Guest guest Posted October 6, 2004 Report Share Posted October 6, 2004 , What's the yahoo site for kidney tx? I'm interested in signing up. Thanks, Jing Cohen wrote: : I just want to throw my two cents in as well. I absolutely, positively DREADED the thought of all these drugs, especially having taken them pre-tx. But post-tx, I have had no issues with them that I would consider to be a major problem. Also, on the Kidney Transplant group on Yahoo! there are several women who have had children post-tx. W4JC@... wrote: Hi , I completely understand your hesitation based on the drugs you have to take post transplant. after I was officially diagnosed, for a number of years I said I would never ever agree to a transplant because the post transplant meds scared me so much! But then again, now that I am struggling with the impact of such low renal function, and I take so many meds anyway to control BP etc now, and also seeing Marty, , , Jing and so many others and hearing how much better they feel post transplant, I know this is the way to go. Sure I would prefer to not take any meds, but that is not a reality for me. As Pierre says, dialysis restores you to about 20% where a transplant gives you essentially 100%. If it is unavoidable that I need intervention, I would rather get it done so I can resume my normal life. Pray about it . God will give you the peace about it when the time is right. I just worry about you postponing too long. In a message dated 10/5/2004 6:20:13 PM Eastern Daylight Time, " " writes: > > > >> >Hi , >That is what is so confusing. I am scared to have transplant and all >in all I think I do feel good. My dr said- " your young and kidney's >only last so long " and he says " you have time " . I feel like taking >the immunosuppressents and steroids post transplant isn' great for >you either- it's a struggle to know when the time is best. I also >don't want to hurting other organs by waiting. My neph is with the >transplant team also and was referred to me because he is supposed >to be aggressive. He does also say " If you want kids-have it done >now. " as if it is so easy to make these decisions. I keep saying I'' >put it in god's hands. with my aortic insufficiency I was told it >would worsen with pregnancy. I feel like I have 2 strikes against >me. I truly believe that God will bless me with children wether mine >or adopted when the time is right. Beleiving this has really helped >take the weight off my shoulders which is what I think I need. >christine > >Hi , >> >> I know it is very humbling to think of someone giving up an organ >for you. I >> feel overwhelmed by that too. >> >> I guess your Nephrologist has a different philosophy than yours. >Mine says >> if it is inevitable, it is better to get it sooner rather than >later. >> >> I think was around a creatinine of 5 when she got hers. My >Neph is >> shooting for around 5 for me as well. He says it is his job to >help me feel >> better and the sooner I have good kidney function, the better. I >just don't want >> you to unnecessarily suffer longer than need be, especially since >you too have >> passed the point of no return. >> >> On the exercise, believe me, it took me a LONG time to build up. >When I got >> out of the hospital last time in the spring of 2001 after being >hospitalized >> for 6 days I was so weak I could not even walk to the house next >door, and that >> was with my husband helping me to get even that far. He would >tell me, " come >> on, you can make it to the corner and back " and it was SO hard. I >started on >> the treadmill struggling to make it a quarter of a mile, and I had >to build >> up very slowly. It is just my determination to gain my strength >back. I also >> went to my church and had the Elders pray over me and that was a >big turning >> point. I asked for prayer that I would be able to build back up >to the >> strength and endurance I had at the end of 2000, and those prayers >were answered with >> God's help and lots of hard work. >> >> It does help so much and I do feel much better on the days I >exercise, and >> that makes me keep going. >> >> >> >> In a message dated 10/4/2004 2:23:00 PM Pacific Daylight Time, >> GNCCLEVENGER@J... writes: >> >> > Hi , >> > the only workup they have had is tissue type. I didn't want to >go >> > farther with the workup yet because it only lasts for a certain >> > length of time and since I am not ready to have the transplant >yet. >> > I am in baltimore land and my brother who wants to donate is >in >> > Portland oregon-(keeping his eye on mt st helens I presume). I >am >> > not quite sure how I feel about getting his kidney if it all >works >> > out. It scares me that something could happen to him and I would >> > never want him to go through anything. I know I have to tell >myself >> > it is his decision and it would be better for me to gaet it >prior to >> > needing dialysis. I am sure that everyone has thoughts that >change >> > from one extreme to the other. I think it all seems unreal still. >> > talk to you later, >> > christine >> >> >> >> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2004 Report Share Posted October 6, 2004 Jing: This is their site: http://health.groups.yahoo.com/group/kidney_transplants/ You need to join that group like this one. BTW- Barb and I wear the living donor pin from the NKF. If you are interested in this, check it out: http://www.kidney.org/recips/livingdonors/. The