Guest guest Posted August 3, 2004 Report Share Posted August 3, 2004 HI , I am not a male, but I just could not help commenting on how stable you have been. If you have been above 2 since 1985, and holding steady, I say you are doing something right. That is fantastic to stay that stable for almost 20 years. I wish for you 20 more stable years. I hope you get good news in September. What makes you feel you are beginning to progress? I hope that is not the case. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2004 Report Share Posted August 3, 2004 Ive been reading a lot of your old posts and have found only one man that has had any UTI's. I read a lot about URI's and the problems with coke colored urine and proteinuria.Ive been trying to find someone that I can follow their progresstion but have not been able to.(Im sure your out there but I cant find you. Ive had blood in my urine since 1967...Protein since about 1980...serum creat. above 2 since 1985...BUN above 25 since 1985. I have had two UTI's since 1985 but never a URI.I had a biopsy in 1967 (diag..acute glomerulonephritis)My present lab results are sr. creat. at 2.4.. BUN at 42...Protein at 1.7 gr/dl..Blood pressure is about 125/75 with the help of candisartin. I take nothing for proteinuria yet.. These tests were done in march..My next app. is in september at the V.A. but I feel that this is finally beginning to progress. I can't seem to find any thorough personal profiles (I know there out there.... Thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2004 Report Share Posted August 18, 2004 Hey : 1. I googled this - no luck. 2. The only time I have taken off from work was the day of and after my biopsy, and the 5 weeks I was out of work after the tx. Other than that, I cannot remember a kidney day off. Granted, I am a " pencil-pusher " (as my brother in law calls me), so I sit at a desk a lot. However, I do travel and attend trade shows where I am standing for 8-10 hours a day. 3. NJ has yet to seceed from the union, so I cannot help you there. Good luck with everything. Hope Vendorboy makes it back. wrote: hi Guys hope things are going well. I have a few questions here, and here we go! #1 Has anybody heard anything about a new drug called " Vensotiamine " ? #2 when you start treatments how or does the treatment affect your work, or do you work at all?? #3 canadian residents Has anybody been accepted by AISH , having Berger's disease? Thanks for any help you can give!! CHRISTOPHER To edit your settings for the group, go to our Yahoo Group home page: http://groups.yahoo.com/group/iga-nephropathy/ To unsubcribe via email, iga-nephropathy-unsubscribe Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: http://www.igan.ca/id62.htm Thank you Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2004 Report Share Posted August 18, 2004 Hi , No, I have not heard of Vesotiamine, but I do work full time at 20% function. I will have to cut back to part time when I start dialysis, but for now I put in my 40+ hours a week. I don't live in Canada, so I can't help on the third question. hi Guys hope things are going well. I have a few questions here, and here we go! #1 Has anybody heard anything about a new drug called " Vensotiamine " ? #2 when you start treatments how or does the treatment affect your work, or do you work at all?? #3 canadian residents Has anybody been accepted by AISH , having Berger's disease? Thanks for any help you can give!! Quote Link to comment Share on other sites More sharing options...
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