Guest guest Posted April 8, 2000 Report Share Posted April 8, 2000 > > -- Aerobic exercise three times per week may be of greater benefit to the > immune system than heavier regimens of five or more times per week, > researchers report. > ``From the viewpoint of immune function, the optimal training regimen is of > low volume,'' reports Dr. Roy Shephard and colleagues at the University of > Toronto in Canada. Their findings are published in a recent issue of the > Journal of Sports Medicine and Physical Fitness. > > It's worth reading it in full at: > http://dailynews.yahoo.com/headlines/hl/story.html? s=v/nm/19990805/hl/ex7_1.html > Thursday August 5 5:28 PM ET I have always exercised my whole life and am in good shape for my age (46). My endo said that I should NOT exercise for one month untill I see him. ( I just went on PTu for the first time in my life; 200mg daily, and was just diagnosed only 4 days ago. ( My endo says I seem to be mild, and I have NO OTHER symtoms, except for the Fast heart rate) I really miss exercise. Any thoughts? My heart rate is in the 90's. ( I was doing areobic exercise for years, and would do 3 times a week for 45 minutes) The heart rate ( just today...seems to be coming down a bit. As we speak it is at 84... let's hope this lasts...) Also, what are some Alternative Treatments that can help me??? Thanks, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 2000 Report Share Posted April 8, 2000 >From: Kmtressa@... >Reply-To: graves_supportegroups >To: graves_supportegroups >Subject: Re: best for immune system >Date: Sat, 08 Apr 2000 18:36:39 -0000 > > > > > > -- Aerobic exercise three times per week may be of greater benefit >to the immune system than heavier regimens of five or more times per > > >week, researchers report. > > ``From the viewpoint of immune function, the optimal training > >regimen is of low volume,'' reports Dr. Roy Shephard and >colleagues at >the University of Toronto in Canada. Their findings > >are published in a >recent issue of the Journal of Sports Medicine > >and Physical Fitness. > > > > It's worth reading it in full at: > > http://dailynews.yahoo.com/headlines/hl/story.html? >s=v/nm/19990805/hl/ex7_1.html > > Thursday August 5 5:28 PM ET > > >I have always exercised my whole life and am in good shape for my age >(46). My endo said that I should NOT exercise for one month untill I >see him. ( I just went on PTu for the first time in my life; 200mg >daily, and was just diagnosed only 4 days ago. ( My endo says I seem >to be mild, and I have NO OTHER symtoms, except for the Fast heart >rate) I really miss exercise. Any thoughts? My heart rate is in the >90's. ( I was doing areobic exercise for years, and would do 3 times >a week for 45 minutes) The heart rate ( just today...seems to be >coming down a bit. As we speak it is at 84... let's hope this >lasts...) >Also, what are some Alternative Treatments that can help me??? >Thanks, > Hi , What your endo says is correct, since your heart rate is in the 90's right now, (is one of the effects of the excess of hormones in the body). So this has to be addressed in the first place, to avoid further problems. Once you'd got rid of it, then, the aerobic exercise will fit, and will help your immunitary system. While you're bringing your thyroid back to working properly, YOGA and/or TAI-CHI-CHUAN will be godsends. Walking (normal, not brisk) will be helpful too. Enough exercising right now. Best health. Please join Atomic Women's mailing-list and club: http://www.onelist.com/subscribe/atomicwomen http://clubs.yahoo.com/clubs/atomicwomen Visit Atomic Women's sites: http://members.tripod.com/~LittleRed_2/ or http://www.geocities.com/ibayoa ______________________________________________________ Get Your Private, Free Email at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 2000 Report Share Posted April 8, 2000 , To follow up 's excellent advice about learning and exercise: I too exercised before Graves, swimming and doing yoga right up untill I gave birth throughout pregnancies, teaching yoga, etc. but stopped for a few months with Graves. It really isn't safe to unnecessarily challenge your heart. Second, I can't emphasize enough how reading archives and old posts in various thyroid bulletin boards helped me. In fact, I'm struck with a bit of nostalgia (ha!) as I realized that it was one year ago this week that my physician said, gee, I think you have a thyroid problem. I remember being fabulously pissed off during the whole appointment for any number of reasons from how slooowly the doctor moved to how uncomfortable the forced air heating system made my eyes. Now I know why . . . Anyway, I digress. I recommend reading: 1. all the archives in this list (not too many as the list is just a few months old) 2. three or four months from the hyperthyroid list (access that through egroups) 3. Shonom's information on her thyroid web page and bulletin board (again, pick four or five months and just read) 4. Thyroid manager textbook-- there's an online medical text for doctors and I can't remember the address, but if you search " thyroid manager " you'll fine it because that's the name of the web site if I'm remembering correctly. I read three or four chapters and it helped immensely 5. Read about six months-to a year's posts on the National Graves Disease Foundation Bulletin Board, keeping in mind that this bulletin board reflects standard medicine and therefore presents an unquestioned acceptance of ingesting radioactive material and forbids