Re: Canceled Tilt Test -- Back from Doc

[Guest guest]

Oh on. Why did they have to cancel it, do you know? Do you already have it rescheduled? Challis cassandra workmn wrote: Hey . What about your lesion? They canceled mytable tilt test today. But I went through my recordfrom the specialist(neuro) and I had a few papers ihad never seen in there. I think maybe they may havehanded em to me or my mom on my last visit and wereput in my folder. Anyways my BP dosnt go up

when Istand it goes down! Nice! I thought it went up. Thenit also mentions tremors and alot of other stuff andactually says dysautonomia. Im a dork! I had no ideathey were in there! How are you doing?I read how yourcar had the leak and you missed your appt. Did youreschedule? And are they fixn the damage to your car?Im prayn for ya always!luv ya! Cassy--- MSersLife <dixmstx>wrote:> They are thinking more dysautonomia than MS and allthose things are symptoms or disorders that go withit. I forgot the gastroparesis and neurogenic bladderand orthostatic hypotension. The disease is like MS,you just rule out everything else. The only definitivedx is autopsy at death. I'm okay, just take everythingwith a grain of sugar and salt. Been up all lastnoight because my catheter

wasn't draining. Thought itwas me at first till I changed catheter's and I thinkit's going to cooperate now.> > > ' in Texas> > Kate Rothschild <katelloydkidzoptonline (DOT) net> wrote:> > Re: BAck from Doc> > > Hey `~Listen...don't mind the language atall...You CAN choose to feel "screwed"...or, not. We,none of us, are promised a rose garden here...It isdaunting to be told all those things you have, and'possible' MORE, as in MS or dysautonomia. It may bethe smallest droplet of 'promise' in the pool of yoursorrow and sadness and worry--but we are each here foryou. To

hold you up. To nurture you. To, perhaps notphysically, but in outreach, wipe each tear away. Thenthere is your Creator. He is also, your sustainer. Ifit were not for God, for all your prayers, I wouldn'tbe able to be getting through these horrific days ofTN pain. I'm talking--looking at pills as my only wayout, kind of days. And yet, everyone has been SO herefor me. And God. He has to get the largest portion ofpraise and credit. I have to tell you, dear Chuck hasbeen a real source of strength for me as well. He hasreally reached out to me, and helped to further anchorme. > Not trying to make light of anything you've saidhere at all, `. I wonder if some of those things,for instance 'tremor disorder' and ataxia, might verywell be part of MS, if it is in fact MS you have, asopposed to separate disorders. Are there plansunderway for further testing on the first 2 possibles,to try to narrow it

down, rule them in or out?> I'm here for you. Stand firm. I'm standing in thegap for you--praying> love, kate> > Possible Dysautonomia, Possible MS, Fibromyalgia,CFIDS, Myofascial pain disorder, Ataxia, Tremordisorder. See, I'm a mess. No matter what, I'mscrewed. (Sorry for the language) There's no otherways to express it> > > .> > > > > > > > > > ' in Texas > Courage is not being fearless, courage is facingyour fears and not running for cover!__________________________________________________________Boardwalk for $500? In 2007? Ha! Play Monopoly Here and Now (it's updated for today's economy) at Yahoo! Games.http://get.games.yahoo.com/proddesc?gamekey=monopolyherenow

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[Guest guest]

Hey Challis. Well,when I called the lady she was on

break,she says we have been trying to reach you all

week and your mailbox says it full blah blah blah.

Lol. I wasnt answering my phone for numbers I didnt

reconize. Lol. Anyways,she says shes gonna call me

back to re-schedule for next week. So im like ok. I

called my voicemail to be sure it wasnt full,It WASNT!

And of course she didnt call back.I swear UC is

bad! I mean the docs are good but they dont have

anything organized. You could be dying and they would

say oh,we will call with an appt. And they dont! I

have had many problems with them. I once called the

main administration to let them know and report them

being so sucky. Lol. And the lady wrote everything

down but then says its cuz they are so busy,and people

wait mons upon mons to get in there. My initial visit

there was ridiculous.When my neuro thought I had

Devics it took more then 4 mons jus to be seen!

Finally my neuro called and spoke with them and a

month later I was in. Just ridiculous.

--- MSersLife

wrote:

> Oh on. Why did they have to cancel it, do you know?

Do you already have it rescheduled?

>

> Challis

>

>

> cassandra workmn wrote:

> Hey . What about your lesion? They

canceled my

> table tilt test today. But I went through my record

> from the specialist(neuro) and I had a few papers i

> had never seen in there. I think maybe they may have

> handed em to me or my mom on my last visit and were

> put in my folder. Anyways my BP dosnt go up when I

> stand it goes down! Nice! I thought it went up. Then

> it also mentions tremors and alot of other stuff and

> actually says dysautonomia. Im a dork! I had no idea

> they were in there! How are you doing?I read how

your

> car had the leak and you missed your appt. Did you

> reschedule? And are they fixn the damage to your

car?

> Im prayn for ya always!

> luv ya! Cassy

> --- MSersLife

> wrote:

> > They are thinking more dysautonomia than MS and

all

> those things are symptoms or disorders that go with

> it. I forgot the gastroparesis and neurogenic

bladder

> and orthostatic hypotension. The disease is like MS,

> you just rule out everything else. The only

definitive

> dx is autopsy at death. I'm okay, just take

everything

> with a grain of sugar and salt. Been up all last

> noight because my catheter wasn't draining. Thought

it

> was me at first till I changed catheter's and I

think

> it's going to cooperate now.

> >

> >

> > ' in Texas

> >

> > Kate Rothschild

wrote:

> >

> > Re: BAck from Doc

> >

> >

> > Hey `~Listen...don't mind the language at

> all...You CAN choose to feel " screwed " ...or, not.

We,

> none of us, are promised a rose garden here...It is

> daunting to be told all those things you have, and

> 'possible' MORE, as in MS or dysautonomia. It may be

> the smallest droplet of 'promise' in the pool of

your

> sorrow and sadness and worry--but we are each here

for

> you. To hold you up. To nurture you. To, perhaps not

> physically, but in outreach, wipe each tear away.

Then

> there is your Creator. He is also, your sustainer.

If

> it were not for God, for all your prayers, I

wouldn't

> be able to be getting through these horrific days of

> TN pain. I'm talking--looking at pills as my only

way

> out, kind of days. And yet, everyone has been SO

here

> for me. And God. He has to get the largest portion

of

> praise and credit. I have to tell you, dear Chuck

has

> been a real source of strength for me as well. He

has

> really reached out to me, and helped to further

anchor

> me.

> > Not trying to make light of anything you've said

> here at all, `. I wonder if some of those

things,

> for instance 'tremor disorder' and ataxia, might

very

> well be part of MS, if it is in fact MS you have, as

> opposed to separate disorders. Are there plans

> underway for further testing on the first 2

possibles,

> to try to narrow it down, rule them in or out?

> > I'm here for you. Stand firm. I'm standing in the

> gap for you--praying

> > love, kate

> >

> > Possible Dysautonomia, Possible MS, Fibromyalgia,

> CFIDS, Myofascial pain disorder, Ataxia, Tremor

> disorder. See, I'm a mess. No matter what, I'm

> screwed. (Sorry for the language) There's no other

> ways to express it

=== Message Truncated ===

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