Guest guest Report post Posted January 7, 2011 No, you only need to worry about keeping antibiotics away from probiotics. You can take V/D with. Cheryl ~http://www.gryffins-tail.blogspot.com~~@midian42~ Thanks, Cheryl. Wow, quite a few things to consider.The schedule of medication and supps are weighing heavy on the wife. Will valtrex or diflucan affect the probiotics? I've tried to keep a 2 hrs buffer; would be easier to manage otherwise. To: mb12 valtrex Sent: Saturday, January 8, 2011 12:31:44Subject: Re: Re: may i suggest:http://home.earthlink.net/~moriam/Lot's of info on ALA and AC chelation there. If you're looking at DAN dosages, I really have nothing I can offer as far as reference material. Cheryl ~http://www.gryffins-tail.blogspot.com~~@midian42~ I haven't started yet... fact finding first. don't want to beat the gun again :)Am looking at ALA in capsule form(only one I've found in sunny Malaysia), haven't gone as far as dosage considerations.To: mb12 valtrex Sent: Saturday, January 8, 2011 12:15:31Subject: Re: Re: No, I meant what protocol are you using for the ALA? What's the dose? That kind of stuff. Cheryl ~http://www.gryffins-tail.blogspot.com~~@midian42~ valtrex 500mg 3x, diflucan 150mg.OMX + chewable probiotics + L.Plantarum.The stimming is definitely valtrex-related; he was calming down on diflucan alone. It's worse early in the morning(assuming the night dose of valtrex has done its job thru the night and there's a flood of toxins from die-off waiting to be cleared). We give him probiotics just before bed, too.His stool consistency has also changed, so we're adding psyllium husk, mixed in with the charcoal and probiotics.Wondering when to add in the OLE, B12 and do the chelation. Very difficult days ahead...To: mb12 valtrex Sent: Saturday, January 8, 2011 10:44:18Subject: Re: Re: What protocol are you using? Cheryl ~http://www.gryffins-tail.blogspot.com~~@midian42~ read that it's the only chelator that can cross brain membrane as it is lipid-soluble to remove heavy metals from the brain. sounds interesting... but a bit worried about other side effect.how often can I give him charcoal to reduce the stimming? Quote Share this post Link to post Share on other sites
Guest guest Report post Posted January 7, 2011 phew... thanks again.just read up on PCA-Rx. sound interesting. ur comments, please?To: mb12 valtrex Sent: Saturday, January 8, 2011 13:19:45Subject: Re: Re: No, you only need to worry about keeping antibiotics away from probiotics. You can take V/D with. Cheryl ~http://www.gryffins-tail.blogspot.com~~@midian42~ Thanks, Cheryl. Wow, quite a few things to consider.The schedule of medication and supps are weighing heavy on the wife. Will valtrex or diflucan affect the probiotics? I've tried to keep a 2 hrs buffer; would be easier to manage otherwise. To: mb12 valtrex Sent: Saturday, January 8, 2011 12:31:44Subject: Re: Re: may i suggest:http://home.earthlink.net/~moriam/Lot's of info on ALA and AC chelation there. If you're looking at DAN dosages, I really have nothing I can offer as far as reference material. Cheryl ~http://www.gryffins-tail.blogspot.com~~@midian42~ I haven't started yet... fact finding first. don't want to beat the gun again :)Am looking at ALA in capsule form(only one I've found in sunny Malaysia), haven't gone as far as dosage considerations.To: mb12 valtrex Sent: Saturday, January 8, 2011 12:15:31Subject: Re: Re: No, I meant what protocol are you using for the ALA? What's the dose? That kind of stuff. Cheryl ~http://www.gryffins-tail.blogspot.com~~@midian42~ valtrex 500mg 3x, diflucan 150mg.OMX + chewable probiotics + L.Plantarum.The stimming is definitely valtrex-related; he was calming down on diflucan alone. It's worse early in the morning(assuming the night dose of valtrex has done its job thru the night and there's a flood of toxins from die-off waiting to be cleared). We give him probiotics just before bed, too.His stool consistency has also changed, so we're adding psyllium husk, mixed in with the charcoal and probiotics.Wondering when to add in the OLE, B12 and do the chelation. Very difficult days ahead...To: mb12 valtrex Sent: Saturday, January 8, 2011 10:44:18Subject: Re: Re: What protocol are you using? Cheryl ~http://www.gryffins-tail.blogspot.com~~@midian42~ read that it's the only chelator that can cross brain membrane as it is lipid-soluble to remove heavy metals from the brain. sounds interesting... but a bit worried about other side effect.how often can I give him charcoal to reduce the stimming? Quote Share this post Link to post Share on other sites
