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> I worked with a Dr. Sloderbeck so forgive my misspelling as I've never

> heard another name similar to his before. When I am responding to a

> post I don't scan back through your messages to get the correct

> spelling since the majority of the time I reply from email, so chances

> are I may mispell it again.

>

*smile* No problem.

If it's easier, you can call me ...

> Do you advocate the usage of supplements in pregnancy to increase

> fetal brain growth and development which is essentially why Shoshannah

> was saying she was taking it? I've never heard, seen, read or been to

> a seminar that advocated this. I was just wondering if you had and if

> you would cite your sources. I'm always up for learning more about

> fetal growth and development!

>

I don't specifically advocate the usage of suppliments,

other than folic acid and iron-type suppliments (like

liquid chlorophyll)

I more advocate healthy diets and lifestyles...

I was more responding to the idea that egg yolks aren't

to be given to an infant (6+ months) than any idea about

suppliments..

> And no, the pediatricians here do not recommend solids before 6 months

> of age and most recommend prepared baby foods and no table food or

> cow's milk until 1 year of age (many people do not follow this advice

> though).

Why do they differentiate 'baby foods' from " table

foods " ? In what way do they differentiate the two?

(what do they say is the difference?)

> I used 6 months as the time frame that solids usually

begin,

> not that I was suggesting she stop BF'ing at 6 months of age. And

> here, egg yolks are considered " table food " .

>

Where you are...what do they consider " baby food " ?

And what do they consider " table food " ? Your

pediatricians say no egg yolks until one full year??

Soderblom CCCE CD(DONA) ICD CLD

Student Midwife

CAPPA Board of Directors - Advisor

Birth Doula/Childbirth Educator/Pregnancy-Birth

Photography

Mesa, AZ

Owner: Birth Story Diaries - real births, real photos

http://www.birthdiaries.com

Owner: SouthwestDoulas.com - locate a birth

professional

or find out about a hospital in your area!

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I bought the choline, but I have decided not to take it because of what I

read here.

Shoshannah K

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Oh Mindy!

I know what you mean about the pannis. Some people have a double chin.

Well, I have a double stomach. I have to wear a light girdle in addition to a

prenatal cradle for support. Otherwise, I would not be able to walk across the

floor. Now that I am 37 weeks along, it is even getting difficult to move

around with all the stomach supports. The baby is getting lower which is

supposed

to happen, but I sure wish I had a panniculectome prior to pregnancy

Shoshannah K

r ny 3/6/01

edd 6/25/03 baby girl

mom to A.J. 7 1/2

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on 6/5/03 7:16 PM, Sheila Goodson at angel_of_mercy_911@... wrote:

> When he fusses and cries the ONLY

> music that will calm him down is heavy metal and rock. We're not talking

> about Backstreet Boys here. Once last week, it was Alice , then

> Linkin Park, then Metallica, Megadeath and Def Leppard.

Have you tried the Ramones at all? " I Wanna Be Sedated " !!! <snicker snicker>

What minister's wife have you ever met who digs the Ramones, the Clash,

etc... I *so* do not fit in with the other ministers' wives when they have

their little " luncheons " ... <snort>

Metallica I could live without, but Alice is great classic stuff.

Does your bad boy ever get to experience Ted Nugent?

I know some awesome Christian metal bands (and alternative, punk, ska,

techno, rap core, you name it I dig it)... if you're ever interested... when

I was in labor, I listened to the Supertones, which is a Christian ska

group. My kids loooooove Relient K; they're an incredibly talented punk

band. Funny thing is, when I bought the soundtrack to the Veggie Tales'

Jonah movie, they have a song on there done by Relient K and my kids went

NUTS. It's their own version of " The Pirates Who Don't Do Anything " ...

incredibly hilarious.

And then we also have the soundtrack to " My Big Fat Greek Wedding " which is

fun... and some traditional African and Caribbean and Egyptian stuff. As you

can see, we're rather eclectic in our tastes here. : )

-Kris

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Mindy,

Thanks so much for your response. I can't tell you how comforting it is to

have someone else out there experiencing the same thing.

Wow, 32 weeks! The end is in sight for you.

