Guest guest Posted January 25, 2000 Report Share Posted January 25, 2000 Ok this is the story. I am trying to get us all legal like. I am trying to form a foundation so we can get awareness AND THEN FUNDING FOR RESEARCH INTO THIS WONDERFUL DISEASE. I have my state legislature claiming he is willing to assist so I will have a lot of paper work to get through. I may have to add other orphan autoimmune illness to the foundation don't know for sure yet what I want from this list is really easy. one what do we name it two- is there a particular symbol that anyone would like to see associated with RP like the wolf is for lupus sort of like a trademark third do we want a particular color associated with us Like purple is for lupus. fourth- pick a month you want associated with us. I am going for a national RP awareness day so we need a specific month Lu you said your son knows a few things about this, tell him we may out him to work. Love and Gentle Hugs, Angie Yesterday will fade and tomorrow will take care of itself. Lord, help me today http://www.geocities.com/acenneno_1999 http://rpolychondritis.tripod.com/index.html http://disabilities-us.com/shad/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2000 Report Share Posted January 25, 2000 In a message dated 01/25/2000 6:33:38 PM Central Standard Time, AngieCATW1@... writes: << Lu you said your son knows a few things about this, tell him we may out him to work. >> you got it....LOL anything I can do I will gladly do just tell me:) He isn't home right now, but I will ask him some stuff and e-mail you with what he told me...it may be a day or two until I see him, I go to bed sometimes before he gets in and he leaves before I get up...LOL I love you Lu Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2000 Report Share Posted January 25, 2000 In a message dated 01/25/2000 9:16:25 PM Eastern Standard Time, Lu1953@... writes: << you got it....LOL anything I can do I will gladly do just tell me:) He isn't home right now, but I will ask him some stuff and e-mail you with what he told me...it may be a day or two until I see him, I go to bed sometimes before he gets in and he leaves before I get up...LOL I love you Lu >> ok thanks Lu I have someone else checking into a few things too Love and Gentle Hugs, Angie Yesterday will fade and tomorrow will take care of itself. Lord, help me today http://www.geocities.com/acenneno_1999 http://rpolychondritis.tripod.com/index.html http://disabilities-us.com/shad/ You don't stop laughing because you grow old, you grow old because you stopped laughing. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2000 Report Share Posted January 25, 2000 In a message dated 1/25/00 6:33:38 PM Central Standard Time, AngieCATW1@... writes: << is there a particular symbol that anyone would like to see associated with RP like the wolf is for lupus sort of like a trademark >> Angie, how about Dumbo Ears? No Joke Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2000 Report Share Posted January 25, 2000 In a message dated 01/26/2000 2:41:38 AM Central Standard Time, Idigflower@... writes: << Angie, how about Dumbo Ears? No Joke >> LOL good one LOL... but you would have to go thru Disney to do that. Lu Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2000 Report Share Posted January 26, 2000 In a message dated 01/26/2000 3:41:29 AM Eastern Standard Time, Idigflower@... writes: << Angie, how about Dumbo Ears? No Joke >> I don't think so I don't want anyone associating us with a cartoon character or laughing at the symbol. Then I would get ereally nuts Love and Gentle Hugs, Angie Yesterday will fade and tomorrow will take care of itself. Lord, help me today http://www.geocities.com/acenneno_1999 http://rpolychondritis.tripod.com/index.html http://disabilities-us.com/shad/ You don't stop laughing because you grow old, you grow old because you stopped laughing. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2000 Report Share Posted January 26, 2000 In a message dated 1/26/00 1:40:18 PM Central Standard Time, AngieCATW1@... writes: << Dumbo Ears? No Joke >> I don't think so I don't want anyone associating us with a cartoon character or laughing at the symbol. Then I would get ereally nuts >> LOL, I got you angie LOL, Love to pull your chains Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2000 Report Share Posted January 26, 2000 In a message dated 01/26/2000 8:49:59 PM Central Standard Time, Idigflower@... writes: << Dumbo Ears? No Joke >> I don't think so I don't want anyone associating us with a cartoon character or laughing at the symbol. Then I would get ereally nuts >> LOL, I got you angie LOL, Love to pull your chains >> LOL , Angie will tell you like it is...LOL oops I see that frying pan coming at me...LOL I sure do love her...... Lu Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2000 Report Share Posted January 27, 2000 Angie, maybe this is not a good idea, but since our disease is rare how about using a rare butterfly or bird, flower or something else that is rare. Well, just a thought. Love and God Bless, Ronnie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2000 Report Share Posted January 27, 2000 In a message dated 1/27/00 4:22:22 PM Central Standard Time, Ronniegrl@... writes: << but since our disease is rare how about using a rare butterfly or bird, flower or something else that is rare. Well, just a thought. Love and God Bless, Ronnie >> Ronnie, I like that idea!!! Bird or Flower (Wilted maybe) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2000 Report Share Posted January 27, 2000 , " wilted " that's a thought. Love and God Bless, Ronnie In a message dated 1/27/00 10:39:36 PM GMT Standard Time, Idigflower@... writes: << Ronnie, I like that idea!!! Bird or Flower (Wilted maybe) >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2000 Report Share Posted January 27, 2000 In a message dated 01/27/2000 5:39:35 PM Eastern Standard Time, Idigflower@... writes: << using a rare butterfly or bird, flower or something else that is rare. Well, just a thought. Love and God Bless, Ronnie >> Ronnie, I like that idea!!! Bird or Flower (Wilted maybe) --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2000 Report Share Posted January 27, 2000 Idigflower@... wrote: > From: Idigflower@... > > In a message dated 1/26/00 1:40:18 PM Central Standard Time, > AngieCATW1@... writes: > > << Dumbo Ears? No Joke >> > What about a guinea pig. We have two (besides me) and they have floppy ears, too? Or a guinea pig with dumbo ears? :-) What do you think of the moon as our symbol? (Even it´s no more unknown.) Does it remind us too much of certain things? Or what about Mr. Moon with tomatoes as eyes, cauliflowers as ears and a saddle as the nose? :-) [image] [image] [image] [image] Anyone good in pic processing (or how do you call it?) ? If you get the pics through, try to create a typical RPer. :-) Terveisin, Arto PS. You are right, I ´m a bit sick. Some virus (?), the first time this year. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2000 Report Share Posted January 27, 2000 Angie, sure, something recognizable, maybe something that, also, represents hope. Love and God Bless, Ronnie In a message dated 1/28/00 1:43:52 AM GMT Standard Time, AngieCATW1@... writes: << rare BUT recognizable! >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2000 Report Share Posted January 28, 2000 In a message dated 01/28/2000 5:45:40 AM Eastern Standard Time, Ronniegrl@... writes: << Angie, sure, something recognizable, maybe something that, also, represents hope. Love and God Bless, Ronnie In a message dated 1/28/00 1:43:52 AM GMT Standard Time, AngieCATW1@... writes: << rare BUT recognizable! >> >> Since this disease affects men and women I can't imagine too many guys going for a butterfly or a bird, I may be wrong so please let me know if I am. Hope has to be expressed as well I agree what is rare and unique that crosses the gender lines? Love and Gentle Hugs, Angie Yesterday will fade and tomorrow will take care of itself. Lord, help me today http://www.geocities.com/acenneno_1999 http://rpolychondritis.tripod.com/index.html http://disabilities-us.com/shad/ You don't stop laughing because you grow old, you grow old because you stopped laughing. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2000 Report Share Posted January 29, 2000 In a message dated 01/27/2000 4:34:07 PM Eastern Standard Time, Arto.Toikka@... writes: << What do you think of the moon as our symbol? (Even it´s no more unknown.) Does it remind us too much of certain things? Or what about Mr. Moon with tomatoes as eyes, cauliflowers as ears and a saddle as the nose? :-) >> O wonder in my mind what that image would look like a moon with tomato eyes etc. but we need a recognizable symbol that crosses gender the moon, or universe has possibilities we are as unknown as the universe Love and Gentle Hugs, Angie Yesterday will fade and tomorrow will take care of itself. Lord, help me today http://www.geocities.com/acenneno_1999 http://rpolychondritis.tripod.com/index.html http://disabilities-us.com/shad/ You don't stop laughing because you grow old, you grow old because you stopped laughing. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2000 Report Share Posted January 29, 2000 ok so far the choices seem to be 1. rare flower 2. butterfly 3.moon 4. polar bear 5. RP encased in a heart 6. rare bird Love and Gentle Hugs, Angie Yesterday will fade and tomorrow will take care of itself. Lord, help me today http://www.geocities.com/acenneno_1999 http://rpolychondritis.tripod.com/index.html http://disabilities-us.com/shad/ You don't stop laughing because you grow old, you grow old because you stopped laughing. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2000 Report Share Posted January 29, 2000 oh I like polar bears and that symbolism makes good sense to me. Love and Gentle Hugs, Angie Yesterday will fade and tomorrow will take care of itself. Lord, help me today http://www.geocities.com/acenneno_1999 http://rpolychondritis.tripod.com/index.html http://disabilities-us.com/shad/ You don't stop laughing because you grow old, you grow old because you stopped laughing. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2000 Report Share Posted January 29, 2000 In a message dated 01/26/2000 9:54:24 PM Eastern Standard Time, Lu1953@... writes: << Angie will tell you like it is...LOL oops I see that frying pan coming at me...LOL I sure do love her...... >> I am expert at baseball bats too, have enough of them in the house already Love and Gentle Hugs, Angie Yesterday will fade and tomorrow will take care of itself. Lord, help me today http://www.geocities.com/acenneno_1999 http://rpolychondritis.tripod.com/index.html http://disabilities-us.com/shad/ You don't stop laughing because you grow old, you grow old because you stopped laughing. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2000 Report Share Posted January 29, 2000 Angie How about a polar bear there is an artist who lives around here who is famous for her polar bears world wide She draws them in colored pencil and her calenders and cards are seen alot of places especially in the US I met her once and she said that alot of native type religions as well as healers etc use the polar bear for visual imaging for healing it represents strength and healing as well as the fact that it has survived unbelievable conditions in the cold and ice and all. I think that being such a massive strong survivor would appeal to men too. What do you think. She has a shop rather a museum where she sells polar bear art cards pins shirts etc. Myabe youv'e heard of her she is Barbara Stone. Sue P. Re: need input > From: AngieCATW1@... > > In a message dated 01/28/2000 5:45:40 AM Eastern Standard Time, > Ronniegrl@... writes: > > << Angie, sure, something recognizable, maybe something that, also, > represents > hope. Love and God Bless, Ronnie > > In a message dated 1/28/00 1:43:52 AM GMT Standard Time, AngieCATW1@... > writes: > > << rare BUT recognizable! >> > >> > Since this disease affects men and women I can't imagine too many guys going > for a butterfly or a bird, I may be wrong so please let me know if I am. Hope > has to be expressed as well I agree what is rare and unique that crosses the > gender lines? > > Love and Gentle Hugs, > Angie > Yesterday will fade and tomorrow will take care of itself. Lord, help me > today > http://www.geocities.com/acenneno_1999 > http://rpolychondritis.tripod.com/index.html > http://disabilities-us.com/shad/ > You don't stop laughing because you grow old, you grow old > because you stopped laughing. > > --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2000 Report Share Posted January 30, 2000 In a message dated 01/30/2000 4:16:28 PM Central Standard Time, Arto.Toikka@... writes: << I think butterfly is a symbol for SLE/Lupus, at least here in Finland. >> Eceryone the butterfly represents the butterfly rash you get with Lupus. But I'm sure most of you already knew that, I like everyone's ideas but I still think we need something that would connect to this illness....What I don't know, but when one of you get it right, I'll know! LOL I love u all Lu Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2000 Report Share Posted January 30, 2000 Hei Angie! What about that (´s) " Never give up " frog? We are waiting for a prince/princess, who