pin is two matching sides, one says " I gave the gift of life " and the other " I received the gift of life " . We wear them every day. Jing son wrote: , What's the yahoo site for kidney tx? I'm interested in signing up. Thanks, Jing Cohen wrote: : I just want to throw my two cents in as well. I absolutely, positively DREADED the thought of all these drugs, especially having taken them pre-tx. But post-tx, I have had no issues with them that I would consider to be a major problem. Also, on the Kidney Transplant group on Yahoo! there are several women who have had children post-tx. W4JC@... wrote: Hi , I completely understand your hesitation based on the drugs you have to take post transplant. after I was officially diagnosed, for a number of years I said I would never ever agree to a transplant because the post transplant meds scared me so much! But then again, now that I am struggling with the impact of such low renal function, and I take so many meds anyway to control BP etc now, and also seeing Marty, , , Jing and so many others and hearing how much better they feel post transplant, I know this is the way to go. Sure I would prefer to not take any meds, but that is not a reality for me. As Pierre says, dialysis restores you to about 20% where a transplant gives you essentially 100%. If it is unavoidable that I need intervention, I would rather get it done so I can resume my normal life. Pray about it . God will give you the peace about it when the time is right. I just worry about you postponing too long. In a message dated 10/5/2004 6:20:13 PM Eastern Daylight Time, " " writes: > > > >> >Hi , >That is what is so confusing. I am scared to have transplant and all >in all I think I do feel good. My dr said- " your young and kidney's >only last so long " and he says " you have time " . I feel like taking >the immunosuppressents and steroids post transplant isn' great for >you either- it's a struggle to know when the time is best. I also >don't want to hurting other organs by waiting. My neph is with the >transplant team also and was referred to me because he is supposed >to be aggressive. He does also say " If you want kids-have it done >now. " as if it is so easy to make these decisions. I keep saying I'' >put it in god's hands. with my aortic insufficiency I was told it >would worsen with pregnancy. I feel like I have 2 strikes against >me. I truly believe that God will bless me with children wether mine >or adopted when the time is right. Beleiving this has really helped >take the weight off my shoulders which is what I think I need. >christine > >Hi , >> >> I know it is very humbling to think of someone giving up an organ >for you. I >> feel overwhelmed by that too. >> >> I guess your Nephrologist has a different philosophy than yours. >Mine says >> if it is inevitable, it is better to get it sooner rather than >later. >> >> I think was around a creatinine of 5 when she got hers. My >Neph is >> shooting for around 5 for me as well. He says it is his job to >help me feel >> better and the sooner I have good kidney function, the better. I >just don't want >> you to unnecessarily suffer longer than need be, especially since >you too have >> passed the point of no return. >> >> On the exercise, believe me, it took me a LONG time to build up. >When I got >> out of the hospital last time in the spring of 2001 after being >hospitalized >> for 6 days I was so weak I could not even walk to the house next >door, and that >> was with my husband helping me to get even that far. He would >tell me, " come >> on, you can make it to the corner and back " and it was SO hard. I >started on >> the treadmill struggling to make it a quarter of a mile, and I had >to build >> up very slowly. It is just my determination to gain my strength >back. I also >> went to my church and had the Elders pray over me and that was a >big turning >> point. I asked for prayer that I would be able to build back up >to the >> strength and endurance I had at the end of 2000, and those prayers >were answered with >> God's help and lots of hard work. >> >> It does help so much and I do feel much better on the days I >exercise, and >> that makes me keep going. >> >> >> >> In a message dated 10/4/2004 2:23:00 PM Pacific Daylight Time, >> GNCCLEVENGER@J... writes: >> >> > Hi , >> > the only workup they have had is tissue type. I didn't want to >go >> > farther with the workup yet because it only lasts for a certain >> > length of time and since I am not ready to have the transplant >yet. >> > I am in baltimore land and my brother who wants to donate is >in >> > Portland oregon-(keeping his eye on mt st helens I presume). I >am >> > not quite sure how I feel about getting his kidney if it all >works >> > out. It scares me that something could happen to him and I would >> > never want him to go through anything. I know I have to tell >myself >> > it is his decision and it would be better for me to gaet it >prior to >> > needing dialysis. I am sure that everyone has thoughts that >change >> > from one extreme to the other. I think it all seems unreal still. >> > talk to you later, >> > christine >> >> >> >> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2004 Report Share Posted October 7, 2004 Thanks ! Cohen wrote:Jing: This is their site: http://health.groups.yahoo.com/group/kidney_transplants/ You need to join that group like this one. BTW- Barb