Guest guest Posted December 6, 2009 Report Share Posted December 6, 2009 I am not sure that there are too many surgeons who have personally done more than 1,000 RALP (Robotic Assisted Laparoscopic Prostatectomy) procedures, but if you go to http://www.yananow.net/resources.html and page down you will see that there are two men who claim tp be able to give you the names of the ‘best’ surgeons. All the best Terry Herbert I have no medical qualifications but I was diagnosed in ‘96: and have learned a bit since then. My sites are at www.yananow.net and www.prostatecancerwatchfulwaiting.co.za Dr “Snuffy” Myers : " As a physician, I am painfully aware that most of the decisions we make with regard to prostate cancer are made with inadequate data " From: ProstateCancerSupport [mailto:ProstateCancerSupport ] On Behalf Of Sullivan Sent: Monday, 7 December 2009 7:15 AM To: ProstateCancerSupport Subject: Help finding experienced Dr. - with robotic surgery Hello Thank you so much for your time. My heart goes out to each of you... and the challenges of prostate cancer. My dad was recently diagnosed and we are having a difficult time finding a Dr., who has performed at least 1,000 robotic surgeries.....and good results. We would be so very grateful for any input you have...... Good luck with your journey... thank you for your help. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2009 Report Share Posted December 6, 2009 thank you so much, i appreciate the great info. bestandreaTo: ProstateCancerSupport Sent: Sun, December 6, 2009 3:30:45 PMSubject: Re: Help finding experienced Dr. - with robotic surgery(snip)> My dad was recently diagnosed and we are having a difficult time finding > a Dr., who has performed at least 1,000> robotic surgeries.....and good results. I recommend going to the home page of the Prostate Cancer Research Institute at http://www.prostate-cancer.org/pcricms/Click on Resources, then on "Finding Expert Physicians" on the left.Do note also that there is a link to the Helpline on the home page. Useful and objective.And note that there is a huge amount of information available on this site, especiallythe link, "Newly Diagnosed."I strongly recommend _A Primer on Prostate Cancer_ 2nd ed., subtitled "The Empowered Patient's Guide" by medical oncologist and PCa specialist B. Strum, MD and PCa warrior Donna Pogliano. It is available from the PCRI website and the like, as well as Amazon (30+ five-star reviews), & Noble, and bookstores. A lifesaver, as I very well know.We might be able to narrow the field a bit if we know Dad's age and general health, as well as such essential details as his Gleason score, clinical stage (noted as T2a or some such), geographic location, and so on.Lastly, I'm certain that hopes to do her best for Dad, but if at all possible, it would be best if he should do his own research. If not, we'll still be available to provide our best support.Regards,Steve J"Know that 9 out of 10 times, you have time to learn. Don't panic. You may make a decision (or let another make it for you) from which there is no return. Let the fear settle and your senses return. A cancer diagnosis is not a death sentence."-- Young, PCa MentorPhoenix 5------------------------------------There are just two rules for this group 1 No Spam 2 Be kind to othersPlease recognise that Prostate Cancerhas different guises and needs different levels of treatment and in some cases no treatment at all. Some men even with all options offered chose radical options that you would not choose. We only ask that people be informed before choice is made, we cannot and should not tell other members what to do, other than look at other options. Try to delete old material that is no longer applying when clicking replyTry to change the title if the content requires it Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 7, 2009 Report Share Posted December 7, 2009 What part of the country do live? To: ProstateCancerSupport Sent: Sun, December 6, 2009 10:56:28 PMSubject: Re: Help finding experienced Dr. - with robotic surgery So what is the big deal about robotic surgery? From: Sullivan <ahksullivan@ yahoo.com>To: ProstateCancerSuppo rtyahoogroups (DOT) comSent: Sun, December 6, 2009 4:40:29 PMSubject: Re: [ProstateCancerSupp ort] Help finding experienced Dr. - with robotic surgery thank you so much, i appreciate the great info. best andrea From: Steve Jordan <mycroftscj1@ cox.net>To: ProstateCancerSuppo rtyahoogroups (DOT) comSent: Sun, December 6, 2009 3:30:45 PMSubject: Re: [ProstateCancerSupp