Guest guest Posted April 6, 2005 Report Posted April 6, 2005 Hi Maggie, How long have you been on Prednisone? I've been on it for 5 years. Under 10mg/day, I went down only 1 mg at a time (ie 7 one day and 6 the next day). My rheumy says then there is less of a risk of withdrawal. I've been on 4mg/day for 6 months. Next month I'm starting 3.5mg/day then 4 mg/day for a month. For under 5 my rheumy says .5mg increments is best. Take care,Steph in VA ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ on the prednisone from 7.5 mgs a day to 7.5 mgs one day, 5 mgs the next and so on for the next month. The reason being is that my joints are puffy...the only pain I have is on the side of my right hand. *shrugs* ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~Maggie Quote
Guest guest Posted April 6, 2005 Report Posted April 6, 2005 I can't remember how long I've been on it but it seems like forever lol. I think daily I've been on it for about 5 years...from anywhere between 5 - 20 mgs a day. Once I was down to 3 mgs, then started having carpal tunnel and arthritis in the right hand and upped it. February when I saw the RA doctor for the first check up, I was on 15mgs a day. Now I'm down to the 5 and 7.5 mgs rotating daily til the next appt. I just want to get off of it all together. Someone had posted last month that when you get to 5-7 mgs a day, the round face goes away....finally I'm noticing that. Now if the pounds would come off too! Good luck to you! ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ Maggie http://www.4HockeyFans.com http://www.4FloridaHockey.com MSN: Maggies1429 AOL: Maggies85 -----Original Message-----From: DeNicola [mailto:sdenicola@...]Sent: Wednesday, April 06, 2005 2:13 PMRheumatoid Arthritis Subject: Maggie Hi Maggie, How long have you been on Prednisone? I've been on it for 5 years. Under 10mg/day, I went down only 1 mg at a time (ie 7 one day and 6 the next day). My rheumy says then there is less of a risk of withdrawal. I've been on 4mg/day for 6 months. Next month I'm starting 3.5mg/day then 4 mg/day for a month. For under 5 my rheumy says .5mg increments is best. Take care,Steph in VA Quote
Guest guest Posted April 6, 2005 Report Posted April 6, 2005 Hello again, I know what you mean about prednisone. My peak dosage was 80 mg/day when I was first diagnosed. I gained close to 70 pounds on predinsone (the doctor said it was an unusually high amount. My peak clothing size was a 20, and my current size is a 12. I was a size 4/6 before arthritis and prednisone (sigh). I'm happy the weight is coming off but I know I'll never be back to that size again.Take care,Steph ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~I can't remember how long I've been on it but it seems like forever lol. I think daily I've been on it for about 5 years...from anywhere between 5 - 20 mgs a day. Once I was down to 3 mgs, then started having carpal tunnel and arthritis in the right hand and upped it. February when I saw the RA doctor for the first check up, I was on 15mgs a day. Now I'm down to the 5 and 7.5 mgs rotating daily til the next appt. I just want to get off of it all together. Someone had posted last month that when you get to 5-7 mgs a day, the round face goes away....finally I'm noticing that. Now if the pounds would come off too! Good luck to you! ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~Maggie Quote
Guest guest Posted April 6, 2005 Report Posted April 6, 2005 Hello Before I was on the prednisone pills I was seeing what I thought was a bad RA doctor. Everytime I would go in for a monthly checkup, the doctor would give me an 80mg shot of prednisoline (sp) if I even had any soreness. Over the years with prednisone I went from 125 lbs to 180lbs size 8 to size 14/16. I'd be happy to lose 30 lbs and wear a size 12. I even go to the gym and walk 2 miles at least 3 times a week. Did you lose the weight from going down on your prednisone or diet, exercise? ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ Maggie http://www.4HockeyFans.com http://www.4FloridaHockey.com MSN: Maggies1429 AOL: Maggies85 -----Original Message-----From: DeNicola [mailto:sdenicola@...]Sent: Wednesday, April 06, 2005 2:42 PMRheumatoid Arthritis Subject: RE: Maggie Hello again, I know what you mean about prednisone. My peak dosage was 80 mg/day when I was first diagnosed. I gained close to 70 pounds on predinsone (the doctor said it was an unusually high amount. My peak clothing size was a 20, and my current size is a 12. I was a size 4/6 before arthritis and prednisone (sigh). I'm happy the weight is coming off but I know I'll never be back to that size again.Take care,Steph Quote
Guest guest Posted April 6, 2005 Report Posted April 6, 2005 Hello again, All of my weight loss is from decreasing the prednisone. I even trained for 2 marathons with the arthritis foundation (2001 Honolulu and 2002 Bermuda)! I really exercised a lot during pre and post marathon training, watched my diet and I gained weight! I know that muscle weighs more than fat because I used to be a dancer but I actually increased a whole clothing size! Take care,Steph in VA ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~Hello Before I was on the prednisone pills I was seeing what I thought was a bad RA doctor. Everytime I would go in for a monthly checkup, the doctor would give me an 80mg shot of prednisoline (sp) if I even had any soreness. Over the years with prednisone I went from 125 lbs to 180lbs size 8 to size 14/16. I'd be happy to lose 30 lbs and wear a size 12. I even go to the gym and walk 2 miles at least 3 times a week. Did you lose the weight from going down on your prednisone or diet, exercise? ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~Maggie Quote
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