Re: Questions

April 15, 2002

neelyjess wrote:

> How low were her tonsils pulled down. I dont know how low mine are,

> i seem to remember hearing from my neuro that it was a half inch or

> cm, i dunno. He is wanting to do surgery but not pushing it.

>

My condolences go to 's family as well. was a very brave woman and

was doing everything possible to regain her health, it just didn't happen

soon enough.

In a prior post this is what she said about her tonsils. Keep in mind, every

one of us is very different.

My tonsils only

herniate 3-5mm down, but they are SO very fat that they take up a

tremendous amount of space, my cerebellum is forced so tightly

against my scull that it seems to have collaped my sinusis in the

back of my head,`but more then those two things is that while my

tonsils go down only 3-5mm they ALSO wrap and extend around the

brain

stem. Lots of pressure.

This is a case that many radiologists and neurosurgeons wouldn't even

consider chiari because it was 5 mm or less. This was written in a post

prior to seeing Dr. Milhorat in February:

Dx 2000 - 29 surgical pain management procedures, 143 doc

appointments, 14 doctors, 5 states.... - 2001 was not much

better.

2002 - start of sever seizures...

This is why we have to educate every walk of life about chiari. No one was

willing to help , she had been turned away by other neurosurgeons. Her

death is not in vein, I pray that the medical chiari community will wake up

and listen more to our complaints.

For new members that are terribly frightened, 's case was severe. The

risks of surgery itself were tremendous. Most of us are fortunate to have the

time to make our decisions and wait for surgery. I know pain gets to a level

that we all feel we can't live through it, but most cases do.

May fly with angels and her family find peace given time.

Kathleen

April 15, 2002

neelyjess wrote:

> How low were her tonsils pulled down. I dont know how low mine are,

> i seem to remember hearing from my neuro that it was a half inch or

> cm, i dunno. He is wanting to do surgery but not pushing it.

>

My condolences go to 's family as well. was a very brave woman and

was doing everything possible to regain her health, it just didn't happen

soon enough.

In a prior post this is what she said about her tonsils. Keep in mind, every

one of us is very different.

My tonsils only

herniate 3-5mm down, but they are SO very fat that they take up a

tremendous amount of space, my cerebellum is forced so tightly

against my scull that it seems to have collaped my sinusis in the

back of my head,`but more then those two things is that while my

tonsils go down only 3-5mm they ALSO wrap and extend around the

brain

stem. Lots of pressure.

This is a case that many radiologists and neurosurgeons wouldn't even

consider chiari because it was 5 mm or less. This was written in a post

prior to seeing Dr. Milhorat in February:

Dx 2000 - 29 surgical pain management procedures, 143 doc

appointments, 14 doctors, 5 states.... - 2001 was not much

better.

2002 - start of sever seizures...

This is why we have to educate every walk of life about chiari. No one was

willing to help , she had been turned away by other neurosurgeons. Her

death is not in vein, I pray that the medical chiari community will wake up

and listen more to our complaints.

For new members that are terribly frightened, 's case was severe. The

risks of surgery itself were tremendous. Most of us are fortunate to have the

time to make our decisions and wait for surgery. I know pain gets to a level

that we all feel we can't live through it, but most cases do.

May fly with angels and her family find peace given time.

Kathleen

February 1, 2003

Michele,

1. Alert and oriented times three is normal and you will hear this a lot, some

docs will also say it as alert and oriented to person, place and time. Some

docs will also say oriented times four, which then includes the situation.

2 & 3. I'm not sure what your doc is doing with this carotid exam. Could he

actually be saying Doppler exam? Just a thought. If it is carotid exam, then

is this a vascular surgeon who does a lot of carotid surgeries? Sorry, just

confused by this one as I don't usually have doctors dictate carotid as a

separate exam, usually just mention it as part of the neck exam.

4. Inguinal herniorrhaphy. Some docs say inguinal herniorrhaphy and others say

inguinal hernia repair, or at least that's been my experience. Then change

molex to Marlex and you will have the rest of it okay.

That's my input, Margaret

>>> " Dubbelde " 02/01/03 06:06PM >>>

First day on the job and oh boy!! Here are a few s/l below....

1. GENERAL: General appearance alert and oriented s/l times 3 in no apparent

distress. ***does that make sense?

2. ABDOMEN: Abdomen is soft, nondistended, nontender. No abdominal wall

tenderness identified. s/l Full carotid examination was essentially

unremarkable.

3. CAROTID EXAM: No signs identified. okay, this is below the extremities

header, so should I have it in its own heading or include it under the abdomen

heading?

4. Recommendation is inguinal hernia s/l oriphy. Doc dictates this later......

below:

The patient was informed of advancement in hernia s/l oriphy including primary

repairs, s/l molex mesh, molex repairs with open repairs with molex mesh, and

also laparoscopic repairs.

February 1, 2003