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Re: Help finding experienced Dr. - with robotic surgery

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I am not sure that there are too many

surgeons who have personally done more than 1,000 RALP (Robotic Assisted

Laparoscopic Prostatectomy) procedures, but if you go to http://www.yananow.net/resources.html

and page down you will see that there are two men who claim tp be able to give

you the names of the ‘best’ surgeons.

All the best

Terry Herbert

I have no medical

qualifications but I was diagnosed in ‘96: and have learned a bit since

then.

My sites are at www.yananow.net and www.prostatecancerwatchfulwaiting.co.za

Dr

“Snuffy” Myers : " As a physician, I am painfully aware that most of

the decisions we make with regard to prostate cancer are made with inadequate

data "

From: ProstateCancerSupport [mailto:ProstateCancerSupport ] On Behalf Of Sullivan

Sent: Monday, 7 December 2009 7:15

AM

To: ProstateCancerSupport

Subject:

Help finding experienced Dr. - with robotic surgery

Hello

Thank you so much for your time. My heart goes out to

each of you... and the challenges of prostate cancer.

My dad was recently diagnosed and we are having a difficult time

finding a Dr., who has performed at least 1,000

robotic surgeries.....and good results.

We would be so very grateful for any input you

have......

Good luck with your journey... thank you for your help.

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thank you so much, i appreciate the great info. bestandreaTo: ProstateCancerSupport Sent: Sun, December 6, 2009 3:30:45 PMSubject: Re: Help finding experienced Dr. - with robotic surgery(snip)> My dad was recently

diagnosed and we are having a difficult time finding > a Dr., who has performed at least 1,000> robotic surgeries.....and good results. I recommend going to the home page of the Prostate Cancer Research Institute at http://www.prostate-cancer.org/pcricms/Click on Resources, then on "Finding Expert Physicians" on the left.Do note also that there is a link to the Helpline on the home page. Useful and objective.And note that there is a huge amount of information available on this site, especiallythe link, "Newly Diagnosed."I strongly recommend _A Primer on Prostate Cancer_ 2nd ed., subtitled "The Empowered Patient's Guide" by medical oncologist and PCa specialist B. Strum, MD and PCa warrior Donna Pogliano. It is available from the PCRI website and the like, as well as Amazon (30+ five-star

reviews), & Noble, and bookstores. A lifesaver, as I very well know.We might be able to narrow the field a bit if we know Dad's age and general health, as well as such essential details as his Gleason score, clinical stage (noted as T2a or some such), geographic location, and so on.Lastly, I'm certain that hopes to do her best for Dad, but if at all possible, it would be best if he should do his own research. If not, we'll still be available to provide our best support.Regards,Steve J"Know that 9 out of 10 times, you have time to learn. Don't panic. You may make a decision (or let another make it for you) from which there is no return. Let the fear settle and your senses return. A cancer diagnosis is not a death sentence."-- Young, PCa MentorPhoenix 5------------------------------------There are just two rules for this

group 1 No Spam 2 Be kind to othersPlease recognise that Prostate Cancerhas different guises and needs different levels of treatment and in some cases no treatment at all. Some men even with all options offered chose radical options that you would not choose. We only ask that people be informed before choice is made, we cannot and should not tell other members what to do, other than look at other options. Try to delete old material that is no longer applying when clicking replyTry to change the title if the content requires it

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What part of the country do live?

To: ProstateCancerSupport Sent: Sun, December 6, 2009 10:56:28 PMSubject: Re: Help finding experienced Dr. - with robotic surgery

So what is the big deal about robotic surgery?

