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WOW..YOU ARE REALLY GOING TO BE BUSY TOO!!!~~~~!!!

good luck, & best wishes.

love, GrandmomBEV

christmas

>

>

> Nothing to do with cf, but since we all live in

> different countries I was wondering what you all

> do on christmas day. You know family traditions,

> rituals. I think it owuld be fun to read whta

> other countries do.

>

> Well here its so hot so theres no whit christmas

> for us. Im usually the first up waking the kids,

> I cant wait to see their little faces. This year

> my parents are sleeping x-mas eve so they can see

> the kids open their gifts. Plus daddy (father

> christmas) will be up late as usual trying to put

> together a huge trampoline so the more helpers the

> better. Anyone know how hard it is to stretch

> those

> strings? Any hints? Then christmas afternoon we

> have to travel 1 1/2 hours for lunch at my in-laws

> (feel the migraine already). After that it back 1

> 1/2 hours for dinner at my sisters then home. The

> on proclomation day (following day) we have all

> the families and freinds here for a bbq

> lunch/dinner. We usually refuse to travel to my

> in laws on x-mas day as Its not fair on the kids

> spending 3 hours in total in the car. But this

> year is the last my sister-in-law & brother-in-law

> will be in Aus. they are moving to Scotland in

> January so were making the trip for them. We

> always end up in a water fight as Liam and Eilish

> bring their super soakers and its so hot were

> actually glad of the cooling off.

>

> What does everyone else do?

>

> Merry Christmas Everyone

>

>

>

>

> What does everyone else do

>

>

> [Non-text portions of this message have been

> removed]

>

>

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> PLEASE do not post religious emails to the list.

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> --------------------------------------------------

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>

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> list should

> IN NO WAY

> be construed as medical advice.

>

> PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY

> MEDICATIONS OR TREATMENTS.

>

> --------------------------------------------------

>

>

> Our webpage is at

> http://www.eohio.net/malbright/cfparents.htm

>

> _________________________________________________

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***********************

This is a secular list.

***********************

PLEASE do not post religious emails to the list.

--------------------------------------------------

The opinions and information exchanged on this list should

IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS.

--------------------------------------------------

Our webpage is at http://www.eohio.net/malbright/cfparents.htm

_________________________________________________

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That is a really great day. It is supposed to be busy .you sound like you

have arranged it all nicely sooooooo everyone has a little break(holiday)

from the things that CAN wait..:):):) great job there MOM. Now , go and have

a wonderful holiday with your grand family ......

LOVE & HUGS,

GRANDMOMBEV

Re: Christmas

Grandmom BEv

Well christmas morning and Eilish's birthday are the only two days she

doesnt have morning physio. We feel we want her to enjoy the magic of

playing with all the gifts and physio seems not that important on those

mornings. She has her afternoon physio just before we leave to go to inlaws

and night time one when everything else is done. And of course the enzymes

and apple puree come with us. She doesnt have nebs so thats not a problem.

Merry Christmas

from Australia (mummy to Liam 6 wocf and Eilish 3 wcf)

christmas

>

>

> Nothing to do with cf, but since we all live in

> different countries I was wondering what you all

> do on christmas day. You know family traditions,

> rituals. I think it owuld be fun to read whta

> other countries do.

>

> Well here its so hot so theres no whit christmas

> for us. Im usually the first up waking the kids,

> I cant wait to see their little faces. This year

> my parents are sleeping x-mas eve so they can see

> the kids open their gifts. Plus daddy (father

> christmas) will be up late as usual trying to put

> together a huge trampoline so the more helpers the

> better. Anyone know how hard it is to stretch

> those

> strings? Any hints? Then christmas afternoon we

> have to travel 1 1/2 hours for lunch at my in-laws

> (feel the migraine already). After that it back 1

> 1/2 hours for dinner at my sisters then home. The

> on proclomation day (following day) we have all

> the families and freinds here for a bbq

> lunch/dinner. We usually refuse to travel to my

> in laws on x-mas day as Its not fair on the kids

> spending 3 hours in total in the car. But this

> year is the last my sister-in-law & brother-in-law

> will be in Aus. they are moving to Scotland in

> January so were making the trip for them. We

> always end up in a water fight as Liam and Eilish

> bring their super soakers and its so hot were

> actually glad of the cooling off.