substantive discussion of alternative medicine. Nonetheless, I found this board immensely helpful as many, many of the details (e.g. how much PTU is normal? what are the reactions and how do you test for them? how soon did people go into remission and did they stay, etc.) arecovered. , I know it's a bit overwhelming right now and hard to take a comprehensive view, but I'd really advocate this. I took PTU while researching all standard and alternative approaches for about a month and then felt ready to take control of my own health. I also felt I should know as much as possible about Graves and autoimmune diseases in general, as being diagnosed with an autoimmune illness--for better or worse--meant a new and more careful approach to my body, health, life. Another thing I did was go to a web page on autoimmune illnesses. . . can't remember, it's some national advocacy group. . . and read about autoimmune illnesses in general. It's not uncommon for people with one autoimmune illness to develop another and there are a couple that occur more frequently in Graves' people than others--celiac sprue is one that springs to mind. Anybody know what other autoimmune diseases are frequently associated with Graves? Isn't Sjogerns or something like that one of them. . . ? myasthenis gravis? bad spelling and just wondering, not touting facts. Anyone know the handful commonly associated? Re: best for immune system > > > > > -- Aerobic exercise three times per week may be of greater benefit > to the > > immune system than heavier regimens of five or more times per week, > > researchers report. > > ``From the viewpoint of immune function, the optimal training > regimen is of > > low volume,'' reports Dr. Roy Shephard and colleagues at the > University of > > Toronto in Canada. Their findings are published in a recent issue > of the > > Journal of Sports Medicine and Physical Fitness. > > > > It's worth reading it in full at: > > http://dailynews.yahoo.com/headlines/hl/story.html? > s=v/nm/19990805/hl/ex7_1.html > > Thursday August 5 5:28 PM ET > > > I have always exercised my whole life and am in good shape for my age > (46). My endo said that I should NOT exercise for one month untill I > see him. ( I just went on PTu for the first time in my life; 200mg > daily, and was just diagnosed only 4 days ago. ( My endo says I seem > to be mild, and I have NO OTHER symtoms, except for the Fast heart > rate) I really miss exercise. Any thoughts? My heart rate is in the > 90's. ( I was doing areobic exercise for years, and would do 3 times > a week for 45 minutes) The heart rate ( just today...seems to be > coming down a bit. As we speak it is at 84... let's hope this > lasts...) > Also, what are some Alternative Treatments that can help me??? > Thanks, > > > ------------------------------------------------------------------------ > DON'T HATE YOUR RATE! > Get a NextCard Visa, in 30 seconds! Get rates as low as > 0.0% Intro or 9.9% Fixed APR and no hidden fees. > Apply NOW! > http://click./1/2120/3/_/585824/_/955219009/ > ------------------------------------------------------------------------ > > ------------------------------------- > The Graves' list is intended for informational purposes only and is not intended to replace expert medical care. > Please consult your doctor before changing or trying new treatments. > ---------------------------------------- > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 2000 Report Share Posted April 8, 2000 > >Reply-To: graves_supportegroups >To: <graves_supportegroups> >Subject: Re: Re: best for immune system >Date: Sat, 8 Apr 2000 16:10:47 -0500 > >>>>4. Thyroid manager textbook-- there's an online medical text for doctors >>>>and I can't remember the address, but if you search " thyroid manager " <<< http://www.thyroidmanager.org/thyroidbook.htm >>>Another thing I did was go to a web page on autoimmune illnesses. . . >>>can't remember, it's some national advocacy group. . . and read about >>>autoimmune illnesses in general.<<< http://www.aarda.org ______________________________________________________ Get Your Private, Free Email at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2000 Report Share Posted May 24, 2000 , Regarding messages, the only ones I have received in the last 4 days is one from and the 2 from you...maybe everyone is just quiet right now? Hopefully. Jody ________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2000 Report Share Posted May 24, 2000 Hellloooo I haven't had any messages in the lasy few days. Is that because nobody has anything to say? ------------- Well I'm going to try answer the question for but anyone has a better way to figure this out please jump in,but I did want to tell him the first part is a little hard after the first 6 weeks the med's kick in and he will start to feel a better and so on.Sorry I don't know much about the number , >TSH LIA <0.05 (Normal: 0.35-5.50) Units: mcIU/ml from what I know your TSH here look's pretty low yet once it get;s over the 0.35 and in the middle of the the the normal ranges you will feel better and that doesn't take too long. >T3 LIA 166 (Normal: 60-181) Units: ng/dl This one looks all-right from what I know but I'm not an expert on this sort of thing mabey someone els is better at comparing these Sorry I don't know about the T4 just that is looks a bit bit low yet. I think it's safe to say that somewhere in the middle feel's a person feels not to bad. I remember when I first took Tapazol that is another PTU drug the one I'm on I