Guest guest Posted March 27, 2002 Report Share Posted March 27, 2002 Yeah, I know it's longer than what I thought. But, since the endocrinologist can't see me until mid April, I will be seeing my regular doctor next week. She said she might start me with a low dosage medication until I see the endocrinologist. Thanks for your concern. I'm worried, too! --- Terry ding wrote: > Iris, > > I would push the doctor's office to have him or her > see you sooner, if > possible. Let him know your symptoms are worsening, > and that you're worried > about waiting so much longer. Or, go back to the > original doctor if you feel > more comfortable that way. You will continue to feel > worse and worse > untreated, and there's simply no reason to wait 2 or > 3 more weeks on top of > the several weeks since your diagnosis. Sometimes > office staff is unaware, > when making appointments, what you're coming in for. > > Graves, treated, is quite manageable. Untreated it > can be very dangerous to > your health! > > Terry > > > > > Reply-To: graves_support > > Date: Wed, 27 Mar 2002 12:42:28 -0800 (PST) > > To: graves_support > > Subject: Re: (unknown) > > > > Hi, Terry! > > > > Thanks for answering back to my question. Yes, > you're > > right....I have all the symptoms you have > mentioned! > > > > I haven't started any medications at this time. My > > appointment is not until mid April. I'll keep you > > posted once I see my doctor. > > > > Iris > > > > --- Terry ding wrote: > >> Iris, > >> > >> Yes what you're feeling is normal for untreated > >> Graves. Your metabolism > >> speeds up, your pulse is probably very fast, you > >> probably are not sleeping > >> well and you may have shaky hands, weakness in > your > >> legs and arms as well. > >> > >> Did the doctor that diagnosed you put you on any > >> medication? You should be > >> on an anti thyroid drug (ATD) and possibly, if > your > >> heart rate is high, a > >> beta blocker at least for a little while. > Continuing > >> to not treat this > >> disease can be dangerous! Treating it with ATD's > >> will bring your symptoms > >> under control and start you on the road back to > >> feeling normal. > >> > >> Read the archives here, there's a symptom list > done > >> up as a database on the > >> site page and also in many places in the > archives. > >> I'm sure more of us will > >> chime in as we read your post. > >> > >> Welcome, Iris--you've found a good, supportive > group > >> to join! > >> > >> Terry > >> > >>> > >>> Reply-To: graves_support > >>> Date: Wed, 27 Mar 2002 07:10:55 -0800 (PST) > >>> To: graves_support > >>> Subject: (unknown) > >>> > >>> Hi, everyone! > >>> > >>> I was just diagnosed with Grave's Disease a > couple > >> of > >>> weeks ago. I have yet to see an Endocrinologist > in > >>> middle of April and don't know what to expect. > >>> > >>> Lately, I have been feeling over fatigue and > lost > >> a > >>> lot of weight even though I have a good > appetite. > >> Is > >>> this normal? > >>> > >>> Iris > >>> > >>> > __________________________________________________ > >>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2002 Report Share Posted March 27, 2002 Yeah, I know it's longer than what I thought. But, since the endocrinologist can't see me until mid April, I will be seeing my regular doctor next week. She said she might start me with a low dosage medication until I see the endocrinologist. Thanks for your concern. I'm worried, too! --- Terry ding wrote: > Iris, > > I would push the doctor's office to have him or her > see you sooner, if > possible. Let him know your symptoms are worsening, > and that you're worried > about waiting so much longer. Or, go back to the > original doctor if you feel > more comfortable that way. You will continue to feel > worse and worse > untreated, and there's simply no reason to wait 2 or > 3 more weeks on top of > the several weeks since your diagnosis. Sometimes > office staff is unaware, > when making appointments, what you're coming in for. > > Graves, treated, is quite manageable. Untreated it > can be very dangerous to > your health! > > Terry > > > > > Reply-To: graves_support > > Date: Wed, 27 Mar 2002 12:42:28 -0800 (PST) > > To: graves_support > > Subject: Re: (unknown) > > > > Hi, Terry! > > > > Thanks for answering back to my question. Yes, > you're > > right....I have all the symptoms you have > mentioned! > > > > I haven't started any medications at this time. My > > appointment is not until mid April. I'll keep you > > posted once I see my doctor. > > > > Iris > > > > --- Terry ding wrote: > >> Iris, > >> > >> Yes what you're feeling is normal for untreated > >> Graves. Your metabolism > >> speeds up, your pulse is probably very fast, you > >> probably are not sleeping > >> well and you may have shaky hands, weakness in > your > >> legs and arms as well. > >> > >> Did the doctor that diagnosed you put you on any > >> medication? You should be > >> on an anti thyroid drug (ATD) and possibly, if > your > >> heart rate is high, a > >> beta blocker at least for a little while. > Continuing > >> to not treat this > >> disease can be dangerous! Treating it with ATD's > >> will bring your symptoms > >> under control and start you on the road back to > >> feeling normal. > >> > >> Read the archives here, there's a symptom list > done > >> up as a database on the > >> site page and also in many places in the > archives. > >> I'm sure more of us will > >> chime in as we read your post. > >> > >> Welcome, Iris--you've found a good, supportive > group > >> to join! > >> > >> Terry > >> > >>> > >>> Reply-To: graves_support > >>> Date: Wed, 27 Mar 2002 07:10:55 -0800 (PST) > >>> To: graves_support > >>> Subject: (unknown) > >>> > >>> Hi, everyone! > >>> > >>> I was just diagnosed with Grave's Disease a > couple > >> of > >>> weeks ago. I have yet to see an Endocrinologist > in > >>> middle of April and don't know what to expect. > >>> > >>> Lately, I have been feeling over fatigue and > lost > >> a > >>> lot of weight even though I have a good > appetite. > >> Is > >>> this normal? > >>> > >>> Iris > >>> > >>> > __________________________________________________ > >>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2002 Report Share Posted March 28, 2002 Hi, Elaine! Thanks for the feedback! I'm hoping to start my treatment next week! Iris --- daisyelaine@... wrote: > Hi Iris, > Welcome to the group. Education is very empowering > with Graves' disease so > learn all that you can. Muscle weakness is a common > symptom in GD and so is > overall fatigue. This is caused by metabolic changes > and by the many nutrient > deficiencies that GD causes. Once your thyroid > hormone levels are brought > back into the normal range, you'll feel better. And > you might want to read up > on the nutrient deficiencies associated with GD to > help regain your strength. > The most common deficiencies are in the fat soluble > vitamins such as vitamin > A, D, E, and K and essential fatty acids. We're also > usually deficient in > copper, calcium, magnesium and B vitamins. Good luck > on your road to healing, > Elaine > > > [Non-text portions of this message have been > removed] > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2002 Report Share Posted August 7, 2002 Where are you from?? There are many couples from the UK on this site who travel considerable distances for Ponseti treatment. I travel with my 3 month old son to Sunderland and I live in Northern Ireland. There are doctors in Northern Ireland who claim to use the method but have very little experience and this is an essential aspect, in my view. If you check the following link from University of Iowa Dr Ponseti gives the names of a number of surgeons in UK who have trained with him in Iowa. www.vh.org/Patients/IHB/Ortho/Peds/Clubfeet/Physicians.html We like yourself had our son diagnosed on the 20 week scan - bilateral talipes - it was fortunate as this gave us time to make all the necessary arrangements for treatment. Ask you consultant what experience they have, how many feet they have treated and what their success rate at avoiding serious surgery has been? This is the only way to guarantee yourself that you will be getting the best treatment for your son. We travelled to Sunderland when our son was one week old and travelled almost weekly until last week when he came out of plaster casts and is now in boots and brace. His feet are improving all the time, it is amazing especially when the feet look so bad the first time you see them. We do not now have to travel fro 8 weeks which is a nice break. Philip (unknown) Hello everybody, I'm new to this group. My name is , I live in the UK and am expecting twin boys in October. One of them has been diagnosed with unilateral talipes at the 20 week ultra sound scan. Our doctor says that she will be using the Ponseti method which from what I've read so far seems to be the best option. But now I hear that some doctors claim to use the Ponseti method when they are not, and I was wondering how I can find out who is properly trained in this. Any advice would be