Re: (unknown)

[Guest guest]

Thanks for the info:-)

[Guest guest]

Bill,

Welcome to the group. There have been a few names of some good doctors in

the N.Y area that I have seen on this group over the last couple of years. I

believe there are about 7 qualified doctors in the N.Y area (not all in New

York City though) on Dr. Ponseti's list of Ponseti trained doctors. I have

heard of Feldman, M.D., Wallace Lehman, M.D., and Harold Van Bosse,

M.D., mentioned by parents who's children are seeing them here on this

group.All three of these doctors are at the Hospitals for Joint Diseases at

301 E. 17th St., New York, NY., 10003.

I'm sure a few parents who take their children to these doctors can give you

much more inforamation, but until then here are the email addresses and

phone numbers for each:

Feldman, M.D.

clubfeetrus@...

Wallace Lehman, M.D

Chairman, Ped. orthopedic Surgery Emeritus

Wallace. Lehman@...

Harold Van Bosse, M.D.

Harold.vanBosse@...

Holly and (Michigan) (bilateral born: Feb. 11,2000, switched to

Ponseti method at 5 months, Dr. Ponseti patient)

nal Message-----

To: nosurgery4clubfoot <nosurgery4clubfoot >

Date: Thursday, January 09, 2003 8:45 PM

Subject: (unknown)

>hi everyone.

>my wife and i are due with a baby boy who will have bilateral

>clubfoot in april

>or may. it was quite a shock to absorb and to assimilate, but after

>seeing how

>many people go through this and that the treatment is virtually

>assured, it has

>given us both lots of comfort. i look forward to exchanging views,

>information,

>stories, etc., with many of you in the months to come. towards that

>end, does

>anybody know which doctors in new york city are the best at treating

>clubfoot

>via the ponseti technique? thanks in advance.

>best regards,

>bill

>

>

>

[Guest guest]

Bill,

Welcome to the group. There have been a few names of some good doctors in

the N.Y area that I have seen on this group over the last couple of years. I

believe there are about 7 qualified doctors in the N.Y area (not all in New

York City though) on Dr. Ponseti's list of Ponseti trained doctors. I have

heard of Feldman, M.D., Wallace Lehman, M.D., and Harold Van Bosse,

M.D., mentioned by parents who's children are seeing them here on this

group.All three of these doctors are at the Hospitals for Joint Diseases at

301 E. 17th St., New York, NY., 10003.

I'm sure a few parents who take their children to these doctors can give you

much more inforamation, but until then here are the email addresses and

phone numbers for each:

Feldman, M.D.

clubfeetrus@...

Wallace Lehman, M.D

Chairman, Ped. orthopedic Surgery Emeritus

Wallace. Lehman@...

Harold Van Bosse, M.D.

Harold.vanBosse@...

Holly and (Michigan) (bilateral born: Feb. 11,2000, switched to

Ponseti method at 5 months, Dr. Ponseti patient)

nal Message-----

To: nosurgery4clubfoot <nosurgery4clubfoot >

Date: Thursday, January 09, 2003 8:45 PM

Subject: (unknown)

>hi everyone.

>my wife and i are due with a baby boy who will have bilateral

>clubfoot in april

>or may. it was quite a shock to absorb and to assimilate, but after

>seeing how

>many people go through this and that the treatment is virtually

>assured, it has

>given us both lots of comfort. i look forward to exchanging views,

>information,

>stories, etc., with many of you in the months to come. towards that

>end, does

>anybody know which doctors in new york city are the best at treating

>clubfoot

>via the ponseti technique? thanks in advance.

>best regards,

>bill

>

>

>

[Guest guest]

In a message dated 1/24/2003 9:37:53 AM Pacific Standard Time,

saglietti@... writes:

> I live in Los Angeles. i am curous if anyone has had the re-surfacing

> her in LA. I am also running into the denial from Blue Cross to pay

> for this procedure. The doctor I saw was @ LA Orthopeic Hospital and

> has quoted me $25,000.00 i read alot of you being covered by Blue

> Cross in other areas..Does this mean I need to goout of the country or

> staee for better service and better costs..i am not interested in the

> dollars as much as the quality of the service..please advis

>

>

My experience with BCBS of California was that they refused to pay for a

procedure out of the country unless it was an emergency procedure. I never

asked if they would cover the treatment at JRI since I preferred the BHR

prosthesis.

I decided that since I would, in any event, have had to pay some sort of

deductible and uncovered expenses even if the procedure was covered, I might

as well pay full freight in Birmingham and get it done right. The cost in

October 2001 was about US $12,800 for the medical treatment.

As with everything else, there is inflation. The current cost for the same

treatment is substantially more now - around $16,800. Part of that increase

is due to a decrease in the value of the dollar relative to the pound.

I agree with you. When it's your health at stake, it's worth spending the

money. I'm going to try again with BCBS given the success of my BHR which I

paid for. I'll let you know if I have better luck this time.

Des Tuck

[Guest guest]

i think so...please again tell me about birmingham is that the best out of

state option?