ort] Help finding experienced Dr. - with robotic surgery(snip)> My dad was recently diagnosed and we are having a difficult time finding > a Dr., who has performed at least 1,000> robotic surgeries... ..and good results. I recommend going to the home page of the Prostate Cancer Research Institute at http://www.prostate -cancer.org/ pcricms/Click on Resources, then on "Finding Expert Physicians" on the left.Do note also that there is a link to the Helpline on the home page. Useful and objective.And note that there is a huge amount of information available on this site, especiallythe link, "Newly Diagnosed."I strongly recommend _A Primer on Prostate Cancer_ 2nd ed., subtitled "The Empowered Patient's Guide" by medical oncologist and PCa specialist B. Strum, MD and PCa warrior Donna Pogliano. It is available from the PCRI website and the like, as well as Amazon (30+ five-star reviews), & Noble, and bookstores. A lifesaver, as I very well know.We might be able to narrow the field a bit if we know Dad's age and general health, as well as such essential details as his Gleason score, clinical stage (noted as T2a or some such), geographic location, and so on.Lastly, I'm certain that hopes to do her best for Dad, but if at all possible, it would be best if he should do his own research. If not, we'll still be available to provide our best support.Regards,Steve J"Know that 9 out of 10 times, you have time to learn. Don't panic. You may make a decision (or let another make it for you) from which there is no return. Let the fear settle and your senses return. A cancer diagnosis is not a death sentence."-- Young, PCa MentorPhoenix 5------------ --------- --------- ------There are just two rules for this group 1 No Spam 2 Be kind to othersPlease recognise that Prostate Cancerhas different guises and needs different levels of treatment and in some cases no treatment at all. Some men even with all options offered chose radical options that you would not choose. We only ask that people be informed before choice is made, we cannot and should not tell other members what to do, other than look at other options. Try to delete old material that is no longer applying when clicking replyTry to change the title if the content requires it Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 7, 2009 Report Share Posted December 7, 2009 we live in the midwest, but can travel anywhere..... and have family in texas and florida thank you so muchTo: ProstateCancerSupport Sent: Mon, December 7, 2009 6:16:23 PMSubject: Re: Help finding experienced Dr. - with robotic surgery What part of the country do live? From: Tom <tomcw4aaayahoo (DOT) com>To: ProstateCancerSuppo rtyahoogroups (DOT) comSent: Sun, December 6, 2009 10:56:28 PMSubject: Re: [ProstateCancerSupp ort] Help finding experienced Dr. - with robotic surgery So what is the big deal about robotic surgery? From: Sullivan <ahksullivan@ yahoo.com>To: ProstateCancerSuppo rtyahoogroups (DOT) comSent: Sun, December 6, 2009 4:40:29 PMSubject: Re: [ProstateCancerSupp ort] Help finding experienced Dr. - with robotic surgery thank you so much, i appreciate the great info. best andrea From: Steve Jordan <mycroftscj1@ cox.net>To: ProstateCancerSuppo rtyahoogroups (DOT) comSent: Sun, December 6, 2009 3:30:45 PMSubject: Re: [ProstateCancerSupp ort] Help finding experienced Dr. - with robotic surgery(snip)> My dad was recently diagnosed and we are having a difficult time finding > a Dr., who has performed at least 1,000> robotic surgeries... ..and good results. I recommend going to the home page of the Prostate Cancer Research Institute at http://www.prostate -cancer.org/ pcricms/Click on Resources, then on "Finding Expert Physicians" on the left.Do note also that there is a link to the Helpline on the home page. Useful and objective.And note that there is a huge amount of information available on this site, especiallythe link, "Newly Diagnosed."I strongly recommend _A Primer on Prostate Cancer_ 2nd ed., subtitled "The Empowered Patient's Guide" by medical oncologist and PCa specialist B. Strum, MD and PCa warrior Donna Pogliano. It is available from the PCRI website and the like, as well as Amazon (30+ five-star reviews), & Noble, and bookstores. A lifesaver, as I very well know.We might be able to narrow the field a bit if we know Dad's age and general health, as well as such essential details as his Gleason score, clinical stage (noted as T2a or some such), geographic location, and so on.Lastly, I'm certain that hopes to do her best for Dad, but if at all possible, it would be best if he should do his own research. If not, we'll still be available to provide our best support.Regards,Steve J"Know that 9 out of 10 times, you have time to learn. Don't panic. You may make a decision (or let another make it for you) from which there is no return. Let the fear settle and your senses return. A cancer diagnosis is not a death sentence."