Thanks again and have a great weekend!

Annette

At 06:29 PM 6/5/2003 -0400, you wrote:

>Annette,

>I am now 32 weeks along, 130 pounds lost since surgery with about 60-75

>pounds to go, with a large pannis. I thought when I started to show it

>was really high, but it was the baby. Even now with a huge pregnant

>belly, it still is completely separate from my pannis belly. I really

>think I look very weird. I try to wear underwear that holds my lower

>belly up to look like it's all together.

>Mindy

>Open 4-26-02

>441-309-???

>EDD 7-31-03

>Mom to Dalton 2-25-98

>and Carley 8-18-99

>

>

>

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Dear

Many thanks for replying to my last posting :-)

I am still waiting to hear back from my GP about a private referral. Due to

other serious medical conditions that I have I feel it is important to get a

'good half hour' with an experienced surgeon. Perhaps after that, and if

resurfacing is suitable for me, my GP would be able to refer me as an NHS

patient.

I have, however, been told that Mr Treacy has a two year wait on the NHS and

I fear time is running out for me.

Love Lucy

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I was just e-mailed by a friend that he was talking to

at the World Masters judo competition that were recently held in

Tokyo. Both were competing there.

If anyone is familiar with , he is a case study on the

MMT web site for the BHR device

(http://www.midmedtec.co.uk/case_studies.htm). He had his resurf

done back in early 1995. What makes his case 'exciting' is that he

has been training and competing in judo since then and if anyone

knows what kind of (ab)use the hip can go through in judo, especially

at that level of competition, it would certainly say a lot for both

the BHR device and his surgeon as well as re-surfing in general.

I plan to be talking to shortly to get more info about his re-

surfaced hip and how it's been holding up. Stay tuned.

Gee, maybe after my resurfing, I can go back into compettion too...

right after my shoulder and toe get fixed. Anyone got any leads on a

good surgeon for OA in the big toe? Seriously... it's painful.

Rainer

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bEFORE RUNNING ANY REAL SORT OF DISTANCE, MAKE SURE THAT ANY OSTEPORosis

(bone thinning) that has occurred due to loss of use, has had sufficient

time - and I would suggest maybe a year, maybe 6 months - to strengthen up

again. You really dont need a fracture of the ar around the pin holding the

femoral component steady.

Best person to speak to is the surgeon - after all - he knows how strong or

soft that bone is after shaping it!.

To: " Hip Resurface "

<surfacehippy >

cc:

Subject:

" Reinholds "

24/07/2003 12:13

Hi,

I am a " former " distance runner forced into retirement by OA

in 1997. I am

interested in getting a better perspective on the literature I have been

reading relative to hip resurfacing and the use of metal-on-metal

articulating surfaces. In particular I am trying to understand if the wear

rates, dislocation issues, fixation of components, and stress shielding

issues associated with THR using poly-on-metal have been addressed to a

degree that distance running might be a reasonable activity after

sufficient

recovery w/ a resurfaced hip using a metal-on-metal prosthesis.

Here is what I think I am reading:

1. A 50mm metal-on-metal articulating surface, properly manufactured w/

~100

microns of clearance, has surface properties such that " thick film "

lubrication can occur. The implications of this is that wear essentially

does not take place. (Note, when lab measured wear values are given for

metal-on-metal is this done " dry " or is a lubricating fluid provided?) The

Birmingham " brochure " seems to suggest that wear is no longer a

concern even at the loading levels associated with active sports. Is there

a

general consensus within the medical/research/manufacturing community that

wear with these types of components should not be an issue?

2. Dislocation with prosthesis used for hip resurfacing appears to be low

when the femoral head is replaced with a prosthesis of the same size as the

femoral head (38-58 mm).

There does not seem to be a much detail as to why this is, but the

suggestion is

that involvement in sports, including active sports such as soccer is ok.

Is

there consensus that dislocation is no longer a reason to avoid

participation is sports?

3. Since the femoral head is not removed there is no issue of stress

shielding, normal stress/loading should be seen by the femoral components.

I

assume that this addresses the concerns associated with bone loss that can

lead to loosening and fracture of the femor seen as seen in some THR.

