Hello

[Guest guest]

Llanda,

Glad to see you made it here.

Tina and Blake

[Guest guest]

Llanda,

My DD (4 mo today) cut two teeth a month ago. She started drooling

and chewing on her hand, and " boom " she had one tooth, three days later the

other. I hadn't even realized she was teething until the first one was

visible. Of course DD is my second child. DS (1/25/98) drooled

for months and every tooth was an agony. (His first one cut between 4 and 5

months and he always got his teeth in pairs).

There is no problem to nurse a baby with teeth. Tell little that

nipping/biting isn't okay. Watch her and take her off if she doesn't latch

on correctly--I know it's a pain, but the pain is worse if she does actually

bite or latch on incorrectly. DD is old enough to learn " no " and if she

would , heaven forbid, bite you say " ouch " or " no. " The only caution in

scolding is not to overdue by yelling or you will scare DD from the breast.

Welcome to our list,

Amy Lynn

2/10/00 and 1/25/98

[Guest guest]

Llanda,

My DD (4 mo today) cut two teeth a month ago. She started drooling

and chewing on her hand, and " boom " she had one tooth, three days later the

other. I hadn't even realized she was teething until the first one was

visible. Of course DD is my second child. DS (1/25/98) drooled

for months and every tooth was an agony. (His first one cut between 4 and 5

months and he always got his teeth in pairs).

There is no problem to nurse a baby with teeth. Tell little that

nipping/biting isn't okay. Watch her and take her off if she doesn't latch

on correctly--I know it's a pain, but the pain is worse if she does actually

bite or latch on incorrectly. DD is old enough to learn " no " and if she

would , heaven forbid, bite you say " ouch " or " no. " The only caution in

scolding is not to overdue by yelling or you will scare DD from the breast.

Welcome to our list,

Amy Lynn

2/10/00 and 1/25/98

[Guest guest]

,

Congratulations on your success. I think it is so great that you were able

to continue breastfeeding. I am Wendi (listmom) and have two children.

Kaija is 8 1/2 and nursed until she was 13 months and weaned to bottles (I

didn't have a lot of info) and my current nursling Zaid will be three in

October. We almost lost our nursing relationship to bottles as well. I cut

those out completely and we are still happily nursing. I have always

struggled with a low supply which was compounded by using bottles. It

really is a great feeling to be able to nurse your baby, especially when

struggling in the beginning. You should be proud of yourself.

Wendi

http://www.lactivist.com

breastfeeding resources and info

Hello

I'd like to introduce myself and share my experience with

breastfeeding to the group. My name is and my son Riley is 4

months old. He is my first child. I'm breastfeeding him along with

supplementing with Carnation good start. Iniitially, I was

breastfeeding exclusively but Riley was not thriving after 2 weeks so

the ped advised us to start supplementation. Riley was still losing

weight, (birth 6.12 and 2 weeks later 5.11oz). He was always hungry,

if he was not at the breast he was crying so I got very little sleep

and slowly got into a deep depression.

From the beginning one breast was engorged so I rented a pump to

express otherwise he couldn't latch on. When we started supplementing

my husband started bottle feeding him the milk I pumped and the

formula. I was pumping with a Mendela plus every 3 hours. I did this

until he was 2 months old. Pumping every 3 hrs I only got 1.5 oz of

milk total from both breasts. It turns out that since he was born 2

weeks early (induced because of PIH) he was a poor 'sucker' and so it

was a vicious cycle. He was never satisfied and I was

exhausted. Luckily, after we started supplementing he was content and

he was still eating breastmilk from a bottle. I ended up having

postpartum depression so I had a very hard time those first few

weeks.

Luckily I recognized it around the time he was 3 weeks old and got

some help. I slowly regained my strength (got some rest, recovered

from the csection, started medication , etc). After Riley passed his

birthweight I started breastfeeding him again, then he was sucking

strong enough so that I wasn't becoming engorged. I wanted it to be a

positive experience for both of us and the first 2 weeks were so hard

on us both that I gradually starting breastfeeding him again. Only

when he was happy and I was relaxed. I decided taht I would try

increasing my supply with medicaiton which helped I started to

produce

2-2.5 oz total every 3 hours. It seemed to help my letdown more than

anything, all of a sudden I started to leak when he cried. Before the

medication that never happened. I stopped the medication after 3

weeks

and I continue to have this much milk and this reaction to when he

cries.