felt Yuck for the first while and then I remember going back to the doctor over the first few month's and my list of symptoms when I went in dropped from like 36 to 26 and so on.Like I had a very painful left shoulder and I was suprised that left,I do it back on occasion,I remember my eye's starting getting a little pulling feeling at the corners,I don't know what other symptoms you have now but they will go.What symptoms do you have ? Now for anyone reading this do you feel that stress makes the symptoms worse like exaggerates them ? Kit Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2000 Report Share Posted May 24, 2000 Hi do you know if this a private mailing list or not ? Or it saved to the archives ? Thanks I would appreciate it if you know. Kit Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2000 Report Share Posted May 24, 2000 Hellloooo I haven't had any messages in the lasy few days. Is that because nobody has anything to say? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2000 Report Share Posted May 24, 2000 It's been really busy, at work, and my inlaws have been visiting, so i'm not my usually chatty self. I did go for bloodtests the other day, since I was feeling a bit weepy (well, weepy-*er* than usual...). Haven't got the results yet. But I did leave my doc a message, asking for all the lab results of my blood work, since I got this disease. We'll see what happens! Kari Re: Re: best for immune system , Regarding messages, the only ones I have received in the last 4 days is one from and the 2 from you...maybe everyone is just quiet right now? Hopefully. Jody ________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com ------------------------------------------------------------------------ Missing old school friends? Find them here: http://click./1/4055/5/_/585824/_/959176029/ ------------------------------------------------------------------------ ------------------------------------- The Graves' list is intended for informational purposes only and is not intended to replace expert medical care. Please consult your doctor before changing or trying new treatments. ---------------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2000 Report Share Posted May 24, 2000 > Hi Kit, I think (when I am able these days) that it is all archived. > It is, you can find the archives under Messages on your egroups account for the Graves' list. C Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2000 Report Share Posted May 24, 2000 Hi Kit, I think (when I am able these days) that it is all archived. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2000 Report Share Posted May 24, 2000 Hi everybody- There's some exciting research going on. I just haven't had the time to post it. will be particularly interested in this but it involves Type 1 diabetes and I'm not sure which type she has. They've successfully transplanted pancreas cells into 8 patients with severe diabetes. One patient has not needed insulin for 14 months and half the patients haven't for almost a year. And this is going on in Canada! Now this is far from being a regular treatment but before they had dismal results so this is very positive news. And since this was successful, they're expanding their study. This gives us thyroidless patients hope too although it'll be a long time before they consider anything like this in us since not having a thyroid is not considered life-threatening. But once they figure out the risks it entails and if they're found to be minimal. Why not? Almost every therapy that is now routinely used (I can think of one in particular) was considered risky at some point. Take care, Utecht Jody Spitale wrote: > , > Regarding messages, the only ones I have received in the last 4 days is one > from and the 2 from you...maybe everyone is just quiet right now? > Hopefully. > Jody > ________________________________________________________________________ > Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com > > ------------------------------------------------------------------------ > Missing old school friends? Find them here: > http://click./1/4055/5/_/585824/_/959176029/ > ------------------------------------------------------------------------ > > ------------------------------------- > The Graves' list is intended for informational purposes only and is not intended to replace expert medical care. > Please consult your doctor before changing or trying new treatments. > ---------------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2000 Report Share Posted May 24, 2000 Kit, Stress is a huge factor for increasing my symptoms. Things have been pretty stressful for me for the last few weeks and since taking on a high stress short term project (6 weeks) 2 weeks ago I really am feeling and seeing the difference. My right eye gets a bit buggy, my left eye reacts differently, it is hard for me to use the eye muscles to focus it. Walking is painful again, my feet hurt terribly and muscle fatigue is evident and have noticed slight tremors. I should be in great shape when I see my new endo on the 7th of June. The project lasts until the 30th. This week I am making a point of getting some quiet time everyday, even for 15 minutes to visulize relaxation and to do some humming. That is helping. But yes, stress does make it all more apparent. Jody ________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2000 Report Share Posted May 24, 2000 Kit, Stress is a huge factor for increasing my symptoms. Things have been pretty stressful