Re: various - Hilary

[Guest guest]

Hi ,

I'm in the UK too. The NHS doesn't recognise mercury poisonining so

you won't get DMSA on prescription. The nutricentre seem to have

on/off periods of stocking it. I've also ordered from

www.supersmart.com though you need to order well in advance, at

least a week or two as their orders take a while to arrive.

I noticed in one of your other posts you've been on mitochondrial

support. Are you treating yourself or under a doc? I had a private

consultation with Dr Myhill yesterday (www.drmyhill.co.uk).

She's an NHS doc but has a private practice. She acknowledges I have

mercury poisoning. I was surprised she'd actually heard of Andy

Cutler but hasn't read his books though she was interested in finding

out more.

She believes strong mitochondrial support is key and recommends high

dose CoQ10 (300mg a day), acetyl-l-carnitine, d-ribose, and magnesium

injections. Her view is that is that this kickstarts the cells and

makes chelation/detoxification easier. To be honest, I'm not sure I'm

convinced by this as I'm taking most of those supps anyway.

The advantages of consulting her are I can get magnesium and b12

injections, either free through my GP if Dr Myhill can persuade her

or I'll do them at home at a reasonable cost. Also I might be able to

get CoQ10 on prescription and get acetyl-l-carnitine and Armour from

Myhill at a cheaper rate.

Sorry I can't answer your other questions about glutathione and

lymphcote sensitivity. I believe milk thistle increases glutathione

and you probably know that ALA itself increases intercellular

glutathione.

All the best,

Anne

>

> Hi

> thanks for the replys to my other q's....sorry, there a new list

today

>

> if i have problems with cysteine pathway, how do you increase

> glutathione (intracellular fluids bloodtests show this to be low)?

>

> I had a lymphocyte sensitivity test to confirm my problem with

> mercury, do people have experience of this and what do they think

of

> it?

>

> I have two children, nearly 19 and 21 who i suspect i may have

passed

> mercury to (i had lots of work done in pregnancy and breast fed.

they

> don't , thank god, have any amalgum fillings, ) my son has ADD and

> daughter has various problems with her health. How would i test

them?

> (reading that the exposure may be so long ago the mercury may only

be

> in their brains)

>

> Finally, I'm in the UK. Does anybody know any practitioners here

who

> can prescribe dmsa and work with andys protocol? The website says

you

> can buy it here through nutricentre, but i rang them and they don't

> supply it.

>

> Thanks, i'm trying to gather lots of info together at the moment

> before i reembark on more chelation.

> best wishes

>

[Guest guest]

> The info as to where to get dmsa is really really helpful.....can

you only get it in capsules of 100mg, and if so how do you get the

smaller doses recommended..or do you empty the capsule and guess?

> Thanks very much for the info

> best wishes, hilary

>

Hi ,

I sent you a reply in the adult-metal-chelation list - maybe you

havn't seen it yet? I'm in the UK as well and I use the smartcity.com

site.

I also sent you a link where you can buy empty capsules in the UK.

Here it is again:

http://www.gandginfo.com/en/shop/advanced_search_result.php?keywords=capsules & x=\

\

5 & y=7

What I do is this:

I empty each 100mg capsule contents into a neat-ish circular pile. I

then flatten this into a disk, the size of a small coin. I then divide

this up to the required dose by cutting in halves, quarters, eighths

(so you get doses of 50, 25, 12.5mg etc). I transfer each portion into

a small piece of paper with a fold down the middle, and then use this

to shovel the powder into an empty capsule.

It takes a bit of practice but I find it quite easy now!

Cici

[Guest guest]

>

> Hello Anne

> lovely to hear you are here in the UK! The practitioner treating my

is not a Dr, but works with support of a dr, and also is in contact

with Myhill. Its the myhill ATP protocol she has tried twice

with me. Each time has caused problems and reversal in health, and

i'm just improving from this second one (developed muscle weakness,

lots of pins and needles in feet an hands and extending up limbs more

each day, tiredness etc...a " back on the sofa " job)

Hi , sorry to hear you relapsed on that protocol, but good to

hear things are improving now. Do you know for certain it was the ATP

protocol that made you relapse? I read another post of yours where

you mentioned taking sulphur amino acids eg glutathione, methionine

etc. which are contraindicated in mercury poisoning for some people.

Myhill recommends magnesium (as injections), d-ribose, high coq10 and

acetyl-l-carnitine for ATP production. Is it these that made you

worse?

> I think it may just be my particular metabolism as the protocol

apparantly usually works well.

If it doesn't, its usually an indication for more chelation.