Around 3 months (started going back to work) I decided to cut back on

the pumping to every 4 hours, then 5 now it is 6 hours. Surprisingly

I

still make about 16 oz of milk a day. When I need to pump I always

get

4 oz so I'm able to keep track of my supply.

I was starting to feel like a slave to the pump so I am glad that I

do

not have to pump as much anymore. I breastfeed Riley first thing in

the a.m, lunchtime, afternoon and at bedtime.

In the beginning I was very upset about the problem I had, low milk

supply and finding out that those first 2 weeks he was always hungry.

I felt like a terrible mother. Luckily, I had wonderful support from

a

lacatition consultant and with her help and my doctors understanding

about my postpartum depression I got the help I needed so that I

could

take care of Riley and be the kind of mother I want to be. My husband

was wonderful through all of this never judging me always supproting

me in whatever I decided to do.

We had a rough start but now it is a wonderful thing for both of us.

I

enjoyed the closeness of breastfeeding from the first day and

knew that it was the best thing for him, so I didn't want to give it

up. I could tell Riley wanted to breastfeed so I stuck with it. I am

so happy that I did. My ped is so proud of us that she is using us as

a 'success' story. I wish he could be exclusively breastfed but I

realize and have accepted that this is the way it was meant to be for

us. Hope I can be of some help to others if they experience something

similiar and I look forward to hearing how other people are doing

with

their babies as they grow older and continue to breastfeed. I plan to

breastfeed Riley until he is ready to give it up.

Thanks for 'listening' to my story.

& Riley

Give the Gift of Life Breastfeed!

http://www.lactivist.com

[Guest guest]

,

Congratulations on your success. I think it is so great that you were able

to continue breastfeeding. I am Wendi (listmom) and have two children.

Kaija is 8 1/2 and nursed until she was 13 months and weaned to bottles (I

didn't have a lot of info) and my current nursling Zaid will be three in

October. We almost lost our nursing relationship to bottles as well. I cut

those out completely and we are still happily nursing. I have always

struggled with a low supply which was compounded by using bottles. It

really is a great feeling to be able to nurse your baby, especially when

struggling in the beginning. You should be proud of yourself.

Wendi

http://www.lactivist.com

breastfeeding resources and info

Hello

I'd like to introduce myself and share my experience with

breastfeeding to the group. My name is and my son Riley is 4

months old. He is my first child. I'm breastfeeding him along with

supplementing with Carnation good start. Iniitially, I was

breastfeeding exclusively but Riley was not thriving after 2 weeks so

the ped advised us to start supplementation. Riley was still losing

weight, (birth 6.12 and 2 weeks later 5.11oz). He was always hungry,

if he was not at the breast he was crying so I got very little sleep

and slowly got into a deep depression.

From the beginning one breast was engorged so I rented a pump to

express otherwise he couldn't latch on. When we started supplementing

my husband started bottle feeding him the milk I pumped and the

formula. I was pumping with a Mendela plus every 3 hours. I did this

until he was 2 months old. Pumping every 3 hrs I only got 1.5 oz of

milk total from both breasts. It turns out that since he was born 2

weeks early (induced because of PIH) he was a poor 'sucker' and so it

was a vicious cycle. He was never satisfied and I was

exhausted. Luckily, after we started supplementing he was content and

he was still eating breastmilk from a bottle. I ended up having

postpartum depression so I had a very hard time those first few

weeks.

Luckily I recognized it around the time he was 3 weeks old and got

some help. I slowly regained my strength (got some rest, recovered

from the csection, started medication , etc). After Riley passed his

birthweight I started breastfeeding him again, then he was sucking

strong enough so that I wasn't becoming engorged. I wanted it to be a

positive experience for both of us and the first 2 weeks were so hard

on us both that I gradually starting breastfeeding him again. Only

when he was happy and I was relaxed. I decided taht I would try

increasing my supply with medicaiton which helped I started to

produce

2-2.5 oz total every 3 hours. It seemed to help my letdown more than

anything, all of a sudden I started to leak when he cried. Before the

medication that never happened. I stopped the medication after 3

weeks

and I continue to have this much milk and this reaction to when he

cries.

Around 3 months (started going back to work) I decided to cut back on

the pumping to every 4 hours, then 5 now it is 6 hours. Surprisingly

I

still make about 16 oz of milk a day. When I need to pump I always

get

4 oz so I'm able to keep track of my supply.

