Misc

[Guest guest]

In a message dated 8/2/99 12:09:42 AM Eastern Daylight Time, Ron88Jen@...

writes:

<< Our favorites are big pats, little pats

>>

Hi all -- just wanted to let you know that this book was done here in

Buffalo, NY. I know several of the people in it. I am very good friends

with the little girl doing the puff, puff, puff and her Mom (when they are

visiting the Doc). BTW she was a great doc but has moved on.

is constipated -- hasn't gone in a few days. I have been giving her

Lactulose and usually this works pretty quick but not this time. I sent her

to school today -- hope she does OK. I told the teacher to call me if there

is a problem.

Jennie - hang in there - I get tired just reading all your posts. had

mild apnea and I was exhausted from that. You are an amazing Mom. Mallory

is in our thoughts. How much longer are you in Canada for? Try and enjoy

some of that Canadian air, however hot it may be. Today it is much cooler

here.

Everyone have a Happy Monday.

Sally

Mom of na, &

[Guest guest]

In a message dated 8/14/99 12:45:33 PM Central Daylight Time,

macisaac@... writes:

<< " I'm big and bitchy and want this kid out! " >>

Hi Mo! You really do know how I feel! I am just huge. Reese was my

biggest child....he weighed 10 even. I was told that this one was bigger. I

think its the way I am carrying him, but who knows! I tell that to my doctor

all the time. No one seems to listen to me. Next Thursday he will set up an

induction if I haven't had him by then. Talk to you soon.

Kathy

[Guest guest]

In a message dated 10/6/99 12:06:48 PM Central Daylight Time, Pyeyed@...

writes:

<< I am so happy tha Jarretts test was negative. I remember the relief when

I

got s test results. You could actually breath again. >>

Hi ! Yes, AHHHHHHHH. I am breathing! Thanks!

Kathy

[Guest guest]

Hi Torsten,

Good to hear from you again! I was begining to wonder if they were working

you to death. I was very interested in your microbiologist friend's

theories a/b why Tobra IV's are still used by many as a first-line treatment

when Tobi is available. I'd be interested in hearing the thoughts on this

that come out in the EU consensus meeting on treating PA (did you say it's

later this month)?

On the stuffy nose issue, what about saline nasal spray? In the US it's

sold inexpensively under many brand names, and I know some families

(Jennie?) also squirt little plastic vials of plain saline (the kind you'd

add to a neb mix) into the little one's noses. Any kind of saline you can

get up in the little nose will help loosen the " gunk " and get it draining

(even without the infamous " snot sucker " LOL). Good luck.

Oh-- JENNIE, I found Katy's e-mail and sent her a note to ask how she's

doing. I'll let you know if I get a reply.

bye,

[Guest guest]

Hi,

ROBERTO, congrats to that clinic visit! It is such a relief to learn that

everything is alright. Hopefully the culture results come back negative.

Re the weight gain, well, we saw the same with Fiona recently and the doc

didn't worry about that. How exact do they measure the weight? I mean it can

make a different of hundred gramms and more, if Sonsoles has had no meal

before the weighing and/or if her diaper was full or empty.

MELISSA, welcome to the list. Your description of your thoughts and feelings

about 's CF is exactly the same as what we went through during the

first two years. It helped me a lot to write about my feelings.

You can reply just by e-mail. If you only push the reply-button, your mail

will be automatically sent to the list. If you want to reply to someone

privately, you have to copy and paste the addy.

HEATHER, sorry to hear about the two ill kiddos. Hope the warmer weather will

help a bit. And re Fiona's bday wishes, she is always a very modest child and

claims, that she has everything she needs (lucky girl LOL). Though today she

told us, that she wishes to be two forever (I DON'T LIKE THAT IDEA LOL).

NANCY K., you wrote >she sleeps 11 hours/night and 2-3 hours during the day<

Boy, that is at least two hours more than Fiona does. Do you know that you

are blessed :-))

CHRISTINE, thanks for the info about AAT. Another ray of hope for us!

