Guest guest Report post Posted June 10, 2000 Llanda, Glad to see you made it here. Tina and Blake Quote Share this post Link to post Share on other sites
Guest guest Report post Posted June 10, 2000 Llanda, My DD (4 mo today) cut two teeth a month ago. She started drooling and chewing on her hand, and " boom " she had one tooth, three days later the other. I hadn't even realized she was teething until the first one was visible. Of course DD is my second child. DS (1/25/98) drooled for months and every tooth was an agony. (His first one cut between 4 and 5 months and he always got his teeth in pairs). There is no problem to nurse a baby with teeth. Tell little that nipping/biting isn't okay. Watch her and take her off if she doesn't latch on correctly--I know it's a pain, but the pain is worse if she does actually bite or latch on incorrectly. DD is old enough to learn " no " and if she would , heaven forbid, bite you say " ouch " or " no. " The only caution in scolding is not to overdue by yelling or you will scare DD from the breast. Welcome to our list, Amy Lynn 2/10/00 and 1/25/98 Quote Share this post Link to post Share on other sites
Guest guest Report post Posted June 10, 2000 Llanda, My DD (4 mo today) cut two teeth a month ago. She started drooling and chewing on her hand, and " boom " she had one tooth, three days later the other. I hadn't even realized she was teething until the first one was visible. Of course DD is my second child. DS (1/25/98) drooled for months and every tooth was an agony. (His first one cut between 4 and 5 months and he always got his teeth in pairs). There is no problem to nurse a baby with teeth. Tell little that nipping/biting isn't okay. Watch her and take her off if she doesn't latch on correctly--I know it's a pain, but the pain is worse if she does actually bite or latch on incorrectly. DD is old enough to learn " no " and if she would , heaven forbid, bite you say " ouch " or " no. " The only caution in scolding is not to overdue by yelling or you will scare DD from the breast. Welcome to our list, Amy Lynn 2/10/00 and 1/25/98 Quote Share this post Link to post Share on other sites
Guest guest Report post Posted August 11, 2000 , Congratulations on your success. I think it is so great that you were able to continue breastfeeding. I am Wendi (listmom) and have two children. Kaija is 8 1/2 and nursed until she was 13 months and weaned to bottles (I didn't have a lot of info) and my current nursling Zaid will be three in October. We almost lost our nursing relationship to bottles as well. I cut those out completely and we are still happily nursing. I have always struggled with a low supply which was compounded by using bottles. It really is a great feeling to be able to nurse your baby, especially when struggling in the beginning. You should be proud of yourself. Wendi http://www.lactivist.com breastfeeding resources and info Hello I'd like to introduce myself and share my experience with breastfeeding to the group. My name is and my son Riley is 4 months old. He is my first child. I'm breastfeeding him along with supplementing with Carnation good start. Iniitially, I was breastfeeding exclusively but Riley was not thriving after 2 weeks so the ped advised us to start supplementation. Riley was still losing weight, (birth 6.12 and 2 weeks later 5.11oz). He was always hungry, if he was not at the breast he was crying so I got very little sleep and slowly got into a deep depression. From the beginning one breast was engorged so I rented a pump to express otherwise he couldn't latch on. When we started supplementing my husband started bottle feeding him the milk I pumped and the formula. I was pumping with a Mendela plus every 3 hours. I did this until he was 2 months old. Pumping every 3 hrs I only got 1.5 oz of milk total from both breasts. It turns out that since he was born 2 weeks early (induced because of PIH) he was a poor 'sucker' and so it was a vicious cycle. He was never satisfied and I was exhausted. Luckily, after we started supplementing he was content and he was still eating breastmilk from a bottle. I ended up having postpartum depression so I had a very hard time those first few weeks. Luckily I recognized it around the time he was 3 weeks old and got some help. I slowly regained my strength (got some rest, recovered from the csection, started medication , etc). After Riley passed his birthweight I started breastfeeding him again, then he was sucking strong enough so that I wasn't becoming engorged. I wanted it to be a positive experience for both of us and the first 2 weeks were so hard on us both that I gradually starting breastfeeding him again. Only when he was happy and I was relaxed. I decided taht I would try increasing my supply with medicaiton which helped I started to produce 2-2.5 oz total every 3 hours. It seemed to help my letdown more than anything, all of a sudden I started to leak when he cried. Before the medication that never happened. I stopped the medication