Needing to talk! IgA-Carla

[Guest guest]

Hi, all!

I guess I just needed to vent. I am so frustrated and just tired

of pain, I have been in tears, because of pure frustration, hurting

and a lot of anxiety. I will explain.

I have been having this foul urine odor and BURING when urinate

(seems like a UTI to me) But was tested and test came back with

nothing wrong. Well, I have been having this problem over a month,

now my kidneys are starting to hurt so bad. I don't know what to do.

I am so Tired! I am just so tired.

I am seeing a counselor because I am having a lot of depression.

She said I need to get over having this disease. My goodness! How

are you suppose to get over a chronic disease that is affecting the

rest of your life. Give me a break. How do you get over something

like this. Also dealing with pain from a disability ontop of pain of

the kidney disease. If anyone has any suggestions I would love to

hear them.

Plus also dealing with a disability with it. Humm...That is a

hard thing to understand. I am doing ok with that.

It is so hard when you just want to break down and cry.

I do a lot of praying and I do have faith that the pain will go

away. But the pain in one heart, just reaching out for acceptance,

is really taring me apart. Because knowing that your family doesn't

acccept this and you have to put a brave thing around them is so

hard, Because you are physical hurting and mentally drained.

Thanks for listening everyone.

Carla

[Guest guest]

Hi Carla,

Boy your post gets me steamed! Makes me want to tell your counselor a thing

or two - beginning with one can get over having a disease when one " gets

over " the disease. That woman was profoundly unprofessional and should be

removed to a positition where she can't do any further damage. I'm just

very sorry that you got burned baring your soul to someone. That's the last

think you should have on top of all your other burdens.

Hugs,

Cy

Needing to talk! IgA-Carla

>

>

> Hi, all!

> I guess I just needed to vent. I am so frustrated and just tired

> of pain, I have been in tears, because of pure frustration, hurting

> and a lot of anxiety. I will explain.

> I have been having this foul urine odor and BURING when urinate

> (seems like a UTI to me) But was tested and test came back with

> nothing wrong. Well, I have been having this problem over a month,

> now my kidneys are starting to hurt so bad. I don't know what to do.

> I am so Tired! I am just so tired.

> I am seeing a counselor because I am having a lot of depression.

> She said I need to get over having this disease. My goodness! How

> are you suppose to get over a chronic disease that is affecting the

> rest of your life. Give me a break. How do you get over something

> like this. Also dealing with pain from a disability ontop of pain of

> the kidney disease. If anyone has any suggestions I would love to

> hear them.

> Plus also dealing with a disability with it. Humm...That is a

> hard thing to understand. I am doing ok with that.

> It is so hard when you just want to break down and cry.

> I do a lot of praying and I do have faith that the pain will go

> away. But the pain in one heart, just reaching out for acceptance,

> is really taring me apart. Because knowing that your family doesn't

> acccept this and you have to put a brave thing around them is so

> hard, Because you are physical hurting and mentally drained.

> Thanks for listening everyone.

> Carla

>

>

>

>

>

>

>

>

> To edit your settings for the group, go to our Yahoo Group

> home page:

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>

> To unsubcribe via email,

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> Visit our companion website at www.igan.ca. The site is entirely supported

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>

> Thank you

>

[Guest guest]

Thank you, Cy.

It is good to hear from you. I can understand that. But I am

feeling a lot better today and my spirits are up.

Take Care.

Carla

> Hi Carla,

> Boy your post gets me steamed! Makes me want to tell your

counselor a thing

> or two - beginning with one can get over having a disease when

one " gets

> over " the disease. That woman was profoundly unprofessional and

should be

> removed to a positition where she can't do any further damage.

I'm just

> very sorry that you got burned baring your soul to someone.

That's the last

> think you should have on top of all your other burdens.

> Hugs,

> Cy

> Needing to talk! IgA-Carla

>

>

> >

> >

> > Hi, all!

> > I guess I just needed to vent. I am so frustrated and just

tired

> > of pain, I have been in tears, because of pure frustration,

hurting

> > and a lot of anxiety. I will explain.

> > I have been having this foul urine odor and BURING when

urinate

> > (seems like a UTI to me) But was tested and test came back with

> > nothing wrong. Well, I have been having this problem over a

month,

> > now my kidneys are starting to hurt so bad. I don't know what to

do.

> > I am so Tired! I am just so tired.

> > I am seeing a counselor because I am having a lot of

depression.

> > She said I need to get over having this disease. My goodness! How

> > are you suppose to get over a chronic disease that is affecting

the

> > rest of your life. Give me a break. How do you get over something

> > like this. Also dealing with pain from a disability ontop of

pain of

> > the kidney disease. If anyone has any suggestions I would love to

> > hear them.

> > Plus also dealing with a disability with it. Humm...That is a

> > hard thing to understand. I am doing ok with that.

> > It is so hard when you just want to break down and cry.

> > I do a lot of praying and I do have faith that the pain will

go

> > away. But the pain in one heart, just reaching out for

acceptance,

> > is really taring me apart. Because knowing that your family

doesn't

> > acccept this and you have to put a brave thing around them is so

> > hard, Because you are physical hurting and mentally drained.

> > Thanks for listening everyone.

> > Carla

> >

> >

> >

> >

> >

> >

> >

> >

> > To edit your settings for the group, go to our Yahoo Group

> > home page:

> > http://groups.yahoo.com/group/iga-nephropathy/

> >

> > To unsubcribe via email,

> > iga-nephropathy-unsubscribe

> > Visit our companion website at www.igan.ca. The site is entirely

supported

> by donations. If you would like to help, go to:

> > http://www.igan.ca/id62.htm

> >

> > Thank you

> >