Bye-bye

Torsten, dad of Fiona 3wcf

[Guest guest]

Torsten,

Hey, isn't it 1 in 2,000 births in the US? Or is it 1 in 2,000 caucasian

births? Anyone know? I never heard 1 in 3,000, maybe thats Germany?

RE: Becca, I hate to admit it, but this time I have to stick up for

MO....Becca is really really stubborn and I can see her refusing meds....

good thing she is the twin without CF, huh? Its funny to see those twins,

like night and day Ali the social butterfly with blonde hair, blue eyes, and

Becca dark haired and darker skin and shy as can be.... Reminds me of my boys

(though they are not twins), the wild man with Brown eyes and brown

hair and the quiet mama's boy type (most of the time, but getting

wilder due to brothers coaching...) with white hair and blue eyes.... (last

week, told everyone at school that they are twins....) The other thing

it reminds me of is when and a were babies together (the last time

we had Brit and a) we would take em along in the double stroller and

people would say, oh are they twins? with his white hair and a

with black hair....not to mention that Brit and a bear absolutely no

resemblance to the rest of us!) We got to where we would just smile and say

" aren't they cute " so as to avoid the whole foster care story right in front

of the kids....

One last story, how to get the busy bodies to shut up. You know the ones,

oh, isn't she cute, but she doesn't look a thing like the rest of the kids,

you know I have a cousin that looks just like you blah blah blah then the

questions, are they all yours? (answer, no, we kidnapped this one about an

hour ago so would you please walk away quickly...) are they all yours? Yes

My they don't look anything alike? Answer: perhaps that because this one

was a crack baby.... or Ron's answer: perhaps thats because we're not

really certain that she's (pointing to me) the real mother (believe it or

not, it usually takes them quite awhile to realize the impossibility of this)

or Ron's answer in church: really, hummmm, I have been thinking that she

bears a striking resemblance to our priest..... BEST answer of all in

church..... " OF COURSE THEY AREN'T ALL OURS, WE JUST BORROWED A FEW EXTRA you

know, for extra points when we go to communion....gotta look like real

Catholics, you know " .....

Night everyone....

Jen

[Guest guest]

Wish she could give me the emzymes...She is in NJ and

I am here in northern NY. I will go to our appt on

Tuesday. We are doing another sweat test, and taking

blood for the DNA testing. We are also scheduled to

meet with a genetists. After that I will call the ped

and ask for them.

Can someone explain what clubbed fingers are?

I also have a question do your kids get a lot of sinus

infections and ear infections....Last year Abby had an

ear infection from the beginning of Nov. till Med Feb

when the tubes went in. She was on IV antibiotics for

3 weeks and they still didn't clear. Does all this

connect with CF?

Abby has beenin the hosital 3 times since Nov with

gastro problems. Are CF kids CBC's normal? Reason I

am asking is that I am not used to seeing a normal WBC

and ANC's. Her vitamin levels were low and she is now

ona multivitamin with iron. She is slightly anemic,

but not bad.

=====

and

(congential neutropenia, hypogammaglobulinemia, chronic sinusitis and

leukopenia)

mom to Evan 6, 4 and Abby Rose 2 possible CF

__________________________________________________

[Guest guest]

Hi ,

Sinus disease (chronic sinusistis and/or nasal polyps) is a symptom of CF.

Ear infections are unrelated.

Clubbed fingers are when the pads of the fingertips (or toes) are

mis-shapen, sort of swollen and broader than usual. My kids don't have

clubbing, but I've seen pics in books, and it's something the pulm. checks

for at every visit. It's associated with pulmonary disease, and common in

kids with CF (not just CF though, kids with asthma or other pulm. diseases

can have clubbing of fingers or toes too-- I think it has something to do

with lack of oxygen in the blood, but I don't remember exactly).