From: Sullivan <ahksullivan@ yahoo.com>To: ProstateCancerSuppo rtyahoogroups (DOT) comSent: Sun, December 6, 2009 4:40:29 PMSubject: Re: [ProstateCancerSupp ort] Help finding experienced Dr. - with robotic surgery

thank you so much, i appreciate the great info.

best

andrea

From: Steve Jordan <mycroftscj1@ cox.net>To: ProstateCancerSuppo rtyahoogroups (DOT) comSent: Sun, December 6, 2009 3:30:45 PMSubject: Re: [ProstateCancerSupp ort] Help finding experienced Dr. - with robotic surgery(snip)> My dad was recently diagnosed and we are having a difficult time finding > a Dr., who has performed at least 1,000> robotic surgeries... ..and good results. I recommend going to the home page of the Prostate Cancer Research Institute at http://www.prostate -cancer.org/ pcricms/Click on Resources, then on "Finding Expert Physicians" on the left.Do note also that there is a

link to the Helpline on the home page. Useful and objective.And note that there is a huge amount of information available on this site, especiallythe link, "Newly Diagnosed."I strongly recommend _A Primer on Prostate Cancer_ 2nd ed., subtitled "The Empowered Patient's Guide" by medical oncologist and PCa specialist B. Strum, MD and PCa warrior Donna Pogliano. It is available from the PCRI website and the like, as well as Amazon (30+ five-star reviews), & Noble, and bookstores. A lifesaver, as I very well know.We might be able to narrow the field a bit if we know Dad's age and general health, as well as such essential details as his Gleason score, clinical stage (noted as T2a or some such), geographic location, and so on.Lastly, I'm certain that hopes to do her best for Dad, but if at all possible, it would be best if he should do his own

research. If not, we'll still be available to provide our best support.Regards,Steve J"Know that 9 out of 10 times, you have time to learn. Don't panic. You may make a decision (or let another make it for you) from which there is no return. Let the fear settle and your senses return. A cancer diagnosis is not a death sentence."-- Young, PCa MentorPhoenix 5------------ --------- --------- ------There are just two rules for this group 1 No Spam 2 Be kind to othersPlease recognise that Prostate Cancerhas different guises and needs different levels of treatment and in some cases no treatment at all. Some men even with all options offered chose radical options that you would not choose. We only ask that people be informed before choice is made, we cannot and should not tell other members what to do, other than look at other options. Try to delete old

material that is no longer applying when clicking replyTry to change the title if the content requires it

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Share on other sites

we live in the midwest, but can travel anywhere..... and have family in texas and florida thank you so muchTo: ProstateCancerSupport Sent: Mon, December 7, 2009 6:16:23 PMSubject: Re: Help finding experienced Dr. -

with robotic surgery

What part of the country do live?

From: Tom <tomcw4aaayahoo (DOT) com>To: ProstateCancerSuppo rtyahoogroups (DOT) comSent: Sun, December 6, 2009 10:56:28 PMSubject: Re: [ProstateCancerSupp ort] Help finding experienced Dr. - with robotic surgery

So what is the big deal about robotic surgery?

From: Sullivan <ahksullivan@ yahoo.com>To: ProstateCancerSuppo rtyahoogroups (DOT) comSent: Sun, December 6, 2009 4:40:29 PMSubject: Re: [ProstateCancerSupp ort] Help finding experienced Dr. - with robotic surgery

thank you so much, i appreciate the great info.

best

andrea

From: Steve Jordan <mycroftscj1@ cox.net>To: ProstateCancerSuppo rtyahoogroups (DOT) comSent: Sun, December 6, 2009 3:30:45 PMSubject: Re: [ProstateCancerSupp ort] Help finding experienced Dr. - with robotic surgery(snip)> My dad was recently diagnosed and we are having a difficult time finding > a Dr., who has performed at least 1,000> robotic surgeries... ..and good results. I recommend going to the home page of the Prostate Cancer Research Institute at http://www.prostate -cancer.org/ pcricms/Click on Resources, then on "Finding

