Guest guest Posted November 28, 2000 Report Share Posted November 28, 2000 Hi, My husband gives me a massage twice a day. It relieves the pain while he's doing it and for a little while after. Mostly it helps my neck to not be so stiff. Sometimes he accidently hurts me and I wonder if it will make me worse but I'm not willing to give them up. I'll take any relief even if it is just for a few minutes. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2000 Report Share Posted November 29, 2000 When my poor hubby rubs a very tender spot a little too hard, I feel so badly because I practically fly off the bed. Of course, there are quite a few back there, but he is getting to know them, since they never go away. Re: Question Hi, My husband gives me a massage twice a day. It relieves the pain while he's doing it and for a little while after. Mostly it helps my neck to not be so stiff. Sometimes he accidently hurts me and I wonder if it will make me worse but I'm not willing to give them up. I'll take any relief even if it is just for a few minutes Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2000 Report Share Posted November 29, 2000 webmommy@... writes: > my hubby gives me massages a few times a week > although it feels great while he's doing it, it seems that it has no lasting > effect. Michele, Hey I say if it feels good and doesn't hurt after go for it I can't think of any reason or way it would hurt you or do damage, unless it hurts after and you can't stand the pain after, but if it doesn't I would keep doing it. It also gives you and your husband some intimate time together! Sending Comfort and Peace Janice " I wish we could change our dials to AM instead of FM!!! " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2001 Report Share Posted January 2, 2001 Yes, I do. I had a bad pain in my left leg starting at the hip and going down the leg. In fact I had to use a cane. I decided it was a symptom of FMS. It wasn't. It was the sciatic nerve that was causing the problem. It cleared up on its own. I think that we have a tendency to blame every thing that goes wrong with us on FMS when often it is not. I now go see my primary doctor if I have something new happen and find that most often it is not a FMS problem. Irene I am depressed but I was depressed before FMS and have been most of my life. Panic attacks and anxiety attacks the same. I take medication for these things. > I went to the rheumotologist recently and explained some symptoms to him and > also what I had heard on some of the lists that I am on. He told me that > the blurry vision isn't a symptom of Fibromyalgia but if its investigated > and nothing else is wrong then they say its Fibromyalgia. also the > depression and anxiety is the same......if you body hurts it makes you > depressed, if you worry about what will happen with the Fibromyalgia you > are depressed...if you go some place and are worried that you wont make it > there. then you will have anxiety...does this make sense...do u all agree? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2001 Report Share Posted January 3, 2001 My doc who is a family practitioner told me that my eye problems are a symptom of the Fibro. I wear over the counter glasses and he said to buy 3 different strengths and use them as needed. I was going to an eye surgeon every couple of years for check ups feeling that my eyesight was getting worse but usually on the days I went, I could see fine and did not need RX for glasses....I thought I was just a little crazy. Now it makes sense and the 3 pairs work for me. Louise Eureka, Ca Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2001 Report Share Posted January 3, 2001 tamip@... writes: >He told me that the blurry vision isn't a symptom of Fibromyalgia but if its >investigated and nothing else is wrong then they say its Fibromyalgia Hi Tami: Yes, that is true, but I think I get bad vision due to being tired! So yes mine is due to FM - being tired all the time. tamip@... also writes: >if your body hurts it makes you depressed >if you go some place and are worried that you wont make it there. then you will >have anxiety I also agree with those statements. When you are in pain it is really hard to concentrate and be alive at times. Pain does a number on us, and at times it could cause anyone to get depressed, since there is seldom relief from our pain. It is really hard to deal with. As for the anxiety, I also agree because we are probably all stressed from even going to somewhere, and then put into account all the other factors like driving, the length of time, and also what we do when we reach our goal. All those I would assume would make anyone anxious. Thought I would just share in my thoughts. Hope I have helped. Sending Comfort and Peace Janice " I wish we could change our dials to AM instead of FM!!! " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2001 Report Share Posted January 3, 2001 Tami, My GI doc told me that everyone knows that fibro is just another word for depression!!!!!!!!!!!! Don't see him