Guest guest Posted February 19, 2004 Report Share Posted February 19, 2004 Hello All- , who turned fourteen last September, will be having his annual IEP sometime this month. I just realized (a bit of denial going on here - lol) that we will need to incorporate I.D.E.A. transition planning goals this year. If anyone has any suggestions for us, or stories of illumination, education or warning to share, please send them! For a bit of background- is completely mainstreamed at a local magnet High School as a freshman/ninth grade. He is involved in student govenment as secretary of the graduating class of 2007 (eek!). He maintains a 3.84 GPA (not that we are ridiculously proud of him!). He has a really low audiogram, and he functions as " hard- of-hearing " . He speaks and writes in English word order and has a full time ASL translator for clarification. He is extremely good natured and friendly, and yes, he has many of those remarkable Charge/OCD/persistence traits - our joke is " one rule for all occassions " . He wears digital hearing aids,self tube feeds, can drink liquids and sees the school speech therapist once a week. He is on growth hormone replacement therapy, and is now four foot seven inches, eighty-five pounds (size of a fourth grader). In his words " I am ridiculously short for a ninth grader and remarkably child-like in appearance for someone in High School. I am emotionally a tall person and physically small. " Thank you so much everyone! Best to everyone- Yuka Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2004 Report Share Posted February 19, 2004 For my 15 year old old with ADD and learning disabilities, transition goals are very basic, such as having him find where to get information on disability law, so he can advocate for himself in college, and make his own doctor appointments. These do not involve the school doing anything for him. He will likely take a transition class involving some class time and then work off of campus, where he will learn job skills by doing rather than from a book. Much better for him. On the other hand, I think our CHARGErs need far more than that to really prepare them for adult life. Hopefully some of the parents will pipe up with info that was useful in their child's transition. Dylan goes to the school for the blind in AZ and I am always amazed at how much more exposure he gets to living life in a community at this school than is possible in public school. He already goes on community outings with the O & M specialist, who works with deafblind adults as well, buys things at the store, learns bus routes, how to manage street crossings, etc... In skill center he has work that he does, gets paid, and has the opportunity to buy things. Because of his " autistic-like " social patterns, right now he does not seem to care one way or the other, but at least there is exposure for him. Good luck with your meeting. Kim > Hello All- > , who turned fourteen last September, will be having his annual > IEP sometime this month. I just realized (a bit of denial going on > here - lol) that we will need to incorporate I.D.E.A. transition > planning goals this year. > > If anyone has any suggestions for us, or stories of illumination, > education or warning to share, please send them! > > For a bit of background- is completely mainstreamed at a local > magnet High School as a freshman/ninth grade. He is involved in > student govenment as secretary of the graduating class of 2007 > (eek!). He maintains a 3.84 GPA (not that we are ridiculously proud > of him!). He has a really low audiogram, and he functions as " hard- > of-hearing " . He speaks and writes in English word order and has a > full time ASL translator for clarification. He is extremely good > natured and friendly, and yes, he has many of those remarkable > Charge/OCD/persistence traits - our joke is " one rule for all > occassions " . He wears digital hearing aids,self tube feeds, can > drink liquids and sees the school speech therapist once a week. > > He is on growth hormone replacement therapy, and is now four foot > seven inches, eighty-five pounds (size of a fourth grader). In his > words " I am ridiculously short for a ninth grader and remarkably > child-like in appearance for someone in High School. I am > emotionally a tall person and physically small. " > > Thank you so much everyone! > > Best to everyone- > > Yuka > > > > Membership of this email support groups does not constitute membership in the > CHARGE Syndrome Foundation. > For information about the CHARGE Syndrome > Foundation or to become a member (and get the newsletter) > please contact marion@... or visit > the CHARGE Syndrome Foundation web page > at http://www.chargesyndrome.org > 7th International > CHARGE Syndrome Conference, Miami Beach, Florida, July 22-24, 2005. > Information will be available at our website > www.chargesyndrome.org or by calling 1-. In Canada, you may > contact CHARGE Syndrome Canada at 1- (families), visit > www.chargesyndrome.ca, or email info@.... Thank you! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2004 Report Share Posted February 19, 2004 " I am ridiculously short for a ninth grader and remarkably child-like in appearance for someone in High School. I am emotionally a tall person and physically small. " Yuka- This is just too wonderful!!! Michele W Aubrie's mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2004 Report Share Posted February 20, 2004 Yuka said about : In his words " I am ridiculously short for a ninth grader and remarkably child-like in appearance for someone in High School. I am emotionally a tall person and physically small. " Hmmm, seems like ANOTHER exceptionally articulate Persico joining you, Yuka! After seeing at the Valentine's dance last week, I can vouch for that " emotionally tall person and physically small " statement. Quote Link to comment Share on other sites More sharing options...
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