New member

[Guest guest]

Welcome to Graves support. We are not a conventional group. I sure you

will find

this board most supportive and you will be surprised with how much

information is to be had here.

[Guest guest]

Yes sugar subs like sweetNlow, equal just about any there is a web

site you can order the new splenda or you can get stevia at a health

food store or GNC. Cream yes. Vegs are limited to the list. :)Sue

--- Donka wrote:

>

>

> I have a few questions

> what can I put in my tea? sugar substitute? cream?

> can I use salad dressings?

> vegetables are limited?

>

> susan birney wrote:

>

> >

> >

> > Donna I can send you the first two weeks worth of

> things you can eat

> > with the rules of Induction as it is called if you

> want it,so you dont

> > have to rush out.:)Sue

> > --- Donka wrote:

> > >

> > >

> > > Hi my name is Donna. I want to start the diet

> today

> > > but as of yet have not

> > > been able to find the book. A friend has one but

> > > forgot to bring it to me

> > > last night..... so today I will travel to look

> in

> > > book stores. I am anxious

> > > to get started!

> > >

> > > susan birney wrote:

> > >

> > > >

> > > >

> > > > Reny have you gottn a pocket size Dr A carb

> > > counter you can pick them

> > > > up at borders for around 5 dollars or on

> > > www.amazon.com. :)Sue

> > > >

> > > > --- Reny Wall wrote:

> > > > >

> > > > >

> > > > > HI! My name is Reny. I began Atkins on

> June

> > > 1.

> > > > > Altho I gave it my best shot without a carb

> > > > > book, my first week was filled with errors

> and I

> > > > > went in and out of ketosis. The second and

> third

> > > > > weeks I lost 17 lbs total. At the end of my

> > > third

> > > > > week, I marinated some chicken breasts, and

> took

> > > > > them to work for lunch. I was suddenly out

> of

> > > > > ketosis for 4 days, and realized it was, of

> all

> > > > > things, the chicken! (because of the

> marinade.)

> > > > > Well, mistakes are for learning. I am back

> in

> > > > > ketosis tonight.

> > > > > I am really excited to have so much

> support

> > > and

> > > > > encouragement available on-line! Thanks!

> > > > >

> > > > > ---------------------------

[Guest guest]

what is the difference between splenda and stevia?

Tina

----------

>

> To: Atkins-A-WayOfLifeonelist

> Subject: Re: New member

> Date: Monday, June 28, 1999 7:56 AM

>

>

>

>

> Yes sugar subs like sweetNlow, equal just about any there is a web

> site you can order the new splenda or you can get stevia at a health

> food store or GNC. Cream yes. Vegs are limited to the list. :)Sue

> --- Donka wrote:

> >

> >

> > I have a few questions

> > what can I put in my tea? sugar substitute? cream?

> > can I use salad dressings?

> > vegetables are limited?

> >

> > susan birney wrote:

> >

> > >

> > >

> > > Donna I can send you the first two weeks worth of

> > things you can eat

> > > with the rules of Induction as it is called if you

> > want it,so you dont

> > > have to rush out.:)Sue

> > > --- Donka wrote:

> > > >

> > > >

> > > > Hi my name is Donna. I want to start the diet

> > today

> > > > but as of yet have not

> > > > been able to find the book. A friend has one but

> > > > forgot to bring it to me

> > > > last night..... so today I will travel to look

> > in

> > > > book stores. I am anxious

> > > > to get started!

> > > >

> > > > susan birney wrote:

> > > >

> > > > >

> > > > >

> > > > > Reny have you gottn a pocket size Dr A carb

> > > > counter you can pick them

> > > > > up at borders for around 5 dollars or on

> > > > www.amazon.com. :)Sue

> > > > >

> > > > > --- Reny Wall wrote:

> > > > > >

> > > > > >

> > > > > > HI! My name is Reny. I began Atkins on

> > June

> > > > 1.

> > > > > > Altho I gave it my best shot without a carb

> > > > > > book, my first week was filled with errors

> > and I

> > > > > > went in and out of ketosis. The second and

> > third

> > > > > > weeks I lost 17 lbs total. At the end of my

> > > > third

> > > > > > week, I marinated some chicken breasts, and

> > took

> > > > > > them to work for lunch. I was suddenly out

> > of

> > > > > > ketosis for 4 days, and realized it was, of

> > all

> > > > > > things, the chicken! (because of the

> > marinade.)

> > > > > > Well, mistakes are for learning. I am back

> > in

> > > > > > ketosis tonight.

