Re: mid-summer progress report

August 2, 1999

>

> COOKY

>

> Type of disease and length of time since diagnosis:Rheumatoid Arthritis and FM

dx 6/97

> Length of time on AP:20 months

> Antibiotic(s) being used:Minocin200 mgms MWF, Clindy IV's weekly 900 mgms, I

still have sinus problems and do Augmentin for that

> Supplements:Acidophilus,multi vit,Collagen type2,pycnoginal,MSM,5HTP

> Following Dr. Mercola's diet?:no and DLPA

> Overall rating of improvement on a scale of 0-5 (0 being no improvement yet, 4

> 5 being remission):

> --Specific areas of IMPROVEMENTsince starting the AP...

> --morning stiffness (0-5): 4 most times

> --daytime pain levels (0-5):4 to 5

> --night-time pain levels (0-5):4 to 5

> --energy level (0-5):4

> --ability to accomplish activities of daily

> living (0-5) 5

> --overall feeling of wellness (0-5):5

> --bloodwork (0-5):4

> --swelling (0-5): 5

> --number of active joints (0-5): 1 joint still

active but only sometimes.

> Other comments:Will see the rheumy this week and I'm sure she will agree I am

very close to remission. I have one pointer finger 1st joint that has developed

into osteo since starting AP. I need prolo on my left metatarsals..there is a

lot of damage but I can still walk.

>

> ---------------------------

August 2, 1999

> Type of disease and length of time since diagnosis: RA - diagnosed 4/98

> Length of time on AP: 1 year

> Antibiotic(s) being used: Minocycline - 100mg/2x per day/daily

> Supplements: Multi-vitamin,fish oil, anti-oxidant,circumin,milk thistle,

acidopholus,saw palmetto,slippery elm, olive leaf extract; Celebrex (200mg

2x/day);glucosamine sulfate 1500mg

> Following Dr. Mercola's diet?: No - Zone Diet by Dr.Barry Sears - lost 16

lbs

> Overall rating of improvement on a scale of 0-5 (0 being no improvement

yet,

> 5 being remission):

> --Specific areas of IMPROVEMENTsince starting the AP...

> --morning stiffness (0-5): 2

> --daytime pain levels (0-5): 4

> --night-time pain levels (0-5): 3

> --energy level (0-5): 3.5

> --ability to accomplish activities of daily

> living (0-5) - 4.0

> --overall feeling of wellness (0-5): 3.5

> --bloodwork (0-5): 3.5

> --swelling (0-5): 3

> --number of active joints (0-5): 1

(multiple joints)

> Other comments: 6 months into therapy, felt great - walking 5 miles/day.

Then into flare for next 4-5 months. Now coming out - back to walking again,

feeling better. But stiffness in hands lingers throughout the day and

shoulders though better still can have display severe pain if I try to reach

behind my back. Knees better - feet better. TMJ can be a bit problematic in

early morning. Often have stiff and somewhat sore lower back, especially in

the morning which I don't understand as I have read that RA wouldn't affect

one's lower back.

http://members.tripod.com/~Mark_Holmes

RA 4/98 AP 7/98

Minocycline (Lederle generic) 100mg 2x/day; Celebrex 200mg 2x/day;Zone

Diet;Olive Leaf;Slippery Elm;milk thistle, circumin,glucosamine sulfate;fish

oil

RA Chat - http://members.tripod.com/~Mark_Holmes/RA/ra.html

ICQ 18123139

August 2, 1999

>

> Type of disease and length of time since diagnosis:RA-10 YRS

> Length of time on AP:16 MONTHS

> Antibiotic(s) being used:MINO-100mg m-w-f, DOXY-100mg m-w-f, CLINDY-1200mg

tues,

> Supplements:duble-x vit, msm, acidopholis, daypro-1000mg, pred-10mg,

ra-spes-4/d

> Following Dr. Mercola's diet?:no

> Overall rating of improvement on a scale of 0-5 (0 being no improvement

yet,

> 5 being remission):

> --Specific areas of IMPROVEMENTsince starting the AP...

> --morning stiffness (0-5):4

> --daytime pain levels (0-5):3

> --night-time pain levels (0-5):3

> --energy level (0-5):1

> --ability to accomplish activities of daily

> living (0-5)

> --overall feeling of wellness (0-5):2

> --bloodwork (0-5):?

> --swelling (0-5):2

> --number of active joints (0-5):1

> Other comments:began AP with doxy and improved dramatically the first 8

months, then leveled off. switched to mino for the last 8 months which

appears to have been a big mistake...have been going backwords ever since.

added the clindy 1 month ago and last week i started taking doxy with my

evening dose. 8 months ago i was down to 3 mg of pred per day, now back up

to 10 and feeling like i need more. my fatigue levels are awful...want to

sleep all the time....feel like getting back to doxy will help me get back

over the hump. may ask dr about iv treatments for a boost.

dave

>

> ---------------------------

August 2, 1999

In a message dated 8/1/99 10:05:14 AM Eastern Daylight Time, kglg@...

writes:

<< Type of disease and length of time since diagnosis:

RA - 26 years

Length of time on AP:

18 months

Antibiotic(s) being used:

Minocin

Supplements:

Many Vitamins, tried MSM, tried Colostrum etc.

