Re: Did someone get the plate number on that truck?

[Guest guest]

Cy actually my neph wanted to up my lisinopril dose to 10mg again after seeing

my numbers for the week I was on vacation (and eating out a lot which meant I

was eating more salt than I should have been) This is the first time I

said.... " um no I think I'll stay on the 7.5mg for the next few weeks and if it

doesn't go down where we want it I'll give you a call. " He was o.k. with that

and with the drop in pred and on the 7.5mg of lisinopril my b/p has come back

into the normal range without dropping too low, so far anyhow. The munchies

seem to be slowing down a bit too. My husband (no I won't trade him ladies) was

kind enough to give me a gentile nudge in the direction of better eating by

going out without a word and buying me some fresh fruit to snack on instead of

the bag of candy I had been. He also drove me up to Curves so I could work out

today since I was still feeling a bit on the shaky side. I think working out

helped me quite a bit with the emotional swings this time round, they weren't

nearly as bad.

Amy

Re: Did someone get the plate number on that truck?

I'm sorry this issue is getting " revisited " Amy. Hopefully, it will get

resolved faster than it did last time.

It's funny... many of the parents on the NephKids board - even those who

did not complain about their kids pigging out when they started pred - often

get caught by surprise when their kids start pigging out when the pred dose

is lowered. For us, it wasn't too bad. I remember right after a big

dinner, complaining he was hungry and making himself pizza bagel. I

remember saying jokingly, " this has got to be the drugs " . Fortunately, the

cravings disappeared after 24 hours. He was also a little emotionally

extreme -- which also cleared up in a day.

Here's hoping the BP thing gets under control. I know it was very difficult

for you last time.

Cy

[Guest guest]

I think we all tend to be too hard on ourselves with changes in meds. I know

that if I didn't feel " better " immediately after a dosage change, I would be

like " well, that didn't work. " Now, I try to take it all in stride, and not

pressure myself with that kind of stuff. If it takes a week or two or even

three, I'm willing to wait.

Especially when it comes to prednisone. That drug always gave me crazy results -

like not being hungry on large doses, but ravenous on lower ones. Go figure.

Rita Nucciarone wrote:

- this is really reassuring to me as I haven't been feeling well ever since

my last dosage of prednisone. I think I'm in that re-adjusting mode. Rita

Cohen wrote:

I hope it gets easier, but don't pressure yourself. It can take a while, as you

body becomes somewhat dependent on the prednisone. That's what my neph said -

that sometimes your body just overadjusts to it.

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[Guest guest]

I agree with . I have to admit I didn't follow that advice either when I

first started BP meds years ago and for a few years after that, but, you

really have to take medications with a view towards the big picture, and

without being on hyper-alert for every little thing, or else you can really

make yourself miserable. It's all part of the " acceptance " thing we have

often discussed here. Of course, I don't have a kidney transplant yet, so,

that's easy for ME to say at this moment

Pierre

Re: Did someone get the plate number on that truck?

> I think we all tend to be too hard on ourselves with changes in meds. I

know that if I didn't feel " better " immediately after a dosage change, I

would be like " well, that didn't work. " Now, I try to take it all in stride,

and not pressure myself with that kind of stuff. If it takes a week or two

or even three, I'm willing to wait.

>

> Especially when it comes to prednisone. That drug always gave me crazy

results - like not being hungry on large doses, but ravenous on lower ones.

Go figure.

>

>

>

[Guest guest]

Well said Pierre. I have such a hard time because I don't remember

the last time I felt like " myself " whatever that means. So every

little thing I feel I tend to overreact, " why is this happening,

what does it mean " I'm hoping that once I'm off the Pred some of the

anxiousness will cease. Thanks for all your insight!

Jill

> I agree with . I have to admit I didn't follow that advice

either when I

> first started BP meds years ago and for a few years after that,

but, you

> really have to take medications with a view towards the big

picture, and

> without being on hyper-alert for every little thing, or else you

can really

> make yourself miserable. It's all part of the " acceptance " thing

we have

> often discussed here. Of course, I don't have a kidney transplant

yet, so,

> that's easy for ME to say at this moment

>

> Pierre

>

> Re: Did someone get the plate number on that truck?

>

>

> > I think we all tend to be too hard on ourselves with changes in

meds. I

> know that if I didn't feel " better " immediately after a dosage

change, I

> would be like " well, that didn't work. " Now, I try to take it all

in stride,

> and not pressure myself with that kind of stuff. If it takes a

week or two

> or even three, I'm willing to wait.

> >

> > Especially when it comes to prednisone. That drug always gave me

crazy

> results - like not being hungry on large doses, but ravenous on

lower ones.

> Go figure.

> >

> >

> >