up testing (and repeat resection, if

necessary) out of the way ahead of time. Believe me, it is crazy-

making to have to wait before getting the green light :-)

Just trying to give you a pro to go along with the con.

> He sought

> the advice of many reproductive specialists in this area and nobody

> seemed to really have a 100% sure answer as to what the right thing

> was to do.

No one will ever have an absolutely certain answer. My own decision

was made for me because I had multiple losses and a full-length

septum (and other infertility factors). Took me four years to get

our baby boy. Started TTC when I was 33 and will be 40 before I can

try for a second baby--if my FSH level isn't shot by then.

> It seems that my chances are slightly

> above 50% right now, and if they would have removed it now there

was

> always the risk of further damage. Just wondering if anyone out

> there has had any situation similiar and could offer me some

> insight. I think I'm just wanting reassurance that I did the right

> thing for the time being. Thanks to all!

Let me just say that risk of decreasing fertility by having a septum

out is minimal.

Sorry I can't reassure you more. I personally would choose to have

the septum out (unless it was tiny) and TTC right now while fertility

was high and endometriosis has not had a chance to progress. I

should also say that my mother and her three sisters all had endo and

only my mother was blessed with normal fertility. The other three

had extreme difficulty.

Hope you get plenty of opinions here and much comfort and good

information.

Beth

SU, resected x 2

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> Hi Ladies,

>

> I just joined this post today after hearing of it on another site.

> I'm a 24 year old female and am actually at home recovering from

> laparascopy for endometriosis right now. I wanted to reach out for

> some input from some who are perhaps more experienced in this area

> than I. I went to my doctor this summer for pelvic pain. I'll

spare

> you the long boring details but after tons of tests, both GI and

> female related it was determined likely endoemtriosis, and also

> during all the testing a septate uterus was found. That was not

the

> reason for the pain, as I'm told that a septate in itself would not

> cause any pain.

Hello Keli,

Glad you found us.

Actually, a septum can be a cause for menstrual pain. And since

there is a correlation between müllerian anomalies and endometriosis,

the septum might possibly contribute to the endo. Some theories

about retrograde menstruation hold up fairly well, and septa tend to

cause menstrual blood to back up into the tubes more so than in an

open uterus.

>So anyways, just this past week I had surgery to

> remove the endometriosis. My doctor debated with the idea to

remove

> the septate at the time as well. However, I am not currently

trying

> to get pregnant, nor have I ever before, and since we don't know

that

> septum will automatically be a problem for me, he decided that for

> now it was probably in my best interest to leave it alone.

You can't go wrong leaving well enough alone, especially since you do

not want to TTC for now.

How long is your septum, by the way? The ones that come all the way

down the uterus cause the most trouble, including losses later in

pregnancy, or prematurity. Shorter septa tend not to cause as much

loss. Aside from their association with increased incidence of early

miscarriage, septa do not cause infertility per se, but they do have

the poorest pregnancy outcome compared to other uterine anomalies.

The consensus seems to be that it is better to get a septum out of

the way if it is large, or if infertility treatments also need to be

done, to minimize the risk of loss.

And if you get the septum taken care of now, you'll have the

recuperation and follow-up testing (and repeat resection, if

necessary) out of the way ahead of time. Believe me, it is crazy-

making to have to wait before getting the green light :-)

Just trying to give you a pro to go along with the con.

> He sought

> the advice of many reproductive specialists in this area and nobody

> seemed to really have a 100% sure answer as to what the right thing

> was to do.

No one will ever have an absolutely certain answer. My own decision

was made for me because I had multiple losses and a full-length

septum (and other infertility factors). Took me four years to get

our baby boy. Started TTC when I was 33 and will be 40 before I can

try for a second baby--if my FSH level isn't shot by then.

> It seems that my chances are slightly

> above 50% right now, and if they would have removed it now there

was

> always the risk of further damage. Just wondering if anyone out

> there has had any situation similiar and could offer me some

> insight. I think I'm just wanting reassurance that I did the right

> thing for the time being. Thanks to all!