for me for the last few weeks and since taking on a high stress short term project (6 weeks) 2 weeks ago I really am feeling and seeing the difference. My right eye gets a bit buggy, my left eye reacts differently, it is hard for me to use the eye muscles to focus it. Walking is painful again, my feet hurt terribly and muscle fatigue is evident and have noticed slight tremors. ------------------- Thanks Jody are you on PTU med's,or have you had RAI already ? I have not had RAI yet,I'm thinking about it what are the pro and cons of having it or not, anyone who feel like answering I would like to have impute ?I have been on Tapazol about 5 years I guess. As for the stress, it's also makes me more aware of symptoms,I feel the bigger the stress the more intense the symptoms.But I find the symptoms don't last as long, they seem more ,intense for a short period of time.Guess that would just suggest that at that moment I'm handling the stress right. How are you doing today still hanging there ? ;-) Sorry I forget if anyone els on our list is new to PTU treatment and Graves other wise I would ask how they are too today. Kit Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2000 Report Share Posted May 24, 2000 >How are you doing today still hanging there ? ;-) I'll survive. Thanks for asking, Kit. Have a doctor's appointment on Friday, but it's not about Graves'. Why does my life seem to be defined by diseases lately? -- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2000 Report Share Posted May 24, 2000 Have a doctor's appointment on Friday, but it's not about Graves'. Why does my life seem to be defined by diseases lately? -- Can I venture to answer by saying it's new to you just now, but it's going to get acceptable later on.It's funny how our minds just don't want to accept that we have a problem at first and then it does,gradually it does,at first I remember not being able to do what I was used to before as I had so much energy at first before the Tapazol and I wanted that back,now I know my limit's.Relaxation tap's help if you can find some and so does Yoga but I haven't tried it yet.;-) I found the more I learned the better I was able to deal with it.So ask if you have any questions.I went for 20 years undiagnosed. Kit Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2000 Report Share Posted May 24, 2000 Hi , thanks for posting that email. Yes, I have heard of this and it is all very exciting. But diabetes is not a disease of just the inability to make insulin. They are still trying to figure out, I should say that they are still fighting over the use of the pancreas and the nature of diabetes. For example are complications a result of high blood sugars or are they separate diseases? I seem to have heard that the Australians think that kidney disease is a separate disease. I guess these new transplant people will give the community insight on all of these. I laugh when people talk about different diets and how easily some diseases can be controled by special diets. I have also heard a figure that only about 5% of diabetics can adhere to theirs. And of course, blood sugar is not wholly dependant on insulin and diet. The reason most of these people are opting for transplants is they want to be able to eat anything they want. I am still somewhat puzzled by the use of cells from cadavers. We can only use genetically human insulin in this country. The people that want and need to use cow or pork have to get permission from the Ministry of Health to import it. Don't want mad cow disease here! Now can anyone tell me why the islets are not being cloned too and why they are not transplanting the whole pancreas? I might add that several genes are involved in diabetes. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2000 Report Share Posted May 25, 2000 , I think all of us, or many at least think of our lives in aspect of 'before graves' and 'after graves'. For me I still at times dwell on what I am no longer capable of doing as I once was and it makes me very angry...I am learning to let go of the anger though and it is helping a lot. This is a frustrating disease that is not life threatening, therefore does not get the research dollars or attention needed to find a cure or at the very least a better way of treatment and helping us to get back to who we were before graves. There is research going on and there is some treatment, but it is my belief that until someone very big that goes through some of the worst case symptoms and then has the courage to talk about and help bring it to the front lines, then it will be slow going...unless of course it reaches epidemic proportions...that also would get attention. This is just my opinion though. Hang in there and try to have some comfort that those of us fortunate enough to have found this group or others are no longer alone or undiagnosed anymore. It has a name, we are not crazy or hypochondriacs, and those of us together totally understand the roads which others are just beginning their journeys down. For almost 4 years, traveling this road alone was a very frightening and frustrating journey. Hang in there , and take care. Jody ________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2000 Report Share Posted May 25, 2000 Kit, I had RAI 4 years ago on June 7th. When I was finally diagnosed I was in thryoid storm and had been hospitalized in congestive heart failure for 8 days. Signed myself out of the hospital after being told I had 5 different things (changing them each day), not once did the 3 drs. working on me look at my thryoid numbers, which I know were flagged for them. After I left the hospital I called a pulminary specialist, still believing I did have double pneumonia. Saw him 2 days later, told him about my thyroid numbers, he began tests that day, had uptake the next and was diagnosed on Wed. (Mon. being the first day I saw him.) He sent me to an endo in a city about 65 miles away, she told me because of the severity of my GD that I had to choose surgery or RAI and that the decision had to be made that day. After watching a video tape with my husband we decided the RAI was the best choice for me....