greatly appreciated. Thanks a lot, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2002 Report Share Posted August 7, 2002 Where are you from?? There are many couples from the UK on this site who travel considerable distances for Ponseti treatment. I travel with my 3 month old son to Sunderland and I live in Northern Ireland. There are doctors in Northern Ireland who claim to use the method but have very little experience and this is an essential aspect, in my view. If you check the following link from University of Iowa Dr Ponseti gives the names of a number of surgeons in UK who have trained with him in Iowa. www.vh.org/Patients/IHB/Ortho/Peds/Clubfeet/Physicians.html We like yourself had our son diagnosed on the 20 week scan - bilateral talipes - it was fortunate as this gave us time to make all the necessary arrangements for treatment. Ask you consultant what experience they have, how many feet they have treated and what their success rate at avoiding serious surgery has been? This is the only way to guarantee yourself that you will be getting the best treatment for your son. We travelled to Sunderland when our son was one week old and travelled almost weekly until last week when he came out of plaster casts and is now in boots and brace. His feet are improving all the time, it is amazing especially when the feet look so bad the first time you see them. We do not now have to travel fro 8 weeks which is a nice break. Philip (unknown) Hello everybody, I'm new to this group. My name is , I live in the UK and am expecting twin boys in October. One of them has been diagnosed with unilateral talipes at the 20 week ultra sound scan. Our doctor says that she will be using the Ponseti method which from what I've read so far seems to be the best option. But now I hear that some doctors claim to use the Ponseti method when they are not, and I was wondering how I can find out who is properly trained in this. Any advice would be greatly appreciated. Thanks a lot, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2002 Report Share Posted August 7, 2002 Where are you from?? There are many couples from the UK on this site who travel considerable distances for Ponseti treatment. I travel with my 3 month old son to Sunderland and I live in Northern Ireland. There are doctors in Northern Ireland who claim to use the method but have very little experience and this is an essential aspect, in my view. If you check the following link from University of Iowa Dr Ponseti gives the names of a number of surgeons in UK who have trained with him in Iowa. www.vh.org/Patients/IHB/Ortho/Peds/Clubfeet/Physicians.html We like yourself had our son diagnosed on the 20 week scan - bilateral talipes - it was fortunate as this gave us time to make all the necessary arrangements for treatment. Ask you consultant what experience they have, how many feet they have treated and what their success rate at avoiding serious surgery has been? This is the only way to guarantee yourself that you will be getting the best treatment for your son. We travelled to Sunderland when our son was one week old and travelled almost weekly until last week when he came out of plaster casts and is now in boots and brace. His feet are improving all the time, it is amazing especially when the feet look so bad the first time you see them. We do not now have to travel fro 8 weeks which is a nice break. Philip (unknown) Hello everybody, I'm new to this group. My name is , I live in the UK and am expecting twin boys in October. One of them has been diagnosed with unilateral talipes at the 20 week ultra sound scan. Our doctor says that she will be using the Ponseti method which from what I've read so far seems to be the best option. But now I hear that some doctors claim to use the Ponseti method when they are not, and I was wondering how I can find out who is properly trained in this. Any advice would be greatly appreciated. Thanks a lot, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2002 Report Share Posted August 22, 2002 Hello, I would suppose that it would depend upon the severity & age of the child but most are cut back to wearing the brace only during nap and night time sleeping. Sincerely, & Breanna theresanb67 wrote:Hi, My son has unilateral right clubfoot. He has been in the brace fulltime for three months and we return to see Dr. Bush, at ish Rite, Monday. After three months fulltime, I'm interested to know if most children are cut back on the time in the brace. I would appreciate any