Let me just say that risk of decreasing fertility by having a septum

out is minimal.

Sorry I can't reassure you more. I personally would choose to have

the septum out (unless it was tiny) and TTC right now while fertility

was high and endometriosis has not had a chance to progress. I

should also say that my mother and her three sisters all had endo and

only my mother was blessed with normal fertility. The other three

had extreme difficulty.

Hope you get plenty of opinions here and much comfort and good

information.

Beth

SU, resected x 2

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I just wanted to add my thoughts also. I know that when Rob first

lost his hearing (almost 5 yrs. old), I noticed him acting like that

in a lot of situations. He would seem overstimulated, hyper,

distracted, and bored with what was going on around him. I had

several doctors tell me that he had ADHD and one said he was bipolar.

They NEVER took into account that hearing impaired children are

distracted easier. He is a lot better now than he was then. (He also

has had many tests ran that have excluded bipolar disorder and ADHD.

He is normal!!) I know how frustrating that is for you, the parent

and I can imagine how frustrated the child is also. I would ask the

school to place him closer to the speakers or the FM system that was

mentioned is an excellent idea also. I know that my sons school

sometimes forgets to place him where he can benefit most when they

are in the auditorium. I just simply ask them to move him to a better

position. Anyway, I hope the little input I have helps..

Deborah

Mom of

-10 severe/profound hearing loss- CI user

Marissa-4

Reagan-3

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I just wanted to add my thoughts also. I know that when Rob first

lost his hearing (almost 5 yrs. old), I noticed him acting like that

in a lot of situations. He would seem overstimulated, hyper,

distracted, and bored with what was going on around him. I had

several doctors tell me that he had ADHD and one said he was bipolar.

They NEVER took into account that hearing impaired children are

distracted easier. He is a lot better now than he was then. (He also

has had many tests ran that have excluded bipolar disorder and ADHD.

He is normal!!) I know how frustrating that is for you, the parent

and I can imagine how frustrated the child is also. I would ask the

school to place him closer to the speakers or the FM system that was

mentioned is an excellent idea also. I know that my sons school

sometimes forgets to place him where he can benefit most when they

are in the auditorium. I just simply ask them to move him to a better

position. Anyway, I hope the little input I have helps..

Deborah

Mom of

-10 severe/profound hearing loss- CI user

Marissa-4

Reagan-3

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Guest guest

I just wanted to add my thoughts also. I know that when Rob first

lost his hearing (almost 5 yrs. old), I noticed him acting like that

in a lot of situations. He would seem overstimulated, hyper,

distracted, and bored with what was going on around him. I had

several doctors tell me that he had ADHD and one said he was bipolar.

They NEVER took into account that hearing impaired children are

distracted easier. He is a lot better now than he was then. (He also

has had many tests ran that have excluded bipolar disorder and ADHD.

He is normal!!) I know how frustrating that is for you, the parent

and I can imagine how frustrated the child is also. I would ask the

school to place him closer to the speakers or the FM system that was

mentioned is an excellent idea also. I know that my sons school

sometimes forgets to place him where he can benefit most when they

are in the auditorium. I just simply ask them to move him to a better

position. Anyway, I hope the little input I have helps..

Deborah

Mom of

-10 severe/profound hearing loss- CI user

Marissa-4

Reagan-3

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,

My name is also and I think I have the equivilant of your daughter in

boy form. Your description of your daughter matches him to a T. My isn't

profoundly deaf but until 8 months ago had severe auditory processing and didn't

understand anything we said to him. He also didn't respond to sign and still

doesn't take to it well. He has been doing so good though learning things. We

believe he has a mild low frequency loss. He is deffinately the biggest

challange in my life. I also have another son who is physically disabled and we

are going through a really hard time with him right now regarding surgery, and

while has also had 3 surgeries (major ones to reconstruct his head) I have

to say I've had my share of pain aside from . is so challanging, he is

overly active and so strong willed, he won't do anything unless he wants to.