4. The fixation of the acetabular and femoral components is sufficient.

There seems to be less

Are there other issues?

How comfortable would those of you who are OSes be if one of your patients

started running 50-70 miles/week on a resurfaced hip? What would be your

primary concerns? Are there ways to monitor the impact of such activity

levels on the prosthesis?

I know this is fairly long winded set of questions, but any " perspective "

that can be

offered on this issue would be helpful to me, and I assume others on this

list. Thanks for your time and insight.

Barry Reinhold

Principal Architect

Trebia Networks

barry.reinhold@...

(Durham)/ (Acton)/603 767-5290 (Cell)

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hi barry-

you sound like me. you want to know everything you can find out.

i've been scouring this posts on this board for a while now and have tracked

down alot of the url links that people are kind enough to contribute.

i'm not a doctor and i haven't had my resurf done just yet, but here is my

perspective

on your questions, for what it's worth.

see answers inserted below each question........

Hi,

I am a " former " distance runner forced into retirement by OA in 1997. I

am

interested in getting a better perspective on the literature I have been

reading relative to hip resurfacing and the use of metal-on-metal

articulating surfaces. In particular I am trying to understand if the wear

rates, dislocation issues, fixation of components, and stress shielding

issues associated with THR using poly-on-metal have been addressed to a

degree that distance running might be a reasonable activity after sufficient

recovery w/ a resurfaced hip using a metal-on-metal prosthesis.

Here is what I think I am reading:

1. A 50mm metal-on-metal articulating surface, properly manufactured w/ ~100

microns of clearance, has surface properties such that " thick film "

lubrication can occur. The implications of this is that wear essentially

does not take place. (Note, when lab measured wear values are given for

metal-on-metal is this done " dry " or is a lubricating fluid provided?) The

Birmingham " brochure " seems to suggest that wear is no longer a

concern even at the loading levels associated with active sports. Is there a

general consensus within the medical/research/manufacturing community that

wear with these types of components should not be an issue?

my response:

-----------

that is pretty much what i gathered from the info i could find, too.

although, the cormet2000 website shows their lab wear testing

being done with the device submerged in liquid. i assume this liquid

is supposed to simulate sinovial fluid, but who knows if this also

simulates actual performance.

-----------------------------------------------------------------------------

2. Dislocation with prosthesis used for hip resurfacing appears to be low

when the femoral head is replaced with a prosthesis of the same size as the

femoral head (38-58 mm).

There does not seem to be a much detail as to why this is, but the

suggestion is

that involvement in sports, including active sports such as soccer is ok. Is

there consensus that dislocation is no longer a reason to avoid

participation is sports?

my response :

-----------

i gathered this too. if i were to guess, the reason for this is that with the

smaller diameter implants, the femur doesn't have to move nearly as far

both axially and laterally to unseat itself from the cup. i know someone

with a smaller diameter thr who telemark skis with no problem, i don't think

i would try that if i were her, but then again, i don't think i would ever get

a small diameter implant when i can get one that replicates the size and shape

of

my natural hip more closely (like bhr).

--------------------------------------------------------------------------------\

-----------------------------------------------------

3. Since the femoral head is not removed there is no issue of stress

shielding, normal stress/loading should be seen by the femoral components. I

assume that this addresses the concerns associated with bone loss that can

lead to loosening and fracture of the femor seen as seen in some THR.

my response :

-----------

this sounds like most of what i've read too, but not all. i'm pretty sure that

the part about stress shielding relates to the condition at the walls of

femural

shaft, but not to the stresses on the neck of the femur and the base of the

little nub of bone that is left after they reshape your femoral head. of the

resurface failures that i found info on, fracturing of the femoral neck and

cracking of the bone within the nub was mentioned as one of the reasons for

a revision to be needed. from what i gathered, there could be a few different

causes of this. one being that it was a pre-existing condition in the

remaining

bone, another is that cracking of the bone can occur when they install your

new

hip cap, and the other is new trauma (i.e. accident or impact). i also read an

article

(that someone was nice enough to e-mail me) that described reasons for failure

of cement fixation in femoral head implants. it listed " micromovement " as

something that can occur and can lead to loosening of the implant. i read it

in

a .pdf about the wright medical technology " orthoset " cement product :

http://www.wmt.com/Literature/docs/123615-2%20Orthoset%20Radiopaque%20Bone%20Cem\

ent.pdf

this may be of interest to you, it was to me.