> > > > > > I am really excited to have so much

> > support

> > > > and

> > > > > > encouragement available on-line! Thanks!

> > > > > >

> > > > > > ---------------------------

[Guest guest]

Dr. Eades who wrote the Power Protein Plan Says if you suffer from Weakness,

Muscle Cramping, Fatigue, and Breathlessness your potassium levels have

fallen too low, which can happen at the beginning of the diet. He recommends

adding over the counter salt substitutes to your diet (Morton's Lite Salt or

NoSalt brand) Or taking Twinlab -potassium Aspartate 99mg

OR twinlab liquid K Plus 99mg OR KAL-KCL 99mg.

If you are taking high blood pressure medicine, he suggestes asking the

pharmacist or your doctor before you supplement potassium. (Page 183)

[Guest guest]

Hi and welcome to the list. Look forward to getting to know you

better. I have three children, the youngest has CF. is 5.5 and she

also has Down Syndrome. This list has been an excellent source of

information but more importantly an excellent source of support. Hope to

hear from you again soon.

Sally

Mom of na 11, 9 & 5 w/cf & ds

[Guest guest]

In a message dated 7/30/99 7:58:30 AM Central Daylight Time,

jiffy@... writes:

<< Way to Go!!!!!!! I'm at 166 right now.. I keep tetering back and forth

from 163 to 166 - I cant get it to stay down!!! I think alot of it is

water retention.. maybe I'm drinking too much!! ha ha

Anyway- Keep up the good work, and give yourself a big pat on the back! >>

Good job ladies!! I have not weighed myself so instead I have been looking

at myself and was able to wear a short summer sweater for the first time and

didn't feel like my shoulders and chest were too big to wear it, plus hips

sticking out. I am very happy so I know I am making progress without

weighing in. I also noticed that Istart out in moderate ketosis but by the

time I go to bed it is trace or small. Must be the liquids I am consuming or

something. Doesn't matter, I am HAPPY!!!!! BTW, I never loose my bust (I

wish I did though) but I loose the big shoulders and arms though!

Jen

[Guest guest]

LOL Thats because all the men have to do is play with them they dont

have to carry them. Sue:)

--- BEldred@... wrote:

> From: BEldred@...

>

> LOL. I know just what you ladies mean. I have

> always been " well-endowed "

> there. And since gaining so much weight they are

> HUGE. :-) I am hoping I

> will lose there by the time I reach goal. I liked

> my nice sized C cups on my

> 5'4 " frame when I was at that weight. LOL. But I'm

> not holding my breath.

> I come by these things naturally, my mom is the same

> way. She just last week

> went and had a breast reduction done because she

> felt so bad. She was having

> alot of pain in her shoulders and back. Not fun.

> :-( My hubby said he

> never heard of women who wished they were SMALLER.

> LOL.

>

> Bev in MS

> 244/226/140

> 6-12-99

>

> << Beware!!!!!!!!!!!!!!!!!!!!!!!!!!! I never loose

> it there. Some people

> think

> its great, but sometimes it's a curse because like

> other people who have

> hard

> time finding things that fit, it's a real pain when

> you try to find shirts

> that fit too! >>

>

> ---------------------------

[Guest guest]

LOL Maybe I should add that to my goal in my sig line...like a dream to be

a C cup again.

How does it look?

Bev in MS

244/228/140

DD?/DD/C -- LOL!!!!

<< Bev, a C cup sounds good to me. I wish mine were that size. That would be

perfect for me. >>

[Guest guest]

In a message dated 8/8/99 8:04:53 AM Central Daylight Time,

suebirney@... writes:

<< Looking forward to reading your posts, hopefully, I can be of some help

to

some of you.

Kathy Hamlett >>

WELCOME KATHY!!!! So glad you are doing the Atkins diet!! You will get a

lot of email full of support and encouragement!!!

[Guest guest]

Welcome Kathy and good luck!!!!!!!!!!!!

170/145/125

4/9/99

[Guest guest]

Welcome Kathy! Just curious here, did you have e-mail support when you

were on Atkins originally?

