Re: Genetic studies, constipation and swelling Marcia

[Guest guest]

Bonnie!!!! Seventeen hours on your feet if such a LONG day!

Please be careful and take extra good care of yourself.

In a message dated 11/8/2004 7:53:34 PM Pacific Standard Time,

bd4679@... writes:

>

> Hey Marcia,

> That massage sounds great! Too bad, my husband won't come near my stinky

> feet though. (I have the stinkiest feet ever, despite taking scrupulous

showers

> all the time, using the best footspray AND foot powder. I change my socks

> twice a day to boot).

> But I did break down this weekend and bought some of those support hose from

> Futura, (the kind you get at Walgreen's). I didn't want to feel old and

> decrepit, and I had high hopes that eventually this would subside so had

refused

> to buy them before. However, of course the swelling is not subsiding.

> Anyway the socks feel GREAT, even though I've been on my feet for 17 hours so

far

> today, but actually I don't notice any difference in the leg swelling yet.

> Might need to give it a couple of days, or maybe the compression is not high

> enough to decrease swelling. If it works maybe I could buy one for my

> gut....... Hehehe Take care....Back to work.....Bonnie

>

[Guest guest]

Bonnie!!!!

Whew!!!!!!!!!! That is definitely an answer to prayer! Thank you LORD!!!!

I am just so glad to hear you were right in the middle of normal. That is an

example of getting exceedingly about what we asked for.

I am definitely rejoicing with you!!!! Thanks so much for sharing the good

news :-) Now I have one more blessing to count tonight.

Congratulations!

Love

In a message dated 11/8/2004 8:27:17 PM Pacific Standard Time,

bd4679@... writes:

> Hey , just a couple more hours, then I'll head home. Hey, I wasn't

> gonna share this tonight, but since your on line, GUESSS WHAT???? I got the

> results back from Mount Sinai! NORMAL ALPHAGALACTOSIDASE!!!! But the other

> side of it is, with women (as I mentioned before) they can have normal

> alphagal. levels and still have the disease, so he wanted me to see a

specialist in

> Fabry's disease in Denver. So.... I said, well I already have a nephrologist

> at Mayo, (and one in my home town here in Colorado), so can't I just see

> someone there..... He wants to talk to my neph at Mayo. So back to the

drawing

> board again. But counting my blessings NORMAL IS STILL NORMAL, and I have

> the faxed copy, so it really and truely is NORMAL. Right smack in the middle

> of normal, not low normal this time YYYEEEAAAHHHH !!!!!!!!!!

> HEHEHEHEHEHEHHEHEHEHEHEH Keep crossing them fingers.... Bonnie

[Guest guest]

Hey , just a couple more hours, then I'll head home. Hey, I wasn't gonna

share this tonight, but since your on line, GUESSS WHAT???? I got the results

back from Mount Sinai! NORMAL ALPHAGALACTOSIDASE!!!! But the other side of it

is, with women (as I mentioned before) they can have normal alphagal. levels and

still have the disease, so he wanted me to see a specialist in Fabry's disease

in Denver. So.... I said, well I already have a nephrologist at Mayo, (and one

in my home town here in Colorado), so can't I just see someone there..... He

wants to talk to my neph at Mayo. So back to the drawing board again. But

counting my blessings NORMAL IS STILL NORMAL, and I have the faxed copy, so it

really and truely is NORMAL. Right smack in the middle of normal, not low

normal this time YYYEEEAAAHHHH !!!!!!!!!! HEHEHEHEHEHEHHEHEHEHEHEH Keep

crossing them fingers.... Bonnie

W4JC@... wrote:Bonnie!!!! Seventeen hours on your feet if such a LONG

day!

Please be careful and take extra good care of yourself.

In a message dated 11/8/2004 7:53:34 PM Pacific Standard Time,

bd4679@... writes:

>

> Hey Marcia,

> That massage sounds great! Too bad, my husband won't come near my stinky

> feet though. (I have the stinkiest feet ever, despite taking scrupulous

showers

> all the time, using the best footspray AND foot powder. I change my socks

> twice a day to boot).

> But I did break down this weekend and bought some of those support hose from

> Futura, (the kind you get at Walgreen's). I didn't want to feel old and

> decrepit, and I had high hopes that eventually this would subside so had

refused

> to buy them before. However, of course the swelling is not subsiding.