I was starting to feel like a slave to the pump so I am glad that I

do

not have to pump as much anymore. I breastfeed Riley first thing in

the a.m, lunchtime, afternoon and at bedtime.

In the beginning I was very upset about the problem I had, low milk

supply and finding out that those first 2 weeks he was always hungry.

I felt like a terrible mother. Luckily, I had wonderful support from

a

lacatition consultant and with her help and my doctors understanding

about my postpartum depression I got the help I needed so that I

could

take care of Riley and be the kind of mother I want to be. My husband

was wonderful through all of this never judging me always supproting

me in whatever I decided to do.

We had a rough start but now it is a wonderful thing for both of us.

I

enjoyed the closeness of breastfeeding from the first day and

knew that it was the best thing for him, so I didn't want to give it

up. I could tell Riley wanted to breastfeed so I stuck with it. I am

so happy that I did. My ped is so proud of us that she is using us as

a 'success' story. I wish he could be exclusively breastfed but I

realize and have accepted that this is the way it was meant to be for

us. Hope I can be of some help to others if they experience something

similiar and I look forward to hearing how other people are doing

with

their babies as they grow older and continue to breastfeed. I plan to

breastfeed Riley until he is ready to give it up.

Thanks for 'listening' to my story.

& Riley

Give the Gift of Life Breastfeed!

http://www.lactivist.com

[Guest guest]

,

Congratulations on your success. I think it is so great that you were able

to continue breastfeeding. I am Wendi (listmom) and have two children.

Kaija is 8 1/2 and nursed until she was 13 months and weaned to bottles (I

didn't have a lot of info) and my current nursling Zaid will be three in

October. We almost lost our nursing relationship to bottles as well. I cut

those out completely and we are still happily nursing. I have always

struggled with a low supply which was compounded by using bottles. It

really is a great feeling to be able to nurse your baby, especially when

struggling in the beginning. You should be proud of yourself.

Wendi

http://www.lactivist.com

breastfeeding resources and info

Hello

I'd like to introduce myself and share my experience with

breastfeeding to the group. My name is and my son Riley is 4

months old. He is my first child. I'm breastfeeding him along with

supplementing with Carnation good start. Iniitially, I was

breastfeeding exclusively but Riley was not thriving after 2 weeks so

the ped advised us to start supplementation. Riley was still losing

weight, (birth 6.12 and 2 weeks later 5.11oz). He was always hungry,

if he was not at the breast he was crying so I got very little sleep

and slowly got into a deep depression.

From the beginning one breast was engorged so I rented a pump to

express otherwise he couldn't latch on. When we started supplementing

my husband started bottle feeding him the milk I pumped and the

formula. I was pumping with a Mendela plus every 3 hours. I did this

until he was 2 months old. Pumping every 3 hrs I only got 1.5 oz of

milk total from both breasts. It turns out that since he was born 2

weeks early (induced because of PIH) he was a poor 'sucker' and so it

was a vicious cycle. He was never satisfied and I was

exhausted. Luckily, after we started supplementing he was content and

he was still eating breastmilk from a bottle. I ended up having

postpartum depression so I had a very hard time those first few

weeks.

Luckily I recognized it around the time he was 3 weeks old and got

some help. I slowly regained my strength (got some rest, recovered

from the csection, started medication , etc). After Riley passed his

birthweight I started breastfeeding him again, then he was sucking

strong enough so that I wasn't becoming engorged. I wanted it to be a

positive experience for both of us and the first 2 weeks were so hard

on us both that I gradually starting breastfeeding him again. Only

when he was happy and I was relaxed. I decided taht I would try

increasing my supply with medicaiton which helped I started to

produce

2-2.5 oz total every 3 hours. It seemed to help my letdown more than

anything, all of a sudden I started to leak when he cried. Before the

medication that never happened. I stopped the medication after 3

weeks

and I continue to have this much milk and this reaction to when he

cries.

Around 3 months (started going back to work) I decided to cut back on

the pumping to every 4 hours, then 5 now it is 6 hours. Surprisingly

I

still make about 16 oz of milk a day. When I need to pump I always

get

4 oz so I'm able to keep track of my supply.

I was starting to feel like a slave to the pump so I am glad that I

do

not have to pump as much anymore. I breastfeed Riley first thing in

the a.m, lunchtime, afternoon and at bedtime.

In the beginning I was very upset about the problem I had, low milk

supply and finding out that those first 2 weeks he was always hungry.

