RE: Vision Question

[Guest guest]

Kim,

What school does Dylan attend in Tucson? Just wondering because

I did mapquest and you are 6 miles from my half sister and thought

that there may be a possability that they went to the same school.

She is 8. but I don't know what school she goes to. I am coming down

there for a weekend this month, but will not be bringing .

, friend to , 23, CHARGE

[Guest guest]

Dylan goes to Arizona Schools for the Deaf and Blind. My other children go

to K-8 and Ironwood Ridge High School in the Amphitheater district.

You're welcome to give me a call when you are in town.

Kim

On 2/5/04 2:30 PM, " courtneyandheather "

wrote:

> Kim,

>

> What school does Dylan attend in Tucson? Just wondering because

> I did mapquest and you are 6 miles from my half sister and thought

> that there may be a possability that they went to the same school.

> She is 8. but I don't know what school she goes to. I am coming down

> there for a weekend this month, but will not be bringing .

>

> , friend to , 23, CHARGE

>

>

>

>

> Membership of this email support groups does not constitute membership in the

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> Foundation or to become a member (and get the newsletter)

> please contact marion@... or visit

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> at http://www.chargesyndrome.org

> 7th International

> CHARGE Syndrome Conference, Miami Beach, Florida, July 22-24, 2005.

> Information will be available at our website

> www.chargesyndrome.org or by calling 1-. In Canada, you may

> contact CHARGE Syndrome Canada at 1- (families), visit

> www.chargesyndrome.ca, or email info@.... Thank you!

>

>

[Guest guest]

Just a quick reply to your question

about vision.

At one of the programs for the

deaf-blind, we used to use colored

twinkle lights to help orient low vision

kids as to where they were in the

building. You can now get the kind that

operate on batteries or plug in the

outlet. In different places in the

building, there would be different

colors, yellow for the bathroom area,

green to the speech rooms, etc. You may

be able to adapt something similar in

your home using these lights. If you're

concerned about using them with small

children, places them higher on the wall

and use the kind that don't need to be

plugged in. 3M makes a hanger that can

be placed temporarily on a surface and

later removed without damaging the wall

of leaving marks.

Hope this helps.

Kathy

********************

Date: Sun, 08 Feb 2004 05:19:45 -0000

From: " ann_gloyn "

Subject: Re: Vision question

That's great to encourage movement and

crawling...they will learn

fast, but ouch that hurts! Maybe put

down some bright coloured

Pokeman towels along his route for now,

and gently guide him to

follow on them, that way avoiding some

of those nasty corners.

Ann Gloyn, Specialist Teacher, Canada

> Ethan has started crawling within the

last couple of weeks. He has

bilateral colobomas and one smaller eye

with virtually no vision. He

does see well enough to reach and find

toys close to him. However,

since he began to crawl, we have noticed

that he cuts corners very

close when crawling into another room

(especially when he turns to

his right - his bad eye). I'm guessing

he has no peripheral vision

with that eye. I'm wondering if there

is any accomodation I can make

so that he can avoid bumping into the

wall or maybe he'll just learn

his way around the house the hard way?

I will consult with Ethan's

vision specialist, but thought I'd ask

those who know best!

>

> Thanks,

> Jody - mom to Ethan (19 mo ChARGE) and

(4)

Kathy Pongor, Resource & Technology

Teacher

KDES, Gallaudet University

800 Florida Ave NE

Washington DC 20002

Washington DC 2002