Guest guest Posted December 27, 2000 Report Share Posted December 27, 2000 Hi Ray: I can tell you first hand that most certainly Mike had very violent dreams at least two years before we were dx is 95. He had such thrashings that I actually acquired a black eye and other things which Mike did not remember doing. He would have animalistic noises come out of him which our daughter and sons who slept in another part of the house could hear. We were planning on going to a sleep clinic after almost two years of this when we then began finding out that Mike had MSA at which point we went to University of Cincy Medical Library and many articles describing onset of this disease with these symptoms and then we read on and knew what we were facing. Very bad night.The subject of bad night dreams has been bought up many times in my being a part of this group since 1996. Do any of the other " old timers " remember? hope that this helps, hugs to you all and much strenght to you in the mist of this horrific disease. Becky from Cincy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2000 Report Share Posted December 27, 2000 Carol, Most of the people here blame it on Sinemet and dopamine agonists. They are also listed as side effects for those medicines. Charlotte did not have problems until she started the Sinemet and deprenol. After she got used to Sinemet, the dreams subsided quite a bit. Lets do an informal survey - Who feels they had violent dreams before going on PD drugs? Charlotte does not take the klonopin. The doctor said it had side effects like those of MSA. If you are on it, you should be aware of the side effects. It is not recommended that you take it more than eight weeks also (unless your doctor tells you to stay on it). Take care, Bill and Charlotte ====================================== Carol Langer wrote: > Bill, > > I must disagree with you about the sleep problems. Rob started with > REM behavior disorder several years before any other symptoms occured > and well before he was on any meds. According to his sleep neuro, > REM behavior disorder can be the precursor to other neurological > problems (MSA or Parkinsons are two she mentioned) but can also occur > on its own, without any ensuing degenerative diseases. It can be > triggered by some of the meds used to control Parkinsons or MSA, but > can also occur on its own. Either way, I think the treatment is the > same - klonopin, or another similar medication if klonopin cannot be > tolerated for some reason. > > Carol & Rob > > -- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2000 Report Share Posted December 27, 2000 My dad had wild dreams and was never on PD meds. Rose ---------------------------------- Lets do an informal survey - Who feels they had violent dreams before going on PD drugs? _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2000 Report Share Posted December 27, 2000 Hi all Well so far it is five to one that had bad dreams from MSA without meds. Were any of your patients the OPCA brand? I have not seen this as a symptom before. In fact I went back and read the diagnostic criteria and found sleep disturbances, but nothing about vivid nightmares or violence. I do read those as a side effect of a lot of medicines. Have we hit on a new diagnostic symptom? Take care, Bill and Charlotte --------------------------------------------- Rose Chable wrote: > My dad had wild dreams and was never on PD meds. > Rose > ---------------------------------- > Lets do an informal survey - Who feels they had violent dreams before going > on > PD drugs? > > _________________________________________________________________ > Get your FREE download of MSN Explorer at http://explorer.msn.com > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2000 Report Share Posted December 28, 2000 Hi all, Bernice here in cold, snowy Ohio, caregiver and spouse of Ken for 13 years. Ken had violent dreams long before any sign of PSP or MSA. Seems to me he had them all through our married life and we were married 44 years. Often hit me and always woke up in a terror that someone was after him. Put his hand through the wall once at a motel where we were staying. I used to tell him it was because he grew up in a house of rough and tumble boys, and one was always chasing the other. Strange isn't it, that so many of our loved ones has this symptom. Bill, you do indeed look like Santa, and you also look like my Ken did. He had a white beard and hair for many years. A very handsome fellow. Happy New Year to all Bernice Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2000 Report Share Posted December 28, 2000 my husband began acting out his dreams 6 months before the balance problems, OH, etc began. His movement disorder Neuroligist said this is common with Neurologicial disorders. My husband does not take any meds only salt tablets. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2000 Report Share Posted December 28, 2000 Hi. My name is Jim Parsons, from Arlington TX. I have had several of the symptoms of MSA (Shy-Drager) for the last 5 years or more. Things have gotten much worse in the last 2 years. I was finally referred to a neurologist last summer and diagnosed with Shy-Drager Syndrome. I was also having violent dreams for a long time. Kicking, fighting, and falling out of bed. It sounds like there can be several different causes for the violent dreams. In my own particular case the dreams seem to have been caused from taking prozac. I have been off prozac for almost a year now and have not had any of the violent dreams since I quit taking prozac. I am now taking zoloft for depression. The zoloft seems to be helping me more for the depression than prozac was, and is not causing as many side effects. When I was searching for a possible explanation for my dreams, I found that several other people who were taking prozac started having violent dreams, after they started taking prozac. I don't know if the majority of people with MSA have to take anti-depressants or not, but I was having a lot of problems with depression and the zoloft has definitely helped me. Jim P.S. Thanks to Barbara from Arlington for answering my email last week. > Date: Wed, 27 Dec 2000 19:18:36 -0500 > > Lets do an informal survey - Who feels they had violent dreams before going on > PD drugs? > > Take care, Bill and Charlotte Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2000 Report Share Posted December 29, 2000 Yes, , You would think that we would learn, but when one is asleep themselves and awakened, it is hard to make rational decisions at that point. Best wishes to you and your mother. Marilyn ---------- > >To: shydrageregroups >Subject: Violent Dreams >Date: Fri, Dec 29, 2000, 2:31 AM > >My mother has had violent dreams for the past four years (that we know >of). For the past two years she has lived with my husband and me and we >have witnessed some really weird things. > >Mother talks alot in her sleep. Up until the past six months when she >talked in her sleep she talked NORMAL - unlike her " daytime " slurred >speech with multiple pitches and uncontrollable volume. Mark and I would >lay in bed and be totally amazed to hear Mother talk like her old self. >Also, we have been awakened many, many times to screams of sheer terror - >Mother always sounds as though she is screaming for her life. > >Mother has also jumped out of bed several times landing clear across the >room. Usually she is dreaming that something is falling on her and she >is jumping out of the way. For a woman who can no longer walk I find it >amazing that she can jump so far. Her last jump on Dec. 9th gave her >multiple pelvic fractures as well as fractures to the sacral. > >You think we would learn after a while, but we still bolt out of bed >everytime we hear a scream, thump or all of the items on the bedside >table hitting the floor. > > >________________________________________________________________ >GET INTERNET ACCESS FROM JUNO! >Juno offers FREE or PREMIUM Internet access for less! >Join Juno today! For your FREE software, visit: >http://dl.www.juno.com/get/tagj. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2000 Report Share Posted December 29, 2000 Have had unsettling dreams and talking in my sleep for past 5-6 years and am on no med for PD or MSA although I was on Requip and/or Sinemet for a short time last year. Never had "bad" dreams or nightmares in my life til these last few years. Barbara Pond in Va. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2001 Report Share Posted January 5, 2001    Hi!       I don't write much but I thought I would share this. My Husband starting having     violent dreams years before being diagnosed with MSA. This was one of the first s   symptoms that I noticed. I have learned to duck really well.<grn>     Bev Britnell Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2001 Report Share Posted January 6, 2001 Hi Bev, I learned how to duck blows even in my sleep. It was as though I had radar. That was after getting the crap scared out of me a hundred times. Does he still have Violent dreams? If so I have saw some helpful ideas from this group. Kathy Violent Dreams Hi! I don't write much but I thought I would share this. My Husbandstarting having violent dreams years before being diagnosed with MSA. This was oneof the firsts symptoms that I noticed. I have learned to duck really well.<grn> Bev Britnell Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2001 Report Share Posted January 10, 2001 I don't think my husband, Jerry, thought he had bad dreams. He wasn't even aware that his sleep was restless. If I can remember correctly, talking in his sleep-- sometimes quite loudly (but not shouting), I think loud snoring, and flinging an arm or leg out all happened either before or at the same time as very slight urological symptoms started. I only recognized the urological problems in retrospect. He was surprised when I told him he talked in his sleep. This went on for some time, maybe two years, before he himself began to think something was wrong (for other reasons). The sleep disturbances gradually subsided. Somewhere along the way I did wonder about his breathing at night, and wish I'd pursued that. I guess when he started sleeping more quietly I didn't think about a lot, so much else on my mind. Jerry died in his sleep, I don't know precisely why. Heart? Breathing? I wasn't surprised by that as we'd read early on that that could happen. However, I wasn't expecting it then as his condition didn't seem so bad, although of course he had declined over time. There was no autopsy and I hadn't yet made plans for possible brain donation. The sleep disturbance and urinary symptoms (in retrospect, as I said) began about ten years before he died, tho' I think he wasn't aware of problems until over two years after that. I'd begun to feel concerned a bit before he did. Incidentally, cause of death was listed as Multiple System Atrophy. I'm not sure when I wrote the above--last week? For some reason I didn't get it sent and now am trying to catch up on all the mail. Jane Quote Link to comment Share on other sites More sharing options...
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