I felt like a terrible mother. Luckily, I had wonderful support from

a

lacatition consultant and with her help and my doctors understanding

about my postpartum depression I got the help I needed so that I

could

take care of Riley and be the kind of mother I want to be. My husband

was wonderful through all of this never judging me always supproting

me in whatever I decided to do.

We had a rough start but now it is a wonderful thing for both of us.

I

enjoyed the closeness of breastfeeding from the first day and

knew that it was the best thing for him, so I didn't want to give it

up. I could tell Riley wanted to breastfeed so I stuck with it. I am

so happy that I did. My ped is so proud of us that she is using us as

a 'success' story. I wish he could be exclusively breastfed but I

realize and have accepted that this is the way it was meant to be for

us. Hope I can be of some help to others if they experience something

similiar and I look forward to hearing how other people are doing

with

their babies as they grow older and continue to breastfeed. I plan to

breastfeed Riley until he is ready to give it up.

Thanks for 'listening' to my story.

& Riley

Give the Gift of Life Breastfeed!

http://www.lactivist.com

[Guest guest]

,

Nice story! I can relate as I too have low milk supply. What type of med.

were you on? I am taking domperidone and was on reglan before that.

Nursing, full or part time is wonderful. We are supplementing too, but only

out of necessity. Ty just turned 5 months old. I will continue to nurse him

until he weans himself.

[Guest guest]

,

Nice story! I can relate as I too have low milk supply. What type of med.

were you on? I am taking domperidone and was on reglan before that.

Nursing, full or part time is wonderful. We are supplementing too, but only

out of necessity. Ty just turned 5 months old. I will continue to nurse him

until he weans himself.

[Guest guest]

,

Nice story! I can relate as I too have low milk supply. What type of med.

were you on? I am taking domperidone and was on reglan before that.

Nursing, full or part time is wonderful. We are supplementing too, but only

out of necessity. Ty just turned 5 months old. I will continue to nurse him

until he weans himself.

[Guest guest]

Lem

.............Teddi, do you wanna try out how skillful you are with your

new wheels? I challange you to a race, going backwards, haha.

.............

I bet you would! Yours has a motor.....my new

one is a " push " one.....LOL Nothin like fixing

the race, huh?????

Teddi

mailto:teddifromok@...

[Guest guest]

Gee, Lelia, here I listen to classical music all the time!!! I shall go give it a try! Wonder if it works better with Grieg or Mozart? I'm keeping at the blanket stitch no matter what...eventually I'll get it! I'm making a throw pillow...it was in the Country Marketplace magazine. It's black felt with two pumpkins, a corn stalk and a leaf sewn on with the blanket stitch. The words "Autumn Blessings" are done in a simple stitch (if I screw that up, y'all can take away my needles!) Anyway, it just struck me as so nice...I just had to try to make it.

So, how are you feeling today? Lynn

Lelia wrote:

Lynn, last night on the news the medical report claimed that 25 min. of classical music (sitting,relaxing) helps with back pain. Now they didn't specify bulging disc pain but...worth a try!Regarding the blanket stitch--leave it to Vicki to come up with the site that tells us how to do it!Hair on pigs: Isn't hair one of the defining characteristics of mammals. Even whales have hair Ithink.Sue--I would never tell about misspelling. Blame it on the computer or something. Glad to hearyour names for your new vehicles.Zanna--have you have/had (whenever you get to read this) a good treatment.Vicki--thanks for printing that information from Dr. . You're our #1 research hero!Lelia

[Guest guest]

Hi, Lem. You are exactly right. I think the people at SSD expect a person

to be bedridden in order to qualify for benefits. I said that to them when

they called me w/ their denial, too. I probably said ALOT of things that I

shouldn't have and I'm praying that's not held against me. I believe all the

phone calls are taped too. Oops!!

Dawn

lem1432 wrote:

> Hi all, thanks for the input. Does this Dr. rank up there on the list

> as a Dr. Stupid? Some drs. don't want to help their patients, they

> don't want to get involved in anything but your wallet. The only way

> they will say a person is disabled is to be bedridden. Oh well, back

> to square one. I will go see my gp on the 14th and see what he

> thinks. I just hope he doesn't get tired of me and kick me out the

> door also. But I will stay on the doseage I'm on now. Maybe we are

> more knowledgeable and just need to dr. ourselves.

> Dawn said it best, all the stress from trying to get a dr. and ins.

> and SS keeps a persons stomach aching and keeps a person sick

> feeling.