--------------------------------------------------------------------------------\

-------------------------------------------------------------------

4. The fixation of the acetabular and femoral components is sufficient.

There seems to be less

my response :

-----------

... " sufficient " but for what kind of use? a recent post referenced a guy who

is doing the ironman triathalon this year who has a resurface. maybe you could

find out who he is and contact him directly? there is also some guy who is a

judo champion, he has a website about his hip story, but charges MONEY to

access

it!!!! can you believe that....what nerve. but, some unfortunate few have

needed

a revision because of failure who were not judo freaks or ironman competitors.

i used to run trails, play ultimate, ski, snowboard, windsurf, bicycle &

even tie my own shoes. i know that i will replace running with hiking, i won't

play ultimate anymore, i probably won't downhill ski anymore, but i will

definately be cycling and most definately windsurfing. i know that i will be

pissed

off if i can't clip my toe-nails again or put on socks. personally, i'm

prepared

to alter my activities to lower the risk of over-stressing the artificial hip.

sounds pretty conservative for a social democrat, huh?

-------------------------------------------------------------------------------

Are there other issues?

my response :

-----------

if it were me who really wanted to run regularly again, i'd wait for someone

like you to try it out first!! and then i'd start slowly after 1-2 years of

hiking/cycling to make sure that i corrected my gait, built up good muscle

structure, gave the bone ample opportunity to grow in as much as possible and

allowed the sunovial fluid layer to develop before subjecting the new hip

to repetitive impact stresses. then i'd start with low mileage runs and get

x-rayed and have my blood tested a few times over a few months to see if there

was any slippage or microfractures or high levels of metal in my blood.

but that's just me, the consequences of the risks are just a little too high

to not be careful.

--------------------------------------------------------------------------------\

--------------------------------------------

How comfortable would those of you who are OSes be if one of your patients

started running 50-70 miles/week on a resurfaced hip? What would be your

primary concerns? Are there ways to monitor the impact of such activity

levels on the prosthesis?

I know this is fairly long winded set of questions, but any " perspective "

that can be

offered on this issue would be helpful to me, and I assume others on this

list. Thanks for your time and insight.

Barry Reinhold

Principal Architect

Trebia Networks

barry.reinhold@...

(Durham)/ (Acton)/603 767-5290 (Cell)

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Jeff,

Thanks for your review and insight. I am especially appreciative of the

suggestions towards how the impact on high levels of activity could be

monitored. I read the article you referenced -- not a lot there on

fixation...but perhaps too much on the potential dangers related to the

cement! ... thanks for the pointer.

In terms of stress shielding I guess there really are two issues to

consider. The first being the different distribution pattern of " elastic

energy " induced by the THR prosthesis in the lower portion of the femur.

This shouldn't be an issue w/ resurfaced hips as the head of the hip is not

cut off and I was thinking that the " physiologic load transfer " (I hope this

is the correct term) would be the same as with a normal femur.

The issue you brought up is the potential weakness of the resurfaced femoral

head -- I had forgotten about that -- which I guess is another issue.

Sigh -- lots to learn -- well since I can't go running around outside I

might as well run around on the net -- there is a lot of info out there --

thanks to a bunch of people that have gone this way before me.

Re:

hi barry-

you sound like me. you want to know everything you can find out.

i've been scouring this posts on this board for a while now and have

tracked

down alot of the url links that people are kind enough to contribute.

i'm not a doctor and i haven't had my resurf done just yet, but here is my

perspective

on your questions, for what it's worth.

see answers inserted below each question........

Hi,

I am a " former " distance runner forced into retirement by OA in

1997. I am

interested in getting a better perspective on the literature I have been

reading relative to hip resurfacing and the use of metal-on-metal

articulating surfaces. In particular I am trying to understand if the

wear

rates, dislocation issues, fixation of components, and stress shielding

issues associated with THR using poly-on-metal have been addressed to a

degree that distance running might be a reasonable activity after

sufficient

recovery w/ a resurfaced hip using a metal-on-metal prosthesis.