*IF* I got to make that choice over again today, I would not make that one...not after learning so much about it. But here again, this MY decisions, not yours. You have to make your own choices. Just make sure that you are very comfortable with the choice you make, if you are not, then the choice isn't right for you at the time. In the mean time, keep reading and learning before making any permanent decisions. Today, I would push for the BRT treatment that has spoken about (as well as others)and the successes they are having with this method. That info is in the archives here and well worth reading. Take care, Jody ________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2000 Report Share Posted May 25, 2000 >I think all of us, or many at least think of our lives in aspect of >'before graves' and 'after graves'. Thanks go to Jody and the others who have sent words of encouragement. Maybe I had unrealistic expectations for the PTU. I was hoping that my depression would lift soon after I started taking the anti-thyroid drug. Unfortunately, that hasn't happened. However, I also have hyperparathyroidism, which will be the subject of tomorrow's doctor visit. Both Graves' disease and hyperparathyroidism can cause depression, so maybe after I get the parathyroid condition treated I will feel better. Again, I would like to thank everyone for their support. Sincerely, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2000 Report Share Posted May 25, 2000 , The depression WILL lift in time. I know that first hand. Six months ago I was as low as one can be and still be among the living. I have grasped and held on to the support and encouragement I have found through the internet...also it helps as you learn, the more you learn and understand about this disease, the more things make sense and convince you that YOU ARE NOT CRAZY and you are not imagining things. Having to deal with 2 illnesses will have its crosses, I am sorry you have to deal with the other also. I know nothing about that disease so if you want to share anything I would be happy to learn more from you. You take care and hopefully your trip to the dr. tomorrow will have some successes for you. One other thing to keep in mind, change patience to your middle name...it helps, though it sure is hard to do!!! Jody ________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2000 Report Share Posted May 25, 2000 Hi - It was me, Utecht not (she's in Spain) that posted that. They were transplanting islet cells. And if I remember right, it was by injection so there wasn't the trauma of major surgery. I'm hunting for that article in this mess so I can tell you for sure. It still isn't everything, I know. But it's a start. I kind of posted off the cuff yesterday because of the inactivity. Take care, Utecht Hearn wrote: > Hi , thanks for posting that email. Yes, I have heard of this and > it is all very exciting. But diabetes is not a disease of just the > inability to make insulin. > They are still trying to figure out, I should say that they are still > fighting over the use of the pancreas and the nature of diabetes. For > example are complications a result of high blood sugars or are they > separate diseases? I seem to have heard that the Australians think that > kidney disease is a separate disease. I guess these new transplant > people will give the community insight on all of these. I laugh when > people talk about different diets and how easily some diseases can be > controled by special diets. I have also heard a figure that only about > 5% of diabetics can adhere to theirs. And of course, blood sugar is not > wholly dependant on insulin and diet. The reason most of these people > are opting for transplants is they want to be able to eat anything they > want. I am still somewhat puzzled by the use of cells from cadavers. We > can only use genetically human insulin in this country. The people that > want and need to use cow or pork have to get permission from the > Ministry of Health to import it. Don't want mad cow disease here! Now > can anyone tell me why the islets are not being cloned too and why they > are not transplanting the whole pancreas? I might add that several genes > are involved in diabetes. > > ------------------------------------------------------------------------ > Find long lost high school friends: > http://click./1/4056/5/_/585824/_/959225830/ > ------------------------------------------------------------------------ > > ------------------------------------- > The Graves' list is intended for informational purposes only and is not intended to replace expert medical care. > Please consult your doctor before changing or trying new treatments. > ---------------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2000 Report Share Posted May 26, 2000 Today, I would push for the BRT treatment that has spoken about (as well