Guest guest Report post Posted January 7, 2011 phew... thanks again.just read up on PCA-Rx. sound interesting. ur comments, please?To: mb12 valtrex Sent: Saturday, January 8, 2011 13:19:45Subject: Re: Re: No, you only need to worry about keeping antibiotics away from probiotics. You can take V/D with. Cheryl ~http://www.gryffins-tail.blogspot.com~~@midian42~ Thanks, Cheryl. Wow, quite a few things to consider.The schedule of medication and supps are weighing heavy on the wife. Will valtrex or diflucan affect the probiotics? I've tried to keep a 2 hrs buffer; would be easier to manage otherwise. To: mb12 valtrex Sent: Saturday, January 8, 2011 12:31:44Subject: Re: Re: may i suggest:http://home.earthlink.net/~moriam/Lot's of info on ALA and AC chelation there. If you're looking at DAN dosages, I really have nothing I can offer as far as reference material. Cheryl ~http://www.gryffins-tail.blogspot.com~~@midian42~ I haven't started yet... fact finding first. don't want to beat the gun again :)Am looking at ALA in capsule form(only one I've found in sunny Malaysia), haven't gone as far as dosage considerations.To: mb12 valtrex Sent: Saturday, January 8, 2011 12:15:31Subject: Re: Re: No, I meant what protocol are you using for the ALA? What's the dose? That kind of stuff. Cheryl ~http://www.gryffins-tail.blogspot.com~~@midian42~ valtrex 500mg 3x, diflucan 150mg.OMX + chewable probiotics + L.Plantarum.The stimming is definitely valtrex-related; he was calming down on diflucan alone. It's worse early in the morning(assuming the night dose of valtrex has done its job thru the night and there's a flood of toxins from die-off waiting to be cleared). We give him probiotics just before bed, too.His stool consistency has also changed, so we're adding psyllium husk, mixed in with the charcoal and probiotics.Wondering when to add in the OLE, B12 and do the chelation. Very difficult days ahead...To: mb12 valtrex Sent: Saturday, January 8, 2011 10:44:18Subject: Re: Re: What protocol are you using? Cheryl ~http://www.gryffins-tail.blogspot.com~~@midian42~ read that it's the only chelator that can cross brain membrane as it is lipid-soluble to remove heavy metals from the brain. sounds interesting... but a bit worried about other side effect.how often can I give him charcoal to reduce the stimming? Quote Share this post Link to post Share on other sites
Guest guest Report post Posted January 7, 2011 phew... thanks again.just read up on PCA-Rx. sound interesting. ur comments, please?To: mb12 valtrex Sent: Saturday, January 8, 2011 13:19:45Subject: Re: Re: No, you only need to worry about keeping antibiotics away from probiotics. You can take V/D with. Cheryl ~http://www.gryffins-tail.blogspot.com~~@midian42~ Thanks, Cheryl. Wow, quite a few things to consider.The schedule of medication and supps are weighing heavy on the wife. Will valtrex or diflucan affect the probiotics? I've tried to keep a 2 hrs buffer; would be easier to manage otherwise. To: mb12 valtrex Sent: Saturday, January 8, 2011 12:31:44Subject: Re: Re: may i suggest:http://home.earthlink.net/~moriam/Lot's of info on ALA and AC chelation there. If you're looking at DAN dosages, I really have nothing I can offer as far as reference material. Cheryl ~http://www.gryffins-tail.blogspot.com~~@midian42~ I haven't started yet... fact finding first. don't want to beat the gun again :)Am looking at ALA in capsule form(only