anymore......... Debs in FL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2001 Report Share Posted January 4, 2001 > I went to the rheumotologist recently and explained some symptoms to him and also what i had heard on some of the lists that I am on. He told me that the blurry vision isn't a symptom of Fibromyalgia but if its investigated and nothing else is wrong then they say its Fibromyalgia. also the depression and anxiety is the same......if you body hurts it makes you depressed, if you worry about what will happen with the Fibromyalgia you are depressed...if you go some place and are worried that you wont make it there. then you will have anxiety...does this make sense...do u all agree? > ~~~~Tami~~~~ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2001 Report Share Posted January 4, 2001 > My doc who is a family practitioner told me that my eye problems are > a symptom of the Fibro. I wear over the counter glasses and he said > to buy 3 different strengths and use them as needed. I was going to > an eye surgeon every couple of years for check ups feeling that my > eyesight was getting worse but usually on the days I went, I could > see fine and did not need RX for glasses....I thought I was just a > little crazy. Now it makes sense and the 3 pairs work for me. > Louise > Eureka, Ca Now Tami, Louise has a real docor. Good for him. I have at least 12 pairs,and what works that day is the ones i use. lyndee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2001 Report Share Posted March 21, 2001 That is what I'm doing:-( I have resorted to Excedrin in the morning (3) and Advil at night (3)...works as well or better than all the tons of pharmacueticals I was taking, with alot less side effects.(occasionaly I take a Klonopin) ~ Jill ~ question Is it possible that some people that are given meds for the pain of fibromyalgia.....it doesn't work? I have tried ummm vioxx, celebrex, naproxen, Tylenol 3, neurontin and now I am on darvocet and neurontin.....and nothing seems to be working..are there some people that just have to live with the pain? ~~~Tami~~~ My home page http://www.geocities.com/scoochny Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2001 Report Share Posted March 21, 2001 Hi Tami, I have tried so many meds,(Neurontin, Ketoprofen, Tylenol w/ Codeine, Elavil, Wellbutrin, Lortab, Soma, Flexeril, Ultram, Vioxx, and on and on... I think maybe like 25 or more..nothing seems to touch this pain I have. I tried Neurontin also and had such a reation to it thought I was going to need to go the ER. Hubby was really upset.... Is it possible that some people that are given meds for the pain of fibromyalgia.....it doesn't work? I have tried ummm vioxx, celebrex, naproxen, Tylenol 3, neurontin and now I am on darvocet and neurontin.....and nothing seems to be working..are there some people that just have to live with the pain? ~~~Tami~~~ My home page http://www.geocities.com/scoochny Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2001 Report Share Posted March 22, 2001 In a message dated 3/21/2001 11:22:15 AM Central Standard Time, tamip@... writes: << Is it possible that some people that are given meds for the pain of fibromyalgia.....it doesn't work? I have tried ummm vioxx, celebrex, naproxen, Tylenol 3, neurontin and now I am on darvocet and neurontin.....and nothing seems to be working..are there some people that just have to live with the pain? ~~~Tami~~~ >> Tami--Have you ever tried Oxycontin? It is time-released narcotic that will work 8-12 hours. I've found releif with it as have several other patients I know. Most other pain relievers don't work for me. Barb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2001 Report Share Posted March 22, 2001 Unfortunately the blunt answer is Yes. You try to control the pain for a period of time but it always comes back. Some folks have nerve endings that just don't quit ever despite strong narcotic analgesics. Pat > Is it possible that some people that are given meds for the pain of fibromyalgia.....it doesn't work? I have tried ummm vioxx, celebrex, naproxen, Tylenol 3, neurontin and now I am on darvocet and neurontin.....and nothing seems to be working..are there some people that just have to live with the pain? > ~~~Tami~~~ > > My home page > http://www.geocities.com/scoochny > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2001 Report Share Posted March 22, 2001 Unfortunately the blunt answer is Yes. You try to control the pain for a period of time but it always comes back. Some folks have nerve endings that just don't quit ever despite strong narcotic analgesics. Pat > Is it possible that some people that are given meds for the pain of fibromyalgia.....it doesn't work? I have tried ummm vioxx, celebrex, naproxen, Tylenol 3, neurontin and now I am on darvocet and neurontin.....and nothing seems to be working..are there some people that just have to live with the pain? > ~~~Tami~~~ > > My home page > http://www.geocities.com/scoochny > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2003 Report Share