Expert Physicians" on the left.Do note also that there is a

link to the Helpline on the home page. Useful and objective.And note that there is a huge amount of information available on this site, especiallythe link, "Newly Diagnosed."I strongly recommend _A Primer on Prostate Cancer_ 2nd ed., subtitled "The Empowered Patient's Guide" by medical oncologist and PCa specialist B. Strum, MD and PCa warrior Donna Pogliano. It is available from the PCRI website and the like, as well as Amazon (30+ five-star reviews), & Noble, and bookstores. A lifesaver, as I very well know.We might be able to narrow the field a bit if we know Dad's age and general health, as well as such essential details as his Gleason score, clinical stage (noted as T2a or some such), geographic location, and so on.Lastly, I'm certain that hopes to do her best for Dad, but if at all possible, it would be best if he should do his own

research. If not, we'll still be available to provide our best support.Regards,Steve J"Know that 9 out of 10 times, you have time to learn. Don't panic. You may make a decision (or let another make it for you) from which there is no return. Let the fear settle and your senses return. A cancer diagnosis is not a death sentence."-- Young, PCa MentorPhoenix 5------------ --------- --------- ------There are just two rules for this group 1 No Spam 2 Be kind to othersPlease recognise that Prostate Cancerhas different guises and needs different levels of treatment and in some cases no treatment at all. Some men even with all options offered chose radical options that you would not choose. We only ask that people be informed before choice is made, we cannot and should not tell other members what to do, other than look at other options. Try to delete old

material that is no longer applying when clicking replyTry to change the title if the content requires it

Link to comment
Share on other sites

Tom,

RALP (Robotic Assisted Laparoscopic

Prostatectomy) or Da Vinci surgery as it is often referred to is less traumatic

because it reduces the size of the cuts made to get to the prostate gland. This

means that physically the men who have robotic surgery recover quicker from the

surgery and generally feel better all around (the insurers like the procedure

because it usually saves a day or two on hospital).

The outcomes as far as side effects –

the main ones being incontinence (the inability to control urination) and ED

(erectile dysfunction - the inability to have an erection without the aid of

drugs or other devices) – are similar with both procedures.

There is a steep learning curve with RALP

and the standard recommendation is that you should not have this procedure done

by a surgeon with less than 250 operations with successful outcomes.

You can read more about the surgical

options on my website – ad the stories of men who have had either –

starting at http://www.yananow.net/choices.htm

All the best

Terry Herbert

I have no medical

qualifications but I was diagnosed in ‘96: and have learned a bit since

then.

My sites are at www.yananow.net and www.prostatecancerwatchfulwaiting.co.za

Dr

“Snuffy” Myers : " As a physician, I am painfully aware that most of

the decisions we make with regard to prostate cancer are made with inadequate

data "

From: ProstateCancerSupport [mailto:ProstateCancerSupport ] On Behalf Of Tom

Sent: Monday, 7 December 2009 2:56

PM

To: ProstateCancerSupport

Subject: Re:

Help finding experienced Dr. - with robotic surgery

So what is the big deal about robotic surgery?

From: Sullivan

<ahksullivan>

To: ProstateCancerSupport

Sent: Sun, December 6, 2009

4:40:29 PM

Subject: Re:

Help finding experienced Dr. - with robotic surgery

thank you so much, i appreciate the great info.

best

andrea

From: Steve

Jordan <mycroftscj1@ cox.net>

To: ProstateCancerSuppo

rtyahoogroups (DOT) com

Sent: Sun, December 6, 2009

3:30:45 PM

Subject: Re: [ProstateCancerSupp

ort] Help finding experienced Dr. - with robotic surgery

(snip)

> My dad was recently diagnosed and we are having a difficult time finding

> a Dr., who has performed at least 1,000

> robotic surgeries... ..and good results.

I recommend going to the home page of the Prostate Cancer

Research Institute at http://www.prostate-cancer.org/pcricms/

Click on Resources, then on " Finding Expert Physicians " on the left.

Do note also that there is a link to the Helpline on the home

page. Useful and objective.

And note that there is a huge amount of information available on

this site, especially

the link, " Newly Diagnosed. "

I strongly recommend _A Primer on Prostate Cancer_ 2nd ed.,

subtitled " The Empowered Patient's Guide " by medical oncologist

and PCa specialist B. Strum, MD and PCa warrior Donna

Pogliano. It is available from the PCRI website and the like, as

well as Amazon (30+ five-star reviews), & Noble, and

bookstores. A lifesaver, as I very well know.

We might be able to narrow the field a bit if we know Dad's age

and general health, as well as such essential details as his

Gleason score, clinical stage (noted as T2a or some such),

geographic location, and so on.