one I've found in sunny Malaysia), haven't gone as far as dosage considerations.To: mb12 valtrex Sent: Saturday, January 8, 2011 12:15:31Subject: Re: Re: No, I meant what protocol are you using for the ALA? What's the dose? That kind of stuff. Cheryl ~http://www.gryffins-tail.blogspot.com~~@midian42~ valtrex 500mg 3x, diflucan 150mg.OMX + chewable probiotics + L.Plantarum.The stimming is definitely valtrex-related; he was calming down on diflucan alone. It's worse early in the morning(assuming the night dose of valtrex has done its job thru the night and there's a flood of toxins from die-off waiting to be cleared). We give him probiotics just before bed, too.His stool consistency has also changed, so we're adding psyllium husk, mixed in with the charcoal and probiotics.Wondering when to add in the OLE, B12 and do the chelation. Very difficult days ahead...To: mb12 valtrex Sent: Saturday, January 8, 2011 10:44:18Subject: Re: Re: What protocol are you using? Cheryl ~http://www.gryffins-tail.blogspot.com~~@midian42~ read that it's the only chelator that can cross brain membrane as it is lipid-soluble to remove heavy metals from the brain. sounds interesting... but a bit worried about other side effect.how often can I give him charcoal to reduce the stimming? Quote Share this post Link to post Share on other sites
Guest guest Report post Posted January 7, 2011 no experience with it. Cheryl ~http://www.gryffins-tail.blogspot.com~~@midian42~ phew... thanks again.just read up on PCA-Rx. sound interesting. ur comments, please?To: mb12 valtrex Sent: Saturday, January 8, 2011 13:19:45Subject: Re: Re: No, you only need to worry about keeping antibiotics away from probiotics. You can take V/D with. Cheryl ~http://www.gryffins-tail.blogspot.com~~@midian42~ Thanks, Cheryl. Wow, quite a few things to consider.The schedule of medication and supps are weighing heavy on the wife. Will valtrex or diflucan affect the probiotics? I've tried to keep a 2 hrs buffer; would be easier to manage otherwise. To: mb12 valtrex Sent: Saturday, January 8, 2011 12:31:44Subject: Re: Re: may i suggest:http://home.earthlink.net/~moriam/Lot's of info on ALA and AC chelation there. If you're looking at DAN dosages, I really have nothing I can offer as far as reference material. Cheryl ~http://www.gryffins-tail.blogspot.com~~@midian42~ I haven't started yet... fact finding first. don't want to beat the gun again :)Am looking at ALA in capsule form(only one I've found in sunny Malaysia), haven't gone as far as dosage considerations.To: mb12 valtrex Sent: Saturday, January 8, 2011 12:15:31Subject: Re: Re: No, I meant what protocol are you using for the ALA? What's the dose? That kind of stuff. Cheryl ~http://www.gryffins-tail.blogspot.com~~@midian42~ valtrex 500mg 3x, diflucan 150mg.OMX + chewable probiotics + L.Plantarum.The stimming is definitely valtrex-related; he was calming down on diflucan alone. It's worse early in the morning(assuming the night dose of valtrex has done its job thru the night and there's a flood of toxins from die-off waiting to be cleared). We give him probiotics just before bed, too.His stool consistency has also changed, so we're adding psyllium husk, mixed in with the charcoal and probiotics.Wondering when to add in the OLE, B12 and do the chelation. Very difficult days ahead...To: mb12 valtrex Sent: Saturday, January 8, 2011 10:44:18Subject: Re: Re: What protocol are you using? Cheryl ~http://www.gryffins-tail.blogspot.com~~@midian42~ read that it's the only chelator that can cross brain membrane as it is lipid-soluble to remove heavy metals from the brain. sounds interesting... but a bit worried about other side effect.how often can I give him charcoal to reduce the stimming? Quote Share this post Link to post Share on other sites