> Anyway the socks feel GREAT, even though I've been on my feet for 17 hours so

far

> today, but actually I don't notice any difference in the leg swelling yet.

> Might need to give it a couple of days, or maybe the compression is not high

> enough to decrease swelling. If it works maybe I could buy one for my

> gut....... Hehehe Take care....Back to work.....Bonnie

>

[Guest guest]

Wow, Bonnie, my response to this post was positively viseral. I cannot

begin to tell you how overjoyed I am. I can envision you bracing yourself

for the seemingly inevitable bad news.... and then NORMAL? REALLY NORMAL?

Holey moley. I'd frame those results. Even if you do have Fabry's, (as you

so arrticulately put it) NORMAL IS NORMAL!

Thanks for sharing the good news. You just absolutely made my night.

Cy

Re: Genetic studies, constipation and swelling Marcia

>

> Hey , just a couple more hours, then I'll head home. Hey, I wasn't

gonna share this tonight, but since your on line, GUESSS WHAT???? I got

the results back from Mount Sinai! NORMAL ALPHAGALACTOSIDASE!!!! But the

other side of it is, with women (as I mentioned before) they can have normal

alphagal. levels and still have the disease, so he wanted me to see a

specialist in Fabry's disease in Denver. So.... I said, well I already have

a nephrologist at Mayo, (and one in my home town here in Colorado), so can't

I just see someone there..... He wants to talk to my neph at Mayo. So back

to the drawing board again. But counting my blessings NORMAL IS STILL

NORMAL, and I have the faxed copy, so it really and truely is NORMAL. Right

smack in the middle of normal, not low normal this time YYYEEEAAAHHHH

!!!!!!!!!! HEHEHEHEHEHEHHEHEHEHEHEH Keep crossing them fingers....

Bonnie

>

> W4JC@... wrote:Bonnie!!!! Seventeen hours on your feet if such a

LONG day!

>

> Please be careful and take extra good care of yourself.

>

>

>

> In a message dated 11/8/2004 7:53:34 PM Pacific Standard Time,

> bd4679@... writes:

>

> >

> > Hey Marcia,

> > That massage sounds great! Too bad, my husband won't come near my

stinky

> > feet though. (I have the stinkiest feet ever, despite taking scrupulous

showers

> > all the time, using the best footspray AND foot powder. I change my

socks

> > twice a day to boot).

> > But I did break down this weekend and bought some of those support hose

from

> > Futura, (the kind you get at Walgreen's). I didn't want to feel old and

> > decrepit, and I had high hopes that eventually this would subside so had

refused

> > to buy them before. However, of course the swelling is not subsiding.

> > Anyway the socks feel GREAT, even though I've been on my feet for 17

hours so far

> > today, but actually I don't notice any difference in the leg swelling

yet.

> > Might need to give it a couple of days, or maybe the compression is not

high

> > enough to decrease swelling. If it works maybe I could buy one for my

> > gut....... Hehehe Take care....Back to work.....Bonnie

> >

>

>

>

>

[Guest guest]

Bonnie, that's so awesome! I'm glad to hear your results come out

normal....and I hope that they will continue along those lines, even

with the specialist. Good luck! : )

Sophia

Bonnie!!!! Seventeen hours on your feet if

such a LONG day!

>

> Please be careful and take extra good care of yourself.

>

>

>

> In a message dated 11/8/2004 7:53:34 PM Pacific Standard Time,

> bd4679@y... writes:

>

> >

> > Hey Marcia,

> > That massage sounds great! Too bad, my husband won't come near

my stinky

> > feet though. (I have the stinkiest feet ever, despite taking

scrupulous showers

> > all the time, using the best footspray AND foot powder. I

change my socks

> > twice a day to boot).

> > But I did break down this weekend and bought some of those

support hose from

> > Futura, (the kind you get at Walgreen's). I didn't want to feel

old and

> > decrepit, and I had high hopes that eventually this would

subside so had refused

> > to buy them before. However, of course the swelling is not

subsiding.

> > Anyway the socks feel GREAT, even though I've been on my feet

for 17 hours so far

> > today, but actually I don't notice any difference in the leg

swelling yet.

> > Might need to give it a couple of days, or maybe the compression

is not high

> > enough to decrease swelling. If it works maybe I could buy one

for my

> > gut....... Hehehe Take care....Back to work.....Bonnie

> >

>

>

>

>