But as you said he is so so sweet and he squeezes my cheeks with this loving

look and kisses my cheek and he does this all the time and I just melt. I think

that his stubborn attitude will actually at some point bennefit him. He is 3

1/2 years old and just such a challange and a joy at the same time. It sounds

like you really understand what I mean. He also sais I love you like that kind

of, he very rarely will say I-u-oo. Anyway welcome to the group.

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,

I lived in Little Rock Arkansas when we learned that was deaf. She was

almost 3. We used Arkansas Children's Hospital for her implant (april 2000) and

A/V for 3 years. We really struggled in AR. I was on the board for AGBell's

local chapter AAHIC. Please tell , Gayle, Theresa, , Shaun and the

rest " says Hello and is doing GREAT " . The school district in LR

wasn't willing to start an oral classroom. I even worked with Hastings

to try and get the Arkansas School for the Deaf to include an oral approach that

would work for .

We moved to St. Louis last year for to attend Moog Center for Deaf

Education's Oral School. When she started at Moog she had very little

expressive language (she was 6 and talked like an 18 month old) and a bit more

receptive (3 years). She has made incredible gains in the first year. She made

almost 2 years gain in expressive when tested in April and now I'll bet another

year in the past 6 months. She is reading and talking and singing (not well but

she sure likes to plug into the CD player and try).

Please keep your expectations high for your Leyla Jo. She sounds like our

daughter.

I remember how alone I would feel and how much connecting with others through

AAHIC and online (cicircle and Listen-up) helped.

If ever I can help please let me know I also worked with the state (Millie) on

information for parents.

Do you know Crumpler? Tell her a special Hello from me.

Please feel free to contact me directly.

Mom to 12, 7 (n24 4/00) and 4

Hello everyone

Hi there everybody,

I'm the new person so I thought I'd greet everyone and tell you all a

little about myself. My name is , and I have a beautiful, sweet,

loving (bossy, strong-willed, wild-as-a-march-hare) 2 year old little

girl named Leyla Jo who is profoundly deaf.

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Guest guest

,

I lived in Little Rock Arkansas when we learned that was deaf. She was

almost 3. We used Arkansas Children's Hospital for her implant (april 2000) and

A/V for 3 years. We really struggled in AR. I was on the board for AGBell's

local chapter AAHIC. Please tell , Gayle, Theresa, , Shaun and the

rest " says Hello and is doing GREAT " . The school district in LR

wasn't willing to start an oral classroom. I even worked with Hastings

to try and get the Arkansas School for the Deaf to include an oral approach that

would work for .

We moved to St. Louis last year for to attend Moog Center for Deaf

Education's Oral School. When she started at Moog she had very little

expressive language (she was 6 and talked like an 18 month old) and a bit more

receptive (3 years). She has made incredible gains in the first year. She made

almost 2 years gain in expressive when tested in April and now I'll bet another

year in the past 6 months. She is reading and talking and singing (not well but

she sure likes to plug into the CD player and try).

Please keep your expectations high for your Leyla Jo. She sounds like our

daughter.

I remember how alone I would feel and how much connecting with others through

AAHIC and online (cicircle and Listen-up) helped.

If ever I can help please let me know I also worked with the state (Millie) on

information for parents.

Do you know Crumpler? Tell her a special Hello from me.

Please feel free to contact me directly.

Mom to 12, 7 (n24 4/00) and 4

Hello everyone

Hi there everybody,

I'm the new person so I thought I'd greet everyone and tell you all a

little about myself. My name is , and I have a beautiful, sweet,

loving (bossy, strong-willed, wild-as-a-march-hare) 2 year old little

girl named Leyla Jo who is profoundly deaf.

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Guest guest

,

I lived in Little Rock Arkansas when we learned that was deaf. She was

almost 3. We used Arkansas Children's Hospital for her implant (april 2000) and

A/V for 3 years. We really struggled in AR. I was on the board for AGBell's

local chapter AAHIC. Please tell , Gayle, Theresa, , Shaun and the

rest " says Hello and is doing GREAT " . The school district in LR

wasn't willing to start an oral classroom. I even worked with Hastings

to try and get the Arkansas School for the Deaf to include an oral approach that

would work for .

