Guest guest Posted November 13, 2004 Report Share Posted November 13, 2004 Hi Lee! A very warm welcome to you! I am glad you found your way to us. That is excellent that you have remained stable for 14 years. I am like you in that I first had symptoms in my teens too, and now 30 years later I am still not quite yet on dialysis. Like you, I firmly believe that my very strong faith in God has sustained me and allowed me to really enjoy life, to cherish every single day and really love my friends and family. I look at IgAN as a blessing in my life. I know Pierre mentioned this but I want to reinforce that cod liver oil is not the fish oil that is used in the clinical trials, and as Pierre said may even be dangerous to you. I do hope going back on the Ace inhibitor will help you to get your protein back down. Please let us know when you get your next labs done. Welcome again! In a message dated 11/13/2004 10:19:06 AM Pacific Standard Time, medic95701@... writes: > Hi > My name is Lee and I have been living with IGAN since I was 14 yrs > old. I am now 28 and I have had only 1 real flare up and that was > when I was in High School around grade 10 I believe. I take ramiril > 2.5mg a day and also COD liver oil (1 capsule a day). As you know > ramipril has more than just hypertention benefits it is said they > will lower intraglomerular pressure, which is the actual pressure > within the tiny blood vessels that form the glomeruli. The fish oil > will help in the reduction of proteinuria. I was off my meds for > about 2 months and I had a 24 hour urine done and the protein in my > urine doubled. I am now back on the ramipril and fish oil and I hope > that it will come back down to normal levels again. > > Well that is what has been going on in my life. I also think GOD has > an even bigger part in the healing process of my IGAN. I hope this > has helped someone and you can write back anytime. > > Lee > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 13, 2004 Report Share Posted November 13, 2004 Hi Lee, It should be fish oil. If you go to www.igan.ca which is our sister site, you will see an article that tells you why fish oil is bad, but the primary reason is that Cod liver oil has high levels of vitamin A, which can build up to toxic levels if you have chronic renal insufficiency. I cannot even take a multivitamin with Vitamin A in it at my level of kidney function. The article also has information on some of the recommended doses of EPA and DHA that you should be taking. The link directly to the article is: http://www.igan.ca/id67.htm Let me know if you have any other questions. In a message dated 11/13/2004 3:57:49 PM Pacific Standard Time, medic95701@... writes: > > what type of oil are they suggesting to use, and why is cod liver oil > not the best choice. > Lee P.S thanks for writing Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 13, 2004 Report Share Posted November 13, 2004 Hi Lee, Welcome to the group, I'm glad you found us. It sounds as if your IgAN has been well controled if you have been living with it for 14 years now. How is your creatinine level sitting? It's great to hear from people who have the slow progressing form of IgAN, you guys are the majority when it comes to this disease. Welcome again and hope to hear more from you in future, Amy G. > > > Hi > My name is Lee and I have been living with IGAN since I was 14 yrs > old. I am now 28 and I have had only 1 real flare up and that was > when I was in High School around grade 10 I believe. I take ramiril > 2.5mg a day and also COD liver oil (1 capsule a day). As you know > ramipril has more than just hypertention benefits it is said they > will lower intraglomerular pressure, which is the actual pressure > within the tiny blood vessels that form the glomeruli. The fish oil > will help in the reduction of proteinuria. I was off my meds for > about 2 months and I had a 24 hour urine done and the protein in my > urine doubled. I am now back on the ramipril and fish oil and I hope > that it will come back down to normal levels again. > > Well that is what has been going on in my life. I also think GOD has > an even bigger part in the healing process of my IGAN. I hope this > has helped someone and you can write back anytime. > > Lee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 13, 2004 Report Share Posted November 13, 2004 what type of oil are they suggesting to use, and why is cod liver oil not the best choice. Lee P.S thanks for writing - In iga-nephropathy , W4JC@a... wrote: > Hi Lee! > > A very warm welcome to you! I am glad you found your way to us. That is > excellent that you have remained stable for 14 years. I am like you in that I > first had symptoms in my teens too, and now 30 years later I am still not quite > yet on dialysis. Like you, I firmly believe that my very strong faith in God > has sustained me and allowed me to really enjoy life, to cherish every single > day and really love my friends and family. I look at IgAN as a blessing in my > life. > > I know Pierre mentioned this but I want to reinforce that cod liver oil is > not the fish oil that is used in the clinical trials, and as Pierre said may > even be dangerous to you. I do hope going back on the Ace inhibitor will help > you to get your protein back down. Please let us know when you get your next > labs done. > > Welcome again! > > > > In a message dated 11/13/2004 10:19:06 AM Pacific Standard Time, > medic95701@y... writes: > > > Hi > > My name is Lee and I have been living with IGAN since I was 14 yrs > > old. I am now 28 and I have had only 1 real flare up and that was > > when I was in High School around grade 10 I believe. I take ramiril > > 2.5mg a day and also COD liver oil (1 capsule a day). As you know > > ramipril has more than just hypertention benefits it is said they > > will lower intraglomerular pressure, which is the actual pressure > > within the tiny blood vessels that form the glomeruli. The fish oil > > will help in the reduction of proteinuria. I was off my meds for > > about 2 months and I had a 24 hour urine done and the protein in my > > urine doubled. I am now back on the ramipril and fish oil and I hope > > that it will come back down to normal levels again. > > > > Well that is what has been going on in my life. I also think GOD has > > an even bigger part in the healing process of my IGAN. I hope this > > has helped someone and you can write back anytime. > > > > Lee > > > > > > Quote Link to comment Share on other sites More sharing options...
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