[Guest guest]

i think so...please again tell me about birmingham is that the best out of

state option?

[Guest guest]

i think so...please again tell me about birmingham is that the best out of

state option?

[Guest guest]

In a message dated 1/24/2003 11:15:22 AM Pacific Standard Time,

saglietti@... writes:

> please again tell me about birmingham is that the best out of

> state option

Everyone has their bias. If I or anyone else on this site were to tell you

that their choice was the best, it would probably invite fire and brimstone,

so I won't. What I will tell you is that I wouldn't dream of going to anyone

other than Mr. Treacy, even if it cost an arm and a leg (excluding the hip

of course) :-)

[Guest guest]

In a message dated 1/24/2003 11:15:22 AM Pacific Standard Time,

saglietti@... writes:

> please again tell me about birmingham is that the best out of

> state option

Everyone has their bias. If I or anyone else on this site were to tell you

that their choice was the best, it would probably invite fire and brimstone,

so I won't. What I will tell you is that I wouldn't dream of going to anyone

other than Mr. Treacy, even if it cost an arm and a leg (excluding the hip

of course) :-)

[Guest guest]

Hi GY,

If you are interested in a resurf at all and you have osteo necrosis, start

now!

It depends on the rate of degeneration you are experiencing in relation to

the rate of rapidity with which you want to do research & how long it's

going to take your entire medical chain to act on it. If you think you may

want a re-surf, start the gears rolling now! TODAY! You can always postpone

a date or change a surgeon or deceide on a different device type later. You

usually can't speed these these things up later if it becomes necessary.

The rest of the things you are talking about are miniscule details that can

be argued over from now until the end of time with no clear answers. You

would arguably get more heavy metal ions from breathing the air and drinking

the water in any industrial city. I've been a ceramic sculpture for 30 years

and I've probably got more chromium, cobalt, copper, cadmium, lead, zinc,

manganese and other heavy metals in my blood from breathing glaze vapors

than I would get if I ate an entire resurface device for lunch.

I was diagnosed with severe AVN (the femoral head was dying due to low blood

supplies in the bone beneath the surface) in August '02. If I had started

then, I would have a Conserve right now and have been pain free for 3

or 4 months already. I waited until November to get a second x-ray and do

some research. By that time my femoral head had collapsed more, to the point

of it just being a maybe yes or no on the resurfacing possibility. That is

when I started persuing the option more diligently, but it took two months

to get everything lined up for the surgery. I used that time to do more

research on device types and materials, procedure types & incision sizes

etc. I also did extensive research on backup options so that I wouldn't get

stuck with whatever they had on the shelf if the resurf wasn't possible.

The morning of surgery (Jan 20,'03), my surgeon thought it would be probably

ok for a Hemi, but probably on a stem. He was still convinced he could do it

through a 3 " incision. I ended up having a more intense operation than that.

After he got inside the joint he discovered that, as he phrased it, I had

the worst case of ficat stage 4 AVN he'd seen and the deformed ball of the

femur had shredded the carteledge in my acetabulum and torn it loose so that

it was just sort of hanging there like a half an orange peel & the joint

capsule was enflamed & swollen up to about 4x as thick as it should have

been & consequently had to be removed completely & they had to go in from

both posterior and anterior aproaches to get all the useless, damaged,

garbage out of the way.

Any possibility of a resurface was out and the possibility of a hemi, was

also out. I walked out of there on a brand new shiney full THR. I was very

glad that I did my homework on that though.

I've got more bending precautions and a little more muscle trauma and a

slower recovery time, due to the fact that it was both an anterior and a

posterior operation.

That's all just from waiting that extra 2 or 3 months!

Greg

on 1/28/03 9:18 PM, gygygy1941 at gy@...

wrote:

HI

I am 36 years old male with subcapital necrosis and have recently

informed that I should consider having a resurfacing hip replacemennt.

I am new to this field, and it would be great if anyone could advice

me any possibilities this surgery might affects/limit my daily life.

If there are any possible restrictions which may appear after having

a surgery, I would like to know the degree as well.

I have heard that Metal wear could cause a problem to the metal ion

in the blood, and could increase the rate. (ex. carcinogenicity).

I would appreciate to receive any information regarding my concern...

Regards,

GY

[Guest guest]

GY: It's been seldom (if ever!) that we hear on this site of someone who was

" informed " that they should consider resurfacing. For curiosity's sake, who

so informed you?

Maureen

R hip, Dr. s, 10/31/02

[Guest guest]

GY: It's been seldom (if ever!) that we hear on this site of someone who was

" informed " that they should consider resurfacing. For curiosity's sake, who

so informed you?

Maureen

R hip, Dr. s, 10/31/02

[Guest guest]

Hi Jess,

I'm going to add my welcome to this message. Yes..I'm

's mom and we have a lot of family members with

this disease so we know like you what it means to keep

it ihe family.

Welcome to Mitoldies. I've enjoyed hearing from your

whole family and I hope you keep posting. You may not

think you have anything to offer but you are all wrong

if that's what you think. You have already offered a

great deal. It's great to have you all here.