-- Young, PCa MentorPhoenix 5------------ --------- --------- ------There are just two rules for this group 1 No Spam 2 Be kind to othersPlease recognise that Prostate Cancerhas different guises and needs different levels of treatment and in some cases no treatment at all. Some men even with all options offered chose radical options that you would not choose. We only ask that people be informed before choice is made, we cannot and should not tell other members what to do, other than look at other options. Try to delete old material that is no longer applying when clicking replyTry to change the title if the content requires it Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 7, 2009 Report Share Posted December 7, 2009 Tom, RALP (Robotic Assisted Laparoscopic Prostatectomy) or Da Vinci surgery as it is often referred to is less traumatic because it reduces the size of the cuts made to get to the prostate gland. This means that physically the men who have robotic surgery recover quicker from the surgery and generally feel better all around (the insurers like the procedure because it usually saves a day or two on hospital). The outcomes as far as side effects – the main ones being incontinence (the inability to control urination) and ED (erectile dysfunction - the inability to have an erection without the aid of drugs or other devices) – are similar with both procedures. There is a steep learning curve with RALP and the standard recommendation is that you should not have this procedure done by a surgeon with less than 250 operations with successful outcomes. You can read more about the surgical options on my website – ad the stories of men who have had either – starting at http://www.yananow.net/choices.htm All the best Terry Herbert I have no medical qualifications but I was diagnosed in ‘96: and have learned a bit since then. My sites are at www.yananow.net and www.prostatecancerwatchfulwaiting.co.za Dr “Snuffy” Myers : " As a physician, I am painfully aware that most of the decisions we make with regard to prostate cancer are made with inadequate data " From: ProstateCancerSupport [mailto:ProstateCancerSupport ] On Behalf Of Tom Sent: Monday, 7 December 2009 2:56 PM To: ProstateCancerSupport Subject: Re: Help finding experienced Dr. - with robotic surgery So what is the big deal about robotic surgery? From: Sullivan <ahksullivan> To: ProstateCancerSupport Sent: Sun, December 6, 2009 4:40:29 PM Subject: Re: Help finding experienced Dr. - with robotic surgery thank you so much, i appreciate the great info. best andrea From: Steve Jordan <mycroftscj1@ cox.net> To: ProstateCancerSuppo rtyahoogroups (DOT) com Sent: Sun, December 6, 2009 3:30:45 PM Subject: Re: [ProstateCancerSupp ort] Help finding experienced Dr. - with robotic surgery (snip) > My dad was recently diagnosed and we are having a difficult time finding > a Dr., who has performed at least 1,000 > robotic surgeries... ..and good results. I recommend going to the home page of the Prostate Cancer Research Institute at http://www.prostate-cancer.org/pcricms/ Click on Resources, then on " Finding Expert Physicians " on the left. Do note also that there is a link to the Helpline on the home page. Useful and objective. And note that there is a huge amount of information available on this site, especially the link, " Newly Diagnosed. " I strongly recommend _A Primer on Prostate Cancer_ 2nd ed., subtitled " The Empowered Patient's Guide " by medical oncologist and PCa specialist B. Strum, MD and PCa warrior Donna Pogliano. It is available from the PCRI website and the like, as well as Amazon (30+ five-star reviews), & Noble, and bookstores. A lifesaver, as I very well know. We might be able to narrow the field a bit if we know Dad's age and general health, as well as such essential details as his Gleason score, clinical stage (noted as T2a or some such), geographic location, and so on. Lastly, I'm certain that hopes to do her best for Dad, but if at all possible, it would be best if he should do his own research. If not, we'll still be available to provide our best support. Regards, Steve J " Know that 9 out of 10 times, you have time to