responses. Theresa Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2002 Report Share Posted August 22, 2002 Hello, I would suppose that it would depend upon the severity & age of the child but most are cut back to wearing the brace only during nap and night time sleeping. Sincerely, & Breanna theresanb67 wrote:Hi, My son has unilateral right clubfoot. He has been in the brace fulltime for three months and we return to see Dr. Bush, at ish Rite, Monday. After three months fulltime, I'm interested to know if most children are cut back on the time in the brace. I would appreciate any responses. Theresa Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2002 Report Share Posted August 22, 2002 Hello, I would suppose that it would depend upon the severity & age of the child but most are cut back to wearing the brace only during nap and night time sleeping. Sincerely, & Breanna theresanb67 wrote:Hi, My son has unilateral right clubfoot. He has been in the brace fulltime for three months and we return to see Dr. Bush, at ish Rite, Monday. After three months fulltime, I'm interested to know if most children are cut back on the time in the brace. I would appreciate any responses. Theresa Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2002 Report Share Posted August 22, 2002 Theresa, It depends on the doctor, but usually with the Ponseti Method the children go from 23/24 hours a day down to 14-16 hours a day. (Which is considered naps and nighttime) Some doctors cut down to the 14-16 immediately after the full 3 months (as doctor Ponseti did for us) some doctors choose to wean them down to 14-16 gradually (Dr. Ponseti's partner, Dr. Weinstein does, I believe). It all depends on each clubfoot case and which doctor you are seeing. ~Holly and (unknown) >Hi, >My son has unilateral right clubfoot. He has been in the >brace fulltime for three months and we return to see Dr. Bush, at >ish Rite, Monday. After three months fulltime, I'm interested >to know if most children are cut back on the time in the brace. I >would appreciate any responses. > >Theresa > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2002 Report Share Posted August 22, 2002 Theresa, It depends on the doctor, but usually with the Ponseti Method the children go from 23/24 hours a day down to 14-16 hours a day. (Which is considered naps and nighttime) Some doctors cut down to the 14-16 immediately after the full 3 months (as doctor Ponseti did for us) some doctors choose to wean them down to 14-16 gradually (Dr. Ponseti's partner, Dr. Weinstein does, I believe). It all depends on each clubfoot case and which doctor you are seeing. ~Holly and (unknown) >Hi, >My son has unilateral right clubfoot. He has been in the >brace fulltime for three months and we return to see Dr. Bush, at >ish Rite, Monday. After three months fulltime, I'm interested >to know if most children are cut back on the time in the brace. I >would appreciate any responses. > >Theresa > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2002 Report Share Posted August 22, 2002 Theresa, It depends on the doctor, but usually with the Ponseti Method the children go from 23/24 hours a day down to 14-16 hours a day. (Which is considered naps and nighttime) Some doctors cut down to the 14-16 immediately after the full 3 months (as doctor Ponseti did for us) some doctors choose to wean them down to 14-16 gradually (Dr. Ponseti's partner, Dr. Weinstein does, I believe). It all depends on each clubfoot case and which doctor you are seeing. ~Holly and (unknown) >Hi, >My son has unilateral right clubfoot. He has been in the >brace fulltime for three months and we return to see Dr. Bush, at >ish Rite, Monday. After three months fulltime, I'm interested >to know if most children are cut back on the time in the brace. I >would appreciate any responses. > >Theresa > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2002 Report Share Posted August 25, 2002 I haven't even had the surgery yet, (I'm hoping to soon) So maybe I'm not the best person to give you advice, but when I was pg with my son, I thew up 20 times a day until about a week AFTER I delivered him, I had " the runs " the whole pg, and I was hospitalized for dehydration twice as well. I guess my point is, maybe you will feel better after you deliver!! I sure hope so. Kami jks_msw wrote:Hi. I am having the same trouble and it is getting rather depressing, to the point where I am questioning having had the surgery. I am dumping on everything, am nauseas all the time and throwing up daily. I am pregnant though so I am just praying