Guest guest Posted June 30, 1999 Report Share Posted June 30, 1999 Another thought crossed my mind, too. Dr. Brown used prednisone when necessary. I know for 21 years I have tried to avoid prednisone and won't take it unless I absolutely have to. The supplements I take work on controlling pain and inflammation, so that hopefully I can continue to avoid prednisone. rheumatic Are we wandering? >From: SEG14@... > >What a great discussion! Thanks, Mark, for starting it. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 1999 Report Share Posted June 30, 1999 There is absolutely no doubt in my mind that the AP is working.I am now doing things I haven't done in many years.The turning point for me was the addition of clindamycin IV.Perhaps some of you who are having slow or little results might concider on working in that direction.After only 2 cycles of IVs I have noticed a tremendous difference.I also had a friend with SD who saw similar results as a result of the IVs. Joanie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 1999 Report Share Posted June 30, 1999 Hi Kari Just wanted to mention that I too tried GS/C and I can relate to the exacurbation thing .I really flared up after taking it for a few days. My rheumy suggested the same thing. Too much! I am diong very well on Mino , but am still on a low dose of prednisone, which i continue to taper down very slowly. I also take Vit C, E and D and Didrocal ( for the OA) in my spine. Best Wishes for good health Gwen Rominski wrote: > From: " Rominski " <skifamily@...> > > Hello All, > > I've greatly enjoyed the discussion prompted by Mark's " Are We Wandering? " > post. There have been so many important, thoughtful points made, and I > think that is very helpful and healthy as we all continue in our quest for > health. > > Joyce raises an interesting question when she asks, " How do we know that the > mixture of herbs, supplements, etc. doesn't cancel one or all out or make > the Minocin null and void? Are there any studies that anyone knows of > concerning mixing " natural " products with chemicals? " > > Yesterday I saw my new local rheumatologist, and he suggested that I might > want to quit taking Chondroiton/Glucosamine for a month and see how I feel. > He is a strong believer in C/G for OA, but he said that, " in theory " , it may > actually exacerbate RA. He continued to emphasize that this is only " in > theory " , but he thinks it is worth a try before switching NSAIDs, etc. Has > anyone heard of this theory? > > This doc feels that I am doing very well on Minocin and should continue on > with it. It is good to find somebody locally who is encouraging and > supportive of this treatment -- it is interesting to note that I felt even > better after leaving his office than I did before I arrived, and I felt > pretty good going in. There is definitely something to be said for the > effects of a doctors " bed side manner. " > > Bye, > > Kari > > --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 1999 Report Share Posted June 30, 1999 Interesting - I take 1500mg of GS/C daily and have been for some time (Sundown Osteo Bi-Flex - maximum strength). I've never heard these remarks, in fact if I recall correctly, I've heard the remark that perhaps it might help a little. hmmm.... maybe I should stop taking this? Mark Re: rheumatic Are We Wandering? > From: Gwen Armstrong <armstrog@...> > > Hi Kari > > Just wanted to mention that I too tried GS/C and I can relate to the exacurbation thing .I > really > flared up after taking it for a few days. My rheumy suggested the same thing. Too much! > I am diong very well on Mino , but am still on a low dose of prednisone, which i continue to > taper down very slowly. > I also take Vit C, E and D and Didrocal ( for the OA) in my spine. > > Best Wishes for good health > Gwen > Rominski wrote: > > > From: " Rominski " <skifamily@...