Caleb ' new update

January 2, 2001

Hey guys! It's me, from East Texas. I am trying to get

caught up on all of the mail. I get my e-mail through my school

district I work through. I have been out since the 20th of December

and I am just getting back today on the 2nd. I hope all of you had

wonderful holidays. We have spent a lot of time at Texas Childrens in

Houston over the holidays. First of all, I wanted to update yall on

Caleb and what we have found out so far.

On December 11, Caleb had an endoscopy done and blood drawn for

allergies and Cystic Fibrosis and Celiac testing. The endoscopy showed

he has a hiatial hernia and esophagitis (sp?). The blood for the

Cystic Fibrosis testing -they lost! The allergey testing shows he has

a class three allergy to wheat, class 2 allergy to barley, corn, oats,

soybean, peanuts and green peas; and a class 1 allergy to egg white,

and green string beans. However, the GI doctor swears that he doesn't

have celiac. He says the endoscopy show all of the villi standing

tall and the blood testing shows negative for it also. Caleb had had

an allergey to milk but somehow outgrew it. Really strange I thought.

The Dr. also thinks by the time Caleb is 5 or so he will magically

outgrow all of these allergies. I hope but not counting on it. Then,

this past Thursday, we went for a sweat test and it came back a 10.

The doc said that fourty is where they start considering it as a sign

of cf. She had also told me that a sweat test is more accurate then

the blood testing. I told her I had heard the opposite is why I had

asked for the blood testing. She said it wasn't. I was really

confused.

Even though the doc says he is not celiac, we still have to basically

follow the celiac diet. This is where I need help. My son does not

like the food. Any suggestions. Also, is cornstarch from corn. Under

ingredients it says-cornstarch. Also what about soy lechtin and soy

oil. Its in everything along with cornsyrup. Well, this is basically

our story, if any of you have any suggestions or help, please let me

know. I really appreciate all of your concerns and prayers and

support. I could not have been the " pushy mom " if it wouldn't have

been for yall, and we still might not know the answers.

Nacogdoches, Texas

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