Lastly, I'm certain that hopes to do her best for Dad, but

if at all possible, it would be best if he should do his own

research. If not, we'll still be available to provide our best

support.

Regards,

Steve J

" Know that 9 out of 10 times, you have time to learn. Don't

panic. You may make a decision (or let another make it for you)

from which there is no return. Let the fear settle and your

senses return. A cancer diagnosis is not a death sentence. "

-- Young, PCa Mentor

Phoenix 5

------------ --------- --------- ------

There are just two rules for this group

1 No Spam

2 Be kind to others

Please recognise that Prostate Cancerhas different guises and needs different

levels of treatment and in some cases no treatment at all. Some men even with

all options offered chose radical options that you would not choose. We only

ask that people be informed before choice is made, we cannot and should not

tell other members what to do, other than look at other options.

Try to delete old material that is no longer applying when clicking reply

Try to change the title if the content requires it

Link to comment
Share on other sites

http://www.globalroboticsinstitute.com/en/urology-robotic-prostatectomy/why-dr-patel?gclid=CMrx3tDYxZ4CFQJinAodumWhqg

One of the best hospitals in the country for Davinci. They have built an entire wing just for this. Vipul Patel has done well north of 10,000. When he did mine, it was the 4th one he did just that day.

To: ProstateCancerSupport Sent: Mon, December 7, 2009 8:01:15 PMSubject: Re: Help finding experienced Dr. - with robotic surgery

we live in the midwest, but can travel anywhere.... . and have family in texas and florida

thank you so much

From: B Pender <b2p16yahoo (DOT) com>To: ProstateCancerSuppo rtyahoogroups (DOT) comSent: Mon, December 7, 2009 6:16:23 PMSubject: Re: [ProstateCancerSupp ort] Help finding experienced Dr. - with robotic surgery

What part of the country do live?

From: Tom <tomcw4aaayahoo (DOT) com>To: ProstateCancerSuppo rtyahoogroups (DOT) comSent: Sun, December 6, 2009 10:56:28 PMSubject: Re: [ProstateCancerSupp ort] Help finding experienced Dr. - with robotic surgery

So what is the big deal about robotic surgery?

From: Sullivan <ahksullivan@ yahoo.com>To: ProstateCancerSuppo rtyahoogroups (DOT) comSent: Sun, December 6, 2009 4:40:29 PMSubject: Re: [ProstateCancerSupp ort] Help finding experienced Dr. - with robotic surgery

thank you so much, i appreciate the great info.

best

andrea

From: Steve Jordan <mycroftscj1@ cox.net>To: ProstateCancerSuppo rtyahoogroups (DOT) comSent: Sun, December 6, 2009 3:30:45 PMSubject: Re: [ProstateCancerSupp ort] Help finding experienced Dr. - with robotic surgery(snip)> My dad was recently diagnosed and we are having a difficult time finding > a Dr., who has performed at least 1,000> robotic surgeries... ..and good results. I recommend going to the home page of the Prostate Cancer Research Institute at http://www.prostate -cancer.org/ pcricms/Click on Resources, then on "Finding Expert Physicians" on the left.Do note also

that there is a link to the Helpline on the home page. Useful and objective.And note that there is a huge amount of information available on this site, especiallythe link, "Newly Diagnosed."I strongly recommend _A Primer on Prostate Cancer_ 2nd ed., subtitled "The Empowered Patient's Guide" by medical oncologist and PCa specialist B. Strum, MD and PCa warrior Donna Pogliano. It is available from the PCRI website and the like, as well as Amazon (30+ five-star reviews), & Noble, and bookstores. A lifesaver, as I very well know.We might be able to narrow the field a bit if we know Dad's age and general health, as well as such essential details as his Gleason score, clinical stage (noted as T2a or some such), geographic location, and so on.Lastly, I'm certain that hopes to do her best for Dad, but if at all possible, it would be best if he should do his

own research. If not, we'll still be available to provide our best support.Regards,Steve J"Know that 9 out of 10 times, you have time to learn. Don't panic. You may make a decision (or let another make it for you) from which there is no return. Let the fear settle and your senses return. A cancer diagnosis is not a death sentence."-- Young, PCa MentorPhoenix 5------------ --------- --------- ------There are just two rules for this group 1 No Spam 2 Be kind to othersPlease recognise that Prostate Cancerhas different guises and needs different levels of treatment and in some cases no treatment at all. Some men even with all options offered chose radical options that you would not choose. We only ask that people be informed before choice is made, we cannot and should not tell other members what to do, other than look at other options. Try to delete old

material that is no longer applying when clicking replyTry to change the title if the content requires it