> I am hoping I will hear from the MDA clinic and get a appt. there.

> Dr. Targoff is one of the staff drs. doing study on DM, PM and IBM.

> Maybe I would luck out and get him, or a resident under him.

> Well I am going to crawl under phs car and forget this whole

> mess. We think we will have it fixed this week and will get a new

> windshield put in and hope to get it painted next week. Beck said I

> could have a job being a shade tree mechanic, lol.

> I aperciate you all so much. When I am down you gals lift me up and

> encourage me to keep fighting. THANKS ) LEM

>

>

>

>

>

[Guest guest]

Hi, Lem. You are exactly right. I think the people at SSD expect a person

to be bedridden in order to qualify for benefits. I said that to them when

they called me w/ their denial, too. I probably said ALOT of things that I

shouldn't have and I'm praying that's not held against me. I believe all the

phone calls are taped too. Oops!!

Dawn

lem1432 wrote:

> Hi all, thanks for the input. Does this Dr. rank up there on the list

> as a Dr. Stupid? Some drs. don't want to help their patients, they

> don't want to get involved in anything but your wallet. The only way

> they will say a person is disabled is to be bedridden. Oh well, back

> to square one. I will go see my gp on the 14th and see what he

> thinks. I just hope he doesn't get tired of me and kick me out the

> door also. But I will stay on the doseage I'm on now. Maybe we are

> more knowledgeable and just need to dr. ourselves.

> Dawn said it best, all the stress from trying to get a dr. and ins.

> and SS keeps a persons stomach aching and keeps a person sick

> feeling.

> I am hoping I will hear from the MDA clinic and get a appt. there.

> Dr. Targoff is one of the staff drs. doing study on DM, PM and IBM.

> Maybe I would luck out and get him, or a resident under him.

> Well I am going to crawl under phs car and forget this whole

> mess. We think we will have it fixed this week and will get a new

> windshield put in and hope to get it painted next week. Beck said I

> could have a job being a shade tree mechanic, lol.

> I aperciate you all so much. When I am down you gals lift me up and

> encourage me to keep fighting. THANKS ) LEM

>

>

>

>

>

[Guest guest]

Hi, Vicki. I say just listen to your body and sleep away. Yes we miss you,

but we understand. Your body must need it.

Take care,

Dawn

anzavic@... wrote:

> I'm still alive... or at least that's what I tell myself. I can't get

> through this sleep mode I'm in. I'm up for 1/2 hr then want to go back

> to bed. Oh well, I've been through this so many times you would think

> I would get use to it, huh? But, I can't.... I want to do something ...

> anything besides sleep. I got to see the first 5 minutes of Boomtown,

> 5 more minutes in the middle..... and then the credits at the end.

> Geeeeeez.....

> Tonight is Third Watch.... wonder if I'll be able to watch that?

>

> ... how did open house go?

>

> Lem... did you rest up from you work weekend?

>

> Zanna... good luck on your IVIg tomorow.

>

> Tanayahh.. how the heck are you doing?

>

> Sue Texas... always good to hear from you and I hope the IVIg works very

> soon.

>

> Oh gosh, I know I've missed people but I'm having a hard time

> concentrating now. Forgive me gang...

>

> I hope everyone is doing well... ok, I feel a nap coming on...

>

> Nite, nite!

> Vicki

>

>

>

>

>

[Guest guest]

Hi, Vicki. I say just listen to your body and sleep away. Yes we miss you,

but we understand. Your body must need it.

Take care,

Dawn

anzavic@... wrote:

> I'm still alive... or at least that's what I tell myself. I can't get

> through this sleep mode I'm in. I'm up for 1/2 hr then want to go back

> to bed. Oh well, I've been through this so many times you would think

> I would get use to it, huh? But, I can't.... I want to do something ...

> anything besides sleep. I got to see the first 5 minutes of Boomtown,

> 5 more minutes in the middle..... and then the credits at the end.

> Geeeeeez.....

> Tonight is Third Watch.... wonder if I'll be able to watch that?

>

> ... how did open house go?

>

> Lem... did you rest up from you work weekend?

>

> Zanna... good luck on your IVIg tomorow.

>

> Tanayahh.. how the heck are you doing?

>

> Sue Texas... always good to hear from you and I hope the IVIg works very

> soon.

>

> Oh gosh, I know I've missed people but I'm having a hard time

> concentrating now. Forgive me gang...

>

> I hope everyone is doing well... ok, I feel a nap coming on...

