Guest guest Posted June 5, 2006 Report Posted June 5, 2006 Hi , Celiac/Gluten can cause a whole bunch of different symptoms. Many of which can go away within days/weeks and others, especially if it has caused nerve damage might take longer. I had severe clitoral nerve pain but it came on about the same time I found out that being gluten sensitive was my thing and it went away pretty fast. I also had vulvar skin problems, burning, itching, excoriation, lesions, lichenified, etc. and all of that went away in a few days except for the burning and I think that was just what resulted from the damage with steriods and meds, etc. That went away pretty quickly after I started using estrace which I don't use anymore. My other symptoms, diarrhea, IBS, fatique muscle cramps, severe back pain, brain fog, dizziness, took a couple of weeks. It was a miracle. Other who have vulvar vestibulitis have said that it takes longer. The small fiber nerve damage takes awhile. This diet and this particular disease (gluten sensitivity), is a serious disease, is very complex and it is very difficult to understand and to do the diet as there is much to learn. It is important and serious enough to get a proper test if you can possibly swing it--$99.00 plus postage. Otherwise it seems to me that I would find it very difficult to stick to. I hope this helps to answer your questions and I hope you find the thing that will make you well. Arline --- femifesto wrote: > Hi Arline-- > > I've been doing some reading about gluten > sensitivity and celiac. I am wondering how long > one has to to be on a gluten-free diet before > noticing any difference in symptoms? Weeks? > Months? > > I was gluten-free for a couple months, and noticed > no difference so I've added a little back > in, but I wonder if it might take longer?... > > Thanks! > > > > > __________________________________________________ Quote
Guest guest Posted June 5, 2006 Report Posted June 5, 2006 Arline and all-- Thank you for your response and info. I am going to order the test as soon as I get my next paycheck (this month I've already spent my extra cash on medical bills!). I mostly have vulvar burning and itching, and I'm beginning to wonder if it is related to nerve damage. I wonder are there studies that actually show this kind of pain can be caused by nerve damage? Can you direct me to any articles that talk about gluten sensitivity and genital pain and/or nerve damage? After using the Estrace you were pain free? I've been considering that, too, but I'm scared because I have a long history with yeast infections and have heard that it can cause them. Thank you so much for all of your information. I know I've been posting a lot of questions lately, I just am so determined to figure this out! Nothing like constant vulvar pain to make you do research and ask questions! Kindly, > > > Hi Arline-- > > > > I've been doing some reading about gluten > > sensitivity and celiac. I am wondering how long > > one has to to be on a gluten-free diet before > > noticing any difference in symptoms? Weeks? > > Months? > > > > I was gluten-free for a couple months, and noticed > > no difference so I've added a little back > > in, but I wonder if it might take longer?... > > > > Thanks! > > > > > > > > > > > > > > __________________________________________________ > Quote
Guest guest Posted June 6, 2006 Report Posted June 6, 2006 , As far as I know there has been little research on vulvar pain and gluten. (Too bad). A couple of times in the last few years I suggested that we on this group or another one involving vulvar disorders do our own research study--for example have volunteers for about 25 of us to be tested, etc., to see how many are gluten sensitive. If we had done this to perhaps call attention to the results, maybe a research institution or doctor would take it on. If there has been research I am sure that things would be different. I don't have these research studies at my finger tips. I have posted everything that I have ever read that I thought would be helpful and if you want the research you might wish to go through the archives. I do know that gluten sensitivity causes small nerve pain/damage. That is what vulvar vestibulitis is as I understand it. People who are Celiac or Gluten Sensitive take the risk of having any part of their body attacked. Burning sensations and itching sensation are fairly well known nerve effects in addition to other kinds of neuropathy. Too many people in the five or six years I have been around have found success with this when they realized they were gluten sensitive for it not to be part of the problem with a lot of us. There were a couple of studies that mentioned gynecological disorders from Europe I think. It is common that gluten sensitivity causes ovarian shut down, infertility, miscarriage, other hormone disruption including prolactin with some nasty results. If the research had been done I think that there wouldn't be people here who have had these problems for decades without much help. It seems to me that medicine seems so compartmentalized. OB GYNS focus on that. Gastroenterologists focus on that. If there is a confusing of the issues, we often get nowhere. This has always been treated as a gyn thing if one has vulvar pain, etc. I think it is gastroenterological thing, a nutrition thing (which nobody will touch), and autoimmune disease complex thing, that manifests itself in all kinds of symptoms all over the body as it attacks all organs. Because medicine doesn't look at causes but only looks at treatment, as we see by the dozens of prescriptions that are given for these problems, we don't know much about it. The research seems to be about the success of individual medications. The ones that the doctors are able to help are helped and they go away happy. The ones that can't be helped hang around, sometimes for years. I believe that we all need to go to the doctor and do what he says and listen and meanwhile try things that might work that are not yet in their view. It worked for me. It has worked for others. Those that find other things that have solved their problem, good for them. If one hasn't found the answer, keep looking. I hope this helps. If one has some kind of health problem that they are unable to solve, getting tested for gluten sensitivity is a very smart thing to do even if there are no other symptoms like IBS for example or numbness somewhere or fatigue or fibromyalgia. And if one has these other symptoms, it is almost a dead giveaway for having a sensitivity to gluten. It also seems to me that they have treated these female problems very simplistically like it is a simple allergy or a simple hormone thing (what causes it is the problem that needs to be solved) or that the little women is slightly nutz as is often the reaction to this. It isn't a simplistic thing if you have gluten sensitivy but very complex and they don't know very much of anything about the disease and only seem to want to know what has already been said which is mostly inaccurate. What can you do? Find out for yourself what you can. Otherwise you are at the mercy of the doctors who so very often cannot do much for these things but subscribe steroids or the next drug that is put on the market. You are really smart to ask the questions and do the research. Keep it it!! Best, Arline --- femifesto wrote: > Arline and all-- > > Thank you for your response and info. I am going to > order the test as soon as I get my > next paycheck (this month I've already spent my > extra cash on medical bills!). I mostly > have vulvar burning and itching, and I'm beginning > to wonder if it is related to nerve > damage. I wonder are there studies that actually > show this kind of pain can be caused by > nerve damage? > > Can you direct me to any articles that talk about > gluten sensitivity and genital pain and/or > nerve damage? > > After using the Estrace you were pain free? I've > been considering that, too, but I'm scared > because I have a long history with yeast infections > and have heard that it can cause them. > > Thank you so much for all of your information. I > know I've been posting a lot of questions > lately, I just am so determined to figure this out! > Nothing like constant vulvar pain to make > you do research and ask questions! > > Kindly, > > > > > __________________________________________________ Quote
Guest guest Posted June 6, 2006 Report Posted June 6, 2006 Arline-- Thank you so much for your response. I do in fact have IBS, which in the past was nearly as disruptive as the vulvar pain. With so much searching and so little response it all starts to seem futile but I know I have to keep trying. > > > > > __________________________________________________ > Quote
Guest guest Posted June 6, 2006 Report Posted June 6, 2006 , a positive test for gluten sensitivity might be the end of your searching and the beginning of good health. I suspect it would. Also, thanks for the information and I will try to do something there. Personally I think he is an American hero for telling the truth when nobody else does. Arline > Thank you so much for your response. I do in fact > have IBS, which in the past was nearly as > disruptive as the vulvar pain. > > With so much searching and so little response it all > starts to seem futile but I know I have > to keep trying. __________________________________________________ Quote
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