>

> What does everyone else do?

>

> Merry Christmas Everyone

>

>

>

>

> What does everyone else do

>

>

> [Non-text portions of this message have been

> removed]

>

>

> -------------------------- eGroups

>

> ***********************

> This is a secular list.

> ***********************

>

>

> PLEASE do not post religious emails to the list.

>

>

> --------------------------------------------------

>

>

> The opinions and information exchanged on this

> list should

> IN NO WAY

> be construed as medical advice.

>

> PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY

> MEDICATIONS OR TREATMENTS.

>

> --------------------------------------------------

>

>

> Our webpage is at

> http://www.eohio.net/malbright/cfparents.htm

>

> _________________________________________________

> Post message: cfparentsegroups

> Subscribe: cfparents-subscribeegroups

> Unsubscribe: cfparents-unsubscribeegroups

> List owner: cfparents-owneregroups

> _________________________________________________

>

> WE HAVE A CHAT PAGE!!!

> /chat/cfparents

> _________________________________________________

>

>

>

>

>

>

> ***********************

> This is a secular list.

> ***********************

>

>

> PLEASE do not post religious emails to the list.

>

>

> --------------------------------------------------

>

>

> The opinions and information exchanged on this list should

> IN NO WAY

> be construed as medical advice.

>

> PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

TREATMENTS.

>

> --------------------------------------------------

>

>

> Our webpage is at http://www.eohio.net/malbright/cfparents.htm

>

> _________________________________________________

> Post message: cfparentsegroups

> Subscribe: cfparents-subscribeegroups

> Unsubscribe: cfparents-unsubscribeegroups

> List owner: cfparents-owneregroups

> _________________________________________________

>

> WE HAVE A CHAT PAGE!!!

> /chat/cfparents

> _________________________________________________

>

>

>

***********************

This is a secular list.

***********************

PLEASE do not post religious emails to the list.

--------------------------------------------------

The opinions and information exchanged on this list should

IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS.

--------------------------------------------------

Our webpage is at http://www.eohio.net/malbright/cfparents.htm

_________________________________________________

Post message: cfparentsegroups

Subscribe: cfparents-subscribeegroups

Unsubscribe: cfparents-unsubscribeegroups

List owner: cfparents-owneregroups

_________________________________________________

WE HAVE A CHAT PAGE!!!

/chat/cfparents

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Hi ,

The tradition for those of us living in East London, England is that on

Christmas eve we generally either spend it at home with the family (unless

you have no kids in which case it's spent in the local rapidly drinking

yourself into a stupor!!). Christmas day is similarly spent at home with an

early morning start as the kids wake up and want to open their presents.

Boxing day is usually spent either at my parents or in-laws eating too much,

drinking too much and watching repeats on the television.

Is that an exciting time or what!!??

Barry

father of Harry 10weeks old wcf and Jack 5wo/cf

christmas

Nothing to do with cf, but since we all live in different countries I was

wondering what you all do on christmas day. You know family traditions,

rituals. I think it owuld be fun to read whta other countries do.

Well here its so hot so theres no whit christmas for us. Im usually the

first up waking the kids, I cant wait to see their little faces. This year

my parents are sleeping x-mas eve so they can see the kids open their gifts.