<smile>

Alice

--- jodoinjess wrote:

> ,

>

> Thank you so much for your reply. I am so sorry to

> see you are

> having so many problems. I am so sorry also to hear

> about your

> brother. I'm not sure even what to say, but you and

> he both are in

> my heart.

>

> This is an awesome group. That's awesome I didnt

> know Alice was your

> mother. I dont quite remember the wording, I am

> sure I have it

> around here somewhere, but my Mother and Father sent

> me an article

> that said mono could be somehow linked to mito...at

> least in my case

> and many others it brought out our syptoms and " got

> the ball

> rolling " Take care of yourself...

>

> Smile, Jess

[Guest guest]

Jess,

I am sorry that you have to give up the job you love in the Coast

Guard. It isn't easy, but somehow we always make it through! I have

seen many more people talk about having mono at one time. Interesting!

Smiles,

a

[Guest guest]

,

This was very interesting as I had thought my

migraines stopped (other than the unrelenting

tinnitus)a few years ago but after reading the

article, it seems that this could have just relocated.

I saved this to my favorites. Thanks for sending it.

Alice

--- BDS31@... wrote:

>

http://www.docguide.com/redirect.nsf/we_link?OpenForm & id=7565B429F0AAA88F852568A\

F007DF129 & ntype=ext & newsid=8525697700573E1885256CDA00727D75

[Guest guest]

Dear Maeve: It's so hard to lose someone you have loved and lived with for 40

+

years. yet,how good it was that he held on so you could share that 41st, It

will be

hard but you know you helped him in the battle and sometimes we just don't

know

but he must have known he was going on. Think that he will always be with you

in spirit and things will remind you of the good times and the bad. take care

of

yourself,he would want that. We are very soory he has left but I think that

we will

all meet once again and then there will be no pain.no sufering and just

light,and joy.

hugs and prayers Nick & Jane

[Guest guest]

Dear Maeve: It's so hard to lose someone you have loved and lived with for 40

+

years. yet,how good it was that he held on so you could share that 41st, It

will be

hard but you know you helped him in the battle and sometimes we just don't

know

but he must have known he was going on. Think that he will always be with you

in spirit and things will remind you of the good times and the bad. take care

of

yourself,he would want that. We are very soory he has left but I think that

we will

all meet once again and then there will be no pain.no sufering and just

light,and joy.

hugs and prayers Nick & Jane

[Guest guest]

Maeve,

I feel for you. You are in my prayers.

tammy

(unknown)

My husband Dick died peacefully at 2:45 am yesterday morning. We

both benefitted from the support and advice of the folks on this

board since his diagnosis last June, and I wanted to be sure to

acknowledge that.

We celebrated our 41st anniversary on last Monday and on Tuesday he

began his downhill walk, quite purposefully, I believe. The really

good thing was that I was at his side, holding his hand, as he took

his last breath, and it was a peaceful, painless, passing.

Thanks again for all of your support over the past months.

Peace, Maeve

[Guest guest]

Congrats to you as well Don!!!! Way to go.

L. Tinsley

[Guest guest]

Congrats to you as well Don!!!! Way to go.

L. Tinsley

[Guest guest]

>>From:

>>Congratulations Don EMS Person of The Year !!!!!!

That would be D.E Donn , who was given the honor of EMS Person of

the Year at the awards ceremony. Congratulations Donn....

Mike

'Tater Salad' Hatfield EMT-P

" Si hoc legere scis nimium eruditiones habes. "

EMStock 2005, it's never to early to plan!!!

www.emstock.com

www.temsf.org

From:

Congratulations Don EMS Person of The Year !!!!!!

[Guest guest]

>>From:

>>Congratulations Don EMS Person of The Year !!!!!!

That would be D.E Donn , who was given the honor of EMS Person of

the Year at the awards ceremony. Congratulations Donn....

Mike

'Tater Salad' Hatfield EMT-P

" Si hoc legere scis nimium eruditiones habes. "

EMStock 2005, it's never to early to plan!!!

www.emstock.com

www.temsf.org

From:

Congratulations Don EMS Person of The Year !!!!!!

[Guest guest]

>>From:

>>Congratulations Don EMS Person of The Year !!!!!!

That would be D.E Donn , who was given the honor of EMS Person of

the Year at the awards ceremony. Congratulations Donn....

Mike

'Tater Salad' Hatfield EMT-P

" Si hoc legere scis nimium eruditiones habes. "

EMStock 2005, it's never to early to plan!!!

www.emstock.com

www.temsf.org

From:

Congratulations Don EMS Person of The Year !!!!!!

[Guest guest]

I echo the same, an award well earned and well deserved.

crazytxcajun2@... wrote:

Congrats to you as well Don!!!! Way to go.

L. Tinsley

[Guest guest]

I echo the same, an award well earned and well deserved.

crazytxcajun2@... wrote:

Congrats to you as well Don!!!! Way to go.

L. Tinsley