Guest guest Report post Posted January 7, 2011 no experience with it. Cheryl ~http://www.gryffins-tail.blogspot.com~~@midian42~ phew... thanks again.just read up on PCA-Rx. sound interesting. ur comments, please?To: mb12 valtrex Sent: Saturday, January 8, 2011 13:19:45Subject: Re: Re: No, you only need to worry about keeping antibiotics away from probiotics. You can take V/D with. Cheryl ~http://www.gryffins-tail.blogspot.com~~@midian42~ Thanks, Cheryl. Wow, quite a few things to consider.The schedule of medication and supps are weighing heavy on the wife. Will valtrex or diflucan affect the probiotics? I've tried to keep a 2 hrs buffer; would be easier to manage otherwise. To: mb12 valtrex Sent: Saturday, January 8, 2011 12:31:44Subject: Re: Re: may i suggest:http://home.earthlink.net/~moriam/Lot's of info on ALA and AC chelation there. If you're looking at DAN dosages, I really have nothing I can offer as far as reference material. Cheryl ~http://www.gryffins-tail.blogspot.com~~@midian42~ I haven't started yet... fact finding first. don't want to beat the gun again :)Am looking at ALA in capsule form(only one I've found in sunny Malaysia), haven't gone as far as dosage considerations.To: mb12 valtrex Sent: Saturday, January 8, 2011 12:15:31Subject: Re: Re: No, I meant what protocol are you using for the ALA? What's the dose? That kind of stuff. Cheryl ~http://www.gryffins-tail.blogspot.com~~@midian42~ valtrex 500mg 3x, diflucan 150mg.OMX + chewable probiotics + L.Plantarum.The stimming is definitely valtrex-related; he was calming down on diflucan alone. It's worse early in the morning(assuming the night dose of valtrex has done its job thru the night and there's a flood of toxins from die-off waiting to be cleared). We give him probiotics just before bed, too.His stool consistency has also changed, so we're adding psyllium husk, mixed in with the charcoal and probiotics.Wondering when to add in the OLE, B12 and do the chelation. Very difficult days ahead...To: mb12 valtrex Sent: Saturday, January 8, 2011 10:44:18Subject: Re: Re: What protocol are you using? Cheryl ~http://www.gryffins-tail.blogspot.com~~@midian42~ read that it's the only chelator that can cross brain membrane as it is lipid-soluble to remove heavy metals from the brain. sounds interesting... but a bit worried about other side effect.how often can I give him charcoal to reduce the stimming? Quote Share this post Link to post Share on other sites
Guest guest Report post Posted January 7, 2011 no experience with it. Cheryl ~http://www.gryffins-tail.blogspot.com~~@midian42~ phew... thanks again.just read up on PCA-Rx. sound interesting. ur comments, please?To: mb12 valtrex Sent: Saturday, January 8, 2011 13:19:45Subject: Re: Re: No, you only need to worry about keeping antibiotics away from probiotics. You can take V/D with. Cheryl ~http://www.gryffins-tail.blogspot.com~~@midian42~ Thanks, Cheryl. Wow, quite a few things to consider.The schedule of medication and supps are weighing heavy on the wife. Will valtrex or diflucan affect the probiotics? I've tried to keep a 2 hrs buffer; would be easier to manage otherwise. To: mb12 valtrex Sent: Saturday, January 8, 2011 12:31:44Subject: Re: Re: may i suggest:http://home.earthlink.net/~moriam/Lot's of info on ALA and AC chelation there. If you're looking at DAN dosages, I really have nothing I can offer as far as reference material. Cheryl ~http://www.gryffins-tail.blogspot.com~~@midian42~ I haven't started yet... fact finding first. don't want to beat the gun again :)Am looking at ALA in capsule form(only one I've found in sunny Malaysia), haven't gone as far as dosage considerations.To: mb12 valtrex Sent: Saturday, January 8, 2011 12:15:31Subject: Re: Re: No, I meant what protocol are you using for the ALA? What's the dose? That kind of stuff. Cheryl ~http://www.gryffins-tail.blogspot.com~~@midian42~ valtrex 500mg 3x, diflucan 150mg.OMX + chewable probiotics + L.Plantarum.The stimming is definitely valtrex-related; he was calming down on diflucan alone. It's worse early in the morning(assuming the night dose of valtrex has done its job thru the night and there's a flood of toxins from die-off waiting to be cleared). We give him