Plus daddy (father christmas) will be up late as usual trying to put

together a huge trampoline so the more helpers the better. Anyone know how

hard it is to stretch those

strings? Any hints? Then christmas afternoon we have to travel 1 1/2 hours

for lunch at my in-laws (feel the migraine already). After that it back 1

1/2 hours for dinner at my sisters then home. The on proclomation day

(following day) we have all the families and freinds here for a bbq

lunch/dinner. We usually refuse to travel to my in laws on x-mas day as Its

not fair on the kids spending 3 hours in total in the car. But this year is

the last my sister-in-law & brother-in-law will be in Aus. they are moving

to Scotland in January so were making the trip for them. We always end up in

a water fight as Liam and Eilish bring their super soakers and its so hot

were actually glad of the cooling off.

What does everyone else do?

Merry Christmas Everyone

What does everyone else do

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Wow, this is the first time I have ever heard of a Dr. admitting a stuffy or

runny nose could be from teething! It is something I think most mothers

believe, but every Dr. I have ever said it too always gave me that look. I

still believe teething often gave Scout a runny nose and a cough (from the

saliva).

Lori

Re: Christmas

> Besides that we are battling all this

> snow here in Illinois about 15 inches or so and more to come. the

> baby who has Cf is also trying to get rid of a lingering stuffy

> nose. The doctors say it could be a cold or from teething.

> hopefully it is the teeth since he doesn't have any yet and we would

> love for him to get some soon. so he can starting eating some

> better tasting food.

> mom of Breanna 8yowocf and Noah 10 mowcf

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My oldest son Jack 5ncf always had nasal problems when he was teething as

well as runny nappies. My Dr said that this is quite common and to ignore it

unless the nappies occurred too often and caused problems.

Barry

Re: Re: Christmas

Wow, this is the first time I have ever heard of a Dr. admitting a stuffy or

runny nose could be from teething! It is something I think most mothers

believe, but every Dr. I have ever said it too always gave me that look. I

still believe teething often gave Scout a runny nose and a cough (from the

saliva).

Lori

Re: Christmas

> Besides that we are battling all this

> snow here in Illinois about 15 inches or so and more to come. the

> baby who has Cf is also trying to get rid of a lingering stuffy

> nose. The doctors say it could be a cold or from teething.

> hopefully it is the teeth since he doesn't have any yet and we would

> love for him to get some soon. so he can starting eating some

> better tasting food.

> mom of Breanna 8yowocf and Noah 10 mowcf

***********************

This is a secular list.

***********************

PLEASE do not post religious emails to the list.

--------------------------------------------------

The opinions and information exchanged on this list should

IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS.

--------------------------------------------------

Our webpage is at http://www.eohio.net/malbright/cfparents.htm

_________________________________________________

Post message: cfparentsegroups

Subscribe: cfparents-subscribeegroups

Unsubscribe: cfparents-unsubscribeegroups

List owner: cfparents-owneregroups

_________________________________________________

WE HAVE A CHAT PAGE!!!

/chat/cfparents

_________________________________________________

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Hi,

the biggest differences here in Germany are, that you put up the tree just at

Christmas Eve and that the gifts are presented at the same time. And not Santa

but the " Holy Child " brings the parcels. All kids have to leave the living room,

only mom or dad are in there and often you can hear a tiny bell ring as a

signal, that the Holy Child has flown through the house. Then the kids are

allowed to enter the living room and they will find the decorated tree and the

presents.

Fiona has written her wish list today and tomorrow morning the letter will be

gone as a sign, that the wishs are accepted. She has only asked for two barbies

and a wrist chain, I think that is quite modest.

Bye-bye

Torsten, dad of Fiona 3.5wcf

e-mail: aberdeen95@...

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Torsten,

Do you have a real tree? Yes your christmas is alot different to ours, but

sounds lovely. Do they not have Santa in stores? We put our tree up on the

3rd Sunday in November as thats when we have our state pageant in the city.

Plus it takes me 2 hours to do so I get the most of it. Plus I love

decorations, they are so pretty. The only thing is when you take them down

then the house looks empty. I remember hearing a tiny bell when I was a kid.

It was christams eve and I heard a bell ringing outside and I peeked out the

window and saw a flashing light going across the sky. Of course it was

Santa (not an aeroplane) and I tried to smother myself with a pillow because

I knew if I wasnt asleep he would bypass my place.