Posted July 19, 2003 Jeanna, who goes with you to appointments, etc? Have them write down questions & ask the doctor if you forget. Why do you have to anticipate being sick for a month after surgery? What can you take? There are some very effective antinausea meds now; even preventing vomiting when you first wake up. My son Brad has had general anesthesia 10 or 12 times. The first few times he was violently sick when he woke up. Then we moved to , Indiana & I told the anesthesiologist about it. Brad has had several more surgeries (ears, broken arm) and never been sick. I think Zofran is what they give him. We also give it to our pregnant moms when nothing else helps. If all else fails, who do you know that can get you some weed? Rose Question Good morning, I think, I have a question???? Do any of you know if they have come out with any definitive tests on cerebrospinal fluid or MRI that can help them in determing the difference between MS or NS. They are supposed to set me up with a neurologist while I am in the hospital or do I need another doctor with the neurosurgeon. Oh yeah did I mention I also have gall stones. I know they aren't going to mess with them right now but I will have to have them taken care of later on. You would think I have never had surgery before as anxious as I am. I think because this time is the first time the neurosurgeon has told me I was really going to be sick for about a month, I feel like I have already been sick enough so what does he mean by I am really going to be sick, oh yea so I get to be sicker than usual with my stomach, nausea blah blah blah. Any one out there with info on the tests I mentioned please let me know and what the levels should or should not be. I hope everyone is feeling great today and can have a really enjoyable day. Your friendly Texan Jeanna ~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityLive Group Chat:-Mondays & Fridays 10pm EST USAhttp://www.elderwyn.com/neurosarcoidosis/chat.phpMessage Archives and Digest Attachment Pictures:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database Bookmarks:-Add a website URL you have found useful.http://groups.yahoo.com/group/Neurosarcoidosis/linksPersonal Complaints or problems:-Please email the moderatorsmailto:Neurosarcoidosis-owner Subscription Details:-1) Individual email - means that every email sent to the list you receive.2) Daily Digest - sends you 25 messages in one single email for you to browse. This is an excellent option if you receive alot of email.3) Web only/No mail - means that you can pop into eGroups at your convenience and receive no email.To modify your subscription settings please visit:- http://groups.yahoo.com/group/Neurosarcoidosis/joinTo subscribe email neurosarcoidosis-subscribe To unsubscribe email neurosarcoidosis-unsubscribe The moderators will not be doing it for you!~~~~ *** ~~~ *** ~~~ *** ~~~~Come stand by my side where I am going,Take my hand if I should stumble and fall,It's the strength and love that you share,That gives me what I need most of all.- Hoyt Axton~~~~ *** ~~~ *** ~~~ *** ~~~~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 14, 2003 Report Share Posted September 14, 2003 No stupid questions.........see a rheumy.....a good one though....where do you live??????????? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 14, 2003 Report Share Posted September 14, 2003 , believe me I understand your fears, and the realization that your doctor has no clue as to what is going on.. My doctor treats NS patients too.. but has not helped me in the least... as a matter of fact I actually think I'm worse than before his help...Some people can not take prednisone and I think I am one of them,,,I don't what you say get psychotic...but I do show signs of paranoial, which is bad enough.. so i just hide in my house...with the blinds shut and the tv sounds cut down low... or just sleep the day away.. what a life.. huh...anyway.. its a major decision as to how you feel about working, I never thought I would be disabled at the age of 46, I had plans of working till I was old and gray...but it didn't work out that way.....Only you know how you feel, do you think you can hold up to work, even part time is that an option.. its a hard decision to make...but what they want to know is what you can't do....I can't stand for how long, I can't pick up 20 lbs, I can't walk 10ft, I have frequent falls...focus on what you can't do and not what you can do... Now the reason you are running low grade fevers, aches and pains, toes and fingers... have you been diagnoised with NS.... if so this is the reason... is a autoimmune inflamatory disease...which means your immune system is over reacting causing you to run low grade fevers, and aches...it affects organs, tissue, joints and bones... and obviously your fingers and toes are affected... you probably need to see a rheumotologist, and if your neuro isn't going to do more for you than prednisone you probably need to find a new one of those... We all have had a horrible time with neurologist..Who think