Here is what I think I am reading:

1. A 50mm metal-on-metal articulating surface, properly manufactured w/

~100

microns of clearance, has surface properties such that " thick film "

lubrication can occur. The implications of this is that wear essentially

does not take place. (Note, when lab measured wear values are given for

metal-on-metal is this done " dry " or is a lubricating fluid provided?)

The

Birmingham " brochure " seems to suggest that wear is no longer a

concern even at the loading levels associated with active sports. Is

there a

general consensus within the medical/research/manufacturing community

that

wear with these types of components should not be an issue?

my response:

-----------

that is pretty much what i gathered from the info i could find, too.

although, the cormet2000 website shows their lab wear testing

being done with the device submerged in liquid. i assume this liquid

is supposed to simulate sinovial fluid, but who knows if this also

simulates actual performance.

------------------------------------------------------------------------

-----

2. Dislocation with prosthesis used for hip resurfacing appears to be

low

when the femoral head is replaced with a prosthesis of the same size as

the

femoral head (38-58 mm).

There does not seem to be a much detail as to why this is, but the

suggestion is

that involvement in sports, including active sports such as soccer is

ok. Is

there consensus that dislocation is no longer a reason to avoid

participation is sports?

my response :

-----------

i gathered this too. if i were to guess, the reason for this is that

with the

smaller diameter implants, the femur doesn't have to move nearly as far

both axially and laterally to unseat itself from the cup. i know someone

with a smaller diameter thr who telemark skis with no problem, i don't

think

i would try that if i were her, but then again, i don't think i would

ever get

a small diameter implant when i can get one that replicates the size and

shape of

my natural hip more closely (like bhr).

------------------------------------------------------------------------

-------------------------------------------------------------

3. Since the femoral head is not removed there is no issue of stress

shielding, normal stress/loading should be seen by the femoral

components. I

assume that this addresses the concerns associated with bone loss that

can

lead to loosening and fracture of the femor seen as seen in some THR.

my response :

-----------

this sounds like most of what i've read too, but not all. i'm pretty

sure that

the part about stress shielding relates to the condition at the walls of

femural

shaft, but not to the stresses on the neck of the femur and the base of

the

little nub of bone that is left after they reshape your femoral head. of

the

resurface failures that i found info on, fracturing of the femoral neck

and

cracking of the bone within the nub was mentioned as one of the reasons

for

a revision to be needed. from what i gathered, there could be a few

different

causes of this. one being that it was a pre-existing condition in the

remaining

bone, another is that cracking of the bone can occur when they install

your new

hip cap, and the other is new trauma (i.e. accident or impact). i also

read an article

(that someone was nice enough to e-mail me) that described reasons for

failure

of cement fixation in femoral head implants. it listed " micromovement "

as

something that can occur and can lead to loosening of the implant. i

read it in

a .pdf about the wright medical technology " orthoset " cement product :

http://www.wmt.com/Literature/docs/123615-2%20Orthoset%20Radiopaque%20Bone%2

0Cement.pdf

this may be of interest to you, it was to me.

------------------------------------------------------------------------

---------------------------------------------------------------------------

4. The fixation of the acetabular and femoral components is sufficient.

There seems to be less

my response :

-----------

... " sufficient " but for what kind of use? a recent post referenced a guy

who

is doing the ironman triathalon this year who has a resurface. maybe you

could

find out who he is and contact him directly? there is also some guy who

is a

judo champion, he has a website about his hip story, but charges MONEY

to access

it!!!! can you believe that....what nerve. but, some unfortunate few

have needed

a revision because of failure who were not judo freaks or ironman

competitors.

i used to run trails, play ultimate, ski, snowboard, windsurf, bicycle &

even tie my own shoes. i know that i will replace running with hiking, i

won't

play ultimate anymore, i probably won't downhill ski anymore, but i will

definately be cycling and most definately windsurfing. i know that i

will be pissed

off if i can't clip my toe-nails again or put on socks. personally, i'm

prepared

to alter my activities to lower the risk of over-stressing the

artificial hip.

sounds pretty conservative for a social democrat, huh?