learn. Don't panic. You may make a decision (or let another make it for you) from which there is no return. Let the fear settle and your senses return. A cancer diagnosis is not a death sentence. " -- Young, PCa Mentor Phoenix 5 ------------ --------- --------- ------ There are just two rules for this group 1 No Spam 2 Be kind to others Please recognise that Prostate Cancerhas different guises and needs different levels of treatment and in some cases no treatment at all. Some men even with all options offered chose radical options that you would not choose. We only ask that people be informed before choice is made, we cannot and should not tell other members what to do, other than look at other options. Try to delete old material that is no longer applying when clicking reply Try to change the title if the content requires it Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 7, 2009 Report Share Posted December 7, 2009 http://www.globalroboticsinstitute.com/en/urology-robotic-prostatectomy/why-dr-patel?gclid=CMrx3tDYxZ4CFQJinAodumWhqg One of the best hospitals in the country for Davinci. They have built an entire wing just for this. Vipul Patel has done well north of 10,000. When he did mine, it was the 4th one he did just that day. To: ProstateCancerSupport Sent: Mon, December 7, 2009 8:01:15 PMSubject: Re: Help finding experienced Dr. - with robotic surgery we live in the midwest, but can travel anywhere.... . and have family in texas and florida thank you so much From: B Pender <b2p16yahoo (DOT) com>To: ProstateCancerSuppo rtyahoogroups (DOT) comSent: Mon, December 7, 2009 6:16:23 PMSubject: Re: [ProstateCancerSupp ort] Help finding experienced Dr. - with robotic surgery What part of the country do live? From: Tom <tomcw4aaayahoo (DOT) com>To: ProstateCancerSuppo rtyahoogroups (DOT) comSent: Sun, December 6, 2009 10:56:28 PMSubject: Re: [ProstateCancerSupp ort] Help finding experienced Dr. - with robotic surgery So what is the big deal about robotic surgery? From: Sullivan <ahksullivan@ yahoo.com>To: ProstateCancerSuppo rtyahoogroups (DOT) comSent: Sun, December 6, 2009 4:40:29 PMSubject: Re: [ProstateCancerSupp ort] Help finding experienced Dr. - with robotic surgery thank you so much, i appreciate the great info. best andrea From: Steve Jordan <mycroftscj1@ cox.net>To: ProstateCancerSuppo rtyahoogroups (DOT) comSent: Sun, December 6, 2009 3:30:45 PMSubject: Re: [ProstateCancerSupp ort] Help finding experienced Dr. - with robotic surgery(snip)> My dad was recently diagnosed and we are having a difficult time finding > a Dr., who has performed at least 1,000> robotic surgeries... ..and good results. I recommend going to the home page of the Prostate Cancer Research Institute at http://www.prostate -cancer.org/ pcricms/Click on Resources, then on "Finding Expert Physicians" on the left.Do note also that there is a link to the Helpline on the home page. Useful and objective.And note that there is a huge amount of information available on this site, especiallythe link, "Newly Diagnosed."I strongly recommend _A Primer on Prostate Cancer_ 2nd ed., subtitled "The Empowered Patient's Guide" by medical oncologist and PCa specialist B. Strum, MD and PCa warrior Donna Pogliano. It is available from the PCRI website and the like, as well as Amazon (30+ five-star reviews), & Noble, and bookstores. A lifesaver, as I very well know.We might be able to narrow the field a bit if we know Dad's age and general health, as well as such essential details as his Gleason score, clinical stage (noted as T2a or some such), geographic location, and so on.Lastly, I'm certain that hopes to do her best for Dad, but if at all possible, it would be best if he should do his own research. If not, we'll still be available to provide our best support.Regards,Steve J"Know that 9 out of 10 times, you have time to learn. Don't panic. You may make a decision (or let another make it for you) from which there is no return. Let the fear settle and your senses return. A cancer diagnosis is not a death sentence."