Following Dr. Mercola's diet?

No:

Overall rating of improvement on a scale of 0-5 (0 being no improvement yet,

5 being remission)

0

--Specific areas of IMPROVEMENTsince starting the AP...

--morning stiffness (0-5):

0

--daytime pain levels (0-5):

0

--night-time pain levels (0-5):

-000

--energy level (0-5):

-0

--ability to accomplish activities of daily

living (0-5)

0

--overall feeling of wellness (0-5):

0

--bloodwork (0-5):

0

--swelling (0-5):

-00

--number of active joints (0-5):

All Joints (Whole Body)

Other comments:

I am not doing very well at all. Now I might have spinal fusion or

herniated disk so have pain from sciatic nerve. I have joints involved

seriously that in 26 years previous to AP never gave me this much pain.

Seeing new Doctor end of month

Note my minus 0's indicating that I'm much worse on the AP

>>

Anita

RA 26 years, Fibro, AP 18 months

August 3, 1999

Anita,

did you experience an improvement then a decline or no improvement at all??

You may be allergic to Minocin and need to switch to doxy or erythromycin?

How much are you taking?? Also....do you know that my change in diet

improved my condition by 70%. That may be where your problem is. Don't

underestimate the power of food. I used to pooh pooh the idea until I was

forced to remove sugar and transfat out of nessessity and bingo........it

changed everything. Everyone forgets that the medication does not destory

the mycoplasmas. All it does is removes the outer toxic protective layer so

our own immune systems can go in and destroy them. If you have a weak

immune system you will not remove any of the problem no matter how much

minocin you take.

Donna

Re: rheumatic mid-summer progress report

>From: Anihan@...

>

>In a message dated 8/1/99 10:05:14 AM Eastern Daylight Time,

kglg@...

>writes:

>

><< Type of disease and length of time since diagnosis:

> RA - 26 years

>

> Length of time on AP:

> 18 months

>

> Antibiotic(s) being used:

> Minocin

> Supplements:

> Many Vitamins, tried MSM, tried Colostrum etc.

> Following Dr. Mercola's diet?

> No:

> Overall rating of improvement on a scale of 0-5 (0 being no improvement

yet,

> 5 being remission)

> 0

> --Specific areas of IMPROVEMENTsince starting the AP...

> --morning stiffness (0-5):

> 0

> --daytime pain levels (0-5):

> 0

> --night-time pain levels (0-5):

> -000

> --energy level (0-5):

> -0

> --ability to accomplish activities of daily

> living (0-5)

> 0

> --overall feeling of wellness (0-5):

> 0

> --bloodwork (0-5):

> 0

> --swelling (0-5):

> -00

> --number of active joints (0-5):

> All Joints (Whole Body)

> Other comments:

> I am not doing very well at all. Now I might have spinal fusion or

>herniated disk so have pain from sciatic nerve. I have joints involved

>seriously that in 26 years previous to AP never gave me this much pain.

>Seeing new Doctor end of month

> Note my minus 0's indicating that I'm much worse on the AP

> >>

> Anita

>RA 26 years, Fibro, AP 18 months

>

>---------------------------

August 3, 1999

I second that opinion, Anita. Several people on this list have said the same

thing to me, so I have started food allergy/sensitivity testing. With a

sensitivity -- which can cause joint inflammation, pain and stiffness -- the

effects of eating a food can be delayed up to three days, so it's impossible to

figure out what's bothering you if you have a lot of sensitivities, not to

mention weather patterns, stress, sun spots and everything else that affects

RA. Anyway, right out of the starting block I found I have a gluten

intolerance, Celiac disease, and can't eat any grains. Going for round two

today. But I am encouraged by those who have shared with me that what they

thought were RA flares were really reactions to foods, and by eliminating

offending foods, have greatly improved. Deb

Donna and Ray wrote:

> From: " Donna and Ray " <mousepotatoes@...>

>

> Anita,

> did you experience an improvement then a decline or no improvement at all??

>

> You may be allergic to Minocin and need to switch to doxy or erythromycin?

>

> How much are you taking?? Also....do you know that my change in diet

> improved my condition by 70%. That may be where your problem is. Don't

> underestimate the power of food. I used to pooh pooh the idea until I was

> forced to remove sugar and transfat out of nessessity and bingo........it

> changed everything. Everyone forgets that the medication does not destory

> the mycoplasmas. All it does is removes the outer toxic protective layer so

> our own immune systems can go in and destroy them. If you have a weak

> immune system you will not remove any of the problem no matter how much

> minocin you take.

>

> Donna

>

> Re: rheumatic mid-summer progress report

>

> >From: Anihan@...