after 3 weeks and I continue to have this much milk and this reaction to when he cries. Around 3 months (started going back to work) I decided to cut back on the pumping to every 4 hours, then 5 now it is 6 hours. Surprisingly I still make about 16 oz of milk a day. When I need to pump I always get 4 oz so I'm able to keep track of my supply. I was starting to feel like a slave to the pump so I am glad that I do not have to pump as much anymore. I breastfeed Riley first thing in the a.m, lunchtime, afternoon and at bedtime. In the beginning I was very upset about the problem I had, low milk supply and finding out that those first 2 weeks he was always hungry. I felt like a terrible mother. Luckily, I had wonderful support from a lacatition consultant and with her help and my doctors understanding about my postpartum depression I got the help I needed so that I could take care of Riley and be the kind of mother I want to be. My husband was wonderful through all of this never judging me always supproting me in whatever I decided to do. We had a rough start but now it is a wonderful thing for both of us. I enjoyed the closeness of breastfeeding from the first day and knew that it was the best thing for him, so I didn't want to give it up. I could tell Riley wanted to breastfeed so I stuck with it. I am so happy that I did. My ped is so proud of us that she is using us as a 'success' story. I wish he could be exclusively breastfed but I realize and have accepted that this is the way it was meant to be for us. Hope I can be of some help to others if they experience something similiar and I look forward to hearing how other people are doing with their babies as they grow older and continue to breastfeed. I plan to breastfeed Riley until he is ready to give it up. Thanks for 'listening' to my story. & Riley Give the Gift of Life Breastfeed! http://www.lactivist.com Quote Share this post Link to post Share on other sites
Guest guest Report post Posted August 11, 2000 , Congratulations on your success. I think it is so great that you were able to continue breastfeeding. I am Wendi (listmom) and have two children. Kaija is 8 1/2 and nursed until she was 13 months and weaned to bottles (I didn't have a lot of info) and my current nursling Zaid will be three in October. We almost lost our nursing relationship to bottles as well. I cut those out completely and we are still happily nursing. I have always struggled with a low supply which was compounded by using bottles. It really is a great feeling to be able to nurse your baby, especially when struggling in the beginning. You should be proud of yourself. Wendi http://www.lactivist.com breastfeeding resources and info Hello I'd like to introduce myself and share my experience with breastfeeding to the group. My name is and my son Riley is 4 months old. He is my first child. I'm breastfeeding him along with supplementing with Carnation good start. Iniitially, I was breastfeeding exclusively but Riley was not thriving after 2 weeks so the ped advised us to start supplementation. Riley was still losing weight, (birth 6.12 and 2 weeks later 5.11oz). He was always hungry, if he was not at the breast he was crying so I got very little sleep and slowly got into a deep depression. From the beginning one breast was engorged so I rented a pump to express otherwise he couldn't latch on. When we started supplementing my husband started bottle feeding him the milk I pumped and the formula. I was pumping with a Mendela plus every 3 hours. I did this until he was 2 months old. Pumping every 3 hrs I only got 1.5 oz of milk total from both breasts. It turns out that since he was born 2 weeks early (induced because of PIH) he was a poor 'sucker' and so it was a vicious cycle. He was never satisfied and I was exhausted. Luckily, after we started supplementing he was content and he was still eating breastmilk from a bottle. I ended up having postpartum depression so I had a very hard time those first few weeks. Luckily I recognized it around the time he was 3 weeks old and got some help. I slowly regained my strength (got some rest, recovered from the csection, started medication , etc). After Riley passed his birthweight I started breastfeeding him again, then he was sucking strong enough so that I wasn't becoming engorged. I wanted it to be a positive experience for both of us and the first 2 weeks were so hard on us both that I gradually starting breastfeeding him again. Only when he was happy and I was relaxed. I decided taht I would try increasing my supply with medicaiton which helped I started to produce 2-2.5 oz total every 3 hours. It seemed to help my letdown more than anything, all of a sudden I started to leak when he cried. Before the medication that never happened. I stopped the medication after 3 weeks and I continue to have this much milk and this reaction to when he cries. Around 3 months (started going back to work) I decided to cut back on the pumping to every 4 hours, then 5 now it is 6 