-- Young, PCa MentorPhoenix 5------------ --------- --------- ------There are just two rules for this group 1 No Spam 2 Be kind to othersPlease recognise that Prostate Cancerhas different guises and needs different levels of treatment and in some cases no treatment at all. Some men even with all options offered chose radical options that you would not choose. We only ask that people be informed before choice is made, we cannot and should not tell other members what to do, other than look at other options. Try to delete old material that is no longer applying when clicking replyTry to change the title if the content requires it Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 7, 2009 Report Share Posted December 7, 2009 In September, 2007, I had a robotic laparoscopic RP at Northwestern University Medical Center in Chicago. The surgeon who performed the surgery had performed about 300 such procedures per year for a few years prior to accepting me as a patient. I say "accepting" because he and Northwestern track surgical outcomes for 5 years and I am convinced that they will reject cases that are predicted to have poor outcomes in order to elevate their statistical performance. My suburban urologist who performed my biopsy said as much when he advised, "IF they take you downtown, you will do great. They only take good patients. I get stuck doing the 70 year old obese patients with diabetes." I know one can read a lot into that comment and I will leave you to your interpretations, but I agree with the sentiment that a major med center with a well recognized specialty program is, shall we say, conscious, of their results. Anyhow, I had the surgery and, although I was in the OR for 6 hours, was released from the hospital to return home the day following the procedure. Catheter for 10 days. When the catheter came out I was prepared with a box of adult diapers (48 count) and heavy duty pads. I used a couple of the diapers and then wore a pad for a few days while at work just in case I had an accident. I didn't. Within a few weeks of the surgery I had zero leakage and disregarded incontinence as an issue. I did go on a Muse/Cialis/Viagra rehab program with little results for the first several months. My surgery was full nerve sparing and I believe my surgeon prolonged the surgery (remember, it was six hours long) in a very dedicated effort to minimize disruption/damage to nerve and vascular bundles that he and I discussed at length before the surgery. By the one year mark I was recovering function rather well but was not completely satisfied. I made an appointment to see Jeff Albough, ED specialist at Northwestern, in month 13 following surgery. Due to schedule problems, I was unable to see him until month 16. My intent was to get right into injections, but by month 16 I was doing very well with Cialis/Viagra (has anyone EVER benefitted from Muse?) and getting stronger and stronger without any meds. Jeff urged me to be a little more patient and not change anything I was doing. I followed his advice and by month 18 I was using meds more for recreational use than necessity. Today, at 24 months, I can take them or leave them. Through it all, my PSA post surgery has vacillated between 0.0 and 0.1 which I believe is statistically the same. I have no reason to believe my test taken last week will be any different. In sum, I am very pleased with my choice of surgeons, medical center and procedure based on the outcomes. At Northwestern's invitation I have joined their list of reference patients who are available to talk to prospective patients about the process and program at Northwestern. When I receive a call at home from someone who is where I was two years ago, I am very careful to point out the "Your Mileage May Vary" considerations but, if I had it to do over, I would not change a thing. Could the outcome have been the same with open RP? I am certain it could have been but not at all certain that it would have been. I do agree with another poster who pointed out that these forums tend to be overpopulated with cancer patients who are seeking input to assist them with their decision making or are having problems and are seeking direction. It is unfortunate because it may give the impression to newly diagnosed readers that there are no patients with satisfactory results. It would be great if people who went through the process and recovered very nicely remained in touch with the forums but that is not the way of the world. As time passes I find myself viewing my summer of 2007 "ordeal" as no more or less eventful than an appendectomy I had in "84. Yep it happened and now it's behind me.I would be happy to provide the name of the surgeon who performed my RP off-line if you are interested. E-mail me at jecarroll98@.... Best regards to all. Subject: Re: Help finding experienced Dr. - with robotic surgeryTo: ProstateCancerSupport Date: Monday, December 7, 2009, 8:01 PM we live in the midwest, but can travel anywhere.... . and have family in texas and florida thank you so much Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2009 Report Share Posted December 8, 2009 many thanks for the info, we'll look into this! best wishesandrea To: ProstateCancerSupport Sent: Mon, December 7, 2009 7:35:06 PMSubject: Re: Help finding experienced Dr. - with robotic surgery http://www.globalro boticsinstitute. com/en/urology- robotic-prostate ctomy/why- dr-patel? gclid=CMrx3tDYxZ 4CFQJinAodumWhqg One of the best hospitals in the country for Davinci. They have built an entire wing just for this. Vipul Patel has done well north of 10,000. When he did mine, it was the 4th one he did just that day. From: Sullivan <ahksullivan@ yahoo.com>To: ProstateCancerSuppo rtyahoogroups (DOT) comSent: Mon, December 7, 2009 8:01:15 PMSubject: Re: [ProstateCancerSupp ort] Help finding experienced Dr. - with robotic surgery we live in the midwest, but can travel anywhere.... . and have family in texas and florida thank you so much From: B Pender <b2p16yahoo (DOT) com>To: ProstateCancerSuppo rtyahoogroups (DOT) comSent: Mon, December 7, 2009 6:16:23 PMSubject: Re: [ProstateCancerSupp ort] Help finding experienced Dr. - with robotic surgery What part of the country do live? From: Tom <tomcw4aaayahoo (DOT) com>To: ProstateCancerSuppo rtyahoogroups (DOT) comSent: Sun, December 6, 2009 10:56:28 PMSubject: Re: [ProstateCancerSupp ort] Help finding experienced Dr. - with robotic surgery So what is the big deal about robotic surgery? From: Sullivan <ahksullivan@ yahoo.com>To: ProstateCancerSuppo rtyahoogroups (DOT) comSent: Sun, December 6, 2009 4:40:29 PMSubject: Re: [ProstateCancerSupp ort] Help finding experienced Dr. - with robotic surgery thank you so much, i appreciate the great info. best andrea From: Steve Jordan <mycroftscj1@ cox.net>To: ProstateCancerSuppo rtyahoogroups (DOT) comSent: Sun, December 6, 2009 3:30:45 PMSubject: Re: [ProstateCancerSupp ort] Help finding experienced Dr. - with robotic surgery(snip)> My dad was recently diagnosed and we are having a difficult time finding > a Dr., who has performed at least 1,000> robotic surgeries... ..and good results. I recommend going to the home page of the Prostate Cancer Research Institute at http://www.prostate -cancer.org/ pcricms/Click on Resources, then on "Finding Expert Physicians" on the left.Do note also that there is a link to the Helpline on the home page. Useful and objective.And note that there is a huge amount of information available on this site, especiallythe link, "Newly Diagnosed."I strongly recommend _A Primer on Prostate Cancer_ 2nd ed., subtitled "The Empowered Patient's Guide" by medical oncologist and PCa specialist B. Strum, MD and PCa warrior Donna Pogliano. It is available from the PCRI website and the like, as well as Amazon (30+ five-star reviews), & Noble, and bookstores. A lifesaver, as I very well know.We might be able to narrow the field a bit if we know Dad's age and general health, as well as such essential details as his Gleason score, clinical stage (noted as T2a or some such), geographic location, and so on..Lastly, I'm certain that hopes to do her best for Dad, but if at all possible, it would be best if he should do his own research. If not, we'll still be available to provide our best support.Regards,Steve J"Know that 9 out of 10 times, you have time to learn. Don't panic. You may make a decision (or let another make it for you) from which there is no return. Let the fear settle and your senses return. A cancer diagnosis is not a death sentence."-- Young, PCa MentorPhoenix 5------------ --------- --------- ------There are just two rules for this group 1 No Spam 2 Be kind to othersPlease recognise that Prostate Cancerhas different guises and needs different levels of treatment and in some cases no treatment at all. Some men even with all options offered chose radical options that you would not choose. We only ask that people be informed before choice is made, we cannot and should not tell other members what to do, other than look at other options. Try to delete old material that is no longer applying when clicking replyTry to change the title if the content requires it Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2009 Report Share Posted December 8, 2009 john.... thank you for the informative email.... how great to hear of your results... it sounds like a long road,.... but you're a hero and cancer free! i look forward to sharing this with my dad many thanks,andreaTo: ProstateCancerSupport Sent: Mon, December 7, 2009 7:48:31 PMSubject: Re: Help finding experienced Dr. - with