Guest guest Posted September 9, 2004 Report Share Posted September 9, 2004 Hi Deborah, I didn't see this post come through on the 5th either. Every now and then there is a hiccup on Yahoo and something posts twice, or does not post at all. I am just so sorry about 's surgery being canceled. I can't even imagine the extent of the devastation you have to be feeling. I will pray for you and and the family as well as for 's donor. I am really really sorry. I am afraid I can't answer about the stents. I have not heard of them in conjunction with transplant surgery, but I can tell you my father-in-law had some stents put in near his heart and they helped him before his death a few years ago. I realize that is not the same as a stent in conjunction with kidneys, but if it is any comfort to , Dad never felt them and was never uncomfortable in any way after having them put in. I pray another donor will come soon for . In a message dated 9/8/2004 11:22:38 PM Pacific Daylight Time, deborah@... writes: > I sent this in 9/5 but didn't see it come though. > > > 's 9/7 transplant has been cancelled. His donor's blood work showed > elevated liver enzymes. The donor has the hepatitis B in his body. It didn't > show up in May during his 1st blood work. There are no words to describe > what we are feeling. > > We spent all day Friday 9/3 at Vanderbilt visting all the doctors involved. > We had not been gone 30 mins when they called and told us this. Plans has > been made. Family and friends were coming in. > > Now has to look into getting an arm access (don't feel like looking > up the word). His catheter has not been working good for a couple of weeks > but with transplant so close we held off. > > Deb/tn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 2004 Report Share Posted September 9, 2004 So sorry to hear that Deb. Another opportunity will come along, I'm sure. This is the first I've seen about it, so your original message wasn't posted the first time, as far as I know, for whatever reason. It must be devastating for you, but I've learned myself the hard way that you simply cannot count on a transplant being a sure thing until it's done. There are just too many things that can stop it. All any one of us can do is to prepare for it, be hopeful and optimistic about it, but keep a realistic perspective about the whole thing. is young and healthy, and he will be able to handle dialysis until the next opportunity for a transplant - and there will be a next time. The access in his arm is surely a fistula. Usually, it takes a few months after the surgery before it can be used, but in a pinch, on healthy, strong people with good veins, when the patient is already on hemodialysis, it can sometimes be used gently fairly soon after it has healed. It provides better dialysis than any type of catheter. I can almost feel your disappointment, because I've been there, and I'm sure that any words I say to the effect that that's the way it goes sometimes with tranplants won't help much at this point. Pierre 's 9/7 transplant I sent this in 9/5 but didn't see it come though. 's 9/7 transplant has been cancelled. His donor's blood work showed elevated liver enzymes. The donor has the hepatitis B in his body. It didn't show up in May during his 1st blood work. There are no words to describe what we are feeling. We spent all day Friday 9/3 at Vanderbilt visting all the doctors involved. We had not been gone 30 mins when they called and told us this. Plans has been made. Family and friends were coming in. Now has to look into getting an arm access (don't feel like looking up the word). His catheter has not been working good for a couple of weeks but with transplant so close we held off. Deb/tn deborah@... Our 18 year old son is in End Stage Renal Disease Check out his web site Please sign his guest book http://www.caringbridge.org/tn/dbowman<http://www.caringbridge.org/tn/dbowman> Pictures http://community.webshots.com/user/rbdb2154<http://community.webshots.com/user/r\ bdb2154> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 2004 Report Share Posted September 9, 2004 Deborah, I can't imagine the devastation that you, , and your family are feeling right now about the cancellation. I am so sorry that this happened. I guess this just goes to show that we can never be totally and completely sure about a surgery happening until the donor and recipient are both on the operating table. There is one positive thing that I would like to mention though--at least they did not come to and tell him that he is eliminated from the transplant list. (Just trying to help with some hopeful thoughts) He can and WILL get a transplant, and I will be praying for him that a new donor comes around ASAP. Good luck to you, and I'm sorry again... - > Hi Deborah, > > I didn't see this post come through on the 5th either. Every now and then > there is a hiccup on Yahoo and something posts twice, or does not post at all. > > I am just so sorry about 's surgery being canceled. I can't even > imagine the extent of the devastation you have to be feeling. I will pray for you > and and the family as well as for 's donor. > > I am really really sorry. > > I am afraid I can't answer about the stents. I have not heard of them in > conjunction with transplant surgery, but I can tell you my father- in-law had some > stents put in near his heart and they helped him before his death a few years > ago. I realize that is not the same as a stent in conjunction with kidneys, > but if it is any comfort to , Dad never felt them and was never > uncomfortable in any way after having them put in. > > I pray another donor will come soon for . > > > > > In a message dated 9/8/2004 11:22:38 PM Pacific Daylight Time, > deborah@B... writes: > > > I sent this in 9/5 but didn't see it come though. > > > > > > 's 9/7 transplant has been cancelled. His donor's blood work showed > > elevated liver enzymes. The donor has the hepatitis B in his body. It didn't > > show up in May during his 1st blood work. There are no words to describe > > what we are feeling. > > > > We spent all day Friday 9/3 at Vanderbilt visting all the doctors involved. > > We had not been gone 30 mins when they called and told us this. Plans has > > been made. Family and friends were coming in. > > > > Now has to look into getting an arm access (don't feel like looking > > up the word). His catheter has not been working good for a couple of weeks > > but with transplant so close we held off. > > > > Deb/tn > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 2004 Report Share Posted September 9, 2004 Oh Deborah, I am so sorry to hear about . This must have felt utterly devastating, We are all here for you and right now. There are no words for this kind of heartbreak. Cy 's 9/7 transplant > I sent this in 9/5 but didn't see it come though. > > > 's 9/7 transplant has been cancelled. His donor's blood work showed elevated liver enzymes. The donor has the hepatitis B in his body. It didn't show up in May during his 1st blood work. There are no words to describe what we are feeling. > > We spent all day Friday 9/3 at Vanderbilt visting all the doctors involved. We had not been gone 30 mins when they called and told us this. Plans has been made. Family and friends were coming in. > > Now has to look into getting an arm access (don't feel like looking up the word). His catheter has not been working good for a couple of weeks but with transplant so close we held off. > > Deb/tn > deborah@... > Our 18 year old son is in End Stage Renal Disease > Check out his web site > Please sign his guest book > http://www.caringbridge.org/tn/dbowman > Pictures > http://community.webshots.com/user/rbdb2154 > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.