------------------------------------------------------------------------

-------

Are there other issues?

my response :

-----------

if it were me who really wanted to run regularly again, i'd wait for

someone

like you to try it out first!! and then i'd start slowly after 1-2 years

of

hiking/cycling to make sure that i corrected my gait, built up good

muscle

structure, gave the bone ample opportunity to grow in as much as

possible and

allowed the sunovial fluid layer to develop before subjecting the new

hip

to repetitive impact stresses. then i'd start with low mileage runs and

get

x-rayed and have my blood tested a few times over a few months to see if

there

was any slippage or microfractures or high levels of metal in my blood.

but that's just me, the consequences of the risks are just a little too

high

to not be careful.

------------------------------------------------------------------------

----------------------------------------------------

How comfortable would those of you who are OSes be if one of your

patients

started running 50-70 miles/week on a resurfaced hip? What would be your

primary concerns? Are there ways to monitor the impact of such activity

levels on the prosthesis?

I know this is fairly long winded set of questions, but any

" perspective "

that can be

offered on this issue would be helpful to me, and I assume others on

this

list. Thanks for your time and insight.

Barry Reinhold

Principal Architect

Trebia Networks

barry.reinhold@...

(Durham)/ (Acton)/603 767-5290 (Cell)

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I take a combination product that has:

Glucosamine HCl - 500mg

Chondroitin Sulfate - 400mg

MSM (Methylsulfonylmethane) - 166mg

I take the recommended dose which is three tablets a day so the daily doses are:

Glucosamine HCl - 1500mg

Chondroitin Sulfate - 1200mg

MSM (Methylsulfonylmethane) - 500mg

It seems to help. I notice more pain and stiffness when I miss a day. And

incidentally, after two years of regular usage my last hip x-ray seemed to

indicate a bit more space between the bones of my " good " side. I will probably

continue these meds after surgery in the hope that I can avoid trouble over

there. It seems to be standard of care in the US. All three OS's I consulted

with Rx'd it and one even had cases of sample to give away. The cost

differential between Name Brands and in store generic brands is tremendous, so

it pays to shop around.

Good Luck!

MLTDMD, W. Kennedy 9/03

hello, l wonder if any of you ever tried glucosamin formula. l have read that

the American Arthritis society recommends the Synflex formula for arthritis. l

have read testimony on synflex website but l would like to have more feedbacks.

l know that it can be ordered from Actiamerica for the USA, and from Comboweb in

Canada.

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Hi .... where is everyone tonight?? Hope all is o.k....and you all were

just watching the Patriots stomp the Colts...

Lots of hugs and prayers, Donelle

Caregiver to Glenn

Colon resection 6/03, open wound for 2 months, chemo for 8 months

Mets to Liver found 4/04, inoperable; one tumor too close to artery and vein

Chemo infiltration to chest 8/04 with severe side effects including severe

pain and muscle damage (permanent??), unable to eat, colon shut down,

hospitalization w/morphine 8 days

Fluid build-up and draining on a regular weekly basis

11/09/04 on 5FU/Leu/Oxaliplatin/Avastin " cocktails " 46 hr. infusions

TRYING TO KICK BUTT with this darn disease!!!

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I was up very early this morning. Didn't do much at all today and about 6 this

evening my body said, go lay on the couch and " try " to watch tv.. LOL! I missed

most of Cold Case, and CSI New York. But had a good rest, now have to read a

little bit before I can go to bed and actually sleep.

Feeling fine, just pysching up for the next sessions of chemo on Tuesday.

Take care everyone Jolene

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In a message dated 1/17/2005 1:18:52 AM Eastern Standard Time,

jehret@... writes:

I was up very early this morning. Didn't do much at all today and about 6

this evening my body said, go lay on the couch and " try " to watch tv.. LOL! I

missed most of Cold Case, and CSI New York. But had a good rest, now have

to read a little bit before I can go to bed and actually sleep.

Feeling fine, just pysching up for the next sessions of chemo on Tuesday.