as others)and the successes they are having with this method. That info is in the archives here and well worth reading. Take care, Jody ----------------- Thanks Jody I'm not very savvy with archives can you give a short explanation of what BRT treatment is ? I wanted to wish good luck with the new PTU she has started and I look forward to seeing if it has improved your symptoms. And before I forget I just wanted to say tomorrow will be fine,not to worry.;-) Don't worry so much about feeling angry it's ok to get angry and it's ok to say your ticked that helps, now that you have told us I'm sure it's already easier to manage.Just having someone who understand makes such a big difference in Graves I find. I had trouble making change for the longest time after I started Tapazol I don't know if that unusual and my spelling has gone down hill too did anyone els notice that ? I also have Osteoporosis does anyone els have that ? Kit Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2000 Report Share Posted May 26, 2000 >>>I'm not very savvy with archives can you give a short explanation of what BRT treatment is ?<<< Hi Kit, I'm can give you a very brief explanation and it comes from my understanding of what I have read in the archives here, mostly from 's posts, but it would be best for you to log onto the list and click on messages, then hit the back button for pages at the top of messages and look for 's posts and the subject matter for BRT. She explains it so very well. My understanding (and if I am not understanding this, any one PLEASE jump in and correct me)of BRT is this, you take ATD's for a period of time and slowly TRH (thyroid replacement hormone) is introduced and you are weaned off of the ATD's, this somehow fools your thyroid into not knowing it is not making the hormone itself. I think then after a period of time you are weaned off the TRH. This is not a quick treatment by any means, but from what I have read has a pretty high success rate. Thats about all I can remember on this Kit, but check the archives because I sure am no athority on ANY of this. I'm still learning too I do know that I came to this group in Feb. and have read posts since then but I have also read most of the archives also and know there are additional posts regarding BRT. Take care and have a wonderful day. The sun is out here today and I am stuck at my computer working, but I still see it Jody ________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2000 Report Share Posted May 26, 2000 > >Reply-To: graves_supportegroups >To: graves_supportegroups >Subject: Re: Re: best for immune system >Date: Fri, 26 May 2000 10:56:43 EDT > > >>>I'm not very savvy with archives can you give a short >explanation of what BRT treatment is ?<<< > >Hi Kit, >I'm can give you a very brief explanation and it comes from my >understanding >of what I have read in the archives here, mostly from 's posts, but it >would be best for you to log onto the list and click on messages, then hit >the back button for pages at the top of messages and look for 's posts >and the subject matter for BRT. She explains it so very well. > >My understanding (and if I am not understanding this, any one PLEASE jump >in >and correct me)of BRT is this, you take ATD's for a period of time and >slowly TRH (thyroid replacement hormone) is introduced and you are weaned >off of the ATD's, this somehow fools your thyroid into not knowing it is >not >making the hormone itself. I think then after a period of time you are >weaned off the TRH. This is not a quick treatment by any means, but from >what I have read has a pretty high success rate. > Thank you Jody for your kindness. Basically it is like you said, but let me point out a little, but important detail: You are not weaned off the thyroid blockers. You take them the whole time IN CONJUNCTION to levo-thyroxine (l-t4) so that the hyperfunction may be corrected AND there is no chance to go hypo or to be yo-yoing from hyper to hypo, which seems to be one of the things that incides in EYE desease development. On april 8th I posted following message to , summarizing what the treatment is about. Around those dates there are more. pasted a longer message I posted some time ago as well as an email I sent to her. ******************************** >>>>>>Subject: Re: ATD'S >Date: Fri, 07 Apr 2000 18:44:05 -0700 > >Where can we read up on this treatment? > >At 09:32 PM 04/07/2000 -0600, you wrote: > >The very high doses could indicatet he doctor is going to be using the > >block treatment. > >That is high doses until she is euthyroid and then the dose is cut and > >T3 is introduced. This is a new avenue of treatment that is being used > >in Europe. > > > > Hi , We don't call it here 'block and replace'. It's simply one of the different protocols used with pills. Briefly: it consists of **combining ATD's (carbimazole in Europe, methimazole in USA) at a high dose (30 to 45 mg/daily) IN CONJUNCTION WITH thyroxine. I mean, ATD's are used alone at the beginning, and once euthyroidism has been reached, i.e. 6 weeks later aproximately, then thyroxine is ADDED to the ATD's The thyroxine will be adjusted to maintain normal thyroid test results. You need to be retested every two months. This avoids wild fluctuations, and therefore less emotional and physical suffering. In addition higher remission rate is reported.<<<< *************************** Best regards, ________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
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