and I wear the living donor pin from the NKF. If you are interested in this, check it out: http://www.kidney.org/recips/livingdonors/. The pin is two matching sides, one says " I gave the gift of life " and the other " I received the gift of life " . We wear them every day. Jing son wrote: , What's the yahoo site for kidney tx? I'm interested in signing up. Thanks, Jing Cohen wrote: : I just want to throw my two cents in as well. I absolutely, positively DREADED the thought of all these drugs, especially having taken them pre-tx. But post-tx, I have had no issues with them that I would consider to be a major problem. Also, on the Kidney Transplant group on Yahoo! there are several women who have had children post-tx. W4JC@... wrote: Hi , I completely understand your hesitation based on the drugs you have to take post transplant. after I was officially diagnosed, for a number of years I said I would never ever agree to a transplant because the post transplant meds scared me so much! But then again, now that I am struggling with the impact of such low renal function, and I take so many meds anyway to control BP etc now, and also seeing Marty, , , Jing and so many others and hearing how much better they feel post transplant, I know this is the way to go. Sure I would prefer to not take any meds, but that is not a reality for me. As Pierre says, dialysis restores you to about 20% where a transplant gives you essentially 100%. If it is unavoidable that I need intervention, I would rather get it done so I can resume my normal life. Pray about it . God will give you the peace about it when the time is right. I just worry about you postponing too long. In a message dated 10/5/2004 6:20:13 PM Eastern Daylight Time, " " writes: > > > >> >Hi , >That is what is so confusing. I am scared to have transplant and all >in all I think I do feel good. My dr said- " your young and kidney's >only last so long " and he says " you have time " . I feel like taking >the immunosuppressents and steroids post transplant isn' great for >you either- it's a struggle to know when the time is best. I also >don't want to hurting other organs by waiting. My neph is with the >transplant team also and was referred to me because he is supposed >to be aggressive. He does also say " If you want kids-have it done >now. " as if it is so easy to make these decisions. I keep saying I'' >put it in god's hands. with my aortic insufficiency I was told it >would worsen with pregnancy. I feel like I have 2 strikes against >me. I truly believe that God will bless me with children wether mine >or adopted when the time is right. Beleiving this has really helped >take the weight off my shoulders which is what I think I need. >christine > >Hi , >> >> I know it is very humbling to think of someone giving up an organ >for you. I >> feel overwhelmed by that too. >> >> I guess your Nephrologist has a different philosophy than yours. >Mine says >> if it is inevitable, it is better to get it sooner rather than >later. >> >> I think was around a creatinine of 5 when she got hers. My >Neph is >> shooting for around 5 for me as well. He says it is his job to >help me feel >> better and the sooner I have good kidney function, the better. I >just don't want >> you to unnecessarily suffer longer than need be, especially since >you too have >> passed the point of no return. >> >> On the exercise, believe me, it took me a LONG time to build up. >When I got >> out of the hospital last time in the spring of 2001 after being >hospitalized >> for 6 days I was so weak I could not even walk to the house next >door, and that >> was with my husband helping me to get even that far. He would >tell me, " come >> on, you can make it to the corner and back " and it was SO hard. I >started on >> the treadmill struggling to make it a quarter of a mile, and I had >to build >> up very slowly. It is just my determination to gain my strength >back. I also >> went to my church and had the Elders pray over me and that was a >big turning >> point. I asked for prayer that I would be able to build back up >to the >> strength and endurance I had at the end of 2000, and those prayers >were answered with >> God's help and lots of hard work. >> >> It does help so much and I do feel much better on the days I >exercise, and >> that makes me keep going. >> >> >> >> In a message dated 10/4/2004 2:23:00 PM Pacific Daylight Time, >> GNCCLEVENGER@J... writes: >> >> > Hi , >> > the only workup they have had is tissue type. I didn't want to >go >> > farther with the workup yet because it only lasts for a certain >> > length of time and since I am not ready to have the transplant >yet. >> > I am in baltimore land and my brother who wants to donate is >in >> > Portland oregon-(keeping his eye on mt st helens I presume). I >am >> > not quite sure how I feel about getting his kidney if it all >works >> > out. It scares me that something could happen to him and I would >> > never want him to go through anything. I know I have to tell >myself >> > it is his decision and it would be better for me to gaet it >prior to >> > needing dialysis. I am sure that everyone has thoughts that >change >> > from one extreme to the other. I think it all seems unreal still. >> > talk to you later, >> > christine >> >> >> >> >> >> Quote Link to comment Share on other sites More sharing options...
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