>

> Nite, nite!

> Vicki

>

>

>

>

>

[Guest guest]

Hi and welcome to the group., SAB. I'm Annette and I've lived with DM for almost ten years now. I think the others in this group would agree with me when I tell you that we deal with the disease day to day. I'm glad you joined this group because I know you'll get the help and emotional support you need. You can ask this group anything and if they don't know the answer, they'll do research for you. Annette

-----Original Message-----From: sabyrd75062 Sent: Wednesday, November 13, 2002 10:23 AMTo: OurMyositis Subject: HelloHello everyone!I am new to the group. I was recently diagnosed with dermatomyositis in August. I have had symptoms since January but they went undiagnosed. I spent over two months in the hospital and only recently returned home. My original CPK was over 20,000 and is now down in the 500 range but I still have severe pain and weakness. I am on methotrexate and prednisone. I am interested in hearing from anyone in the group about how they deal with the disease and side effects of the meds (especially edema, hair loss, telangiectasias, skin fragility, anemia, lack of mobility, pain, etc.)Thanks,SAB

[Guest guest]

Welcome SAB!

I have had DM for over two years now and feel so much better these days. It

takes the meds a while to kick in so be patient. I am also on pred,

methotrexate and ivig (gamma globulin).

Take care,

Lesley

>

>Reply-To: OurMyositis

>To: OurMyositis

>Subject: Hello

>Date: Wed, 13 Nov 2002 15:22:38 -0000

>

>Hello everyone!

>

>I am new to the group. I was recently diagnosed with dermatomyositis

>in August. I have had symptoms since January but they went

>undiagnosed. I spent over two months in the hospital and only

>recently returned home. My original CPK was over 20,000 and is now

>down in the 500 range but I still have severe pain and weakness. I

>am on methotrexate and prednisone. I am interested in hearing from

>anyone in the group about how they deal with the disease and side

>effects of the meds (especially edema, hair loss, telangiectasias,

>skin fragility, anemia, lack of mobility, pain, etc.)

>

>Thanks,

>SAB

>

_________________________________________________________________

STOP MORE SPAM with the new MSN 8 and get 2 months FREE*

http://join.msn.com/?page=features/junkmail

[Guest guest]

Welcome SAB!

I have had DM for over two years now and feel so much better these days. It

takes the meds a while to kick in so be patient. I am also on pred,

methotrexate and ivig (gamma globulin).

Take care,

Lesley

>

>Reply-To: OurMyositis

>To: OurMyositis

>Subject: Hello

>Date: Wed, 13 Nov 2002 15:22:38 -0000

>

>Hello everyone!

>

>I am new to the group. I was recently diagnosed with dermatomyositis

>in August. I have had symptoms since January but they went

>undiagnosed. I spent over two months in the hospital and only

>recently returned home. My original CPK was over 20,000 and is now

>down in the 500 range but I still have severe pain and weakness. I

>am on methotrexate and prednisone. I am interested in hearing from

>anyone in the group about how they deal with the disease and side

>effects of the meds (especially edema, hair loss, telangiectasias,

>skin fragility, anemia, lack of mobility, pain, etc.)

>

>Thanks,

>SAB

>

_________________________________________________________________

STOP MORE SPAM with the new MSN 8 and get 2 months FREE*

http://join.msn.com/?page=features/junkmail

[Guest guest]

Hi, SAB. My name is Dawn and I was dx'd. with PM last Dec. My original

CPK's were 9500 and they're now around 200. I too suffer from severe

pain and struggle with it daily. Feel free to post whenever you need

support, advice, or just feel like venting. This is a terrific group.

Dawn

Annette Flamand wrote:

> Hi and welcome to the group., SAB. I'm Annette and I've lived with

> DM for almost ten years now. I think the others in this group would

> agree with me when I tell you that we deal with the disease day to

> day. I'm glad you joined this group because I know you'll get the

> help and emotional support you need. You can ask this group anything

> and if they don't know the answer, they'll do research for you.

> Annette

>

> Hello

>

> Hello everyone!

>

> I am new to the group. I was recently diagnosed with

> dermatomyositis

> in August. I have had symptoms since January but they went

> undiagnosed. I spent over two months in the hospital and

> only

> recently returned home. My original CPK was over 20,000 and

> is now

> down in the 500 range but I still have severe pain and

> weakness. I

> am on methotrexate and prednisone. I am interested in

> hearing from

> anyone in the group about how they deal with the disease and

> side

> effects of the meds (especially edema, hair loss,

> telangiectasias,

> skin fragility, anemia, lack of mobility, pain, etc.)