Take care everyone Jolene

Hey there Jolene....

Sometimes we do have to " listen to our bodies " ...stay well and positive!!!

Lots of hugs and prayers, Donelle

Caregiver to Glenn

Colon resection 6/03, open wound for 2 months, chemo for 8 months

Mets to Liver found 4/04, inoperable; one tumor too close to artery and vein

Chemo infiltration to chest 8/04 with severe side effects including severe

pain and muscle damage (permanent??), unable to eat, colon shut down,

hospitalization w/morphine 8 days

Fluid build-up and draining on a regular weekly basis

11/09/04 on 5FU/Leu/Oxaliplatin/Avastin " cocktails " 46 hr. infusions

TRYING TO KICK BUTT with this darn disease!!!

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Well, that's very good. I haven't figured out yet how I misread the message,

but I can pretty much guarantee it will happen again someday-lol. I think

we've figured out its a lack of O2 for me-I need to breathe more fresh air.

But at least I know more about Mark now, all in one paragraph, so I can

relate better. I'm happy about that.

Do you have any plans yet for post-graduation?

in Ma.

Mom to , 20 yrs old (CHARGE), 22 yrs. and partner to Alan (12

years now)

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Well, that's very good. I haven't figured out yet how I misread the message,

but I can pretty much guarantee it will happen again someday-lol. I think

we've figured out its a lack of O2 for me-I need to breathe more fresh air.

But at least I know more about Mark now, all in one paragraph, so I can

relate better. I'm happy about that.

Do you have any plans yet for post-graduation?

in Ma.

Mom to , 20 yrs old (CHARGE), 22 yrs. and partner to Alan (12

years now)

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,

Would you remind me where you live?

Bonnie, mom to a 23, Patty CHARGE 21, and wife to

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Bonnie,

We live in Michigan. Flushing which is north of Flint. I am about

90 minutes from Tim Hartshorne and his family in Mt Pleasant MI.

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Thank you for the well wishes. has no hearing

at all so I am not too worried with thw gent but thank

you for the warning.

a

--- ellen howe wrote:

> with me its vanc i have that with red mans and with

> me they give it over a

> slow period like two or three hours and im ok its

> the best killer gent

> effects my hearing so bewhere lol sorry to give you

> bad news but im just

> saying i have had it to LOL ellen

>

> On 17/03/06, Victor Villarreal

> wrote:

> >

> > Well they think it is pneumonia. His viral panel

> came

> > back negative but he grew something bacterial. So

> now

> > I just need to wait for what it is. They started

> him

> > on Gentamycin and Vancomycin I am sure I spelled

> those

> > wrong. He had a reaction to the gent so now he has

> to

> > have benadryl before he gets it so he will not

> have a

> > " red mask " on his eyes and forehead. Will update

> > later. I love my hubby he brought me clean

> underthings

> > and deodorant and toothbrush so I could feel

> human. He

> > is so sweet.

> > a mom to 8yr CHARGEr and Quintin 5yr

> > seizure prone

> >

> > __________________________________________________

> >

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Thank you for the well wishes. has no hearing

at all so I am not too worried with thw gent but thank

you for the warning.

a

--- ellen howe wrote:

> with me its vanc i have that with red mans and with

> me they give it over a

> slow period like two or three hours and im ok its

> the best killer gent

> effects my hearing so bewhere lol sorry to give you

> bad news but im just

> saying i have had it to LOL ellen

>

> On 17/03/06, Victor Villarreal

> wrote:

> >

> > Well they think it is pneumonia. His viral panel

> came

> > back negative but he grew something bacterial. So

> now

> > I just need to wait for what it is. They started

> him

> > on Gentamycin and Vancomycin I am sure I spelled

> those

> > wrong. He had a reaction to the gent so now he has

> to

> > have benadryl before he gets it so he will not

> have a

> > " red mask " on his eyes and forehead. Will update

> > later. I love my hubby he brought me clean

> underthings

> > and deodorant and toothbrush so I could feel

> human. He

> > is so sweet.