> > > > > Hello All, > > > > I've greatly enjoyed the discussion prompted by Mark's " Are We Wandering? " > > post. There have been so many important, thoughtful points made, and I > > think that is very helpful and healthy as we all continue in our quest for > > health. > > > > Joyce raises an interesting question when she asks, " How do we know that the > > mixture of herbs, supplements, etc. doesn't cancel one or all out or make > > the Minocin null and void? Are there any studies that anyone knows of > > concerning mixing " natural " products with chemicals? " > > > > Yesterday I saw my new local rheumatologist, and he suggested that I might > > want to quit taking Chondroiton/Glucosamine for a month and see how I feel. > > He is a strong believer in C/G for OA, but he said that, " in theory " , it may > > actually exacerbate RA. He continued to emphasize that this is only " in > > theory " , but he thinks it is worth a try before switching NSAIDs, etc. Has > > anyone heard of this theory? > > > > This doc feels that I am doing very well on Minocin and should continue on > > with it. It is good to find somebody locally who is encouraging and > > supportive of this treatment -- it is interesting to note that I felt even > > better after leaving his office than I did before I arrived, and I felt > > pretty good going in. There is definitely something to be said for the > > effects of a doctors " bed side manner. " > > > > Bye, > > > > Kari > > > > --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 1999 Report Share Posted June 30, 1999 interesting, I agree... we had increased 's Glucosamine to 1500 twice daily a while back per our Naturopathic doctors' instructions--- his hands have been more sore and swollen.... think I will also try cutting it out altogether for awhile and see what happens! thanks, Gwen, Kari, and Mark! > ---------- > From: MHOLMES@... > Sent: Wednesday, June 30, 1999 8:40 AM > Gwen Armstrong > Cc: rheumaticonelist > Subject: Re: rheumatic Are We Wandering? > > From: MHOLMES@... (HOLMES, MARK T.) > > Interesting - I take 1500mg of GS/C daily and have been for some time > (Sundown Osteo Bi-Flex - maximum strength). I've never heard these > remarks, > in fact if I recall correctly, I've heard the remark that perhaps it might > help a little. hmmm.... maybe I should stop taking this? > > Mark > > > Re: rheumatic Are We Wandering? > > > > From: Gwen Armstrong <armstrog@...> > > > > Hi Kari > > > > Just wanted to mention that I too tried GS/C and I can relate to the > exacurbation thing .I > > really > > flared up after taking it for a few days. My rheumy suggested the same > thing. Too much! > > I am diong very well on Mino , but am still on a low dose of prednisone, > which i continue to > > taper down very slowly. > > I also take Vit C, E and D and Didrocal ( for the OA) in my spine. > > > > Best Wishes for good health > > Gwen > > Rominski wrote: > > > > > From: " Rominski " <skifamily@...> > > > > > > Hello All, > > > > > > I've greatly enjoyed the discussion prompted by Mark's " Are We > Wandering? " > > > post. There have been so many important, thoughtful points made, and > I > > > think that is very helpful and healthy as we all continue in our quest > for > > > health. > > > > > > Joyce raises an interesting question when she asks, " How do we know > that > the > > > mixture of herbs, supplements, etc. doesn't cancel one or all out or > make > > > the Minocin null and void? Are there any studies that anyone knows of > > > concerning mixing " natural " products with chemicals? " > > > > > > Yesterday I saw my new local rheumatologist, and he suggested that I > might > > > want to quit taking Chondroiton/Glucosamine for a month and see how I > feel. > > > He is a strong believer in C/G for OA, but he said that, " in theory " , > it > may > > > actually exacerbate RA. He continued to emphasize that this is only > " in > > > theory " , but he thinks it is worth a try before switching NSAIDs, etc. > Has > > > anyone heard of this theory? > > > > > > This doc feels that I am doing very well on Minocin and should > continue > on > > > with it. It is good to find somebody locally who is encouraging and > > > supportive of this treatment -- it is interesting to note that I felt > even > > > better after leaving his office than I did before I arrived, and I > felt > > > pretty good going in. There is definitely something to be said for > the > > > effects of a doctors " bed side manner. " > > > > > > Bye, > > > > > > Kari > > > > > > --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 1999 Report Share Posted June 30, 1999 Hi : Please share with us, what supplements do you take? Mado rheumatic Are we wandering? > > >>From: SEG14@... >> >>What a great discussion! Thanks, Mark, for starting it. > > > >--------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 1999 Report Share Posted July 1, 1999 I recently went to an orthopedic surgeon and asked his opinion on G & C and all the products containing it as I used joint food and he said he had no evidence that it did anything except releive a little pain on a daily basis and even though the jury was out on its benefits he personally felt that it may have some minimum asprin or steriod in one of its ingredients that occur naturally and that 2 panadol would probably have the same effect without overloading the liver and kidneys. Each to there own opinon hey! It was interesting that he did believe in AP's ability to put RA in remission though. Food for thought. ra Jan 97 ap May 98 Townsville Australia jamulder@... http://www.ultra.net.au/~jamulder/ Re: rheumatic Are We Wandering? > > >>From: Gwen Armstrong <armstrog@...