would " kiss us healthy " , hopefully bold and beuatiful, too. I think butterfly is a symbol for SLE/Lupus, at least here in Finland. Kwack, kwack! (Is this English? Here they say kvak, kvak) :-) Arto AngieCATW1@... wrote: > From: AngieCATW1@... > > ok so far the choices seem to be > 1. rare flower > 2. butterfly > 3.moon > 4. polar bear > 5. RP encased in a heart > 6. rare bird > > Love and Gentle Hugs, > Angie > Yesterday will fade and tomorrow will take care of itself. Lord, help me > today > http://www.geocities.com/acenneno_1999 > http://rpolychondritis.tripod.com/index.html > http://disabilities-us.com/shad/ > You don't stop laughing because you grow old, you grow old > because you stopped laughing. > > --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2000 Report Share Posted January 30, 2000 Arto, I just want you to know that your frog has given me so much comfort these past few days. I have been very worried about my dad and I have held my necklace and ran the frog back and forth across the chain and I don't even realize I'm doing it. It has helped calm me so much and I never take it off. It's very special as you are to me. Thank you for your kindness, >>>>>>>>>>>>>>>>>> Hei Angie! What about that (´s) " Never give up " frog? We are waiting for a prince/princess, who would " kiss us healthy " , hopefully bold and beuatiful, too. I think butterfly is a symbol for SLE/Lupus, at least here in Finland. Kwack, kwack! (Is this English? Here they say kvak, kvak) :-) Arto Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2000 Report Share Posted January 30, 2000 In a message dated 01/30/2000 5:16:24 PM Eastern Standard Time, Arto.Toikka@... writes: << Hei Angie! What about that (´s) " Never give up " frog? We are waiting for a prince/princess, who would " kiss us healthy " , hopefully bold and beuatiful, too. >> I liked s frog but I don;t think everyone on the list did. BTW who still has that frog? I lost it when my computer went down in June Love and Gentle Hugs, Angie Yesterday will fade and tomorrow will take care of itself. Lord, help me today http://www.geocities.com/acenneno_1999 http://rpolychondritis.tripod.com/index.html http://disabilities-us.com/shad/ You don't stop laughing because you grow old, you grow old because you stopped laughing. To 's Friends: Just click on the link below, and sign up for an account at X.com. It takes less than two minutes, and we'll put $20 cash into your account to get you started. What do you get? * FREE $20 cash deposited in your checking account * FREE money transfers (send money instantly to anyone's email) * No obligation, no minimum balance, no monthly fees * Super-high interest on any money in your checking account * FREE starter checks, and a FREE VISA debit card. * plus, a whole lot more! So click on this link right now, and come get your $20! https://www.x.com/new_account.asp?Referrer=angiecatw1aol ********************************************************************** Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2000 Report Share Posted January 30, 2000 In a message dated 01/30/2000 5:40:40 PM Eastern Standard Time, Lu1953@... writes: << .What I don't know, but when one of you get it right, I'll know! LOL I love u all >> well lu put that damn thinking cap on I need to come up with something I have someone waiting to do some work on it Love and Gentle Hugs, Angie Yesterday will fade and tomorrow will take care of itself. Lord, help me today http://www.geocities.com/acenneno_1999 http://rpolychondritis.tripod.com/index.html http://disabilities-us.com/shad/ You don't stop laughing because you grow old, you grow old because you stopped laughing. To 's Friends: Just click on the link below, and sign up for an account at X.com. It takes less than two minutes, and we'll put $20 cash into your account to get you started. What do you get? * FREE $20 cash deposited in your checking account * FREE money transfers (send money instantly to anyone's email) * No obligation, no minimum balance, no monthly fees * Super-high interest on any money in your checking account * FREE starter checks, and a FREE VISA debit card. * plus, a whole lot more! So click on this link right now, and come get your $20! https://www.x.com/new_account.asp?Referrer=angiecatw1aol ********************************************************************** Quote Link to comment Share on other sites More sharing options...
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