robotic surgery In September, 2007, I had a robotic laparoscopic RP at Northwestern University Medical Center in Chicago. The surgeon who performed the surgery had performed about 300 such procedures per year for a few years prior to accepting me as a patient. I say "accepting" because he and Northwestern track surgical outcomes for 5 years and I am convinced that they will reject cases that are predicted to have poor outcomes in order to elevate their statistical performance. My suburban urologist who performed my biopsy said as much when he advised, "IF they take you downtown, you will do great. They only take good patients. I get stuck doing the 70 year old obese patients with diabetes." I know one can read a lot into that comment and I will leave you to your interpretations, but I agree with the sentiment that a major med center with a well recognized specialty program is, shall we say, conscious, of their results. Anyhow, I had the surgery and, although I was in the OR for 6 hours, was released from the hospital to return home the day following the procedure. Catheter for 10 days. When the catheter came out I was prepared with a box of adult diapers (48 count) and heavy duty pads. I used a couple of the diapers and then wore a pad for a few days while at work just in case I had an accident. I didn't. Within a few weeks of the surgery I had zero leakage and disregarded incontinence as an issue. I did go on a Muse/Cialis/ Viagra rehab program with little results for the first several months. My surgery was full nerve sparing and I believe my surgeon prolonged the surgery (remember, it was six hours long) in a very dedicated effort to minimize disruption/damage to nerve and vascular bundles that he and I discussed at length before the surgery. By the one year mark I was recovering function rather well but was not completely satisfied. I made an appointment to see Jeff Albough, ED specialist at Northwestern, in month 13 following surgery. Due to schedule problems, I was unable to see him until month 16. My intent was to get right into injections, but by month 16 I was doing very well with Cialis/Viagra (has anyone EVER benefitted from Muse?) and getting stronger and stronger without any meds. Jeff urged me to be a little more patient and not change anything I was doing. I followed his advice and by month 18 I was using meds more for recreational use than necessity. Today, at 24 months, I can take them or leave them. Through it all, my PSA post surgery has vacillated between 0.0 and 0.1 which I believe is statistically the same. I have no reason to believe my test taken last week will be any different. In sum, I am very pleased with my choice of surgeons, medical center and procedure based on the outcomes. At Northwestern' s invitation I have joined their list of reference patients who are available to talk to prospective patients about the process and program at Northwestern. When I receive a call at home from someone who is where I was two years ago, I am very careful to point out the "Your Mileage May Vary" considerations but, if I had it to do over, I would not change a thing. Could the outcome have been the same with open RP? I am certain it could have been but not at all certain that it would have been. I do agree with another poster who pointed out that these forums tend to be overpopulated with cancer patients who are seeking input to assist them with their decision making or are having problems and are seeking direction. It is unfortunate because it may give the impression to newly diagnosed readers that there are no patients with satisfactory results. It would be great if people who went through the process and recovered very nicely remained in touch with the forums but that is not the way of the world. As time passes I find myself viewing my summer of 2007 "ordeal" as no more or less eventful than an appendectomy I had in "84. Yep it happened and now it's behind me.I would be happy to provide the name of the surgeon who performed my RP off-line if you are interested. E-mail me at jecarroll98@ yahoo.com. Best regards to all. From: Sullivan <ahksullivan@ yahoo.com>Subject: Re: [ProstateCancerSupp ort] Help finding experienced Dr. - with robotic surgeryTo: ProstateCancerSuppo rtyahoogroups (DOT) comDate: Monday, December 7, 2009, 8:01 PM we live in the midwest, but can travel anywhere.... . and have family in texas and florida thank you so much Quote Link to comment Share on other sites More sharing options...
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