hours. Surprisingly I still make about 16 oz of milk a day. When I need to pump I always get 4 oz so I'm able to keep track of my supply. I was starting to feel like a slave to the pump so I am glad that I do not have to pump as much anymore. I breastfeed Riley first thing in the a.m, lunchtime, afternoon and at bedtime. In the beginning I was very upset about the problem I had, low milk supply and finding out that those first 2 weeks he was always hungry. I felt like a terrible mother. Luckily, I had wonderful support from a lacatition consultant and with her help and my doctors understanding about my postpartum depression I got the help I needed so that I could take care of Riley and be the kind of mother I want to be. My husband was wonderful through all of this never judging me always supproting me in whatever I decided to do. We had a rough start but now it is a wonderful thing for both of us. I enjoyed the closeness of breastfeeding from the first day and knew that it was the best thing for him, so I didn't want to give it up. I could tell Riley wanted to breastfeed so I stuck with it. I am so happy that I did. My ped is so proud of us that she is using us as a 'success' story. I wish he could be exclusively breastfed but I realize and have accepted that this is the way it was meant to be for us. Hope I can be of some help to others if they experience something similiar and I look forward to hearing how other people are doing with their babies as they grow older and continue to breastfeed. I plan to breastfeed Riley until he is ready to give it up. Thanks for 'listening' to my story. & Riley Give the Gift of Life Breastfeed! http://www.lactivist.com Quote Share this post Link to post Share on other sites
Guest guest Report post Posted August 11, 2000 , Congratulations on your success. I think it is so great that you were able to continue breastfeeding. I am Wendi (listmom) and have two children. Kaija is 8 1/2 and nursed until she was 13 months and weaned to bottles (I didn't have a lot of info) and my current nursling Zaid will be three in October. We almost lost our nursing relationship to bottles as well. I cut those out completely and we are still happily nursing. I have always struggled with a low supply which was compounded by using bottles. It really is a great feeling to be able to nurse your baby, especially when struggling in the beginning. You should be proud of yourself. Wendi http://www.lactivist.com breastfeeding resources and info Hello I'd like to introduce myself and share my experience with breastfeeding to the group. My name is and my son Riley is 4 months old. He is my first child. I'm breastfeeding him along with supplementing with Carnation good start. Iniitially, I was breastfeeding exclusively but Riley was not thriving after 2 weeks so the ped advised us to start supplementation. Riley was still losing weight, (birth 6.12 and 2 weeks later 5.11oz). He was always hungry, if he was not at the breast he was crying so I got very little sleep and slowly got into a deep depression. From the beginning one breast was engorged so I rented a pump to express otherwise he couldn't latch on. When we started supplementing my husband started bottle feeding him the milk I pumped and the formula. I was pumping with a Mendela plus every 3 hours. I did this until he was 2 months old. Pumping every 3 hrs I only got 1.5 oz of milk total from both breasts. It turns out that since he was born 2 weeks early (induced because of PIH) he was a poor 'sucker' and so it was a vicious cycle. He was never satisfied and I was exhausted. Luckily, after we started supplementing he was content and he was still eating breastmilk from a bottle. I ended up having postpartum depression so I had a very hard time those first few weeks. Luckily I recognized it around the time he was 3 weeks old and got some help. I slowly regained my strength (got some rest, recovered from the csection, started medication , etc). After Riley passed his birthweight I started breastfeeding him again, then he was sucking strong enough so that I wasn't becoming engorged. I wanted it to be a positive experience for both of us and the first 2 weeks were so hard on us both that I gradually starting breastfeeding him again. Only when he was happy and I was relaxed. I decided taht I would try increasing my supply with medicaiton which helped I started to produce 2-2.5 oz total every 3 hours. It seemed to help my letdown more than anything, all of a sudden I started to leak when he cried. Before the medication that never happened. I stopped the medication after 3 weeks and I continue to have this much milk and this reaction to when he cries. Around 3 months (started going back to work) I decided to cut back on the pumping to every 4 hours, then 5 now it is 6 hours. Surprisingly I still make about 16 oz of milk a day. When I need to pump I always get 4 oz so I'm able to keep track of my supply. I was starting to feel like a slave to the pump so I am glad that I do not have