We moved to St. Louis last year for to attend Moog Center for Deaf

Education's Oral School. When she started at Moog she had very little

expressive language (she was 6 and talked like an 18 month old) and a bit more

receptive (3 years). She has made incredible gains in the first year. She made

almost 2 years gain in expressive when tested in April and now I'll bet another

year in the past 6 months. She is reading and talking and singing (not well but

she sure likes to plug into the CD player and try).

Please keep your expectations high for your Leyla Jo. She sounds like our

daughter.

I remember how alone I would feel and how much connecting with others through

AAHIC and online (cicircle and Listen-up) helped.

If ever I can help please let me know I also worked with the state (Millie) on

information for parents.

Do you know Crumpler? Tell her a special Hello from me.

Please feel free to contact me directly.

Mom to 12, 7 (n24 4/00) and 4

Hello everyone

Hi there everybody,

I'm the new person so I thought I'd greet everyone and tell you all a

little about myself. My name is , and I have a beautiful, sweet,

loving (bossy, strong-willed, wild-as-a-march-hare) 2 year old little

girl named Leyla Jo who is profoundly deaf.

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Guest guest

,

doesn't get mad at me for trying to correct him, only because we aren't at

the point yet where we can correct him. He doesn't understand most of what we

say. He is repeating more lately. I don't know if you read the post where I

said he repeated " I know " and when I told my husband " see " after he said it, he

started saying " I know see " we were laughing so hard. We are really excited

about all this, but the fact remains that he doesn't understand most of what he

is saying. He is basically at the repeat when he hears stuff but not really

understand what it means. I've been working with putting meaning to things but

it's hard. So until he understands what he is saying there's not a whole lot we

can do to correct how he says it. When he is really focused I will sit in front

of him and get him to watch me say it and he will try to repeat, but the moments

where he is that focused are few and far between. Like I said before he only

does anything when " he " wants to. We are thrilled that he knows his alphabet

though. He only knows the upper case letters though. My older son brought home

a book with the letter A on it. There is a upper case and lower case. was

saying " A " and pointing to it. I pointed to the lower case to try to show him

that is A too he just took my hand moved it to the big A and said " A " . He was

trying to correct me. Anyway we have a lot of ground to make up and it is slow

going, but at least it's going. My older son does have a speech delay and he

does get frustrated when I correct him. If I repeat something properly he says

" yes " and goes on. When I tell him to say it he just sais " no " . Sometimes I

make him other times I just let him have a rest. Anyway I do understand the

limiting the sign so she learns how to listen better. I told our ST that she

needs to work on sign and speech seperately and speech reading seperately as

well. Anyway we are constantly trying to figure out how to get him to

cooperate. But they are so precious.

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Guest guest

,

doesn't get mad at me for trying to correct him, only because we aren't at

the point yet where we can correct him. He doesn't understand most of what we

say. He is repeating more lately. I don't know if you read the post where I

said he repeated " I know " and when I told my husband " see " after he said it, he

started saying " I know see " we were laughing so hard. We are really excited

about all this, but the fact remains that he doesn't understand most of what he

is saying. He is basically at the repeat when he hears stuff but not really

understand what it means. I've been working with putting meaning to things but

it's hard. So until he understands what he is saying there's not a whole lot we

can do to correct how he says it. When he is really focused I will sit in front

of him and get him to watch me say it and he will try to repeat, but the moments

where he is that focused are few and far between. Like I said before he only

does anything when " he " wants to. We are thrilled that he knows his alphabet

though. He only knows the upper case letters though. My older son brought home

a book with the letter A on it. There is a upper case and lower case. was

saying " A " and pointing to it. I pointed to the lower case to try to show him

that is A too he just took my hand moved it to the big A and said " A " . He was

trying to correct me. Anyway we have a lot of ground to make up and it is slow

going, but at least it's going. My older son does have a speech delay and he

does get frustrated when I correct him. If I repeat something properly he says

" yes " and goes on. When I tell him to say it he just sais " no " . Sometimes I

make him other times I just let him have a rest. Anyway I do understand the

limiting the sign so she learns how to listen better. I told our ST that she

needs to work on sign and speech seperately and speech reading seperately as

well. Anyway we are constantly trying to figure out how to get him to

cooperate. But they are so precious.