Christmas

> Hi,

>

> the biggest differences here in Germany are, that you put up the tree just

at

> Christmas Eve and that the gifts are presented at the same time. And not

Santa

> but the " Holy Child " brings the parcels. All kids have to leave the living

room,

> only mom or dad are in there and often you can hear a tiny bell ring as a

> signal, that the Holy Child has flown through the house. Then the kids are

> allowed to enter the living room and they will find the decorated tree and

the

> presents.

>

> Fiona has written her wish list today and tomorrow morning the letter will

be

> gone as a sign, that the wishs are accepted. She has only asked for two

barbies

> and a wrist chain, I think that is quite modest.

>

> Bye-bye

> Torsten, dad of Fiona 3.5wcf

> e-mail: aberdeen95@...

>

>

>

> ***********************

> This is a secular list.

> ***********************

>

>

> PLEASE do not post religious emails to the list.

>

>

> --------------------------------------------------

>

>

> The opinions and information exchanged on this list should

> IN NO WAY

> be construed as medical advice.

>

> PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

TREATMENTS.

>

> --------------------------------------------------

>

>

> Our webpage is at http://www.eohio.net/malbright/cfparents.htm

>

> _________________________________________________

> Post message: cfparentsegroups

> Subscribe: cfparents-subscribeegroups

> Unsubscribe: cfparents-unsubscribeegroups

> List owner: cfparents-owneregroups

> _________________________________________________

>

> WE HAVE A CHAT PAGE!!!

> /chat/cfparents

> _________________________________________________

>

>

>

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Barry,

How wonderful to spend the day at home by yourselves. Usually we do have it

at home, but usually with 30 odd people having lunch there also. Its the

driving from one place to another I hate. We call boxing day proclomation

day in our state and have everyone back again. So this year well still have

proclomation day here. Everyone brings leftovers and we put on a bbq and

everyone stuffs themselves silly. My brother-in-law is from Scotland and

they live here (only till 24th Jan 2001) and they dont visit anyone until

christmas night, so they usually visit us and stay over. I do like having a

house full and I dont mind if they sleep, as we've 5 spare beds and a couch

, so long as everyone pitches in.

Sounds like you'll have a lovely day. I think the best bit is watching the

kids faces. Ive just picked up a guitar for my son as he starts his lessons

next school year, which Starts 29th Jan. here. Eilish (wcf) is asking Santa

for a trampoline and a bike with training wheels, so she'll be pleased Santa

has made them already.

Best wishes

from Australia (mummy to Liam 6 wocf & Eilish 3 wcf)

christmas

>

>

> Nothing to do with cf, but since we all live in different countries I was

> wondering what you all do on christmas day. You know family traditions,

> rituals. I think it owuld be fun to read whta other countries do.

>

> Well here its so hot so theres no whit christmas for us. Im usually the

> first up waking the kids, I cant wait to see their little faces. This

year

> my parents are sleeping x-mas eve so they can see the kids open their

gifts.

> Plus daddy (father christmas) will be up late as usual trying to put

> together a huge trampoline so the more helpers the better. Anyone know

how

> hard it is to stretch those

> strings? Any hints? Then christmas afternoon we have to travel 1 1/2

hours

> for lunch at my in-laws (feel the migraine already). After that it back 1

> 1/2 hours for dinner at my sisters then home. The on proclomation day

> (following day) we have all the families and freinds here for a bbq

> lunch/dinner. We usually refuse to travel to my in laws on x-mas day as

Its

> not fair on the kids spending 3 hours in total in the car. But this year

is

> the last my sister-in-law & brother-in-law will be in Aus. they are moving

> to Scotland in January so were making the trip for them. We always end up

in

> a water fight as Liam and Eilish bring their super soakers and its so hot

> were actually glad of the cooling off.

>

> What does everyone else do?