it ends when I give birth. I have been hospitalized twice for dehydration since I can't eat but can't not eat, also due to low blood sugar. Let me iknow if you find a solution besides a revision. Good luck to ya. Thx, open rny 5/17/01, due date 10/17/02. > OK, MY TURN TO VENT....I HATE DOCTORS!!!! > I WASNT GETTING ANYWHERE WITH MY DOC SO I WENT TO SEE ANOTHER THIS TIME AN > ENDOCRINOLOGIST. I HAVE BEEN HAVING TROUBLE WITH MY BLOOD SUGAR BEING TOO > LOW AND I AM SO TIRED I CAN HARDLY PUT ONE FOOT IN FRONT OF THE OTHER ( NO, > IM NOT : ) AND AM SICK OF FEELING LIKE THIS. I WAITED PATIENTLY AS I COULD > AND CALLED THIS MORNING SINCE I HAVE ALREADY HAD 2 BREAKFAST CUZ I WAS > DROPPING. SHE BASICALLY TOLD ME TO WATCH WHAT I EAT CLOSER!!! I ABOUT WENT > THROUTH THE ROOF!!! SHE DID TELL ME THAT SOME CHEX CEREAL WITH MILK IS > ENOUGH TO THROW ME OFF. ANYONE ELSE IN THE SAME BOAT? > SHE ALSO TOLD ME MY TRACE ELEMENTS CAME BACK ABNORMAL MAINLY MY COPPER BEING > LOW. ANYONE TAKE COPPER AND IS THERE ANY FOOD ITEM TO HELP? IM WILLING TO > TRY ABOUT ANYTHING AT THIS POINT > JULIE > P.S....MY POST OP BABY WILL BE 2 ALREADY ON THE 29TH. WHERE HAS THE TIME > GONE? Children are a blessing, and a gift from the Lord. -Psalm 127:3 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2002 Report Share Posted August 25, 2002 I haven't even had the surgery yet, (I'm hoping to soon) So maybe I'm not the best person to give you advice, but when I was pg with my son, I thew up 20 times a day until about a week AFTER I delivered him, I had " the runs " the whole pg, and I was hospitalized for dehydration twice as well. I guess my point is, maybe you will feel better after you deliver!! I sure hope so. Kami jks_msw wrote:Hi. I am having the same trouble and it is getting rather depressing, to the point where I am questioning having had the surgery. I am dumping on everything, am nauseas all the time and throwing up daily. I am pregnant though so I am just praying it ends when I give birth. I have been hospitalized twice for dehydration since I can't eat but can't not eat, also due to low blood sugar. Let me iknow if you find a solution besides a revision. Good luck to ya. Thx, open rny 5/17/01, due date 10/17/02. > OK, MY TURN TO VENT....I HATE DOCTORS!!!! > I WASNT GETTING ANYWHERE WITH MY DOC SO I WENT TO SEE ANOTHER THIS TIME AN > ENDOCRINOLOGIST. I HAVE BEEN HAVING TROUBLE WITH MY BLOOD SUGAR BEING TOO > LOW AND I AM SO TIRED I CAN HARDLY PUT ONE FOOT IN FRONT OF THE OTHER ( NO, > IM NOT : ) AND AM SICK OF FEELING LIKE THIS. I WAITED PATIENTLY AS I COULD > AND CALLED THIS MORNING SINCE I HAVE ALREADY HAD 2 BREAKFAST CUZ I WAS > DROPPING. SHE BASICALLY TOLD ME TO WATCH WHAT I EAT CLOSER!!! I ABOUT WENT > THROUTH THE ROOF!!! SHE DID TELL ME THAT SOME CHEX CEREAL WITH MILK IS > ENOUGH TO THROW ME OFF. ANYONE ELSE IN THE SAME BOAT? > SHE ALSO TOLD ME MY TRACE ELEMENTS CAME BACK ABNORMAL MAINLY MY COPPER BEING > LOW. ANYONE TAKE COPPER AND IS THERE ANY FOOD ITEM TO HELP? IM WILLING TO > TRY ABOUT ANYTHING AT THIS POINT > JULIE > P.S....MY POST OP BABY WILL BE 2 ALREADY ON THE 29TH. WHERE HAS THE TIME > GONE? Children are a blessing, and a gift from the Lord. -Psalm 127:3 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2002 Report Share Posted August 25, 2002 I haven't even had the surgery yet, (I'm hoping to soon) So maybe I'm not the best person to give you advice, but when I was pg with my son, I thew up 20 times a day until about a week AFTER I delivered him, I had " the runs " the whole pg, and I was hospitalized for dehydration twice as well. I guess my point is, maybe you will feel better after you deliver!! I sure hope so. Kami jks_msw wrote:Hi. I am having the same trouble and it is getting rather depressing, to the point where I am questioning having had the surgery. I am dumping on everything, am nauseas all the time and throwing up daily. I am pregnant though so I am just praying it ends when I give birth. I have been hospitalized twice for dehydration since I can't eat but can't not eat, also due to low blood sugar. Let me iknow if you find a solution besides a revision. Good luck to ya. Thx, open rny 5/17/01, due date 10/17/02. > OK, MY TURN TO VENT....I HATE DOCTORS!!!! > I WASNT GETTING ANYWHERE WITH MY DOC SO I WENT TO SEE ANOTHER THIS TIME AN > ENDOCRINOLOGIST. I HAVE BEEN HAVING TROUBLE WITH MY BLOOD SUGAR BEING TOO > LOW AND I AM SO TIRED I CAN HARDLY PUT ONE FOOT IN FRONT OF THE OTHER ( NO, > IM NOT : ) AND AM SICK OF FEELING LIKE THIS. I WAITED PATIENTLY AS I COULD > AND CALLED