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  • 6 months later...

In a message dated 8/12/00 10:45:25 PM !!!First Boot!!!, Pkskate@...

writes:

<< I am very discouraged right now, but I hope I have made a friend in you.

Thank you for responding to my note. Pkskate@... >>

You have made many friends. I am not sure where you live, but hopefully, one

day I can come help you to set up a support group, symposium, or heck, just

visit!

Karyn

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In a message dated 8/13/00 4:14:45 AM !!!First Boot!!!, writes:

<< Now I know I have friends out there. Its hard to talk to people who don't

understand about the continual pain and upset. I was getting to the end of

my rope; now I feel better. God bless you for answering my email. I don''t

feel alone anymore! Love, Patti >>

Patti,

You are absolutely right in knowing that you have friends here. It is

extremely difficult to talk to someone who doesn't have a clue. The problem

that I and many others have is that we " present " very well. So many people

say that I don't look sick. The healthcare professionals certainly have an

opinion about the pain medication I take. if they don't say anything, it is

definitely in their look on their faces. So, this Network provides a forum

where we can do that.

I am glad that you are here.

Karyn

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In a message dated 8/16/00 11:58:43 PM Eastern Daylight Time,

dhollis062@... writes:

<<

Shirley,

I am saddened to hear that your best friend turned her back on you when you

needed her most. I have had that experience with my family and it is very

difficult to deal with. But I have had to come to the place of just knowing

that they will not be there for me as I desire them to be. I just need to

trust that when I need someone, God will provide someone. In the last few

months I have become involved in a church group that seems to really care

and be aware of how I am affected by this illness and living alone. Only

time will tell if when I am really in need, they will be there.I have gotten

rides and things,so its a good start. I will prwy that you will find a

friend that will walk with you through this trial and after. We all need at

least one friend in the flesh.

Diane

__ >>

Diane, it is so nice to talk with someone who really knows the pain of

loosing a best friend. I so appreciate this group because they have become

my friends. My best friend left our relationship when I got ovarian cancer.

She stopped coming around or calling. Her family and my family were so close

we all would take vacations together. I should have had a clue though what

kind of person she really was. I noticed over the years that with her mother

being in a nursing home she rarely went to visit her. With her sister who

was ill she didn't spend time with her. Her own children she would leave at

home all weekend by themselves while she was out having fun. I don't want to

sound hateful or angry I am really almost past that stage. It was so painful

though because I would have been there for her. I would have done anything

to help her. When I was in the hospital with two serious blood infections

due to tpn some other lady found out that I was seriously sick and told my

used to be best friend, they came to the hospital to see me and were not able

to stay long because my used to be best friend said she had to leave because

she was going to play golf. So there you see what kind of person my best

friend is. Now I have finally accepted it and yes I have to admit I am still

trying to deal with the hurt. I am so sorry that your family has

disappointed you. I know how sad and rejected you must feel. I wish we all

could have some sort of reunion so we could meet and comfort each other.

Diane I will pray for you everyday and in my prayers I will ask God to bless

you and bring forth the new Christian friends you have met to be your new

family. Your Friend, Shirley

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  • 2 weeks later...

In a message dated 8/24/00 10:54:57 AM Pacific Daylight Time,

acastenell@... writes:

<< Thanks for all of the kind and thoughtful words and your words of

encouragement. Believe me when I say that they do go a long way in helping

me get over this latest set back. It's nice to feel like I have friends

again. Please excuse me if I don't know how to react properly at times. I

haven't had friends in quite some time :-) Andre' >>

Andre', and all,

You know that you always have us. We are just one keyboard and click of the

mouse away. Sorry to hear about your recent set back. You are strong, brave,

and courageous. You will persevere.

Karyn

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In a message dated 8/25/00 2:04:31 AM Eastern Daylight Time, KarynWms@...

writes:

<< You are strong, brave,

and courageous. You will persevere. >>

Thanks. I needed that today :-)

Andre'

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  • 1 month later...

