Re: Mom has PLS/Connie, Ronnie

[Guest guest]

Dear DarylAnne,

Welcome to this wonderful group as you already know. And please never

hesitate to contribute. You never know what you have to say may help many

others. And it helps so much to talk to others in the " same shoes as us " .

Also I do believe anger is definitely part of the emotional lability

spectrum. I would mention it to your doctor. Also since she does not want to

talk about her illness she may be having a harder time with this than she is

letting others know. It would really help her come to terms with this and

talk to others. Hope to talk you soon.

Mom has PLS/Connie, Ronnie

> Hi all, First, thanks to Geo, Ronnie and Connie for personally

> welcoming me. I have to say once again what a great group this is.

> You all are so helpful and friendly. I can't imagine how frustrated

> and ignorant of this disease I would be without all of you. Mom

> (Peggy) has PLS, finally diagnosed about a year ago. We live in

> Carroll Co, MD, just 15 minutes from Hanover, PA line. She lives in

> a " mother-in-law " house connected to my sister. I live 15 minutes

> away. She cannot/will not join the group. She is 72 and does not have

> the stamina and determination that most of you have. I am not judging

> her. She tried to read the posts, but got so depressed at how bad it

> might get, that she just breaks down. So, I have been reading the

> posts religously and update her on anything I feel could be helpful.

>

> I usually don't post because you guys are all so smart, I don't

> have anything intelligent to add. I do have a question though. She

> has the emotional lability. She cries easy and a lot (on an anti-

> depressant) and has the uncontrollable laughter (which embarrases her

> greatly). She also has fits of anger over insignificant things. She

> gets upset with herself after she does it. Could this be part of the

> emotional lability? Anyone have any experience with this? And could

> the meds for emotional lability help? I don't know what I would do

> without you guys. We are seeking a new neurologist and I want to

> discuss this with Mom before we go. Thanks. Daryll Anne

>

>

>

>

>

>

>

>

[Guest guest]

I sent this out from a neur that has great success with it, he is the neur

resource for the ALS group.

Have the info for you. Just talked to the good Dr. He just got back from

Oregon. One takes a combination of dextromethorphan and guinidine. He says

it is a mystery why this combo works but it does. Person should start out

with low doses of each in pill form and increase it if needed. First drug is

found in some cough syrups. So this person's Dr. might really question

their request for these pills but it may be the answer. Hope this helps. --

dale

PS. You don't have to be smart to post, look at me ;-). Write about your

frustrations/questions/good things!

--- Original Message -----

To: <PLS-FRIENDS >

Sent: Friday, January 23, 2004 7:44 PM

Subject: Mom has PLS/Connie, Ronnie

> Hi all, First, thanks to Geo, Ronnie and Connie for personally

> welcoming me. I have to say once again what a great group this is.

> You all are so helpful and friendly. I can't imagine how frustrated

> and ignorant of this disease I would be without all of you. Mom

> (Peggy) has PLS, finally diagnosed about a year ago. We live in

> Carroll Co, MD, just 15 minutes from Hanover, PA line. She lives in

> a " mother-in-law " house connected to my sister. I live 15 minutes

> away. She cannot/will not join the group. She is 72 and does not have

> the stamina and determination that most of you have. I am not judging

> her. She tried to read the posts, but got so depressed at how bad it

> might get, that she just breaks down. So, I have been reading the

> posts religously and update her on anything I feel could be helpful.

[Guest guest]

Daryll Anne,

I too go threw the bits of crying and embaressing laughter. I have just tried

real hard to tone it down. Its not easy at times. Please keep on having patience

with your Mom. It is a disease like many others out there that are hard to under

stand. You sound like a very loving and careing daughter.

I hope and pray you find a great nuerologist. My first one more or less said it

was all in my head. My current one is a real trooper. Just remember its like

going shopping, if you dont like what you see or hear, then shop else where.

Your family and you are in our hopes and prayers. Sandy

Mom has PLS/Connie, Ronnie

Hi all, First, thanks to Geo, Ronnie and Connie for personally

welcoming me. I have to say once again what a great group this is.

You all are so helpful and friendly. I can't imagine how frustrated

and ignorant of this disease I would be without all of you. Mom

(Peggy) has PLS, finally diagnosed about a year ago. We live in

Carroll Co, MD, just 15 minutes from Hanover, PA line. She lives in

a " mother-in-law " house connected to my sister. I live 15 minutes

away. She cannot/will not join the group. She is 72 and does not have

the stamina and determination that most of you have. I am not judging

her. She tried to read the posts, but got so depressed at how bad it

might get, that she just breaks down. So, I have been reading the

posts religously and update her on anything I feel could be helpful.

I usually don't post because you guys are all so smart, I don't

have anything intelligent to add. I do have a question though. She

has the emotional lability. She cries easy and a lot (on an anti-

depressant) and has the uncontrollable laughter (which embarrases her

greatly). She also has fits of anger over insignificant things. She

gets upset with herself after she does it. Could this be part of the

emotional lability? Anyone have any experience with this? And could

the meds for emotional lability help? I don't know what I would do

without you guys. We are seeking a new neurologist and I want to

discuss this with Mom before we go. Thanks. Daryll Anne

------------------------------------------------------------------------------

[Guest guest]

Hi Daryll Anne

I went through that with my Dad .I think we all get that way with age to some

extent .I would try to talk him into doing something he had'nt done before .Like

starting into traffic without even looking he almost got the two of us killed

one night and he said why do i need to learn that besides it hurts my neck to

turn it .He just did'nt have the yerning to live after Mom died he was of the

old school where if i dont understand something i dont need it anyway .also i am

the youngest and beleive it or not the theory of oldest children is true where

what the oldest says is true so i found myself all my life .fighting ignorance .

He just did'nt know better and was'nt going to change.So have patience and try

and let the bad stuff slide off GEO

Mom has PLS/Connie, Ronnie

Hi all, First, thanks to Geo, Ronnie and Connie for personally

welcoming me. I have to say once again what a great group this is.

You all are so helpful and friendly. I can't imagine how frustrated

and ignorant of this disease I would be without all of you. Mom

(Peggy) has PLS, finally diagnosed about a year ago. We live in

Carroll Co, MD, just 15 minutes from Hanover, PA line. She lives in

a " mother-in-law " house connected to my sister. I live 15 minutes

away. She cannot/will not join the group. She is 72 and does not have

the stamina and determination that most of you have. I am not judging

her. She tried to read the posts, but got so depressed at how bad it

might get, that she just breaks down. So, I have been reading the

posts religously and update her on anything I feel could be helpful.

I usually don't post because you guys are all so smart, I don't

have anything intelligent to add. I do have a question though. She

has the emotional lability. She cries easy and a lot (on an anti-

depressant) and has the uncontrollable laughter (which embarrases her

greatly). She also has fits of anger over insignificant things. She

gets upset with herself after she does it. Could this be part of the

emotional lability? Anyone have any experience with this? And could

the meds for emotional lability help? I don't know what I would do

without you guys. We are seeking a new neurologist and I want to

discuss this with Mom before we go. Thanks. Daryll Anne

------------------------------------------------------------------------------