Ok that's interesting. With me, it's the opposite, that as I'm having

a hard time chelating on relatively low doses I need to tackle

address the mitochrondria, according to Myhill. Really though I think

it's more a adrenal, thyroid issue though I will try the ATP protocol

even though I'm taking most of the supps anyway apart from d-ribose.

Also I have sensitivity to vit B3 which is involved in ATP production.

> My tests show a chemical, probably mercury is blocking atp

production (well, adp to atp conversion apparantly)....this is where

is came in on these lists.

Ok yes she said that was probably the case with me.

> I think i may have problems with the cysteine pathway maybe.

Myhill is very well respected, as is my practitioner...but my

practitioner is working with the alternate day dmsa etc.....so,

dilemmas

I have a problem with cysteine too, can't tolerate it at all, makes

me really angry/aggressive.

Yes Myhill is quite knowledgeable and one of the few docs around who

understands the idea of toxicity behind chronic illness. She

made " chronic fatigue her speciality " years ago. I got an official

diagnosis of " CFS " from her in 1994 which really helped in terms of

entitlement to social security benefits. Up till then I was either

depressed or a hypochrondriac! Also being a doctor herself, not just

an 'alternative practitioner', Myhill has clout in terms of

persuading our own GPs to give us things on the NHS.

> The info as to where to get dmsa is really really helpful.....can

you only get it in capsules of 100mg, and if so how do you get the

smaller doses recommended..or do you empty the capsule and guess?

Yes I split the caps 6 ways into empty capsules (16/17mg) until they

look more or less the same or I get fed up fiddling about with it!

Unfortunately 100mg is the lowest dose you can get DMSA.

Take care,

Anne

[Guest guest]

>

> Hi Anne

> thanks for that... i thought it might involve fiddling with empty

capsules

> The ATP protocol you describe is what i took, but i think you could

be right in that i had a glutathione, methionine, cysteine compound

alongside it (i can't remember if i remembered to take it during the

first round though, just to confuse things). We then reduced to just

100mg co q 10, and small amount ribose, but was still having the

glutathione compound....still had problems. Each time, i have tasted

lots of metal, this stopped when i started taking the glutathione

compound about 4 am before the co q 10...

Hi , I would have thought it was the glutathione but yes it's

not clear cut as it sounds like that helped you. It's difficult to

know exactly whats going on when you take lots of different things.

> I had very high calcium levels in my cells, and am having mg

injections. My practioner felt the recent ATP protocol symptoms were

due to worsening acidosis ,and they are now resolving with cider

vinegar and alkalising salts.

How long have you been having the injections for? Do you feel they

have helped at all? I have a tendency to acidosis as my potassium and

sodium levels are quite low as is a common pattern with people here.

I'm sure that's contributing to my problems. I too find apple cider

vinegar good for that, it really does boost my energy esp if I have

it in an enema. I use himalayan salt aswell and celery juice helps.

> My phase two generally isn't good, so its a bit catch 22 at the

moment: need to get the mercury out, but not going to be terribly

good at getting it out probably.

Same with me I assume though I've never had my detox paths tested.

> I think we are in similar situations in a way. I'm going to get the

cysteine/ sulfate thing checked then probably try andys protocol when

any problems addressed.

What happens when you try to chelate on low doses? I got very wheezy,

brain fogged and exhausted towards the end of two weeks on alt day

dmsa/ala chelation (at 100mg i think).

Every other day is a really unsafe protocol, but you probably know

that now.

I'm definitely sulphur sensitive so avoid sulphur rich foods. Have

you tried that?

I've felt both good and bad during and off rounds. Bad would be

dizzy, cognitive impairment, feeling VERY emotional/oversensitive,

crying, angry/aggressive, depressed/suicidal even. Other symptoms

which aren't so bad are feeling high/happy (almost drunk), a bit

manic/hyper/excitable, more energy. Have also noticed I'm more

expressive and articulate, intellect improves.

A few days after my last round I had a lot of emotional meltdowns.

Plus I was exhausted. It's the mental symptoms that are the worst for

me. They are definitely adrenal/thyroid related. I was only on 12.5mg

of ALA and 16/17mg DMSA.

> Can you tolerate NAC? (I haven't had that since the two rounds of

chelation, 'be interested to know if you can tolerate it.

I've never tried that actually but now Im wondering if I should. Im

sure my liver could do with more support.

I just started taking more taurine. Its recommended to take that if

you have sulphur food reactions and low magnesium (in AI, p 111).

It really helps you sleep better and I've been waking up with a

clearer head. It also helps to balance electrolytes. It supports the

liver by improving bile flow too which helps get rid of toxins. Maybe

something you could try.

Cheers,

Anne