> >> >>Hi Kari >> >>Just wanted to mention that I too tried GS/C and I can relate to the >exacurbation thing .I >>really >>flared up after taking it for a few days. My rheumy suggested the same >thing. Too much! >>I am diong very well on Mino , but am still on a low dose of prednisone, >which i continue to >>taper down very slowly. >>I also take Vit C, E and D and Didrocal ( for the OA) in my spine. >> >>Best Wishes for good health >>Gwen >> Rominski wrote: >> >>> From: " Rominski " <skifamily@...> >>> >>> Hello All, >>> >>> I've greatly enjoyed the discussion prompted by Mark's " Are We >Wandering? " >>> post. There have been so many important, thoughtful points made, and I >>> think that is very helpful and healthy as we all continue in our quest >for >>> health. >>> >>> Joyce raises an interesting question when she asks, " How do we know that >the >>> mixture of herbs, supplements, etc. doesn't cancel one or all out or make >>> the Minocin null and void? Are there any studies that anyone knows of >>> concerning mixing " natural " products with chemicals? " >>> >>> Yesterday I saw my new local rheumatologist, and he suggested that I >might >>> want to quit taking Chondroiton/Glucosamine for a month and see how I >feel. >>> He is a strong believer in C/G for OA, but he said that, " in theory " , it >may >>> actually exacerbate RA. He continued to emphasize that this is only " in >>> theory " , but he thinks it is worth a try before switching NSAIDs, etc. >Has >>> anyone heard of this theory? >>> >>> This doc feels that I am doing very well on Minocin and should continue >on >>> with it. It is good to find somebody locally who is encouraging and >>> supportive of this treatment -- it is interesting to note that I felt >even >>> better after leaving his office than I did before I arrived, and I felt >>> pretty good going in. There is definitely something to be said for the >>> effects of a doctors " bed side manner. " >>> >>> Bye, >>> >>> Kari >>> >>> --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 1999 Report Share Posted July 1, 1999 I take Glucosamine Sulphate by Enzymatic Therapy or the Canadian company PhytoPharmica and have found it helpful for some pain relief. Re: rheumatic Are We Wandering? >From: Gwen Armstrong <armstrog@...> > >Hi Kari > >Just wanted to mention that I too tried GS/C and I can relate to the exacurbation thing .I >really >flared up after taking it for a few days. My rheumy suggested the same thing. Too much! >I am diong very well on Mino , but am still on a low dose of prednisone, which i continue to >taper down very slowly. >I also take Vit C, E and D and Didrocal ( for the OA) in my spine. > >Best Wishes for good health >Gwen > Rominski wrote: > >> From: " Rominski " <skifamily@...> >> >> Hello All, >> >> I've greatly enjoyed the discussion prompted by Mark's " Are We Wandering? " >> post. There have been so many important, thoughtful points made, and I >> think that is very helpful and healthy as we all continue in our quest for >> health. >> >> Joyce raises an interesting question when she asks, " How do we know that the >> mixture of herbs, supplements, etc. doesn't cancel one or all out or make >> the Minocin null and void? Are there any studies that anyone knows of >> concerning mixing " natural " products with chemicals? " >> >> Yesterday I saw my new local rheumatologist, and he suggested that I might >> want to quit taking Chondroiton/Glucosamine for a month and see how I feel. >> He is a strong believer in C/G for OA, but he said that, " in theory " , it may >> actually exacerbate RA. He continued to emphasize that this is only " in >> theory " , but he thinks it is worth a try before switching NSAIDs, etc. Has >> anyone heard of this theory? >> >> This doc feels that I am doing very well on Minocin and should continue on >> with it. It is good to find somebody locally who is encouraging and >> supportive of this treatment -- it is interesting to note that