probiotics just before bed, too.His stool consistency has also changed, so we're adding psyllium husk, mixed in with the charcoal and probiotics.Wondering when to add in the OLE, B12 and do the chelation. Very difficult days ahead...To: mb12 valtrex Sent: Saturday, January 8, 2011 10:44:18Subject: Re: Re: What protocol are you using? Cheryl ~http://www.gryffins-tail.blogspot.com~~@midian42~ read that it's the only chelator that can cross brain membrane as it is lipid-soluble to remove heavy metals from the brain. sounds interesting... but a bit worried about other side effect.how often can I give him charcoal to reduce the stimming? Quote Share this post Link to post Share on other sites
Guest guest Report post Posted January 12, 2011 lol - too funny. If you asked everyone on here, they'd admit to the very same thing. To: mb12 valtrex Sent: Wed, January 12, 2011 10:41:10 AMSubject: RE: RE: It's funny that you ask that b/c I just ordered the SCD book yesterday. It gets confusing b/c the low oxalate diet says no nuts, but that is one of the staples on SCD. My head is in a constant state of spinning these days. - Kirk- To: mb12 valtrex From: t.lynn28@...Date: Wed, 12 Jan 2011 07:38:07 -0800Subject: Re: RE: , have you looked into the scd diet? Its not for everyone, but it might be worth looking into. check out pecanbread.com. Basically, you start at scratch and work your way up to different foods and when you're done, you should be able to tolerate just about anything. There are people here who know alot more about it, but I thought it was worth mentioning. ugh. snow. tons of it.....blech! I just informed my husband that I will NOT do this in my old age. To: mb12 valtrex Sent: Wed, January 12, 2011 10:15:09 AMSubject: RE: I hear ya . It can be SO frustrating. The leaky gut thing seems to make sense as far as nutrition leaving them so quickly. I guess the hope is that the gut will heal eventually with diet/supps and then things will be better overall? I'm still learning about all of this (and god, has it been a learning process). Just when I think I understand, and things seem to be going better, I find out something I'm giving them is no good, or shouldn't be combined with something, etc, etc. I feel your pain!That said, that is really exciting that those products had such a positive impact. Did your daughter have articulation issues that got better, or was it more the quantity of speech that improved? My daughter has artic issues and immature speech patterns. She has plenty of words - just very hard to understand. I'm told that this has to do with brain development, lack of nutrients, fats, etc getting through. Just a couple questions about Syntol/Candex - what other supps did you give at the same time? Should I stop probiotics, CLO any of that while giving them? Did you notice and changes with digestive stuff? My girls ahve been having so many digestive issues - they are sort of starting to get better. Just wondering what I'm in for there. Also, are both products 100% GFCFSF and strep-free? I will probably wait a bit until the supps they are on even them out a bit, but I'm very interested in these products Quote Share this post Link to post Share on other sites
Guest guest Report post Posted January 20, 2011 Have you considered trying an Atkins diet? Some research suggests keto diets to decrease seizure activity. Dr. Suzanne Fleeson-DaSilva www.fcchiropracticcenter.com > > for us when we took gluten out all 3 of our kids STOPPED seizering, also seizer thresh hold can be taken up with taurine about 1000 mgs a day > > > > From: lilhouselin@... > Sent: Wednesday, January 19, 2011 5:08 PM > To: mb12 valtrex > Subject: > > > > > > > > -------------------------------------------------------------------------------- > > From: tacavirginia [mailto:tacavirginia ] On Behalf Of Tuggle > Sent: Wednesday, January 19, 2011 10:36 AM > To: tacavirginia > Subject: RE: [tacavirginia] Temple Grandin to speak in Richmond area- FREE event > > > > > > > Hi