Lyndia

Alabama

Atkins Way of Life since 6/14/99

" Only cat lovers know the luxury of fur coated, musical hot water bottles

that never go cold "

meet my family at http://www.geocities.com/Heartland/Park/8396/

[Guest guest]

, kjedzie's symptoms at first were Pneumonias,

adalactasis, very frequent major sinus infections and

croup. Once she passed two years old she has only

shown sinus infections periodically. We wre told that

possibly one of us could have another mutation flyoing

aroud. We actually qualified for a study at baylor

were they did a more extensive test, but it was during

our crazy time, and I/m not even sure what the outcome

was. Anyway, it was left that Kedzie could be the of

the few people who show symptoms as a carrier, but

that it most likely could be treated symptomatically

and it should not shorten her life. Let me tell you,

it's always in the back of my mind. Kedzie has no GI

problems. In Chicago they would not do the nasal test.

They said she was too young. Kylie though is very tiny

and has athsma. Her sweat tests have been 31 and 39.We

have been told she is just a carrier, but I worry

about her too. Most days I think that, compared to

jonah, they have nothing. They will be fine. On other

days I worry that I will outlive all of my children.

ISN " T THAT AWFUL!! W e had decided finally to let the

testing stop because they are ok right now. I just

hope that in years to come, we won't go through this

again. For now, we just want to live! Thanks, Michele

--- wrote:

> rom:

>

> Okay, I should add that Mo is one of the major

> CAUSES of uncontainable mirth

> (and thus the " peed-my-pants-laughing " syndrome some

> list members have

> complained of). No, really Mo, we're not laughing

> AT you, we're laughing

> WITH you, (he, he, he). Keep up the good work :-)

>

>

>

> ---------------------------

[Guest guest]

Hi ,

Just a quick message to say hi and welcome. It's always nice when someone

new joins in. Where are you located?

I have 2 children, is 10, and has CF. is 2 and does not.

Life is interesting and challenging too. We live in a suburb of Los

Angeles.

Best wishes,

new member

> From: NatsPots@...

>

> hi

> my name is natalie. i have 2 kids with cystic fibrosis madelyne 7 and

ethan

> 5. i just found this message board. the kids have always been pretty

> healthy, but it looks like ethan will be going on iv's for the first time

> very soon. oral antibiotics just don't work anymore. i look forward to

> reading these posts.

>

> natalie

> mom of

> madelyne 7wcf & ethan 5wcf

>

> ---------------------------

[Guest guest]

And I live in a rural area too.

[Guest guest]

Hi Irene!

Welcome to the list!! Urticaria@... has now moved to urticaria@Egroups - there are over 300 people on that list and I am happy to subscribe you there if you would like. A couple of us are hanging around on listbot to point new members in the Egroups direction.

I find it interesting that your doctor has said he can't fund any more hospital appointments for you! I think that's awful! From your message I gather you're in the UK. Same here, and I must say I'm becoming increasingly dissapointed with the level of care we are getting! May I ask, what tests exactly have been run on you? He is probably right in saying you should eat what you like and go where you like, but unlike him I say that because it is possible that your reactions are caused by something other than food. And I don't mean histamine levels in the blood either - I mean conditions such as H-pylori, Lupus, thyroid, root canal treatment....the list is long!

It always makes me laugh a bit too when I hear stories about patients getting fobbed off because of 'funding' - I mean what's the alternative? You just keep on going back and back and back for more and more and more drugs and taking up your doctors 'valuable' time. It's patronising and it's inappropriate for him to make you feel like you 'cost' too much. Plus, I think it's wrong of your doctor to start throwing the budget thing at you anyway. You're ill, and budgets are really your doctors problem and not your concern! Don't stay sick because your doctor has to balance the books - it's bad doctoring, and if that doctor can't do any more for you, then he should refer you to somebody that can!

I note also that you are talking Telfast (fexofanadine???). That's a fairly 'new' drug in the UK and is supposed to be better than others at tackling urticaria. HOWEVER (and here I go again!!), have you considered taking the H1/H2 combination of anti-histamines? One example being zyrtec (H1) and zantac (H2) ??

In any case I'm really pleased that you found the urticaria group - even if it has moved!! - so please do let me know if you would like subscription to the group at it's new location. If you'd prefer to subscribe yourself, please go to www.nerosworld.com/icus and scroll down on the first page; there's a link there to Egroups.

Very best regards, and sorry to ramble so!

Edinburgh

New Member

Urticaria

Thank you for the welcome to the urticaria discussion list.

I've had CIU for 25 years now, and I could write a book.

When I first ever got it, I had it constantly for months, now it's just with me most of the time. It used to frighten me, now at times it just gets me down.