they know what they are doing but DON'T.... So deary, the jest of this letter is to tell you your not alone, your not nuts...You just need the right help.... and I'm a good one to talk... I've be trying to get the right care for 2 years now and I'm not any closer than I was.... Good luck, Hugs, -- Question Hi Group, again. My neuro told me I should get some exercise. I told him that I had not really exercised in 2 years. And that when I did I would get terribly sick.. You know - achy, fatigue, low grade fever. He said that since I had not worked out in a long time it was sort of like " working the kinks out" . To just keep at it. Well, I went for a walk last Mon. ( just around the corner mind you ) and was in bed for almost 2 days with fever of 99.7. I told him this and he of course had not explanation for it. What should I do ? Should I see a Rheum or Immun ? I printed Aisha's information on NS to give to my neurologist. He does have other NS patients. What makes your fingers and toes ache specifically ? What causes the low-grade fever ? Can it be stopped ? Stupid question ? ~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityLive Group Chat:-Mondays & Fridays 10pm EST USAhttp://www.elderwyn.com/neurosarcoidosis/chat.phpMessage Archives and Digest Attachment Pictures:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database Bookmarks:-Add a website URL you have found useful.http://groups.yahoo.com/group/Neurosarcoidosis/linksPersonal Complaints or problems:-Please email the moderatorsmailto:Neurosarcoidosis-owner Subscription Details:-1) Individual email - means that every email sent to the list you receive.2) Daily Digest - sends you 25 messages in one single email for you to browse. This is an excellent option if you receive alot of email.3) Web only/No mail - means that you can pop into eGroups at your convenience and receive no email.To modify your subscription settings please visit:- http://groups.yahoo.com/group/Neurosarcoidosis/joinTo subscribe email neurosarcoidosis-subscribe To unsubscribe email neurosarcoidosis-unsubscribe The moderators will not be doing it for you!~~~~ *** ~~~ *** ~~~ *** ~~~~Come stand by my side where I am going,Take my hand if I should stumble and fall,It's the strength and love that you share,That gives me what I need most of all.- Hoyt Axton~~~~ *** ~~~ *** ~~~ *** ~~~~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 15, 2003 Report Share Posted September 15, 2003 Its the sun.....some of your meds may be affected by the sun as well, so the combination probably is a killer.....so check with the pharmacist as to which ones out of all of your meds is sun sensitive...just for your own knowledge.....but the sun is an absolute killer....wear intense block, and a big hat!!!!!!!! Listen to me!! Stacie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 15, 2003 Report Share Posted September 15, 2003 Use a big umbrella. I have a big I mean big umbrella. AND DON'T FORGET THE LONG SLEEVES AND SUNGLASSES. Sharon Re: Question Its the sun.....some of your meds may be affected by the sun as well, so the combination probably is a killer.....so check with the pharmacist as to which ones out of all of your meds is sun sensitive...just for your own knowledge.....but the sun is an absolute killer....wear intense block, and a big hat!!!!!!!!Listen to me!!Stacie ~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityLive Group Chat:-Mondays & Fridays 10pm EST USAhttp://www.elderwyn.com/neurosarcoidosis/chat.phpMessage Archives and Digest Attachment Pictures:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database Bookmarks:-Add a website URL you have found useful.http://groups.yahoo.com/group/Neurosarcoidosis/linksPersonal Complaints or problems:-Please email the moderatorsmailto:Neurosarcoidosis-owner Subscription Details:-1) Individual email - means that every email sent to the list you receive.2) Daily Digest - sends you 25 messages in one single email for you to browse. This is an excellent option if you receive alot of email.3) Web only/No mail - means that you can pop into eGroups at your convenience and receive no email.To modify your subscription settings please visit:- http://groups.yahoo.com/group/Neurosarcoidosis/joinTo subscribe email neurosarcoidosis-subscribe To unsubscribe email neurosarcoidosis-unsubscribe The moderators will not be doing it for you!~~~~ *** ~~~ *** ~~~ *** ~~~~Come stand by my side where I am going,Take my hand if I should stumble and fall,It's the strength and love that you share,That gives me what I need most of all.