to pump as much anymore. I breastfeed Riley first thing in the a.m, lunchtime, afternoon and at bedtime. In the beginning I was very upset about the problem I had, low milk supply and finding out that those first 2 weeks he was always hungry. I felt like a terrible mother. Luckily, I had wonderful support from a lacatition consultant and with her help and my doctors understanding about my postpartum depression I got the help I needed so that I could take care of Riley and be the kind of mother I want to be. My husband was wonderful through all of this never judging me always supproting me in whatever I decided to do. We had a rough start but now it is a wonderful thing for both of us. I enjoyed the closeness of breastfeeding from the first day and knew that it was the best thing for him, so I didn't want to give it up. I could tell Riley wanted to breastfeed so I stuck with it. I am so happy that I did. My ped is so proud of us that she is using us as a 'success' story. I wish he could be exclusively breastfed but I realize and have accepted that this is the way it was meant to be for us. Hope I can be of some help to others if they experience something similiar and I look forward to hearing how other people are doing with their babies as they grow older and continue to breastfeed. I plan to breastfeed Riley until he is ready to give it up. Thanks for 'listening' to my story. & Riley Give the Gift of Life Breastfeed! http://www.lactivist.com Quote Share this post Link to post Share on other sites
Guest guest Report post Posted August 12, 2000 , Nice story! I can relate as I too have low milk supply. What type of med. were you on? I am taking domperidone and was on reglan before that. Nursing, full or part time is wonderful. We are supplementing too, but only out of necessity. Ty just turned 5 months old. I will continue to nurse him until he weans himself. Quote Share this post Link to post Share on other sites
Guest guest Report post Posted August 12, 2000 , Nice story! I can relate as I too have low milk supply. What type of med. were you on? I am taking domperidone and was on reglan before that. Nursing, full or part time is wonderful. We are supplementing too, but only out of necessity. Ty just turned 5 months old. I will continue to nurse him until he weans himself. Quote Share this post Link to post Share on other sites
Guest guest Report post Posted August 12, 2000 , Nice story! I can relate as I too have low milk supply. What type of med. were you on? I am taking domperidone and was on reglan before that. Nursing, full or part time is wonderful. We are supplementing too, but only out of necessity. Ty just turned 5 months old. I will continue to nurse him until he weans himself. Quote Share this post Link to post Share on other sites
Guest guest Report post Posted September 4, 2002 Lem .............Teddi, do you wanna try out how skillful you are with your new wheels? I challange you to a race, going backwards, haha. ............. I bet you would! Yours has a motor.....my new one is a " push " one.....LOL Nothin like fixing the race, huh????? Teddi mailto:teddifromok@... Quote Share this post Link to post Share on other sites
Guest guest Report post Posted September 5, 2002 Gee, Lelia, here I listen to classical music all the time!!! I shall go give it a try! Wonder if it works better with Grieg or Mozart? I'm keeping at the blanket stitch no matter what...eventually I'll get it! I'm making a throw pillow...it was in the Country Marketplace magazine. It's black felt with two pumpkins, a corn stalk and a leaf sewn on with the blanket stitch. The words "Autumn Blessings" are done in a simple stitch (if I screw that up, y'all can take away my needles!) Anyway, it just struck me as so nice...I just had to try to make it. So, how are you feeling today? Lynn Lelia wrote: Lynn, last night on the news the medical report claimed that 25 min. of classical music (sitting,relaxing) helps with back pain. Now they didn't specify bulging disc pain but...worth a try!Regarding the blanket stitch--leave it to Vicki to come up with the site that tells us how to do it!Hair on pigs: Isn't hair one of the defining characteristics of mammals. Even whales have hair Ithink.Sue--I would never tell about misspelling. Blame it on the computer or something. Glad to hearyour names for your new vehicles.Zanna--have you have/had (whenever you get to read this) a good treatment.Vicki--thanks for printing that information from Dr. . You're our #1 research hero!Lelia Quote Share this post Link to post Share on other sites