>

> Merry Christmas Everyone

>

>

>

>

> What does everyone else do

>

>

>

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I like your way of celebrating Christmas I don't like the Santa Claus over

here in the US. Cherie deep in woods of Maine.

Christmas

> Hi,

>

> the biggest differences here in Germany are, that you put up the tree just

at

> Christmas Eve and that the gifts are presented at the same time. And not

Santa

> but the " Holy Child " brings the parcels. All kids have to leave the living

room,

> only mom or dad are in there and often you can hear a tiny bell ring as a

> signal, that the Holy Child has flown through the house. Then the kids are

> allowed to enter the living room and they will find the decorated tree and

the

> presents.

>

> Fiona has written her wish list today and tomorrow morning the letter will

be

> gone as a sign, that the wishs are accepted. She has only asked for two

barbies

> and a wrist chain, I think that is quite modest.

>

> Bye-bye

> Torsten, dad of Fiona 3.5wcf

> e-mail: aberdeen95@...

>

>

>

> ***********************

> This is a secular list.

> ***********************

>

>

> PLEASE do not post religious emails to the list.

>

>

> --------------------------------------------------

>

>

> The opinions and information exchanged on this list should

> IN NO WAY

> be construed as medical advice.

>

> PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

TREATMENTS.

>

> --------------------------------------------------

>

>

> Our webpage is at http://www.eohio.net/malbright/cfparents.htm

>

> _________________________________________________

> Post message: cfparentsegroups

> Subscribe: cfparents-subscribeegroups

> Unsubscribe: cfparents-unsubscribeegroups

> List owner: cfparents-owneregroups

> _________________________________________________

>

> WE HAVE A CHAT PAGE!!!

> /chat/cfparents

> _________________________________________________

>

>

>

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Share on other sites

Hi ,

yep, we have a real tree. Or better we will have, since I am famous for buying

one at the morning of Christmas Eve, LOL. But this year I have to be a little

more early. We have thought about an artificial one, but that would mean that CF

takes another part of our life and we aren't ready for that. Of course we have

Santa in the stores here and the americanism of the german culture goes on (not

that I am sad about this) and it won't take long until we will have the same

customs like in the US here. Our neighbors have their tree decorated already.

We are still hoping for a white Christmas, but until yesterday we had

temperatures above 10C (70F). Today we saw the first snow flakes of the year,

but they melted immediately. So all the people from the Midwest, why not share

with us?

And re the nose, Fiona is a passionated nose picker :-(( and she had small plots

of blood during her last cold.

Bye-bye

Torsten, dad of Fiona 3.5wcf

e-mail: aberdeen95@...

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Torsten

We would gladly share our snow and the cold. Mostly the cold.

shannon

>From: aberdeen95@...

>Reply-To: cfparentsegroups

>To: cfparentsegroups

>Subject: Re: Christmas

>Date: Sun, 17 Dec 2000 00:27:14 +0100

>

>Hi ,

>

>yep, we have a real tree. Or better we will have, since I am famous for

>buying

>one at the morning of Christmas Eve, LOL. But this year I have to be a

>little

>more early. We have thought about an artificial one, but that would mean

>that CF

>takes another part of our life and we aren't ready for that. Of course we

>have

>Santa in the stores here and the americanism of the german culture goes on

>(not

>that I am sad about this) and it won't take long until we will have the

>same

>customs like in the US here. Our neighbors have their tree decorated

>already.

>

>We are still hoping for a white Christmas, but until yesterday we had

>temperatures above 10C (70F). Today we saw the first snow flakes of the

>year,

>but they melted immediately. So all the people from the Midwest, why not

>share

>with us?

>

>And re the nose, Fiona is a passionated nose picker :-(( and she had small

>plots

>of blood during her last cold.

>

>

>

>Bye-bye

>Torsten, dad of Fiona 3.5wcf

>e-mail: aberdeen95@...

