Re: PLS at young age~Kelli

[Guest guest]

Hi ,

Thanks for writing. Yeah it could be that most of the symptoms are

ignorable (is that a word? lol) during the years when we were spry and

chipper, (when was that anyway)? I did feel much less spasticity in my legs

though back then and my balance was way better overall. I can't walk

without some kind of aid like 2 canes or a walker now. Most of the time I

use my wheelchair cause it is just easier overall.

Take care,

Kelli

Re: Positive Side Of Life

> >

> >

> > > thank you rita. i take great pride in the things i can

> > > still do, like grocery shopping, the laundry which i

> > > have go to the laundromat, driving my car, running

> > > general errands and the like. i've had pls for 6 years

> > > now and i'm 36 years old, and to here what you

> > > accomplished being 30 years in on this disease and

> > > being 67 years young is amazing to me, and makes feel

> > > better or not so afraid what the future might hold for

> > > me. thank you so much for sharing. and you did by the

> > > way help at least one person today. i too experienced

> > > an eyeopener today while driving to pick up my son,

> > > jack at daycare, i was listening to " all things

> > > considered " on npr and they had a segment on a family

> > > who's child has pardon the spelling kaysac's desease

> > > which is terminal it destroys the central nervous in

> > > no time flat. children last only 2 or 3 years. the

> > > family that was on the show were in so much pain. i

> > > was welling up in the car and instantly felt like the

> > > luckiest man alive. and thanked GOD right then and

> > > there for all my blessings and that HE has been very,

> > > very good to me.take good care.

> > > paul #11

> > > --- ritadfromhollis@... wrote:

> > > > Hi All:

> > > >

> > > > I have some thoughts I wish ti share with all of you

> > > > and would

> > > > appreciate some feedback. As most of you already

> > > > know, I have had PLS

> > > > for over 30 years. I am 67 (ugh) and still going

> > > > strong (as possible).

> > > > Today my husband of 43 years went to the dentist, I

> > > > usually go with him,

> > > > but the weather here in NH is rotten, cold and icy.

> > > > The last thing he

> > > > said to me as he left was " gee I hate leaving you

> > > > by yourself " , and off

> > > > he went. Now I could have sat and watched TV, and

> > > > do my counted

> > > > cross-stitch, but " NO " . I got up and did the

> > > > following:

> > > >

> > > > 1. Cleaned the bathroom (which he normally does)

> > > >

> > > > 2. Cleaned the microwave (which he never does)

> > > >

> > > > 3. Cleaned the coffee pot inside and out (which he

> > > > swishes the water in

> > > > the pot, and thinks it's clean)

> > > >

> > > > 4. Vacuumed my apartment (which he does)

> > > >

> > > > 5. Polished my dining room table (which he does)

> > > >

> > > > I am sittng here sweating up a storm, probably lost

> > > > a few pounds which I

> > > > certainly can afford to do. My point it lets not

> > > > only share the

> > > > negative of our disease but how about the positive,

> > > > no matter how

> > > > trivial the accomplishment might be. I am sitting

> > > > he looking at how

> > > > nice everything looks, and am so pleased that when

> > > > (who will be 80

> > > > this year) comes home will be " shocked " to see what

> > > > I have done. I

> > > > would never attempt to do anything that I am no

> > > > capable of doing that

> > > > would cause me to hurt myself. It makes me feel good

> > > > to share all of

> > > > this with you, and hope you don't mind. I have

> > > > always tried to inspire

> > > > people to live the best they can. We don't know how

> > > > lucky we are to

> > > > have PLS instead of ALS or Cancer or some

> > > > devastating disease like that.

> > > >

> > > > Now I am going to make a batch of tortalini soup.

> > > > So thanks for

> > > > listening, and I hope I have helped just one of you.

> > > > God Bless!

> > > >

> > > > Rita

> > > >

> > > > Luv & Hugs!

> > > >

> >

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> >