Guest guest Report post Posted October 3, 2002 Hi, Lem. You are exactly right. I think the people at SSD expect a person to be bedridden in order to qualify for benefits. I said that to them when they called me w/ their denial, too. I probably said ALOT of things that I shouldn't have and I'm praying that's not held against me. I believe all the phone calls are taped too. Oops!! Dawn lem1432 wrote: > Hi all, thanks for the input. Does this Dr. rank up there on the list > as a Dr. Stupid? Some drs. don't want to help their patients, they > don't want to get involved in anything but your wallet. The only way > they will say a person is disabled is to be bedridden. Oh well, back > to square one. I will go see my gp on the 14th and see what he > thinks. I just hope he doesn't get tired of me and kick me out the > door also. But I will stay on the doseage I'm on now. Maybe we are > more knowledgeable and just need to dr. ourselves. > Dawn said it best, all the stress from trying to get a dr. and ins. > and SS keeps a persons stomach aching and keeps a person sick > feeling. > I am hoping I will hear from the MDA clinic and get a appt. there. > Dr. Targoff is one of the staff drs. doing study on DM, PM and IBM. > Maybe I would luck out and get him, or a resident under him. > Well I am going to crawl under phs car and forget this whole > mess. We think we will have it fixed this week and will get a new > windshield put in and hope to get it painted next week. Beck said I > could have a job being a shade tree mechanic, lol. > I aperciate you all so much. When I am down you gals lift me up and > encourage me to keep fighting. THANKS ) LEM > > > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted October 3, 2002 Hi, Lem. You are exactly right. I think the people at SSD expect a person to be bedridden in order to qualify for benefits. I said that to them when they called me w/ their denial, too. I probably said ALOT of things that I shouldn't have and I'm praying that's not held against me. I believe all the phone calls are taped too. Oops!! Dawn lem1432 wrote: > Hi all, thanks for the input. Does this Dr. rank up there on the list > as a Dr. Stupid? Some drs. don't want to help their patients, they > don't want to get involved in anything but your wallet. The only way > they will say a person is disabled is to be bedridden. Oh well, back > to square one. I will go see my gp on the 14th and see what he > thinks. I just hope he doesn't get tired of me and kick me out the > door also. But I will stay on the doseage I'm on now. Maybe we are > more knowledgeable and just need to dr. ourselves. > Dawn said it best, all the stress from trying to get a dr. and ins. > and SS keeps a persons stomach aching and keeps a person sick > feeling. > I am hoping I will hear from the MDA clinic and get a appt. there. > Dr. Targoff is one of the staff drs. doing study on DM, PM and IBM. > Maybe I would luck out and get him, or a resident under him. > Well I am going to crawl under phs car and forget this whole > mess. We think we will have it fixed this week and will get a new > windshield put in and hope to get it painted next week. Beck said I > could have a job being a shade tree mechanic, lol. > I aperciate you all so much. When I am down you gals lift me up and > encourage me to keep fighting. THANKS ) LEM > > > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted October 8, 2002 Hi, Vicki. I say just listen to your body and sleep away. Yes we miss you, but we understand. Your body must need it. Take care, Dawn anzavic@... wrote: > I'm still alive... or at least that's what I tell myself. I can't get > through this sleep mode I'm in. I'm up for 1/2 hr then want to go back > to bed. Oh well, I've been through this so many times you would think > I would get use to it, huh? But, I can't.... I want to do something ... > anything besides sleep. I got to see the first 5 minutes of Boomtown, > 5 more minutes in the middle..... and then the credits at the end. > Geeeeeez..... > Tonight is Third Watch.... wonder if I'll be able to watch that? > > ... how did open house go? > > Lem... did you rest up from you work weekend? > > Zanna... good luck on your IVIg tomorow. > > Tanayahh.. how the heck are you doing? > > Sue Texas... always good to hear from you and I hope the IVIg works very > soon. > > Oh gosh, I know I've missed people but I'm having a hard time > concentrating now. Forgive me gang... > > I hope everyone is doing well... ok, I feel a nap coming on... > > Nite, nite! > Vicki > > > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted October 8, 2002 Hi, Vicki. I say just listen to your body and sleep away. Yes we miss you, but we understand. Your body must need it. Take care, Dawn anzavic@... wrote: > I'm still alive... or at least that's what I tell myself. I can't get > through this sleep mode I'm in. I'm up for 1/2 hr then want to go back > to bed. Oh well, I've been through this so many times you would think > I would get use to it, huh? But, I can't.... I want to do something ... > anything besides sleep. I got to see the first 5 minutes of Boomtown, > 5 more minutes in the middle..... and then the credits at the end. > Geeeeeez..... > Tonight is Third Watch.... wonder if I'll be able to watch that? > > ... how did open house go? > > Lem... did you rest up from you work weekend? > > Zanna... good luck on your IVIg tomorow. > > Tanayahh.. how the heck are you doing? > > Sue