>

_________________________________________________________________

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,

A BBQ at Christmas would be great but in England we are lucky if we have a

suitable day in the summer let alone in the midst of winter. This time of

year it rains constantly, especially this year as we have had the wettest

couple of months for about a 10 years with floods, high winds and other such

lovely weather.

Barry

Re: Christmas

Barry,

How wonderful to spend the day at home by yourselves. Usually we do have it

at home, but usually with 30 odd people having lunch there also. Its the

driving from one place to another I hate. We call boxing day proclomation

day in our state and have everyone back again. So this year well still have

proclomation day here. Everyone brings leftovers and we put on a bbq and

everyone stuffs themselves silly. My brother-in-law is from Scotland and

they live here (only till 24th Jan 2001) and they dont visit anyone until

christmas night, so they usually visit us and stay over. I do like having a

house full and I dont mind if they sleep, as we've 5 spare beds and a couch

, so long as everyone pitches in.

Sounds like you'll have a lovely day. I think the best bit is watching the

kids faces. Ive just picked up a guitar for my son as he starts his lessons

next school year, which Starts 29th Jan. here. Eilish (wcf) is asking Santa

for a trampoline and a bike with training wheels, so she'll be pleased Santa

has made them already.

Best wishes

from Australia (mummy to Liam 6 wocf & Eilish 3 wcf)

RE: Christmas

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Hi Barry,

I didn't realise you are in the UK. I am in Belgium, just across the

channel. In our clinic, they said that in the UK you also only give Ciproxin

for a first Pseudomonas isolation and no Colistin or Colymicine. It doesn't

seem to be the case, as your son got the inhaled Colistin for three weeks.

Do you know why not for three months as in the Danish protocol ?

Liesbeth

mom to (2,5 wCF) and Kasper (1no CF)

> Re: Christmas

>

>

> Barry,

>

> How wonderful to spend the day at home by yourselves. Usually we do have

> it

> at home, but usually with 30 odd people having lunch there also. Its the

> driving from one place to another I hate. We call boxing day proclomation

> day in our state and have everyone back again. So this year well still

> have

> proclomation day here. Everyone brings leftovers and we put on a bbq and

> everyone stuffs themselves silly. My brother-in-law is from Scotland and

> they live here (only till 24th Jan 2001) and they dont visit anyone until

> christmas night, so they usually visit us and stay over. I do like having

> a

> house full and I dont mind if they sleep, as we've 5 spare beds and a

> couch

> , so long as everyone pitches in.

> Sounds like you'll have a lovely day. I think the best bit is watching

> the

> kids faces. Ive just picked up a guitar for my son as he starts his

> lessons

> next school year, which Starts 29th Jan. here. Eilish (wcf) is asking

> Santa

> for a trampoline and a bike with training wheels, so she'll be pleased

> Santa

> has made them already.

>

> Best wishes

>

> from Australia (mummy to Liam 6 wocf & Eilish 3 wcf)

> RE: Christmas

>

>

> ***********************

> This is a secular list.

> ***********************

>

>

> PLEASE do not post religious emails to the list.

>

>

> --------------------------------------------------

>

>

> The opinions and information exchanged on this list should

> IN NO WAY

> be construed as medical advice.

>

> PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

> TREATMENTS.

>

> --------------------------------------------------

>

>

> Our webpage is at http://www.eohio.net/malbright/cfparents.htm

>

> _________________________________________________

> Post message: cfparentsegroups

> Subscribe: cfparents-subscribeegroups

> Unsubscribe: cfparents-unsubscribeegroups

> List owner: cfparents-owneregroups

> _________________________________________________

>

> WE HAVE A CHAT PAGE!!!

> /chat/cfparents

> _________________________________________________

>

>

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Hi Liesbeth,

I don't know why only three weeks. As I only have a few weeks experience of

cf I can only assume that this is normal procedure. They haven't ruled out

having further treatment they are going to re-assess after treatment by

taking another swab and testing it. I would suppose that if it comes back

positive that they either give a further course of the both drugs or try a

different antibiotic. I will know more after the next swab results.

