Re: data overload

[Guest guest]

My insurance denied my physical therapy, I got one visit, and now it's on

to appeals, only thing I tried to contact my doctor and turns out she is

out of the country, the nurse is out to, and she may be going away for a

year...I just got referred to her!!!!, Anne

--On Wednesday, February 22, 2006 5:59 AM +0000 dindushnyc

wrote:

> Hi again,

> Thank you to everyone who answered!

> Thank you for making me feel so welcome - yes, my doctor did do

> the Q-tip test and my pain does seem to be confined to the vestibule.

> She says my vaginismus diagnosis was just secondary to the normal

> human reaction to tense up when confronted with severe pain. In

> medical terms: duh.

> Thank you for the physician referral. Unfortunately not on my

> insurance plan, and affording things is a little difficult in current

> medical school debt situation, but I'll find a way to pay for it if

> there's no one in my plan who is as good.

> A word on coffee: I have no idea how it relates to vulvar pain

> (strangely not covered in our gynecology course...) but it was

> discussed extensively in our gastrointestinal pathophysiology class.

> Two important things: it lowers the pressure at the lower esophageal

> sphincter, thereby facilitating acid reflux. If you have acid reflux,

> stop the coffee. Even decaf. It's not just the caffeine, it's the

> coffee. Second, and more relevant: it's just a nightmare for those of

> us with IBS - stimulates the gut like crazy. It's terrible stuff.

> And I live on it. I'm hardly one to tell anyone to stop drinking

> coffee, but it's definitely not helping us. I'm at least trying to

> switch to more benign forms of caffeine....

> Back to celiac: really don't have any desire to step on toes or

> irritate anyone or claim to know more (I know that people who have a

> disease tend to know a heck of a lot about it). But I do stand by

> what I said earlier. Celiac disease affects the small intestines.

> You eat gluten. That's where it goes. It doesn't affect the nerves

> without affecting the small intestines first. Unless you're injecting

> gluten instead of eating it. Not only does it affect the small

> intestines, but it affects the proximal (first part) of the small

> intestines first - because that's where the highest concentration of

> gluten goes. That's one way to distinguish celiac from tropical

> sprue - tropical sprue affects the whole length of the small

> intestines, which includes the terminal ileum, which is where vitamin

> B12 gets absorbed, so you end up with a pernicious anemia. What I'm

> trying to say is, small intestine symptoms and anti-gliadin antibodies

> are the definition of celiac disease. All of us clearly already have

> enough on our plates, I don't think we need to find new diagnoses for

> ourselves unless we have small intestinal disease symptoms or anti-

> gliadin antibodies. I think those of you with negative anti-bodies

> can just put your minds at ease.

> Arline, I've been reading the literature on nerve proliferation very

> closely and I agree that there are some fascinating hypotheses there.

> It does seem to explain my life very well. I just think we need to

> make a distinction between nerve proliferation and an inflammatory

> response. Two completely different entities....

> Okay, another long email by me and I don't think anyone wants to hear

> it. I'll try and stay out of medical discussions. I'm personally

> trying to read less because it's honestly driving me crazy. I want to

> focus on one treatment at a time. My doctor gave me lidocaine and I'm

> excited to finally put those ridiculous dilators to good use. If

> anyone has any advice on lidocaine use, I'd love to hear it.

> Thanks again girls,

> D

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