Texas... always good to hear from you and I hope the IVIg works very > soon. > > Oh gosh, I know I've missed people but I'm having a hard time > concentrating now. Forgive me gang... > > I hope everyone is doing well... ok, I feel a nap coming on... > > Nite, nite! > Vicki > > > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted November 13, 2002 Hi and welcome to the group., SAB. I'm Annette and I've lived with DM for almost ten years now. I think the others in this group would agree with me when I tell you that we deal with the disease day to day. I'm glad you joined this group because I know you'll get the help and emotional support you need. You can ask this group anything and if they don't know the answer, they'll do research for you. Annette -----Original Message-----From: sabyrd75062 Sent: Wednesday, November 13, 2002 10:23 AMTo: OurMyositis Subject: HelloHello everyone!I am new to the group. I was recently diagnosed with dermatomyositis in August. I have had symptoms since January but they went undiagnosed. I spent over two months in the hospital and only recently returned home. My original CPK was over 20,000 and is now down in the 500 range but I still have severe pain and weakness. I am on methotrexate and prednisone. I am interested in hearing from anyone in the group about how they deal with the disease and side effects of the meds (especially edema, hair loss, telangiectasias, skin fragility, anemia, lack of mobility, pain, etc.)Thanks,SAB Quote Share this post Link to post Share on other sites
Guest guest Report post Posted November 13, 2002 Welcome SAB! I have had DM for over two years now and feel so much better these days. It takes the meds a while to kick in so be patient. I am also on pred, methotrexate and ivig (gamma globulin). Take care, Lesley > >Reply-To: OurMyositis >To: OurMyositis >Subject: Hello >Date: Wed, 13 Nov 2002 15:22:38 -0000 > >Hello everyone! > >I am new to the group. I was recently diagnosed with dermatomyositis >in August. I have had symptoms since January but they went >undiagnosed. I spent over two months in the hospital and only >recently returned home. My original CPK was over 20,000 and is now >down in the 500 range but I still have severe pain and weakness. I >am on methotrexate and prednisone. I am interested in hearing from >anyone in the group about how they deal with the disease and side >effects of the meds (especially edema, hair loss, telangiectasias, >skin fragility, anemia, lack of mobility, pain, etc.) > >Thanks, >SAB > _________________________________________________________________ STOP MORE SPAM with the new MSN 8 and get 2 months FREE* http://join.msn.com/?page=features/junkmail Quote Share this post Link to post Share on other sites
Guest guest Report post Posted November 13, 2002 Welcome SAB! I have had DM for over two years now and feel so much better these days. It takes the meds a while to kick in so be patient. I am also on pred, methotrexate and ivig (gamma globulin). Take care, Lesley > >Reply-To: OurMyositis >To: OurMyositis >Subject: Hello >Date: Wed, 13 Nov 2002 15:22:38 -0000 > >Hello everyone! > >I am new to the group. I was recently diagnosed with dermatomyositis >in August. I have had symptoms since January but they went >undiagnosed. I spent over two months in the hospital and only >recently returned home. My original CPK was over 20,000 and is now >down in the 500 range but I still have severe pain and weakness. I >am on methotrexate and prednisone. I am interested in hearing from >anyone in the group about how they deal with the disease and side >effects of the meds (especially edema, hair loss, telangiectasias, >skin fragility, anemia, lack of mobility, pain, etc.) > >Thanks, >SAB > _________________________________________________________________ STOP MORE SPAM with the new MSN 8 and get 2 months FREE* http://join.msn.com/?page=features/junkmail Quote Share this post Link to post Share on other sites
Guest guest Report post Posted November 14, 2002 Hi, SAB. My name is Dawn and I was dx'd. with PM last Dec. My original CPK's were 9500 and they're now around 200. I too suffer from severe pain and struggle with it daily. Feel free to post whenever you need support, advice, or just feel like venting. This is a terrific group. Dawn Annette Flamand wrote: > Hi and welcome to the group., SAB. I'm Annette and I've lived with > DM for almost ten years now. I think the others in this group would > agree with me when I tell you that we deal with the disease day to > day. I'm glad you joined this group because I know you'll get the > help and emotional support you need. You can ask this group anything > and if they don't know the answer, they'll do research for you. > Annette > > Hello > > Hello everyone! > > I am new to the group. I was recently diagnosed with > dermatomyositis > in August. I have had symptoms since January but they went > undiagnosed. I spent over two months in the hospital and > only > recently returned home. My original CPK was over 