Guest guest Posted August 19, 2004 Report Share Posted August 19, 2004 HI Bonnie, I don't want to discourage you, but I was one who did not tolerate Cellcept well. I started on a 2000 mg per day dose, and had problems with nausea, and also diarrhea. I was lowered to 1000 mg after a month and remained on that dose for another two months. My dosing was half in the morning and half at night. I do not know if they dose according to weight, but I am pretty thin so that may have made it harder on me. The nausea was better at the 1000 mg dose and in following 's advise to take it with food, but I still had mild diarrhea the entire time. It was not a fun drug for me, and since my function was still declining on it after 3 months my Neph and I decided it was not worth the side effects I was experiencing. I think in my case my function was already too low when I started the Cellcept and perhaps it would have had better results if I had tried it earlier in the game. If I had to start it again, I would personally take 's advise from day one and take it with food. I wish you all the best in the study and hope you get some positive results. In a message dated 8/19/2004 8:01:49 PM Pacific Daylight Time, bd4679@... writes: > To those who have been taking CellCept in the past (or currently if > nontransplant.) Well, next week is the week I'll be randomized to start the > CellCept for the study. Although I may have to wait till they get the results from > the back to back 24 hour urines. Just wondering, for those of you on it > pre-transplant what was your dose, and if not tolerated on that dose, how much > did they decrease it to, for you to be able to tolerate it well? Was it mostly > the nausea or " the other end of the spectrum " ? (As says " keeping it > family rated " ). My understanding is usual dose for kidney transplants is 1 Gram > twice per day, which is supposedly what the research protocol will be for > me. Do they ever dose based on weight? Anything else in your wisdom I should > know about? Try taking it on an empty stomach at first, but if don't > tolerate, then full stomach? " First thing in am?? I keep a busy schedule at work, > so want to try to keep potential for adverse reactions to a minimal, > therefore any food for thought is more than warmly appreciated. Bonnie > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2004 Report Share Posted August 20, 2004 I just heard from my son that his neph is changing him to Myfortic, which is similar to Cellcept but is enteric coated, in hopes it will reduce the cramping and diarrhea problems. Here's a link: http://www.pharma.us.novartis.com/newsroom/pressReleases/ releaseDetail.jsp?PRID=1163 Betsy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2004 Report Share Posted August 20, 2004 Love it Betsy, Thanks! I reviewed the info on the link you provided. Myfortic looks like a gem. Too bad it wasn't available to when she had tried Cellcept. Were your son's symptoms of abdominal cramping and diarrhea a daily problem? Just curious, cause it sounds like a very common problem to many on site here. Bonnie Betsy Cabell wrote:I just heard from my son that his neph is changing him to Myfortic, which is similar to Cellcept but is enteric coated, in hopes it will reduce the cramping and diarrhea problems. Here's a link: http://www.pharma.us.novartis.com/newsroom/pressReleases/ releaseDetail.jsp?PRID=1163 Betsy To edit your settings for the group, go to our Yahoo Group home page: http://groups.yahoo.com/group/iga-nephropathy/ To unsubcribe via email, iga-nephropathy-unsubscribe Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: http://www.igan.ca/id62.htm Thank you Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2004 Report Share Posted August 21, 2004 It was an interesting pattern. When he started on it, he took a half-dose for a week or so and eased into the full amount. He had some mild nausea at the beginning, but the prilosec seemed to help a lot. Then he had a period of time with no slignificant problems, but then the past several months it's been getting worse and worse to the point that it's been a daily problem. His neph thinks it's due to acid surges caused by the Cellcept, so we are hoping the enteric coated version will do the trick. The neph also recommended doubling the prilosec dose if needed. Betsy > Love it Betsy, Thanks! I reviewed the info on the link you provided. > Myfortic looks like a gem. Too bad it wasn't available to when > she had tried Cellcept. Were your son's symptoms of abdominal > cramping and diarrhea a daily problem? Just curious, cause it sounds > like a very common problem to many on site here. Bonnie > Quote Link to comment Share on other sites More sharing options...
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