THIS MORNING SINCE I HAVE ALREADY HAD 2 BREAKFAST CUZ I WAS > DROPPING. SHE BASICALLY TOLD ME TO WATCH WHAT I EAT CLOSER!!! I ABOUT WENT > THROUTH THE ROOF!!! SHE DID TELL ME THAT SOME CHEX CEREAL WITH MILK IS > ENOUGH TO THROW ME OFF. ANYONE ELSE IN THE SAME BOAT? > SHE ALSO TOLD ME MY TRACE ELEMENTS CAME BACK ABNORMAL MAINLY MY COPPER BEING > LOW. ANYONE TAKE COPPER AND IS THERE ANY FOOD ITEM TO HELP? IM WILLING TO > TRY ABOUT ANYTHING AT THIS POINT > JULIE > P.S....MY POST OP BABY WILL BE 2 ALREADY ON THE 29TH. WHERE HAS THE TIME > GONE? Children are a blessing, and a gift from the Lord. -Psalm 127:3 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 26, 2002 Report Share Posted August 26, 2002 How long do most tots wear the brace for 14-16 hours a day. Our doctor said for atleast another year (that would be right around the time turns 2 1/2)...does this sound like what you all have been told in Iowa? Thanks! Amy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 26, 2002 Report Share Posted August 26, 2002 Amy, This, like most every thing our kids go through, can vary somewhat from doctor to doctor. After wearing the brace full time (which for Jakob was about 2 1/2 months), Dr. Weinstein had us wean the time down to naps and bed time (I think it worked out to be about 14 hours a day). I guess Jakob was about 15-16 months old when putting the brace on during the day became tough as we were busy away from home quite a bit and his naps weren't a set length of time. At that point, I stopped putting it on during the day, but Jakob still wore it at night (about 10-12 hours) until September 2001 at just over 3 1/2 years old. He's been completely done with it almost a year now. amy tiede wrote: > How long do most tots wear the brace for 14-16 hours a > day. Our doctor said for atleast another year (that would > be right around the time turns 2 1/2)...does > this sound like what you all have been told in Iowa? > Thanks! > Amy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 26, 2002 Report Share Posted August 26, 2002 Amy, This, like most every thing our kids go through, can vary somewhat from doctor to doctor. After wearing the brace full time (which for Jakob was about 2 1/2 months), Dr. Weinstein had us wean the time down to naps and bed time (I think it worked out to be about 14 hours a day). I guess Jakob was about 15-16 months old when putting the brace on during the day became tough as we were busy away from home quite a bit and his naps weren't a set length of time. At that point, I stopped putting it on during the day, but Jakob still wore it at night (about 10-12 hours) until September 2001 at just over 3 1/2 years old. He's been completely done with it almost a year now. amy tiede wrote: > How long do most tots wear the brace for 14-16 hours a > day. Our doctor said for atleast another year (that would > be right around the time turns 2 1/2)...does > this sound like what you all have been told in Iowa? > Thanks! > Amy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2002 Report Share Posted November 20, 2002 There are some real anti-WLSers out there. Obviously this person is on a mission. I can imagine that she's grieving the loss of her friend. But, would she be sending out emails to people who eat Mcs food if her friend had " only " died from being obese? I doubt it. The fact is that we are at risk of dying due to obesity related illnesses...the surgery is risky...but, when you do the math...is it any more risky than just being obese? For many the answer is no. Here's an article on Peritonitis: http://www.healthcentral.com/library/librarycontent.cfm?id=473 It just annoys me that people use scare tactics to get their message out there. I'd have a conversation with your surgeon and/or OB about the risk factors in your case. HTH! Blessings, ) Jordan's SAHMommy ( in California) (unknown) Hi All......My names Lori and Im a lurker around here.... I dont post much but i read all the time... Anyways......I was looking for a little help with an e-mail I got the other day. It was from a woman whos bestfriend,who had a gastric by-pass, Passed on and found my e-mail addy in her addy book.....anyways to make a long story short, She was saying she died while she was 32 weeks pregnant from something called Perontinitis. She said her intestines burst at the surgery sight. well all i know is Im sooooo freaked out right now. I have never heard of this before and I have talked to so many people that have had this surgery and have had babys without any problems at