In a message dated 9/28/00 10:58:26 AM Pacific Daylight Time,

shirlf3542@... writes:

<< >>

Dear Andre, we used to be so social. We had so many close friends, took

vacations together, sports together, we had a wonderful time. Everyday was

like a vacations day. It was just the best of fun. Now I have no friends

after almost 7 years of this disease. When I am gone from the house to a

doctors appointment, etc., and when I return I always look at my answering

machine and the number of calls on it are always 0. I always become very

sad

and walk thru the house saying to myself we have no friends. No one calls

anymore. It breaks my heart. I am considered an invalid and am no fun to

those who only want to be on the go playing golf, tennis, bridge club,

garden

club, group golfing trips etc. That is the life I used to have and now my

life is a big 0. I don't think in a million years I would have abandon my

good friends if they had gotten sick. I would have been there to love and

show that I truly care about them. Oh well enough of this pity party but it

still breaks my heart. It is so very sad. Sorry Andre, I am sure you

didn't

need this with everything else you have to live with. Love, Shirley

>>

Hi Shirley, Andre',

After thinking about this for a while, I think I am the one who has pushed my

friends away. I feel so bad and thing I am no fun, that I am the one who

keeps turning down the invitations. Maybe I should at least try to

participate. I can always go home early.

Karyn

Pancreatitis Support Network

Indianapolis Symposium on Pancreatitis 2000

November 11, 2000

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In a message dated 9/28/00 2:58:34 PM Eastern Daylight Time, KarynWms@...

writes:

<<

After thinking about this for a while, I think I am the one who has pushed

my

friends away. I feel so bad and thing I am no fun, that I am the one who

keeps turning down the invitations. Maybe I should at least try to

participate. I can always go home early.

Karyn

>>

Karyn, you have a very good point there. I am sure that I have done that

also. I don't call them either. I am so depressed that I cannot pick up the

receiver and place the call. Also I can't keep up with anyone. I can't walk

very far, can stand very long, can't eat, in constant pain. What fun would I

be? I know that I have not reached out but I can also tell when my used to

be friend doesn't have time for me. She came to the hospital to see me when

I was in for 23 days with two blood infections. The only reason she came was

because another friend found out I was in the hospital again and called my

best friend and asked her to come to see me also. I wish she hadn't because

the whole time she was there she was restless and repeated saying that she

had to go that she had a golf game. So yes it is me and her. I must give up

the resentment though. What is done is done. But I will always miss my life

as it was. Being an invalid is hard. Sorry for complaining. This is

stopping right here. Shirley

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In a message dated 9/28/00 12:17:10 PM Pacific Daylight Time,

shirlf3542@... writes:

<< >> Karyn, you have a very good point there. I am sure that I have done

that

also. I don't call them either. I am so depressed that I cannot pick up

the receiver and place the call. Also I can't keep up with anyone. I can't

walk very far, can stand very long, can't eat, in constant pain. What fun

would I be?

So yes it is me and her. I must give up the resentment though. What is done

is done?. But I will always miss my life as it was. Being an invalid is

hard. Sorry for complaining. This is stopping right here. Shirley >>

Hi Shirley,

Remember that this is the one place where you can talk and get things out, no

matter how long it takes or how many posts you want to post.

I agree with your thinking about your limitations. That what I judge myself

on, too.

God wants you to be here. That's what I believe, anyway. I wish I knew what

kind of help I need for this symposium. I am so nervous, I am not clear.

We'll see. For now know that this is your place where your voice counts.

Karyn

Pancreatitis Support Network

Indianapolis Symposium on Pancreatitis 2000

November 11, 2000

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In a message dated 9/28/00 4:54:25 PM Eastern Daylight Time, KarynWms@...

writes:

<<

God wants you to be here. That's what I believe, anyway. I wish I knew what

kind of help I need for this symposium. I am so nervous, I am not clear.

We'll see. For now know that this is your place where your voice counts.

Karyn

>>

Thanks Karyn, I do feel loved and understood with this group. Shirley

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Karyn,

I wish I knew what

kind of help I need for this symposium. I

am so nervous, I am not clear.

Talk to me......I

am close enough to help you.

Do you have someone

to greet people and pass out programs, ect.......

I can help if you

ask.

Don't be nervous.

You'll be fine! This will go off without a hitch!

Becky

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