>

> Thanks,

> SAB

>

>

>

[Guest guest]

Hi, SAB. My name is Dawn and I was dx'd. with PM last Dec. My original

CPK's were 9500 and they're now around 200. I too suffer from severe

pain and struggle with it daily. Feel free to post whenever you need

support, advice, or just feel like venting. This is a terrific group.

Dawn

Annette Flamand wrote:

> Hi and welcome to the group., SAB. I'm Annette and I've lived with

> DM for almost ten years now. I think the others in this group would

> agree with me when I tell you that we deal with the disease day to

> day. I'm glad you joined this group because I know you'll get the

> help and emotional support you need. You can ask this group anything

> and if they don't know the answer, they'll do research for you.

> Annette

>

> Hello

>

> Hello everyone!

>

> I am new to the group. I was recently diagnosed with

> dermatomyositis

> in August. I have had symptoms since January but they went

> undiagnosed. I spent over two months in the hospital and

> only

> recently returned home. My original CPK was over 20,000 and

> is now

> down in the 500 range but I still have severe pain and

> weakness. I

> am on methotrexate and prednisone. I am interested in

> hearing from

> anyone in the group about how they deal with the disease and

> side

> effects of the meds (especially edema, hair loss,

> telangiectasias,

> skin fragility, anemia, lack of mobility, pain, etc.)

>

> Thanks,

> SAB

>

>

>

[Guest guest]

Hi, SAB. My name is Dawn and I was dx'd. with PM last Dec. My original

CPK's were 9500 and they're now around 200. I too suffer from severe

pain and struggle with it daily. Feel free to post whenever you need

support, advice, or just feel like venting. This is a terrific group.

Dawn

Annette Flamand wrote:

> Hi and welcome to the group., SAB. I'm Annette and I've lived with

> DM for almost ten years now. I think the others in this group would

> agree with me when I tell you that we deal with the disease day to

> day. I'm glad you joined this group because I know you'll get the

> help and emotional support you need. You can ask this group anything

> and if they don't know the answer, they'll do research for you.

> Annette

>

> Hello

>

> Hello everyone!

>

> I am new to the group. I was recently diagnosed with

> dermatomyositis

> in August. I have had symptoms since January but they went

> undiagnosed. I spent over two months in the hospital and

> only

> recently returned home. My original CPK was over 20,000 and

> is now

> down in the 500 range but I still have severe pain and

> weakness. I

> am on methotrexate and prednisone. I am interested in

> hearing from

> anyone in the group about how they deal with the disease and

> side

> effects of the meds (especially edema, hair loss,

> telangiectasias,

> skin fragility, anemia, lack of mobility, pain, etc.)

>

> Thanks,

> SAB

>

>

>

[Guest guest]

Hello SAB,

My name is Venita and I was dx'd in Aug 2001 with DM. My CPK's were

14,600. Fortunately I was never hospitalized. Over a year later I

am still dealing with the ups and downs of this disease along with

other health problems that have seemed to crop up. As Vicki said,

you have to deal with this disease one day at a time. I started on

60 mg. of pred and 20 mg. of meth. I am currently on 8 mg of pred.

and still taking 20 mg. of meth.

Some days I am able to get around okay. Other days it is a real

struggle. I don't remember a day without pain since having DM but I

am able to deal with it for the most part without medication. I

absolutely hate taking medicine and if I can somehow do without it, I

will.

You will find this group to be so supportive and so informative. We

hope to hear more from you soon.

Venita

>

> > Hi and welcome to the group., SAB. I'm Annette and I've lived

with

> > DM for almost ten years now. I think the others in this group

would

> > agree with me when I tell you that we deal with the disease day to

> > day. I'm glad you joined this group because I know you'll get the

> > help and emotional support you need. You can ask this group

anything

> > and if they don't know the answer, they'll do research for you.

> > Annette

> >

> > Hello

> >

> > Hello everyone!

> >

> > I am new to the group. I was recently diagnosed with

> > dermatomyositis

> > in August. I have had symptoms since January but they went

> > undiagnosed. I spent over two months in the hospital and

> > only

> > recently returned home. My original CPK was over 20,000 and

> > is now

> > down in the 500 range but I still have severe pain and

> > weakness. I

> > am on methotrexate and prednisone. I am interested in

> > hearing from

> > anyone in the group about how they deal with the disease and

> > side

> > effects of the meds (especially edema, hair loss,

> > telangiectasias,

> > skin fragility, anemia, lack of mobility, pain, etc.)