> > a mom to 8yr CHARGEr and Quintin 5yr

> > seizure prone

> >

> > __________________________________________________

> >

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Thank you for the well wishes. has no hearing

at all so I am not too worried with thw gent but thank

you for the warning.

a

--- ellen howe wrote:

> with me its vanc i have that with red mans and with

> me they give it over a

> slow period like two or three hours and im ok its

> the best killer gent

> effects my hearing so bewhere lol sorry to give you

> bad news but im just

> saying i have had it to LOL ellen

>

> On 17/03/06, Victor Villarreal

> wrote:

> >

> > Well they think it is pneumonia. His viral panel

> came

> > back negative but he grew something bacterial. So

> now

> > I just need to wait for what it is. They started

> him

> > on Gentamycin and Vancomycin I am sure I spelled

> those

> > wrong. He had a reaction to the gent so now he has

> to

> > have benadryl before he gets it so he will not

> have a

> > " red mask " on his eyes and forehead. Will update

> > later. I love my hubby he brought me clean

> underthings

> > and deodorant and toothbrush so I could feel

> human. He

> > is so sweet.

> > a mom to 8yr CHARGEr and Quintin 5yr

> > seizure prone

> >

> > __________________________________________________

> >

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Lennon = My Hero, RIP

On Wed, Dec 8, 2010 at 6:30 AM, Fiona wrote:

>

>

>

> The night Lennon died, I couldn't sleep and put te radio on. That's

> how I found out. My brother and I loved the Beatles. I snuck into my

> brother's room to tell him. He was so mad at me for telling him that way. I

> think he was actually mad he wasn't the one to find out first.

>

> I cried all night and my parents came in the room to find me next to a pile

> of snotty tissues.

>

> My father just did his hand wave at me as if to say, " give me a break. "

> My mother was kinder about it and offered me her condolences, which was

> very nice of her. I really did feel a personal loss, at the age of 13.

>

> was one of my favorites ( was my other) and after he died, for

> years after, I would dream about him. He was about my father's age and

> strangely, enough, when I would hear his voice in interviews, etc., even

> today on the radio, I tear up. I loved his humor and charisma.

>

> About 15 years ago, I was talking to someone about the Beatles and I said,

> " I love the Beatles. They raised me! " I noticed after that, that person

> avoided me.

>

> I guess what I was trying to say was, while my biological parents provided

> for me and protected me, the Beatles gave me emotional connection I craved

> with my parents.

>

> I still miss . I never saw him as the peace activist person, but more

> as an incredibly complex person. I'll always be happy for his and the

> Beatles' music. It was what I needed at that time in my life.

>

> Fiona

>

>

>

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Lennon = My Hero, RIP

On Wed, Dec 8, 2010 at 6:30 AM, Fiona wrote:

>

>

>

> The night Lennon died, I couldn't sleep and put te radio on. That's

> how I found out. My brother and I loved the Beatles. I snuck into my

> brother's room to tell him. He was so mad at me for telling him that way. I

> think he was actually mad he wasn't the one to find out first.

>

> I cried all night and my parents came in the room to find me next to a pile

> of snotty tissues.

>

> My father just did his hand wave at me as if to say, " give me a break. "

> My mother was kinder about it and offered me her condolences, which was

> very nice of her. I really did feel a personal loss, at the age of 13.

>

> was one of my favorites ( was my other) and after he died, for

> years after, I would dream about him. He was about my father's age and

> strangely, enough, when I would hear his voice in interviews, etc., even

> today on the radio, I tear up. I loved his humor and charisma.

>

> About 15 years ago, I was talking to someone about the Beatles and I said,

> " I love the Beatles. They raised me! " I noticed after that, that person

> avoided me.

>

> I guess what I was trying to say was, while my biological parents provided

> for me and protected me, the Beatles gave me emotional connection I craved

> with my parents.

>

> I still miss . I never saw him as the peace activist person, but more

> as an incredibly complex person. I'll always be happy for his and the

> Beatles' music. It was what I needed at that time in my life.

>

> Fiona

>

>

>

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read that it's the only chelator that can cross brain membrane as it is lipid-soluble to remove heavy metals from the brain. sounds interesting... but a bit worried about other side effect.how often can I give him charcoal to reduce the stimming?

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