Guest guest Posted September 20, 2004 Report Share Posted September 20, 2004 There is an element of unpredictability. There have been cases where dialysis was predicted within a certain time, and the patient didn't need it for years after that, but, on the whole, nephrologists are pretty accurate in their predictions. If they say that it's time to have the fistula surgery, it's time - unless you want to end up on a chest catheter. I started dialysis almost exactly 6 months after my fistula was put in, and by that time, it was ready. I would say that it took 4 months to fully develop. It really is better to have the fistula and not need it for a while, than to need it and not have it. Pierre Doctor Humor > I had more time! " But today when he mentioned it I was like o.k., no > big deal. He said that even if I didn't have to use it for 2-3, even > up to 5 years, it wouldn't hurt to have it done now. " But it's not > gonna be 5 years--you have too much fibrosis. " He hasn't said > anything officially, but he told me that what happens is you're > coasting along, kinda on a plateau, and all the sudden BOOM! your > kidneys quit altogether and you have to go on dialysis immediately. > He wants this fistula to have 6-12 months to heal before we actually > have to use it. Like I said, he hasn't said anything official, but I > anticipate that I'll be on dialysis at LEAST by next summer, if not > next Spring. I have been upset, but I think I'm adopting a new > attitude. I'm just going to take it one day at a time. BEcause if I > dwell too much on the future, on the uncertainty of how I will feel, > how things will go down, I'll go crazy. Thanks for listening to me > ramble. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2004 Report Share Posted September 20, 2004 I agree with you, of course I'm sitting here with the chest cath cause my doc was not prepared. I wish we could have started preparing months ago. Now it'll be October before I can see the vascular specialist and who knows how long after that before they even try again. It is better to be safe then sorry. BRANDY > There is an element of unpredictability. There have been cases where > dialysis was predicted within a certain time, and the patient didn't need it > for years after that, but, on the whole, nephrologists are pretty accurate > in their predictions. If they say that it's time to have the fistula > surgery, it's time - unless you want to end up on a chest catheter. I > started dialysis almost exactly 6 months after my fistula was put in, and by > that time, it was ready. I would say that it took 4 months to fully develop. > It really is better to have the fistula and not need it for a while, than to > need it and not have it. > Pierre > > Doctor Humor > > > > I had more time! " But today when he mentioned it I was like o.k., no > > big deal. He said that even if I didn't have to use it for 2-3, even > > up to 5 years, it wouldn't hurt to have it done now. " But it's not > > gonna be 5 years--you have too much fibrosis. " He hasn't said > > anything officially, but he told me that what happens is you're > > coasting along, kinda on a plateau, and all the sudden BOOM! your > > kidneys quit altogether and you have to go on dialysis immediately. > > He wants this fistula to have 6-12 months to heal before we actually > > have to use it. Like I said, he hasn't said anything official, but I > > anticipate that I'll be on dialysis at LEAST by next summer, if not > > next Spring. I have been upset, but I think I'm adopting a new > > attitude. I'm just going to take it one day at a time. BEcause if I > > dwell too much on the future, on the uncertainty of how I will feel, > > how things will go down, I'll go crazy. Thanks for listening to me > > ramble. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2004 Report Share Posted September 21, 2004 Dear Jing, I didn't read your previous pst until this afternoon, but I really liked what you said that your faith brought you the transplant experience and you knew that your suffering would not be in vain. Like ai said, I had been really depressed and upset the last few weeks, because I've been thinking, I'm not afraid to die, I'm just afraid to be sick, as in too sick to participate in things or work or support my family.(jUst me and my husband right now.) And the owrst is not being able to have kids. I felt like if I didn't have them now, I never would. Somehow I've not worried as much now. I know things will happen when they are supposed to. My point of all this is to say, I started a Beth Bible study last week,so I've been reading the Bible alot and drawing so much comfort from what it says. I should have done that sooner. Off the top of my head, I can't remember where it is, but I love the one that says " They tht wait on the Lord shall renew their strenght, they will mount on wings like eagles, they will run and not grow weary, they will walk and not faint. " I love that!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2004 Report Share Posted September 21, 2004 Hi , I too have been given the speech that I am on borrowed time and will be on dialysis within 6-12 months. I know it is hard to hear when that message is delivered. But, it is better to be prepared ahead of time as Pierre said. I just had my first visit to the Renal Care Team myself just last week and need to decide on method of dialysis soon too so we are in the same boat. If you can stay focused on your faith, and your Beth study will really help with that, you will find the strength through your faith to get through this. Also reach out to some of the other ladies in your Bible Study because prayer support is vitally important. I did a Beth study last spring, and am starting a new one in two weeks. She is great! I know it is hard sometimes to not worry about what tomorrow will bring, but I have been able to help reduce the worry with 6:33-34 taped to my computer which says, " But seek first the kingdom of God and His righteousness, and all these things will be provided for you. Therefore don't worry about tomorrow, because tomorrow will worry about itself. Each day has enough trouble of its own. " The two others I keep on my computer are: " Don't worry about anything, instead pray about everything. Tell God what you need and thank Him for all He has done. " ians 4:5 (NLT) and " Be joyful in hope, patient in affliction, faithful in prayer " from Romans 12:12. We may not know what the future holds, but we know Him who holds the future, and that is enough! You have all of our support along the way for when it seems overwhelming too . You are not alone. God bless you! In a message dated 9/20/2004 7:29:42 PM Pacific Daylight Time, leslielist@... writes: > I had more time! " But today when he mentioned it I was like o.k., no > big deal. He said that even if I didn't have to use it for 2-3, even > up to 5 years, it wouldn't hurt to have it done now. " But it's not > gonna be 5 years--you have too much fibrosis. " He hasn't said > anything officially, but he told me that what happens is you're > coasting along, kinda on a plateau, and all the sudden BOOM! your > kidneys quit altogether and you have to go on dialysis immediately. > He wants this fistula to have 6-12 months to heal before we actually > have to use it. Like I said, he hasn't said anything official, but I > anticipate that I'll be on dialysis at LEAST by next summer, if not > next Spring. I have been upset, but I think I'm adopting a new > attitude. I'm just going to take it one day at a time. BEcause if I > dwell too much on the future, on the uncertainty of how I will feel, > how things will go down, I'll go crazy. Thanks for listening to me > ramble. > > > Quote Link to comment Share on other sites More sharing options...
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