20,000 and > is now > down in the 500 range but I still have severe pain and > weakness. I > am on methotrexate and prednisone. I am interested in > hearing from > anyone in the group about how they deal with the disease and > side > effects of the meds (especially edema, hair loss, > telangiectasias, > skin fragility, anemia, lack of mobility, pain, etc.) > > Thanks, > SAB > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted November 14, 2002 Hi, SAB. My name is Dawn and I was dx'd. with PM last Dec. My original CPK's were 9500 and they're now around 200. I too suffer from severe pain and struggle with it daily. Feel free to post whenever you need support, advice, or just feel like venting. This is a terrific group. Dawn Annette Flamand wrote: > Hi and welcome to the group., SAB. I'm Annette and I've lived with > DM for almost ten years now. I think the others in this group would > agree with me when I tell you that we deal with the disease day to > day. I'm glad you joined this group because I know you'll get the > help and emotional support you need. You can ask this group anything > and if they don't know the answer, they'll do research for you. > Annette > > Hello > > Hello everyone! > > I am new to the group. I was recently diagnosed with > dermatomyositis > in August. I have had symptoms since January but they went > undiagnosed. I spent over two months in the hospital and > only > recently returned home. My original CPK was over 20,000 and > is now > down in the 500 range but I still have severe pain and > weakness. I > am on methotrexate and prednisone. I am interested in > hearing from > anyone in the group about how they deal with the disease and > side > effects of the meds (especially edema, hair loss, > telangiectasias, > skin fragility, anemia, lack of mobility, pain, etc.) > > Thanks, > SAB > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted November 14, 2002 Hi, SAB. My name is Dawn and I was dx'd. with PM last Dec. My original CPK's were 9500 and they're now around 200. I too suffer from severe pain and struggle with it daily. Feel free to post whenever you need support, advice, or just feel like venting. This is a terrific group. Dawn Annette Flamand wrote: > Hi and welcome to the group., SAB. I'm Annette and I've lived with > DM for almost ten years now. I think the others in this group would > agree with me when I tell you that we deal with the disease day to > day. I'm glad you joined this group because I know you'll get the > help and emotional support you need. You can ask this group anything > and if they don't know the answer, they'll do research for you. > Annette > > Hello > > Hello everyone! > > I am new to the group. I was recently diagnosed with > dermatomyositis > in August. I have had symptoms since January but they went > undiagnosed. I spent over two months in the hospital and > only > recently returned home. My original CPK was over 20,000 and > is now > down in the 500 range but I still have severe pain and > weakness. I > am on methotrexate and prednisone. I am interested in > hearing from > anyone in the group about how they deal with the disease and > side > effects of the meds (especially edema, hair loss, > telangiectasias, > skin fragility, anemia, lack of mobility, pain, etc.) > > Thanks, > SAB > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted November 14, 2002 Hello SAB, My name is Venita and I was dx'd in Aug 2001 with DM. My CPK's were 14,600. Fortunately I was never hospitalized. Over a year later I am still dealing with the ups and downs of this disease along with other health problems that have seemed to crop up. As Vicki said, you have to deal with this disease one day at a time. I started on 60 mg. of pred and 20 mg. of meth. I am currently on 8 mg of pred. and still taking 20 mg. of meth. Some days I am able to get around okay. Other days it is a real struggle. I don't remember a day without pain since having DM but I am able to deal with it for the most part without medication. I absolutely hate taking medicine and if I can somehow do without it, I will. You will find this group to be so supportive and so informative. We hope to hear more from you soon. Venita > > > Hi and welcome to the group., SAB. I'm Annette and I've lived with > > DM for almost ten years now. I think the others in this group would > > agree with me when I tell you that we deal with the disease day to > > day. I'm glad you joined this group because I know you'll get the > > help and emotional support you need. You can ask this group anything > > and if they don't know the answer, they'll do research for you. > > Annette > > > > Hello > > > > Hello everyone! > > > > I am new to the group. I was recently diagnosed with > > dermatomyositis > > in August. I have had symptoms since January but they went > > undiagnosed. I spent over two months in the hospital and > > only > > recently returned home. My original CPK was over 20,000 and > > is now > > down in the 500 range but I still have