Link to comment
Share on other sites

In September, 2007, I had a robotic laparoscopic RP at Northwestern University Medical Center in Chicago. The surgeon who performed the surgery had performed about 300 such

procedures per year for a few years prior to accepting me as a

patient. I say "accepting" because he and Northwestern track surgical

outcomes for 5 years and I am convinced that they will reject cases

that are predicted to have poor outcomes in order to elevate their

statistical performance. My suburban urologist who performed my biopsy

said as much when he advised, "IF they take you

downtown, you will do great. They only take good patients. I get

stuck doing the 70 year old obese patients with diabetes."

I know one can read a lot into that comment and I will leave you to

your interpretations, but I agree with the sentiment that a major med

center with a well recognized specialty program is, shall we say,

conscious, of their results.

Anyhow, I had the surgery and, although I was in the OR for 6

hours, was released from the hospital to return home the day following

the procedure. Catheter

for 10 days. When the catheter came out I was prepared with a box of

adult diapers (48 count) and heavy duty pads. I used a couple of the

diapers and then wore a pad for a few days while at work just in case I

had an accident. I didn't. Within a few weeks of the surgery I had

zero leakage and disregarded incontinence as an issue.

I did go on a Muse/Cialis/Viagra rehab program with little results

for the first several months. My surgery was full nerve sparing and I

believe my surgeon prolonged the surgery (remember, it was six hours

long) in a very dedicated effort to minimize disruption/damage to nerve

and vascular bundles that he and I discussed at length before the

surgery.

By the one year mark I was recovering function rather well but was

not completely satisfied. I made an appointment to see Jeff Albough,

ED specialist at Northwestern, in month 13 following surgery. Due to

schedule problems, I was unable to see him until month 16. My intent

was to get right into injections, but by month 16 I was doing very well

with Cialis/Viagra (has anyone EVER benefitted from Muse?) and getting

stronger and stronger without any meds. Jeff urged me to be a little

more patient and not change anything I was doing. I followed his

advice and by month 18 I was using meds more for recreational use than

necessity. Today, at 24 months, I can take them or leave them.

Through it all, my PSA post surgery has vacillated between 0.0 and

0.1 which I believe is statistically the same. I have no reason to

believe my test taken last week will be any different.

In sum, I am very pleased with my choice of surgeons, medical

center and procedure based on the outcomes. At Northwestern's

invitation I have joined their list of reference patients who are

available to talk to prospective patients about the process and program

at Northwestern. When I receive a call at home from someone who is

where I was two years ago, I am very careful to point out the "Your

Mileage May Vary" considerations but, if I had it to do over, I would

not change a thing. Could the outcome have been the same with open

RP? I am certain it could have been but not at all certain that it would have been.

I do agree with another poster who pointed out that these forums tend to be overpopulated with cancer patients

who are seeking input to assist them with their decision making or are

having problems and are seeking direction. It is unfortunate because

it may give the impression to newly diagnosed readers that there are

no patients with satisfactory results. It would be great if people who

went through the process and recovered very nicely remained in

touch with the forums but that is not the way of the world. As time

passes I find myself viewing my summer of 2007 "ordeal" as no more or

less eventful than an appendectomy I had in "84. Yep it happened and now it's behind me.I would be happy to provide the name of the surgeon who performed my RP off-line if you are interested. E-mail me at jecarroll98@....

Best regards to all.