Initially the doctor said that I was obviously allergic to something and gave me antihistamine tablets. It went on and I was referred to the skin clinic at hospital. Over 10 years I was put on every kind of exclusion diet you can think of, nothing helped. While I was on holiday some years ago I met a sufferer who suggested I asked my doctor to send meGuys Hospital in London where they have an allergy specialist department. They kept me for the day, done every test that I'm sure you've all had and told me to eat what I like, go where I like, do what I like because everything I eat or come across will cause an allergic reaction because my histamine levels are too high in the blood. He said the only solution was to keep taking antihistamine to keep the levels low. Has anyone else ever been told this. Now my doctor is completely fed up with me and told me I can have any antihistamine I want but he can't fund me to any more hospital appointments. Not that I want them, I'm just living with it and when I have a good day, I'm grateful. I wish somebody could say to me, " you are allergic to this, avoid it and you'll be cured" but nobody can. At the moment I'm taking 2 x 180mg of Telfast which relieves the itching, but doesn't stop me breaking out. I have in the past been given predisolane but on my last course I was so ill because of the drug, it was actually worse than my allergies. My immune system broke down and I had a perforation in my stomach. My doctor will not prescribe predisolane again. I could go on and on about the misery this thing causes me but at least it's nice to share with people who understand. Thanks for reading.

Irene

To unsubscribe, write to urticaria-unsubscribe@...______________________________________________________________________Start Your Own FREE Email List at http://www.listbot.com

[Guest guest]

Hi again Irene!

Re the H1/H2 combination, you might need to explain it to him, although really you shouldn't!! It seems that a lot of doctors treat the symptoms of the urticaria and just dish out a prescription for one anti-histamine in the belief that this will stop your itching. What they should really be doing it trying to treat - and find out - the cause of the reaction and stop it happening in the first place. If you are just taking one anti-histamine then histamine release is only being stopped from one receptor - the other one can happily carry on chugging it out.

Your doctor shouldn't have a problem with the principal of this. It's basic. If not - get another one!

Regards

Re: New Member

Hello again

I know I've just e.mailed you, I'm reading all the e.mails I've been sent and found this one of yours, thanks for it. My telfast is not working at the moment. I'm taking 3 a day and so consequently very tired. Thanks for the suggestion of H1/H2. I have tried both of these but individually. I'll get some and try them together. Will the doctor know what I'm talking about? He has never ever suggested that I take a combination of drugs. I wonder if it's heredity? I have an aunt who is 63 and has it and my late aunt also had it. My Dad also had allergies, although he knew he was allergic to seafood. If he avoided it, he was OK. I note you live in Edinburgh, lovely place. I come from Paisley in Renfrewshire but moved here many years ago.

Regards

Irene J

[Guest guest]

Dear in KC, MO Area;

Unfortunately, I don't think all Doctors believe in Candida. I did my

investigating on the internet, at the book store and at the health food

store. I have suspected I had candida for awhile now. I am not sure what I

can put in this email (as I am new and unfamiliar with the rules). Look up

Candida to start on the Internet. There is LOTS to read! Every Candida

diet is different. Basically, I am only eating vegies (except tomatoes &

potatoes), NO fruit, NO simple carbohydrates (white rice, " normal " pasta,

potatoes, ALL sugars etc.). I am staying away from dairy (sort of - am

eating some plain yoghurt). I love simple carbohydrates like white rice but

found buckwheat tastes almost the same. I eat buckwheat, quinoa, and

amaranth, some raw nuts (pecans, walnuts, and almonds - but only fresh from

a busy store). I also eat fish and some chicken. I try and eat at least 4

times a day. I try and purchase all of my vegies from a reputable organic

grower. As this diet is sort of a cleanse as well all food should be in its

purest form (no pesticides or synthetic fertilizers). Let me know if you

want names of books I have purchased although you can get most of the

information you need for free through health food stores and the internet.

I am also taking LOTS of multivitamins every day from a reputable source.

They are not drug store vitamins. I'll keep you posted on my condition.

Aside from the hives, since I started the diet a week ago, I must say I feel

like a million bucks! Too bad I have to " ruin " it be scratching.

Best of luck,

Louise

________________________________________________________________

YOU'RE PAYING TOO MUCH FOR THE INTERNET!

Juno now offers FREE Internet Access!

Try it today - there's no risk! For your FREE software, visit:

http://dl.www.juno.com/get/tagj.

This list is in the service of those who suffer from Chronic Urticaria

(hives). We strive to support and lift each other as a worldwide

cyber-family.

We share whatever needs to be shared to help one another in our struggle

with Chronic Urticria.

Any posting that is off the main topic of Chronic Urticaria, we post with a

prefix of NCU -. This is done out of respect for those who do not wish to

read such postings.