severe pain and > > weakness. I > > am on methotrexate and prednisone. I am interested in > > hearing from > > anyone in the group about how they deal with the disease and > > side > > effects of the meds (especially edema, hair loss, > > telangiectasias, > > skin fragility, anemia, lack of mobility, pain, etc.) > > > > Thanks, > > SAB > > > > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted November 14, 2002 Hello SAB, My name is Venita and I was dx'd in Aug 2001 with DM. My CPK's were 14,600. Fortunately I was never hospitalized. Over a year later I am still dealing with the ups and downs of this disease along with other health problems that have seemed to crop up. As Vicki said, you have to deal with this disease one day at a time. I started on 60 mg. of pred and 20 mg. of meth. I am currently on 8 mg of pred. and still taking 20 mg. of meth. Some days I am able to get around okay. Other days it is a real struggle. I don't remember a day without pain since having DM but I am able to deal with it for the most part without medication. I absolutely hate taking medicine and if I can somehow do without it, I will. You will find this group to be so supportive and so informative. We hope to hear more from you soon. Venita > > > Hi and welcome to the group., SAB. I'm Annette and I've lived with > > DM for almost ten years now. I think the others in this group would > > agree with me when I tell you that we deal with the disease day to > > day. I'm glad you joined this group because I know you'll get the > > help and emotional support you need. You can ask this group anything > > and if they don't know the answer, they'll do research for you. > > Annette > > > > Hello > > > > Hello everyone! > > > > I am new to the group. I was recently diagnosed with > > dermatomyositis > > in August. I have had symptoms since January but they went > > undiagnosed. I spent over two months in the hospital and > > only > > recently returned home. My original CPK was over 20,000 and > > is now > > down in the 500 range but I still have severe pain and > > weakness. I > > am on methotrexate and prednisone. I am interested in > > hearing from > > anyone in the group about how they deal with the disease and > > side > > effects of the meds (especially edema, hair loss, > > telangiectasias, > > skin fragility, anemia, lack of mobility, pain, etc.) > > > > Thanks, > > SAB > > > > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted November 14, 2002 Hello SAB, My name is Venita and I was dx'd in Aug 2001 with DM. My CPK's were 14,600. Fortunately I was never hospitalized. Over a year later I am still dealing with the ups and downs of this disease along with other health problems that have seemed to crop up. As Vicki said, you have to deal with this disease one day at a time. I started on 60 mg. of pred and 20 mg. of meth. I am currently on 8 mg of pred. and still taking 20 mg. of meth. Some days I am able to get around okay. Other days it is a real struggle. I don't remember a day without pain since having DM but I am able to deal with it for the most part without medication. I absolutely hate taking medicine and if I can somehow do without it, I will. You will find this group to be so supportive and so informative. We hope to hear more from you soon. Venita > > > Hi and welcome to the group., SAB. I'm Annette and I've lived with > > DM for almost ten years now. I think the others in this group would > > agree with me when I tell you that we deal with the disease day to > > day. I'm glad you joined this group because I know you'll get the > > help and emotional support you need. You can ask this group anything > > and if they don't know the answer, they'll do research for you. > > Annette > > > > Hello > > > > Hello everyone! > > > > I am new to the group. I was recently diagnosed with > > dermatomyositis > > in August. I have had symptoms since January but they went > > undiagnosed. I spent over two months in the hospital and > > only > > recently returned home. My original CPK was over 20,000 and > > is now > > down in the 500 range but I still have severe pain and > > weakness. I > > am on methotrexate and prednisone. I am interested in > > hearing from > > anyone in the group about how they deal with the disease and > > side > > effects of the meds (especially edema, hair loss, > > telangiectasias, > > skin fragility, anemia, lack of mobility, pain, etc.) > > > > Thanks, > > SAB > > > > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted November 15, 2002 Hi SAB Let me add my " Welcome " to the rest of them. I'm Teddi from Oklahoma City. I have had DM for almost 7 years. In the process of trying to get off the prednisone and am down to 4mg.....the lowest I have ever gotten.. I know you will enjoy this group. Not only is it informative.........we have got some pretty good researchers in the group...... but we have fun, a place to moan & whine and a lot of love. Teddi mailto:teddifromok@... Quote Share this post Link to post Share on other sites