- Hoyt Axton~~~~ *** ~~~ *** ~~~ *** ~~~~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2004 Report Share Posted February 16, 2004 Hi Debbie, Sounds like you're doing O.K. to me. It is very easy to get caught up in the numbers. I'll be at a Support Group meeting and someone will mention their weight loss and when they had surgery & I find myself checking to see if I'm doing as well. Often, I'm not. I'm just not losing as fast as some others. But I keep remembering what someone on this list or my other yahoo OSSG list emphasized - "Your results may vary." - just like the tag line in all those commercials. We are all so different - different heights, weights, BMIs, general health, mobility, metabolisms, ages, genders, etc. As long as we are doing what we need to do, we should be all right. You probably know all that already - I just need to remind myself sometimes. Keep up the good work. All the best, Kay open RNY 12/1/03 deb300m2000 wrote: Hi I use to post and read all the time and my computer went out. I had my open RNY on November 3rd. I was wondering if someone could tell me if I am on target with the norm. When I started this process, and began my diet to prepare for surgery I weighed 376. The day of surgery I weighed 342. Now 3 months and 2 weeks out I weigh 290. So since Sept. I have lost 86 lbs. Of that 86 I have lost 52 since surgery. I often feel I am not doing as well as I should be. Could any of you share your experience and let me know if I should be concerned? Thank you, Debbie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2004 Report Share Posted March 24, 2004 PB bought/paid for 2 tickets from San to San Diego on Southwest for my marathon appts, but I didn't need 2 for my trip down for my actual surgery. Hugs, Jen lashunta7824 wrote: For those who had to fly southwest weighing 350 and over did you have to buy one or two tickets. thanks in advance for your responses. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2005 Report Share Posted October 4, 2005 I have been recovering my almost adult daughter from mercury poisoning for the last several years with much improvement. I am wondering though if anyone can explain to me why it is that mercury poisoned people seem to have such great difficulty waking up in the morning but as the day goes on gain energy and are at their best late at night and then not sleeping. I have known this situation in poisoned people who had various dx's from Bipolar, Autism, ADHD and even chronic fatigue. Is the problem their adrenals? or what? Even though my daughter is so much better this is still a remaining serious problem. Looking for ideas. Thanks Michele Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2005 Report Share Posted October 4, 2005 > I have been recovering my almost adult daughter from mercury poisoning > for the last several years with much improvement. I am wondering > though if anyone can explain to me why it is that mercury poisoned > people seem to have such great difficulty waking up in the morning but > as the day goes on gain energy and are at their best late at night and > then not sleeping. I have known this situation in poisoned people who > had various dx's from Bipolar, Autism, ADHD and even chronic fatigue. > Is the problem their adrenals? I think so. Now that I am on replacement cortisol, it is the cortisol that gets me going in the morning. or what? Even though my daughter is so > much better this is still a remaining serious problem. Looking for > ideas. Thanks > Michele Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2005 Report Share Posted October 5, 2005 Hi Michele. You are describing someone who's adrenals are depleted. Do a search for adrenal fatigue as well as for Dr. Bruce Rind. Any of the thyroid support groups (i.e. thyroid and about.com) would be of great help to you. Things like DHEA, pregnenolone, Vit C and even low dose hydrocortisone (cortef/cortisone acitate) would help. You can get low dose hydrocortisone from mastersmarketing.com w/o a prescription. Up to 20 mg in divided doses (5 mg each) can be taken daily long term without side effects. There are also saliva and urine tests to show what the adrenals are doing. Bruce Rind might talk about this on his site but I don't remember. I had an ACTH stim test that showed adrenal fatigue. My doctor ordered it. Hope this helps some. Carol B --------------------------------- Yahoo! for Good Click here to donate to the Hurricane Katrina relief effort. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2005 Report Share Posted October 5, 2005 Hi Michele. You are describing someone who's adrenals are depleted. Do a search for adrenal fatigue as well as for Dr. Bruce Rind. Any of the thyroid support groups (i.e. thyroid and about.com) would be of great help to you. Things like DHEA, pregnenolone, Vit C and even low dose hydrocortisone (cortef/cortisone acitate) would help. You can get low dose hydrocortisone from mastersmarketing.com w/o a prescription. Up to 20 mg in divided doses (5 mg each) can be taken daily long term without side effects. There are also saliva and urine tests to show what the adrenals are doing. Bruce Rind might talk about this on his site but I don't remember. I had an ACTH stim test that showed adrenal fatigue. My doctor ordered it. Hope this helps some. Carol B --------------------------------- Yahoo! for Good Click here to donate to the Hurricane Katrina relief effort. Quote Link to comment Share on other sites More sharing options...
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