> >

> > Thanks,

> > SAB

> >

> >

> >

[Guest guest]

Hello SAB,

My name is Venita and I was dx'd in Aug 2001 with DM. My CPK's were

14,600. Fortunately I was never hospitalized. Over a year later I

am still dealing with the ups and downs of this disease along with

other health problems that have seemed to crop up. As Vicki said,

you have to deal with this disease one day at a time. I started on

60 mg. of pred and 20 mg. of meth. I am currently on 8 mg of pred.

and still taking 20 mg. of meth.

Some days I am able to get around okay. Other days it is a real

struggle. I don't remember a day without pain since having DM but I

am able to deal with it for the most part without medication. I

absolutely hate taking medicine and if I can somehow do without it, I

will.

You will find this group to be so supportive and so informative. We

hope to hear more from you soon.

Venita

>

> > Hi and welcome to the group., SAB. I'm Annette and I've lived

with

> > DM for almost ten years now. I think the others in this group

would

> > agree with me when I tell you that we deal with the disease day to

> > day. I'm glad you joined this group because I know you'll get the

> > help and emotional support you need. You can ask this group

anything

> > and if they don't know the answer, they'll do research for you.

> > Annette

> >

> > Hello

> >

> > Hello everyone!

> >

> > I am new to the group. I was recently diagnosed with

> > dermatomyositis

> > in August. I have had symptoms since January but they went

> > undiagnosed. I spent over two months in the hospital and

> > only

> > recently returned home. My original CPK was over 20,000 and

> > is now

> > down in the 500 range but I still have severe pain and

> > weakness. I

> > am on methotrexate and prednisone. I am interested in

> > hearing from

> > anyone in the group about how they deal with the disease and

> > side

> > effects of the meds (especially edema, hair loss,

> > telangiectasias,

> > skin fragility, anemia, lack of mobility, pain, etc.)

> >

> > Thanks,

> > SAB

> >

> >

> >

[Guest guest]

Hello SAB,

My name is Venita and I was dx'd in Aug 2001 with DM. My CPK's were

14,600. Fortunately I was never hospitalized. Over a year later I

am still dealing with the ups and downs of this disease along with

other health problems that have seemed to crop up. As Vicki said,

you have to deal with this disease one day at a time. I started on

60 mg. of pred and 20 mg. of meth. I am currently on 8 mg of pred.

and still taking 20 mg. of meth.

Some days I am able to get around okay. Other days it is a real

struggle. I don't remember a day without pain since having DM but I

am able to deal with it for the most part without medication. I

absolutely hate taking medicine and if I can somehow do without it, I

will.

You will find this group to be so supportive and so informative. We

hope to hear more from you soon.

Venita

>

> > Hi and welcome to the group., SAB. I'm Annette and I've lived

with

> > DM for almost ten years now. I think the others in this group

would

> > agree with me when I tell you that we deal with the disease day to

> > day. I'm glad you joined this group because I know you'll get the

> > help and emotional support you need. You can ask this group

anything

> > and if they don't know the answer, they'll do research for you.

> > Annette

> >

> > Hello

> >

> > Hello everyone!

> >

> > I am new to the group. I was recently diagnosed with

> > dermatomyositis

> > in August. I have had symptoms since January but they went

> > undiagnosed. I spent over two months in the hospital and

> > only

> > recently returned home. My original CPK was over 20,000 and

> > is now

> > down in the 500 range but I still have severe pain and

> > weakness. I

> > am on methotrexate and prednisone. I am interested in

> > hearing from

> > anyone in the group about how they deal with the disease and

> > side

> > effects of the meds (especially edema, hair loss,

> > telangiectasias,

> > skin fragility, anemia, lack of mobility, pain, etc.)

> >

> > Thanks,

> > SAB

> >

> >

> >

[Guest guest]

Hi SAB

Let me add my " Welcome " to the rest of them.

I'm Teddi from Oklahoma City. I have had

DM for almost 7 years. In the process of

trying to get off the prednisone and am down

to 4mg.....the lowest I have ever gotten..

I know you will enjoy this group. Not only

is it informative.........we have got some

pretty good researchers in the group......

but we have fun, a place to moan & whine

and a lot of love.

Teddi

mailto:teddifromok@...