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Re: Digest Number 1613

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We have found it very useful to email, write or phone manufactures to send us a list of their gluten free foods. Cadbury and Mastercrafts were particularly good if you have those brands in the US. These lists could then be put in the files in the group. Secondly there is a product here called Buscopan (you'll have to check the net to see what it is called elsewhere) medically researched and so on that is good for pain relief for pain that goes with duodenum and bowel problems. It does not cause constipation or anything like that and is only used for pain relief. It is recommended by our state celiac society. Medications that stop diarrhoea are probably not good because the faster you get rid of the gluten the better. My daughter has an unusual reaction to gluten. One small dose and she I was up all night vomiting. There was little chance of her cheating on her diet and her second endoscopy six months

after the first showed a miraculous improvement. She is no longer anemics but may still be suffering from osteoporosis. (She is only 18). We are waiting for the results of her latest bone density scan. This reaction to gluten may be because of the severity of her illness as all her blood tests were way off the scale. Fortunately we don't have gluten challenge tests here, as she couldn't have done it! Sorry this was a bit long.

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