One thing I have found out though is that treatment varies from clinic to

clinic and even between different doctors in the same hospital so what you

were told may be true dependant on where you are and who you see!

Barry

Re: Christmas

>

>

> Barry,

>

> How wonderful to spend the day at home by yourselves. Usually we do have

> it

> at home, but usually with 30 odd people having lunch there also. Its the

> driving from one place to another I hate. We call boxing day proclomation

> day in our state and have everyone back again. So this year well still

> have

> proclomation day here. Everyone brings leftovers and we put on a bbq and

> everyone stuffs themselves silly. My brother-in-law is from Scotland and

> they live here (only till 24th Jan 2001) and they dont visit anyone until

> christmas night, so they usually visit us and stay over. I do like having

> a

> house full and I dont mind if they sleep, as we've 5 spare beds and a

> couch

> , so long as everyone pitches in.

> Sounds like you'll have a lovely day. I think the best bit is watching

> the

> kids faces. Ive just picked up a guitar for my son as he starts his

> lessons

> next school year, which Starts 29th Jan. here. Eilish (wcf) is asking

> Santa

> for a trampoline and a bike with training wheels, so she'll be pleased

> Santa

> has made them already.

>

> Best wishes

>

> from Australia (mummy to Liam 6 wocf & Eilish 3 wcf)

> RE: Christmas

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,

Did she take three months Cipro ? Or 3 weeks Cipro and 3 months inhaled

colistin, like the Danish Center does ? Cipro seems to be a strong

antibiotic. takes it in sirope and has diarea from it.

Liesbeth

mom to 2,5 wCF and Kasper 1noCF

> Re: Christmas

>

> Leisbeth,

>

> Why only three weeks, they do it for three months at a time here with oral

> colistin and cipro. Eilish got rid of her pseudo. but it took 9 months

> with

> at three month intervals, so if it doesnt go keep going.

>

>

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Leisbeth,

Why only three weeks, they do it for three months at a time here with oral

colistin and cipro. Eilish got rid of her pseudo. but it took 9 months with

at three month intervals, so if it doesnt go keep going.

RE: Christmas

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Barry,

You only think you'd like to have a hot christmas, but you probably wouldnt.

My brother-in-law has been here for 2 years and hates the christmases. He

comes from Scotland. He says it doesnt feel like christmas. I suppose its

what you used to. Its far to hot inside for the full on traditional food,

so we usually still have turkey etc. but usually either cooked on the webber

or cold with salads and seafood (yuck!) I suppose at least were guaranted

that the kids can go outside and play with their stuff. Eilish had her

checkup today and was telling anyone who would listen that its only7 sleeps

till santa brings her a trampoline and a pink bike with training wheels.

Luckily 'santa' has them already.

RE: Christmas

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Barry & Avis,

I forgot to ask, what part of England do you come from? My Aunty and Uncle

live in West Sussex.

RE: Christmas

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Leisbeth,

Eilish took three months combined of both cipro and coli, like the danish

centres.

It must be daytime there as you were quick with the reply. Its 11.20pm here

on Monday night.

RE: Christmas

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Hi ,

I am from Dagenham, which is in south-east London. West sussex is only a

couple of hours drive away on our tiny island.

Barry

Re: Christmas

Barry & Avis,

I forgot to ask, what part of England do you come from? My Aunty and Uncle

live in West Sussex.

RE: Christmas

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I suppose you are right. The idea of being able to go to the beach on

Christmas day or laze about in your garden on Boxing day instead of sitting

in-doors watching the " Great Escape " and " The Wizard of OZ " for the

thousandth time is quite upsetting (!!?)

Barry

Re: Christmas

Barry,

You only think you'd like to have a hot christmas, but you probably wouldnt.