all...... Anyways...any info on this subject or if anyone has heard of this could you please let me know? Thanks Lori Children are a blessing, and a gift from the Lord. -Psalm 127:3 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2002 Report Share Posted November 20, 2002 There are some real anti-WLSers out there. Obviously this person is on a mission. I can imagine that she's grieving the loss of her friend. But, would she be sending out emails to people who eat Mcs food if her friend had " only " died from being obese? I doubt it. The fact is that we are at risk of dying due to obesity related illnesses...the surgery is risky...but, when you do the math...is it any more risky than just being obese? For many the answer is no. Here's an article on Peritonitis: http://www.healthcentral.com/library/librarycontent.cfm?id=473 It just annoys me that people use scare tactics to get their message out there. I'd have a conversation with your surgeon and/or OB about the risk factors in your case. HTH! Blessings, ) Jordan's SAHMommy ( in California) (unknown) Hi All......My names Lori and Im a lurker around here.... I dont post much but i read all the time... Anyways......I was looking for a little help with an e-mail I got the other day. It was from a woman whos bestfriend,who had a gastric by-pass, Passed on and found my e-mail addy in her addy book.....anyways to make a long story short, She was saying she died while she was 32 weeks pregnant from something called Perontinitis. She said her intestines burst at the surgery sight. well all i know is Im sooooo freaked out right now. I have never heard of this before and I have talked to so many people that have had this surgery and have had babys without any problems at all...... Anyways...any info on this subject or if anyone has heard of this could you please let me know? Thanks Lori Children are a blessing, and a gift from the Lord. -Psalm 127:3 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2002 Report Share Posted November 20, 2002 Lori, We all know that complications from surgery can happen, but this email sounds very suspect. There are people out there who are against weight loss surgery and use scare tactics such as this to freak people out. If anyone's intestines spring a leak, it's not because they are pregnant, so please don't worry. I'm sure this sort of thing can happen, but I've personally never known anyone it's happened to, and I keep in touch with HUNDREDS of post ops. - Alice edd 5/18/03 pooka908_2000 wrote: > > Hi All......My names Lori and Im a lurker around here.... I > dont post > much but i read all the time... Anyways......I was looking for a > little help with an > e-mail I got the other day. It was from a woman whos bestfriend,who > had a > gastric by-pass, Passed on and found my e-mail addy in her addy > book.....anyways to make a long story short, She was saying she died > while > she was 32 weeks pregnant from something called Perontinitis. She said > her > intestines burst at the surgery sight. well all i know is Im sooooo > freaked out > right now. I have never heard of this before and I have talked to so > many > people that have had this surgery and have had babys without any > problems > at all...... Anyways...any info on this subject or if anyone has heard > of this > could you please let me know? Thanks > Lori > > Children are a blessing, and a gift from the Lord. -Psalm 127:3 > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2002 Report Share Posted November 20, 2002 Lori, We all know that complications from surgery can happen, but this email sounds very suspect. There are people out there who are against weight loss surgery and use scare tactics such as this to freak people out. If anyone's intestines spring a leak, it's not because they are pregnant, so please don't worry. I'm sure this sort of thing can happen, but I've personally never known anyone it's happened to, and I keep in touch with HUNDREDS of post ops. - Alice edd 5/18/03 pooka908_2000 wrote: > > Hi All......My names Lori and Im a lurker around here.... I > dont post > much but i read all the time... Anyways......I was looking for a > little help with an > e-mail I got the other day. It was from a woman whos bestfriend,who > had a > gastric by-pass, Passed on and found my e-mail addy in her addy > book.....anyways to make a long story short, She was saying she died > while > she was 32 weeks pregnant from something called Perontinitis. She said > her > intestines burst at the surgery sight. well all i know is Im sooooo > freaked out > right now. I have never heard of this before and I have talked to so > many > people that have had this surgery and have had babys without any > problems > at all...... Anyways...any info on this subject or if anyone has heard > of this > could you please let me know? Thanks > Lori > > Children are a blessing, and a gift from the Lord. -Psalm 127:3 > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2002 Report Share Posted November 20, 2002 Lori, We all know that complications from surgery can happen, but this email sounds very suspect. There are people out there who are against weight loss surgery and use scare tactics such as this to freak people out. If anyone's intestines spring a leak, it's not because they are pregnant, so please don't worry. I'm sure this sort of thing can happen, but I've personally never known anyone it's happened to, and I keep in touch with HUNDREDS of post ops. - Alice edd 5/18/03 pooka908_2000 wrote: > > Hi All......My names Lori and Im a lurker around here.... I > dont post > much but i read all the time... Anyways......I was looking for a > little help with an > e-mail I got the other day. It was from a woman whos bestfriend,who > had a > gastric by-pass, Passed on and found my e-mail addy in her addy > book.....anyways to make a long story short, She was saying she died > while > she was 32 weeks pregnant from something called Perontinitis. She said > her > intestines burst at the surgery sight. well all i know is Im sooooo > freaked out > right now. I have never heard of this before and I have talked to so > many > people that have had this surgery and have had babys without any > problems > at all...... Anyways...any info on this subject or if anyone has heard > of this > could you please let me know? Thanks > Lori > > Children are a blessing, and a gift from the Lord. -Psalm 127:3 > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2002 Report Share Posted November 20, 2002 Lori I cant help completely with your problem but it is frightening. peritonitis is an infection of the peritoneum ( like a sack that encloses the abdominal cavity,) anytime this is opened(surgically cut) it is highly possible for infection, which is why antibiotics are usually given during surgery and after, it sounds like this person had a bowel obstruction which is where the intestines get blocked and the stool builds up and then ruptures for the pressure which would then lead to peritonitis, usually there would be extreme pain with all of these, possibly she had a slow leak she wasn't aware of which is so unfortunate, and a horrible thing no matter what the situation but know that a lot of people get bowel obstructions for whatever reason and this is not something reserved for wls patients, and your chances are as good as anybody else's on here to not have this happen. logically the thought of the growing fetus pushing up on the intestines would make you think it possibly had something to do with it, but this is not something that is common for pregnant women whether they have had wls or not. its just a freak, very unfortunate thing. my sympathy goes to your friend and to you for your worrying! apryl Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2002 Report Share Posted November 20, 2002 Lori I cant help completely with your problem but it is frightening. peritonitis is an infection of the peritoneum ( like a sack that encloses the abdominal cavity,) anytime this is opened(surgically cut) it is highly possible for infection, which is why antibiotics are usually given during surgery and after, it sounds like this person had a bowel obstruction which is where the intestines get blocked and the stool builds up and then ruptures for the pressure which would then lead to peritonitis, usually there would be extreme pain with all of these, possibly she had a slow leak she wasn't aware of which is so unfortunate, and a horrible thing no matter what the situation but know that a lot of people get bowel obstructions for whatever reason and this is not something reserved for wls patients, and your chances are as good as anybody else's on here to not have this happen. logically the thought of the growing fetus pushing up on the intestines would make you think it possibly had something to do with it, but this is not something that is common for pregnant women whether they have had wls or not. its just a freak, very unfortunate thing. my sympathy goes to your friend and to you for your worrying! apryl Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.