Share this post


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Guest guest

,

doesn't get mad at me for trying to correct him, only because we aren't at

the point yet where we can correct him. He doesn't understand most of what we

say. He is repeating more lately. I don't know if you read the post where I

said he repeated " I know " and when I told my husband " see " after he said it, he

started saying " I know see " we were laughing so hard. We are really excited

about all this, but the fact remains that he doesn't understand most of what he

is saying. He is basically at the repeat when he hears stuff but not really

understand what it means. I've been working with putting meaning to things but

it's hard. So until he understands what he is saying there's not a whole lot we

can do to correct how he says it. When he is really focused I will sit in front

of him and get him to watch me say it and he will try to repeat, but the moments

where he is that focused are few and far between. Like I said before he only

does anything when " he " wants to. We are thrilled that he knows his alphabet

though. He only knows the upper case letters though. My older son brought home

a book with the letter A on it. There is a upper case and lower case. was

saying " A " and pointing to it. I pointed to the lower case to try to show him

that is A too he just took my hand moved it to the big A and said " A " . He was

trying to correct me. Anyway we have a lot of ground to make up and it is slow

going, but at least it's going. My older son does have a speech delay and he

does get frustrated when I correct him. If I repeat something properly he says

" yes " and goes on. When I tell him to say it he just sais " no " . Sometimes I

make him other times I just let him have a rest. Anyway I do understand the

limiting the sign so she learns how to listen better. I told our ST that she

needs to work on sign and speech seperately and speech reading seperately as

well. Anyway we are constantly trying to figure out how to get him to

cooperate. But they are so precious.

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Guest guest

--- You wrote:

I think in some ways we do end up speaking their language...lol. Oh it's nice

to have someone who knows what they are like. Maybe some day your daughter and

my son will get married and become a royal couple...lol.

--- end of quote ---

I think that's so true! My younger son at one point called hot dogs " dah

dahs " . Of course he can say hot dog fine and dandy now, but we still call them

dah-dahs - much to his dismay!

Barbara

*******************************

Barbara Mellert

Manager, Social Science Computing

Kiewit Computing Services

Dartmouth College

13A Silsby Hall; HB 6121

Hanover NH 03755

Telephone: 603/646-2877

URL: http://www.dartmouth.edu/~ssc

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Guest guest

--- You wrote:

I think in some ways we do end up speaking their language...lol. Oh it's nice

to have someone who knows what they are like. Maybe some day your daughter and

my son will get married and become a royal couple...lol.

--- end of quote ---

I think that's so true! My younger son at one point called hot dogs " dah

dahs " . Of course he can say hot dog fine and dandy now, but we still call them

dah-dahs - much to his dismay!

Barbara

*******************************

Barbara Mellert

Manager, Social Science Computing

Kiewit Computing Services

Dartmouth College

13A Silsby Hall; HB 6121

Hanover NH 03755

Telephone: 603/646-2877

URL: http://www.dartmouth.edu/~ssc

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Guest guest

--- You wrote:

I think in some ways we do end up speaking their language...lol. Oh it's nice

to have someone who knows what they are like. Maybe some day your daughter and

my son will get married and become a royal couple...lol.

--- end of quote ---

I think that's so true! My younger son at one point called hot dogs " dah

dahs " . Of course he can say hot dog fine and dandy now, but we still call them

dah-dahs - much to his dismay!

Barbara

*******************************

Barbara Mellert

Manager, Social Science Computing

Kiewit Computing Services

Dartmouth College

13A Silsby Hall; HB 6121

Hanover NH 03755

Telephone: 603/646-2877

URL: http://www.dartmouth.edu/~ssc

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Guest guest

I think in some ways we do end up speaking their language...lol. Oh it's nice

to have someone who knows what they are like. Maybe some day your daughter and

my son will get married and become a royal couple...lol.

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