> >

> >In a message dated 8/1/99 10:05:14 AM Eastern Daylight Time,

> kglg@...

> >writes:

> >

> ><< Type of disease and length of time since diagnosis:

> > RA - 26 years

> >

> > Length of time on AP:

> > 18 months

> >

> > Antibiotic(s) being used:

> > Minocin

> > Supplements:

> > Many Vitamins, tried MSM, tried Colostrum etc.

> > Following Dr. Mercola's diet?

> > No:

> > Overall rating of improvement on a scale of 0-5 (0 being no improvement

> yet,

> > 5 being remission)

> > 0

> > --Specific areas of IMPROVEMENTsince starting the AP...

> > --morning stiffness (0-5):

> > 0

> > --daytime pain levels (0-5):

> > 0

> > --night-time pain levels (0-5):

> > -000

> > --energy level (0-5):

> > -0

> > --ability to accomplish activities of daily

> > living (0-5)

> > 0

> > --overall feeling of wellness (0-5):

> > 0

> > --bloodwork (0-5):

> > 0

> > --swelling (0-5):

> > -00

> > --number of active joints (0-5):

> > All Joints (Whole Body)

> > Other comments:

> > I am not doing very well at all. Now I might have spinal fusion or

> >herniated disk so have pain from sciatic nerve. I have joints involved

> >seriously that in 26 years previous to AP never gave me this much pain.

> >Seeing new Doctor end of month

> > Note my minus 0's indicating that I'm much worse on the AP

> > >>

> > Anita

> >RA 26 years, Fibro, AP 18 months

> >

> >---------------------------

August 3, 1999

Re: rheumatic mid-summer progress report

>>

>> >From: Anihan@...

>> >

>> >In a message dated 8/1/99 10:05:14 AM Eastern Daylight Time,

>> kglg@...

>> >writes:

>> >

>> ><< Type of disease and length of time since diagnosis:

>> > RA - 26 years

>> >

>> > Length of time on AP:

>> > 18 months

>> >

>> > Antibiotic(s) being used:

>> > Minocin

>> > Supplements:

>> > Many Vitamins, tried MSM, tried Colostrum etc.

>> > Following Dr. Mercola's diet?

>> > No:

>> > Overall rating of improvement on a scale of 0-5 (0 being no improvement

>> yet,

>> > 5 being remission)

>> > 0

>> > --Specific areas of IMPROVEMENTsince starting the AP...

>> > --morning stiffness (0-5):

>> > 0

>> > --daytime pain levels (0-5):

>> > 0

>> > --night-time pain levels (0-5):

>> > -000

>> > --energy level (0-5):

>> > -0

>> > --ability to accomplish activities of daily

>> > living (0-5)

>> > 0

>> > --overall feeling of wellness (0-5):

>> > 0

>> > --bloodwork (0-5):

>> > 0

>> > --swelling (0-5):

>> > -00

>> > --number of active joints (0-5):

>> > All Joints (Whole Body)

>> > Other comments:

>> > I am not doing very well at all. Now I might have spinal fusion or

>> >herniated disk so have pain from sciatic nerve. I have joints involved

>> >seriously that in 26 years previous to AP never gave me this much pain.

>> >Seeing new Doctor end of month

>> > Note my minus 0's indicating that I'm much worse on the AP

>> > >>

>> > Anita

>> >RA 26 years, Fibro, AP 18 months

>> >

>> >---------------------------

August 3, 1999

In a message dated 8/2/99 10:21:06 PM Eastern Daylight Time,

mousepotatoes@... writes:

<< I used to pooh pooh the idea until I was

forced to remove sugar and transfat out of nessessity and bingo........it

changed everything. Everyone forgets that the medication does not destory

the mycoplasmas. >>

Donna,

I eat very little sugar. Even when I give up the very little I eat, it

doesn't matter. There is no benefit. Yes, I know that Minocin is

bacteriostatic. Keeps the critters from multiplying. Yet on the other hand

am I missing something when we are told to drink a lot of water to wash the

critters down? If we are not destroying them, what are we washing away?

Anita

August 4, 1999

Drinking lots of water keeps our bodies ticking over properly in many regards -

see the article " Your body's many cries for water " at

www.rheumatic.org/water.htm.

Minocycline stops the mycoplasma replicating. That still means you get dead

organisms. If they can't replicate, then they die out and are not replaced. If

the human race

couldn't have any more babies from now on, how long would earth's population

survive?

The water also helps to flush toxins out. Minocycline destroys the little

barrier of toxin that the mycoplasma create around themselves for protection.

These toxins

circulate around the body and brain and need to be flushed out to help you

recover.

Chris.

am I missing something when we are told to drink a lot of water to wash the

critters down? If we are not destroying them, what are we washing away?

August 4, 1999

Now I'm really confused! Dr. Franco put me on Mtx (which will impair my immune

system) so that the Minocin would be more effective. But if what you said is

right, then I don't have a chance of his plan working. My immune system will be

weak and the Minocin won't do any good. Is that right???

Lea