[Guest guest]

Welcome, Cara. I'm the mother of 15-year-old twins (not identical). I also

participated in a research study, very interesting experience. Nice part was

getting free medical care for the duration, and free medications. Let us

know how it goes, if you decide to participate in the one your dr.'s

referring you to. Hang in there! - Jackie

________________________________________________________________________

Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com

[Guest guest]

Cara,

I would also be interested in getting the information on the research group.

If possible, could you post on this site when you get more info or a number

to contact? My doc just discussed trying to find somewhere that would take

me as a case study.

in Michigan

[Guest guest]

I have to go to a Disability Doc next monday in KC to prove I am notlieing about my hives and my MS..again..for about the fourth time. Iwish for my sake they were right, that all this is just a figment of myimagination. Don't we all? Any suggestions on what to do before my Docvisit next Monday would be greatly appreciated.Thanks for being so supportive again, in KC, MO Area Gather pictures and more pictures and then more pictures.

Seems that that speaks where we can't. Print and take the famous REAR.

That should do the trick.

LOL

~Phil~

[Guest guest]

a,

I'm glad to see you joined the mailing list. How is Noah doing?

The first thing I can say about having the DBB full time for 3 months is

to buy clothing that unsnaps all around the crotch. It will make diaper

changes so much easier. There are other tips all through the archives

on here. Feel free to look through them or ask whatever questions come

to mind.

& Jakob

pbrown@... wrote:

> Hello Everyone,

>

> I am so excited to have a place to come and chat with other parents

> about my son's clubfeet. We just can't say enough about Dr. Ponseti

> and the parents that posted their stories on the U of Iowa web site.

>

>

> We just recently spent a month at the RMH seeing Dr. Ponseti.

> He did a series of 4 cast on my son. The heel cord procedure was

> done Monday, November 6. We are now waiting to take the cast off and

> start wearing the shoes.

>

> IF you have any advice about wearing the shoes for the next 3 months,

> please let us know.

>

>

> a

>

>

>

> eGroups Sponsor

>

>

[Guest guest]

Hi Liz, my name is and I got sick Nov2001 as well..

Welcome to the group.. I hope we can be of some help to you, I know we can show you support... as we have all been were you are.... I did recieve my disability but it was in March of this year.and I applied Jan 2002... just hang in there keep all your information..and have you a lawyer that is willing to help you.. not just take your money....

Good luck to you, and if you need anything questions, about meds, symptoms, etc... this is a very informative group.. we have a couple of doctors, lots of nurses, teachers... so just ask away....

Big Hug,

-- new member

Hi I'M Liz and a new member of this group. I already received a whole

bunch of emails and they were so helpful. I have been Battling this

disease since Nov 2001. My symptoms are getting worse day by day.

I've changed doctors so many times. Many don't understand what I am

going through.I'm on a ton of different drugs and my anti-seizure

meds are starting not to work like they used to. I'm searching for a

neurologist in the New Jersey, North East PA, or manhattan

area.Please send me some suggestions or what doctors I should be

looking for. After the diagnosis of sarcoid, I was Diagnosed with

Fibromyalgia secondary to sarcoid ( no lung involvement yet ) but

many many seizures and loss of consciousness and pain all over on a

daily basis. I haven't been able to work since Nov 2001 and I'm

still fighting disability. Denied twice and now waiting for hearing.

Feel free to write me. I'm taking this one day at a time, being

grateful for each day, whether it's and good day or a bad day.

God bless you all. Praying for healing......LIZ

[Guest guest]

Hi Liz and welcome! I wish that I could help you out on finding good

doctors, but I live all the way down in south Florida. But I'm sure you'll

find some useful information on this list. There are a lot of

knowledgeable folks here.

Best wishes,

Neisa

[Guest guest]

Liz dear here is the eye doc. Dr. Larry Frohman 90 Bergen st

suite 6162 Newark, New Jersey. He is good with sarc eye

problems......Quint

[Guest guest]

quint!!!

i have been to dr frohman before!! he is a great doctor. i think i have

seen just about everyone in ny and nj.

carrots

>From: sarcdog@...

>Reply-To: Neurosarcoidosis

>To: Neurosarcoidosis

>Subject: Re: new member

>Date: Sat, 2 Aug 2003 15:47:59 -0400 (EDT)

>

>Liz dear here is the eye doc. Dr. Larry Frohman 90 Bergen st

>suite 6162 Newark, New Jersey. He is good with sarc eye

>problems......Quint

>

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