does anyone know what I should do? My daughter has seizures and is having them quite often. Her neurologist just keeps adding more medication and increasing the ones that she is on. I am at the end of my rope! Can anyone recommend another neurologist or any advice would be appreciated. > > Have a Blessed day > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted February 7, 2011 dmg at Kirkmans Re: how does one get stuff retail? made the rounds yesterday, and found pharmacists hadn't even heard of LDN, DMG, syntol, lugol's iodine (( happen to be in the states, but a whirlwind trip, so can't order stuff online. stan the frustrated man Quote Share this post Link to post Share on other sites
Guest guest Report post Posted February 7, 2011 dmg at Kirkmans Re: how does one get stuff retail? made the rounds yesterday, and found pharmacists hadn't even heard of LDN, DMG, syntol, lugol's iodine (( happen to be in the states, but a whirlwind trip, so can't order stuff online. stan the frustrated man Quote Share this post Link to post Share on other sites
Guest guest Report post Posted February 7, 2011 LDN you can only get with a prescription. A pharmacist would only know it by Naltrexone, not LDN because LDN refers to the protocol: Low Dose Naltrexone. But again, that doesn't help you because you need an Rx. DMG you can get in health food store or you can order the liquid online. I don't think you can get lugols or syntol in a store, I think you can only order it online. But I'm not positive on that. Cheryl ~http://www.gryffins-tail.blogspot.com~~@Gryffins_Tail~ how does one get stuff retail? made the rounds yesterday, and found pharmacists hadn't even heard of LDN, DMG, syntol, lugol's iodine ((happen to be in the states, but a whirlwind trip, so can't order stuff online.stan the frustrated man Quote Share this post Link to post Share on other sites
Guest guest Report post Posted February 7, 2011 LDN you can only get with a prescription. A pharmacist would only know it by Naltrexone, not LDN because LDN refers to the protocol: Low Dose Naltrexone. But again, that doesn't help you because you need an Rx. DMG you can get in health food store or you can order the liquid online. I don't think you can get lugols or syntol in a store, I think you can only order it online. But I'm not positive on that. Cheryl ~http://www.gryffins-tail.blogspot.com~~@Gryffins_Tail~ how does one get stuff retail? made the rounds yesterday, and found pharmacists hadn't even heard of LDN, DMG, syntol, lugol's iodine ((happen to be in the states, but a whirlwind trip, so can't order stuff online.stan the frustrated man Quote Share this post Link to post Share on other sites
Guest guest Report post Posted February 7, 2011 thanks for all the suggestions. out of time, leaving tonight. will hv to figure some way else.cheerio Quote Share this post Link to post Share on other sites
Guest guest Report post Posted February 7, 2011 thanks for all the suggestions. out of time, leaving tonight. will hv to figure some way else.cheerio Quote Share this post Link to post Share on other sites
Guest guest Report post Posted February 7, 2011 thanks for all the suggestions. out of time, leaving tonight. will hv to figure some way else.cheerio Quote Share this post Link to post Share on other sites
Guest guest Report post Posted February 7, 2011 We had no results w/Kirkman's or Behavior Balance DMG. But, Aangamik® DMG. Whoo! Hoo! I posted a link earlier. > > we tried kirkmans and it did nothing, switched to food science of vemont and had 8 words in 8 hours > > > > From: l h > Sent: Monday, February 07, 2011 10:03 AM > To: mb12 valtrex > Subject: RE: Re: > > > > dmg at Kirkmans > Re: > > how does one get stuff retail? made the rounds yesterday, and found pharmacists > hadn't even heard of LDN, DMG, syntol, lugol's iodine (( > happen to be in the states, but a whirlwind trip, so can't order stuff online. > stan the frustrated man > Quote Share this post Link to post Share on other sites
