Guest guest Posted February 7, 2004 Report Share Posted February 7, 2004 Ian spoke a sentence! I think I am filling in a few of the blanks here, but this morning I'm sure Ian said " These are my knees " while holding on to his kneecaps. " knees " came out loud and clear. The rest of the statement was garbled but after hearing it a few times I think I figured it out. I made a HUGE deal... jumping, clapping, tickling, repeating his sentence and tickling his knees. He spoke the same phrase with the same sounds several times. No mistaking here! 12 hours later... he did it AGAIN! Same sounds with " knees " as clear as a bell. I am sure it will become our own personal game for some time to come: he says the sentence and I repeat it while counting/tickling his knees. I love this kid! NN ProEFA? It has been one week on this stuff and I can't keep him quiet! Granted, Ian has been the Supreme Babbler for 6 months now, but it has moved up a notch to include recognizeable words. Thanks for listening! Pam QUOTE by Psychiatrist who evaluated Ian: " Ian is a swiss cheese of issues. You can focus on the holes or you can focus on the cheese. Looking at Ian, he seems to be the type of child that will always focus on the cheese. " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2004 Report Share Posted February 7, 2004 Yea Ian!! " These are my knees " what a cutie!! And what an amazing surge no matter what it's from -wow!! Since you said Ian was " textbook description " of apraxia when you first joined, I just want to ask you a question. The symptom of not being able to say the same word twice prior to it being in their motor memory, or on command, which is fairly typical of all apraxic children -is the first sign to disappear on the EFAs. Apraxic children on EFAs can talk on command -and repeat their new words on command over and over. What was Ian like prior to EFAs -could he repeat new words if asked? Would he repeat even if not asked? (many apraxic children not on EFAs will say a word once -and not again for months) Hey Pam watch it -you are right before the " scream from the rooftops " stage I just posted about: " OK -the next stage is pure elation and hope -you see the light and no longer feel as desperate and want to share this new information with everyone and anyone. As the months go by and your child continues to progress at a much more rapid rate -you may even start to doubt the original diagnosis -especially if you started EFA supplementation at two -and perhaps the SLP that diagnosed the apraxia who also was at first excited is starting to second guess if the original diagnosis was correct as well. Unless you have to stop the ProEFA (or other Essential Fatty Acid) and literally have the chance to see the regression of acquired speech and language skills, attempts, and changes in behavior like we did with Tanner (and/or have a chance to again witness the second surge when your child is put back on the EFAs) -that doubt will probably remain somewhere in your mind and in others around your child. So the " I told you that he would start talking when he was ready " comments should be expected of course. " ===== Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2004 Report Share Posted February 8, 2004 Ian's first word, " off " , was uttered at 11 months. He used it in proper context for about 2 weeks and we have never heard it again. Same for " hot " at 14 months. Up until 26 +/- months he would only have one word in his vocab at a time. He would lose one to gain one. I don't remember if retaining words came right when we started the CLO. I'd have to look back in my notes, but CLO came in to the diet at about 24 months. Sounds like a good correlation to me! Since reintroducing the EFAs after a 2 month break, Ian has definitely increased his ability to retain words. He now consistently pronounces most of his words. Even the new ones. The NN ProEFA appears to have jumped it up a notch. I'm looking for an easy way up to my roof for some screamin'! Pam p.s. I went to a scrap book marathon yesterday. I finally started Ian's scrapbook. Ian was the most expressive baby: lots of BIG smiles with tongue sticking out, eyes sparkling, etc. Then I got to the 16 month pictures and that look was gone. Vaccines? Virus? Did one of these put him over the edge? > Yea Ian!! " These are my knees " what a cutie!! > > And what an amazing surge no matter what it's from -wow!! > > Since you said Ian was " textbook description " of apraxia when you > first joined, I just want to ask you a question. The symptom of not > being able to say the same word twice prior to it being in their > motor memory, or on command, which is fairly typical of all apraxic > children -is the first sign to disappear on the EFAs. Apraxic > children on EFAs can talk on command -and repeat their new words on > command over and over. What was Ian like prior to EFAs -could he > repeat new words if asked? Would he repeat even if not asked? > (many apraxic children not on EFAs will say a word once -and not > again for months) > > Hey Pam watch it -you are right before the " scream from the > rooftops " stage I just posted about: > > " OK -the next stage is pure elation and hope -you see the light and > no longer feel as desperate and want to share this new information > with everyone and anyone. As the months go by and your child > continues to progress at a much more rapid rate -you may even start > to doubt the original diagnosis -especially if you started EFA > supplementation at two -and perhaps the SLP that diagnosed the > apraxia who also was at first excited is starting to second guess if > the original diagnosis was correct as well. Unless you have to stop > the ProEFA (or other Essential Fatty Acid) and literally have the > chance to see the regression of acquired speech and language skills, > attempts, and changes in behavior like we did with Tanner (and/or > have a chance to again witness the second surge when your child is > put back on the EFAs) -that doubt will probably remain somewhere in > your mind and in others around your child. So the " I told you that > he would start talking when he was ready " comments should be > expected of course. " > > ===== > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2004 Report Share Posted February 8, 2004 This sounds so much like my son, all of it, down to the words and lack of ability to hold more than so many words (my son wasn't just one word but around 10), the expressiveness until after 18 months when he became horribly out of it. Rejoicing with you in his progress! Lynn > Ian's first word, " off " , was uttered at 11 months. He used it in > proper context for about 2 weeks and we have never heard it again. > Same for " hot " at 14 months. Up until 26 +/- months he would only > have one word in his vocab at a time. He would lose one to gain one. > > I don't remember if retaining words came right when we started the > CLO. I'd have to look back in my notes, but CLO came in to the > diet at about 24 months. Sounds like a good correlation to me! > > Since reintroducing the EFAs after a 2 month break, Ian has > definitely increased his ability to retain words. He now > consistently pronounces most of his words. Even the new ones. The > NN ProEFA appears to have jumped it up a notch. > > I'm looking for an easy way up to my roof for some screamin'! > > Pam > > p.s. I went to a scrap book marathon yesterday. I finally started > Ian's scrapbook. Ian was the most expressive baby: lots of BIG > smiles with tongue sticking out, eyes sparkling, etc. Then I got to > the 16 month pictures and that look was gone. Vaccines? Virus? > Did one of these put him over the edge? > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.