Subject: Re: Help finding experienced Dr. - with robotic surgeryTo: ProstateCancerSupport Date: Monday, December 7, 2009, 8:01 PM

we live in the midwest, but can travel anywhere.... . and have family in texas and florida thank you so much

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Share on other sites

many thanks for the info, we'll look into this! best wishesandrea To: ProstateCancerSupport Sent: Mon, December 7, 2009 7:35:06 PMSubject: Re: Help finding experienced Dr.

- with robotic surgery

http://www.globalro boticsinstitute. com/en/urology- robotic-prostate ctomy/why- dr-patel? gclid=CMrx3tDYxZ 4CFQJinAodumWhqg

One of the best hospitals in the country for Davinci. They have built an entire wing just for this. Vipul Patel has done well north of 10,000. When he did mine, it was the 4th one he did just that day.

From: Sullivan <ahksullivan@ yahoo.com>To: ProstateCancerSuppo rtyahoogroups (DOT) comSent: Mon, December 7, 2009 8:01:15 PMSubject: Re: [ProstateCancerSupp ort] Help finding experienced Dr. - with robotic surgery

we live in the midwest, but can travel anywhere.... . and have family in texas and florida

thank you so much

From: B Pender <b2p16yahoo (DOT) com>To: ProstateCancerSuppo rtyahoogroups (DOT) comSent: Mon, December 7, 2009 6:16:23 PMSubject: Re: [ProstateCancerSupp ort] Help finding experienced Dr. - with robotic surgery

What part of the country do live?

From: Tom <tomcw4aaayahoo (DOT) com>To: ProstateCancerSuppo rtyahoogroups (DOT) comSent: Sun, December 6, 2009 10:56:28 PMSubject: Re: [ProstateCancerSupp ort] Help finding experienced Dr. - with robotic surgery

So what is the big deal about robotic surgery?

From: Sullivan <ahksullivan@ yahoo.com>To: ProstateCancerSuppo rtyahoogroups (DOT) comSent: Sun, December 6, 2009 4:40:29 PMSubject: Re: [ProstateCancerSupp ort] Help finding experienced Dr. - with robotic surgery

thank you so much, i appreciate the great info.

best

andrea

From: Steve Jordan <mycroftscj1@ cox.net>To: ProstateCancerSuppo rtyahoogroups (DOT) comSent: Sun, December 6, 2009 3:30:45 PMSubject: Re: [ProstateCancerSupp ort] Help finding experienced Dr. - with robotic surgery(snip)> My dad was recently diagnosed and we are having a difficult time finding > a Dr., who has performed at least 1,000> robotic surgeries... ..and good results. I recommend going to the home page of the Prostate Cancer Research Institute at http://www.prostate -cancer.org/ pcricms/Click on Resources, then

on "Finding Expert Physicians" on the left.Do note also

that there is a link to the Helpline on the home page. Useful and objective.And note that there is a huge amount of information available on this site, especiallythe link, "Newly Diagnosed."I strongly recommend _A Primer on Prostate Cancer_ 2nd ed., subtitled "The Empowered Patient's Guide" by medical oncologist and PCa specialist B. Strum, MD and PCa warrior Donna Pogliano. It is available from the PCRI website and the like, as well as Amazon (30+ five-star reviews), & Noble, and bookstores. A lifesaver, as I very well know.We might be able to narrow the field a bit if we know Dad's age and general health, as well as such essential details as his Gleason score, clinical stage (noted as T2a or some such), geographic location, and so on..Lastly, I'm certain that hopes to do her best for Dad, but if at all possible, it would be best if he should do his

own research. If not, we'll still be available to provide our best support.Regards,Steve J"Know that 9 out of 10 times, you have time to learn. Don't panic. You may make a decision (or let another make it for you) from which there is no return. Let the fear settle and your senses return. A cancer diagnosis is not a death sentence."-- Young, PCa MentorPhoenix 5------------ --------- --------- ------There are just two rules for this group 1 No Spam 2 Be kind to othersPlease recognise that Prostate Cancerhas different guises and needs different levels of treatment and in some cases no treatment at all. Some men even with all options offered chose radical options that you would not choose. We only ask that people be informed before choice is made, we cannot and should not tell other members what to do, other than look at other options. Try to delete old

material that is no longer applying when clicking replyTry to change the title if the content requires it