My brother-in-law has been here for 2 years and hates the christmases. He

comes from Scotland. He says it doesnt feel like christmas. I suppose its

what you used to. Its far to hot inside for the full on traditional food,

so we usually still have turkey etc. but usually either cooked on the webber

or cold with salads and seafood (yuck!) I suppose at least were guaranted

that the kids can go outside and play with their stuff. Eilish had her

checkup today and was telling anyone who would listen that its only7 sleeps

till santa brings her a trampoline and a pink bike with training wheels.

Luckily 'santa' has them already.

RE: Christmas

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Barry,

Your funny. I suppose when you put it like that. I laughed because my

daughters favourite video at the moment IS the Wizard of Oz and you know how

kids watch the same thing over and over well thats happening now. Yesterday

when we went for her clinic appt. I had to tell her dr. not to call her

Eilish as today she's Dorothy and she had to have her hair in plaits and

take a basket with a stuffed Toto. She has a great imagination. Liam on

the other hand has loved Dinosaurs since he was two. His bedroom is full of

them and there skeletons haning from the ceiling. With him its been

Jurassic Park every day. We even have to act it out and I get to be Dennis

Nedry (guy from Seinfeld). Liam has the screams and pitches of the dino's.

down to a tee. He does a great raptor with a stick on arched nail. What a

pair. The neighbours must wonder what on earth goes on it here with all the

scretching.

At least they give me a laugh.

Merr Christmas

RE: Christmas

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Hi Barry

Small world, I am from Toronto Canada. I remember when you first came on

this list, I asked you where abouts in East London you were from, I guess at

that time you were so busy with your son just being diagnosed you didn't get

a chance to reply. I am also from East London but have been in Canada for

25 years now, but my family lives in Dagenham also. I was back there last

year for a visit.

Hope things are going well for your son, I have a son who will be 23 in

January and has done very well over the years, not to many hospitizations,

last one was about a year ago.

Have a great Christmas and a happy, healthy New Year.

Sandy

RE: Christmas

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> > be construed as medical advice.

> >

> > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

> TREATMENTS.

> >

> > --------------------------------------------------

> >

> >

> > Our webpage is at http://www.eohio.net/malbright/cfparents.htm

> >

> > _________________________________________________

> > Post message: cfparentsegroups

> > Subscribe: cfparents-subscribeegroups

> > Unsubscribe: cfparents-unsubscribeegroups

> > List owner: cfparents-owneregroups

> > _________________________________________________

> >

> > WE HAVE A CHAT PAGE!!!

> > /chat/cfparents

> > _________________________________________________

> >

> >

> >

>

>

>

> ***********************

> This is a secular list.

> ***********************

>

>

> PLEASE do not post religious emails to the list.

>

>

> --------------------------------------------------

>

>

> The opinions and information exchanged on this list should

> IN NO WAY

> be construed as medical advice.

>

> PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

TREATMENTS.

>

> --------------------------------------------------

>

>

> Our webpage is at http://www.eohio.net/malbright/cfparents.htm

>

> _________________________________________________

> Post message: cfparentsegroups

> Subscribe: cfparents-subscribeegroups

> Unsubscribe: cfparents-unsubscribeegroups

> List owner: cfparents-owneregroups

> _________________________________________________

>

> WE HAVE A CHAT PAGE!!!

> /chat/cfparents

> _________________________________________________

>

>

>

>

> ***********************

> This is a secular list.

> ***********************

>

>

> PLEASE do not post religious emails to the list.

>

>

> --------------------------------------------------

>

>

> The opinions and information exchanged on this list should

> IN NO WAY

> be construed as medical advice.

>

> PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

TREATMENTS.

>

> --------------------------------------------------

>

>

> Our webpage is at http://www.eohio.net/malbright/cfparents.htm

>

> _________________________________________________

> Post message: cfparentsegroups

> Subscribe: cfparents-subscribeegroups

> Unsubscribe: cfparents-unsubscribeegroups

> List owner: cfparents-owneregroups

> _________________________________________________

>

> WE HAVE A CHAT PAGE!!!

> /chat/cfparents

> _________________________________________________

>

>

>

>

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