Calling on your help again...

[Guest guest]

Hi,

The nurse called back and just said to stop taking the steriods as

that could be causing the rash, and just to keep an eye on my throat.

The other thing she said was that my RTA Evaluation came back. She

said the only thing elevated was creatine in my urine. What does that mean?

The results are being sent to Dr. Cohen now. I don't know how long it will be

for him to call us and explain the results. Any ideas appreciated. Thanks in

advance.

[Guest guest]

hmm thanks Laurie. Wonder then if this is pointing more towards the RTA, or

if more than just the creatine and carnitine would have to be elvevated for

that diagnosis. Thanks for your ideas.

[Guest guest]

An elevated creatine can indicate some kidney involvement, but it can become

elevated with some meds and with advancing age. Probably other things as

well.

laurie

From: LILQT4U1984@...

Reply-To:

Date: Thu, 6 Feb 2003 17:38:02 EST

To: mito ,

Subject: Calling on your help again...

Hi,

The nurse called back and just said to stop taking the steriods as

that could be causing the rash, and just to keep an eye on my throat.

The other thing she said was that my RTA Evaluation came back. She

said the only thing elevated was creatine in my urine. What does that mean?

The results are being sent to Dr. Cohen now. I don't know how long it will

be

for him to call us and explain the results. Any ideas appreciated. Thanks in

advance.

[Guest guest]

Hi ,

Do you know if the nurse said creatine or creatinine? These two

often get confused, even in labs. Years ago I was doing a lot of 24

hour urine collections for creatine, and so many times they ended up

measuring creatinine instead because it is a much more common test.

It got so I had to put a sign on every jug that said, we want

creatine measured, not creatinine! Even at the NIH (Bethesda, MD

research center) the nurse mixed up these two. Anyway, if creatine

is elevated, that would implicate muscle, as muscle leaks creatine

when it breaks down. If creatinine is elevated, that would implicate

kidneys.

Barbara

> Hi,

>

> The nurse called back and just said to stop taking the

steriods as

> that could be causing the rash, and just to keep an eye on my

throat.

> The other thing she said was that my RTA Evaluation came

back. She

> said the only thing elevated was creatine in my urine. What does

that mean?

> The results are being sent to Dr. Cohen now. I don't know how long

it will be

> for him to call us and explain the results. Any ideas appreciated.

Thanks in

> advance.

>

>

>

[Guest guest]

oh goodness Barbara! What an excellent question! I was infact wondering

that myself. I'm sorta thinking its creatine because it was for a kidney test

(RTA Evaluation) but I'm not certain. I guess realistically it could be

either one with all the muscle pain I have too. Thanks for telling me this

and I will bring it up when we talk to Dr. Cohen. Crossing my fingers they

did the right test!