Guest guest Posted November 20, 2002 Report Share Posted November 20, 2002 HI . My mom also has colon cancer. She was diagnosed 22 months ago. Although it has not affected her liver yet, and we are hoping it never does, it has managed to keep reacurring in her colon, abdomen and she also had both ovaries removed because of cancer. I am also an only child. My mom is 53. Stay positive. My mom has been very direct in telling the doc's she DOES NOT want to know how much time she has. This is her decision. and i respect that. I just deal with this one day at a time. Thats the only way I can get thru without going crazy! I was nervous to be around my mom at first, not knowing what to say. but after a while i just realized that our relationship hadn't changed at all. So I am now just " normal " around her. Somedays we joke about it(like her first treatment with hair loss, we now joke about it) but there are days where she just wants to be serious and thats ok. I have learned to be strong for her, after all she has done for me. just stay strong, stay positive, pray and just be yourself. If you ever want to chat please feel free to email me!! Candi canner10@... > Hello all! My name is and this is my first post. My mom was > diagnosed with colon cancer that has metastasized to her liver this > past August. She was diagnosed one week after her mother was > diagnosed with lung cancer. My grandmother passed away on September > 22 of this year. > > Honestly, I am having a very difficult time dealing with this. My > mom is only 49 years old and the first doctor she saw told her he > honestly couldn't see her living past one year. She had the tumor in > her colon removed in September, but she has approximately 25 to 30 > tumors on her liver. She has started chemotherapy and had her third > treatment yesterday, and seems to be doing well. > > I just felt like I needed to find a place where I could talk with > people in similar situations. I'm an only child and the only real > sickness and/or death I have experienced was with my grandma who just > recently passed away. > > How do you deal with this? What can I say to my mom? What shouldn't > I say? Maybe those should just be rhetorical questions, but, > honestly, I just don't know. > > Anyway, this is my grand introduction. I plan on reading past posts > and hope to learn more about my mom's cancer and meet other people > who are in the same position she is and I am. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2004 Report Share Posted January 13, 2004 hi my name is April Goodman. My nephew Cody was diagnosed with the CHARGE syndrome. He will be a year old on January 30. He has had a lot of problems throughout the first year of his life. he has almost passed away on us several times. He quit breathing for 6 minutes. When he was born he weighed 4lbs 15 oz. The umbilical cord was around his neck and he was not breathing. He has only cried one time. He does not cry now and barely makes any facial emotions. He is just now smiling a little. It looks as though he has had a stroke on the right side of his face. He can't sit up or crawl yet. He had the mech tube when he was first born and now has the button. He is on ozygen and heart monitors at night. He also has a constant feed machine and has to eat every three hours. He only takes about 4 ounces of milk at a time. Cody has a Speech therapist, Occupational therapist, Physical therapist, A dietician, at home nurse, and many more. He has so many doctors that I can't keep up! He has had tubes put in his ear and still it doesn't seem to be really helping him hear. His eye doctor referred him to VIPS (Visually Impared ....) i will be glad to talk more about Cody in the future. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2004 Report Share Posted January 13, 2004 Hi, welcome April ... you have a cute nephew ... he looks like he is growing well! my ds Josh is 16 months old and he doesn't say anything yet either, although he is making different sounds now that he has hearing aids i think, and is very expressive with them ... he has just been diagnosed with moderate heariing loss ... hearing loss is common with CHARGE. Jo ds Ben, ds Josh ----- Original Message ----- > hi my name is April Goodman. My nephew Cody was diagnosed with the > CHARGE syndrome. Quote Link to comment Share on other sites More sharing options...
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