Link to comment
Share on other sites

john.... thank you for the informative email.... how great to hear of your results... it sounds like a long road,.... but you're a hero and cancer free! i look forward to sharing this with my dad many thanks,andreaTo: ProstateCancerSupport Sent: Mon, December 7, 2009 7:48:31 PMSubject: Re: Help finding experienced Dr. - with robotic surgery

In September, 2007, I had a robotic laparoscopic RP at Northwestern University Medical Center in Chicago. The surgeon who performed the surgery had performed about 300 such

procedures per year for a few years prior to accepting me as a

patient. I say "accepting" because he and Northwestern track surgical

outcomes for 5 years and I am convinced that they will reject cases

that are predicted to have poor outcomes in order to elevate their

statistical performance. My suburban urologist who performed my biopsy

said as much when he advised, "IF they take you

downtown, you will do great. They only take good patients. I get

stuck doing the 70 year old obese patients with diabetes."

I know one can read a lot into that comment and I will leave you to

your interpretations, but I agree with the sentiment that a major med

center with a well recognized specialty program is, shall we say,

conscious, of their results.

Anyhow, I had the surgery and, although I was in the OR for 6

hours, was released from the hospital to return home the day following

the procedure. Catheter

for 10 days. When the catheter came out I was prepared with a box of

adult diapers (48 count) and heavy duty pads. I used a couple of the

diapers and then wore a pad for a few days while at work just in case I

had an accident. I didn't. Within a few weeks of the surgery I had

zero leakage and disregarded incontinence as an issue.

I did go on a Muse/Cialis/ Viagra rehab program with little results

for the first several months. My surgery was full nerve sparing and I

believe my surgeon prolonged the surgery (remember, it was six hours

long) in a very dedicated effort to minimize disruption/damage to nerve

and vascular bundles that he and I discussed at length before the

surgery.

By the one year mark I was recovering function rather well but was

not completely satisfied. I made an appointment to see Jeff Albough,

ED specialist at Northwestern, in month 13 following surgery. Due to

schedule problems, I was unable to see him until month 16. My intent

was to get right into injections, but by month 16 I was doing very well

with Cialis/Viagra (has anyone EVER benefitted from Muse?) and getting

stronger and stronger without any meds. Jeff urged me to be a little

more patient and not change anything I was doing. I followed his

advice and by month 18 I was using meds more for recreational use than

necessity. Today, at 24 months, I can take them or leave them.

Through it all, my PSA post surgery has vacillated between 0.0 and

0.1 which I believe is statistically the same. I have no reason to

believe my test taken last week will be any different.

In sum, I am very pleased with my choice of surgeons, medical

center and procedure based on the outcomes. At Northwestern' s

invitation I have joined their list of reference patients who are

available to talk to prospective patients about the process and program

at Northwestern. When I receive a call at home from someone who is

where I was two years ago, I am very careful to point out the "Your

Mileage May Vary" considerations but, if I had it to do over, I would

not change a thing. Could the outcome have been the same with open

RP? I am certain it could have been but not at all certain that it would have been.

I do agree with another poster who pointed out that these forums tend to be overpopulated with cancer patients

who are seeking input to assist them with their decision making or are

having problems and are seeking direction. It is unfortunate because

it may give the impression to newly diagnosed readers that there are

no patients with satisfactory results. It would be great if people who

went through the process and recovered very nicely remained in

touch with the forums but that is not the way of the world. As time

passes I find myself viewing my summer of 2007 "ordeal" as no more or

less eventful than an appendectomy I had in "84. Yep it happened and now it's behind me.I would be happy to provide the name of the surgeon who performed my RP off-line if you are interested. E-mail me at jecarroll98@ yahoo.com.

Best regards to all.

From: Sullivan <ahksullivan@ yahoo.com>Subject: Re: [ProstateCancerSupp ort] Help finding experienced Dr. - with robotic surgeryTo: ProstateCancerSuppo rtyahoogroups (DOT) comDate: Monday, December 7, 2009, 8:01 PM

we live in the midwest, but can travel anywhere.... . and have family in texas and florida thank you so much

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