I felt even >> better after leaving his office than I did before I arrived, and I felt >> pretty good going in. There is definitely something to be said for the >> effects of a doctors " bed side manner. " >> >> Bye, >> >> Kari >> >> --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 1999 Report Share Posted July 12, 1999 STKWINGUY@... wrote: > > From: STKWINGUY@... > > <<You know I'm beginning to wonder just a tad what happened to good ol' > minocyline? I know I've been guilty of wondering off down the path of > chasing every latest fad (most to no avail), but as we continue to explore > all these alternatives, it makes me think that minocycline isn't very > effective or why would we be trying everything else under the sun? I know, > we're just trying all this other stuff so that it will give the minocycline > a better chance to work and be effective. Still, I don't really recall Dr. > Brown indicating that we had to do all this. Seems like he had success > without it. >> > > Hi Mark: > About a year ago a group of us were wondering why we were NOT getting the > results that we expected after reading THE ROAD BACK and using the antibiotic > protocol. Someone astutely pointed out that Dr. Brown used antibiotics > intravenously in almost all cases. Virtually none of us are doing this nor > can we find doctors willing to RX the IV's. Maybe this is why we are > wandering around looking for the rest of the answer. Better health, Al As we've said so often, IVs are vitally important in cases of severe and/or long standing disease. Dr. Coker-Vann says, they jump-start the therapy. Dr. Franco tells me he is having some success in using Zithromax twice a week for RA patients only in place of the IVs, so for those of you unable to get the IVs you might try the Zithromax. If you can possibly afford to make a trip to one of the doctors who do prescirbe the IVs, they are often able to make arrangements for you to have them or continue them at home. I've known Dr. Sinnott to call a doctor in the patient's home town and ask him to give the IVs. I've known Dr. to call the patients hometown physician who has agreed to do the IVs I lived in Missouri when I started therapy. Out-of-town prescriptions for IVs were filled at the hospital pharmacy and the patient made their own arrangements for administration, or the doctor could fax a healthcare agency who would get the prescription filled and give the IVs. In Texas, your doctor can fax the prescription to a health care agency and they will come to your home too. When I needed IVs, the agency brought the meds and supplies to me and my daughter gave me the IVs. I've known people that give them to themselves, and in other cases, a family member learns to do them. I remember one case back in Missouri. The man had to have the IVs. My daughter was willing to give them but he absolutely could not afford them. The family were devout Christians so I called the pastor of the church they attended and asked if they could pay for them. They were more than happy to do so. When we moved to Texas, family members learned to give the IVs. I often suggest that people (who can) consider borrowing the money for IVs. Now, having said all this, don't forget there are some people who do well with the oral clindamycin so that is worth trying. Ethel > > --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 1999 Report Share Posted July 14, 1999 So does this mean that taking just mino or doxy isnt going to work for us? I for one have no way to get a doctor to give me the IV's or get to one who does. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 1999 Report Share Posted July 14, 1999 S C wrote: > > From: S C <sasc@...> > > So does this mean that taking just mino or doxy isnt going to work for > us? I for one have no way to get a doctor to give me the IV's or get to > one who does. Experience has shown that people with severe and/or long standing disease have better results using the IVs. In some cases no results are achieved without them. We are all unique. Since you can't get IV's, why not try oral clindamycin - 1200 mg. once a week. You might even use it like IVs - take it five days in a row and then once a week on a day you are not taking the Minocin or doxy. In patients with RA, Dr. Franco is having good results using Zithromax two days a week in place of the IVs. Ethel > --------------------------- Quote Link to comment Share on other sites More sharing options...
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