, mom of Meagan (cf, asthma) & Kailin (asthma)

[Guest guest]

Constantly reoccuring ear infections can be a sign of CF too. Because of

these (and ) my sister's son was tested to rule out CF as the cause of

the ear infections. And a couple I met has a son that was diagnosed because

of ear infections and allergies. , it sure does sound like it could be

CF, I hope not, but I agree knowing and being able to plan a course of

action is much better than not knowing. Ear infections can also be a sign

of allergies.

Good luck,

Daelynn, mom of 11, Clayton 9, 4-11/12 wcf

[Guest guest]

Dear ,

The more you write about what has happened with you little one, the more it

surely sounds like your doctor is on the right track with a cf diagnosis.

(I hope that is not offensive to you.)

I think everything you asked about is on the list of possible symptoms.

You asked about clubbing, sinus and ear infections, and clubbing. Here

goes:

Clubbed fingers are an indication of inadequate oxygen absorption, in

general, not just in people with cf (they look for it in my husband too, who

has some other lung issues, not cf). It is a thickening of the ends of the

fingers and a corresponding rounding of the fingernails. Ranges from mild

to pretty extreme. Oddly enough for my daughter, I had always thought her

fingers looked a little stange, and when I learned she had cf and mild

clubbing, it was one of several things that actually came together in my

head (You know, " oh, that explains it. " )

Anyway, recurrent sinus infections are extremely common in persons with cf

(pwcf). As you prbably know, the basic " mechanical " problem of cf is that

it causes the formation of abnormally thick mucous throughout the body,

wherever there are body cavities or openings that produce mucous. Needless

to say, there is mucuous in any sinus, so in someone with cf, this is

abnormally thick, and thus leads to blockage and infection.

I was told that ear infections are not directly related, but could be! Kind

of vague. But had almost non-stop ear infections from about one year

of age until she was 6. But then my little one, who does not have cf, had

tubes at one year of age. So, who knows?

Vitamin absorption is another big issue for pwcf. Because their bodies do

not properly absorb oils, they have problems with vitamins, in particular,

ADE and K, which are naturally oil based. There is a special, water based

ADEK pill, which most pwcf take. Many take more beyond that. 's

doctor monitors her blood at each appointment and adjusts her vitamins

accordingly. As a reference point for you, she currently she takes 4 ADEKs

a day, plus 1600 mg water soluble Vitamin E, plus a mephyton pill (which is

a prescription vitamin K).

Let us know what the results of the testing are. We will be thinking of

you.

(mother of , almost 11 wcf, and , almost 3 nocf)

----- Original Message -----

> Can someone explain what clubbed fingers are?

>

> I also have a question do your kids get a lot of sinus

> infections and ear infections....Last year Abby had an

> ear infection from the beginning of Nov. till Med Feb

> when the tubes went in. She was on IV antibiotics for

> 3 weeks and they still didn't clear. Does all this

> connect with CF?

>

> Abby has beenin the hosital 3 times since Nov with

> gastro problems. Are CF kids CBC's normal? Reason I

> am asking is that I am not used to seeing a normal WBC

> and ANC's. Her vitamin levels were low and she is now

> ona multivitamin with iron. She is slightly anemic,

> but not bad.

>

>

>

>

>

> =====

[Guest guest]

Noonan asks...

>>>Can someone explain what clubbed fingers are?<<<

AOL Health says:

Clubbing of fingers and Toes

Definition

A broadening and thickening of the fingers or toes (distal phalanx) with

increased lengthwise curvature and curvature of the tip of the nail, with

flattening of the angle between the cuticle and nail.

Considerations

Clubbing is associated with a wide number of diseases, although it is most

often noted in diseases of the heart and lungs which cause decreased blood

oxygen and skin blueness (cyanosis). Clubbing can also be associated with

diseases that cause malabsorption, and diseases of the liver and the

gastrointestinal tract.

Call your health care provider if

you notice clubbing. However, this is a relatively late symptom, and other

earlier symptoms have usually occurred that require the attention of your

health care provider.

Hope this helps...Kathy G.

[Guest guest]

In a message dated 3/9/00 10:41:19 PM Eastern Standard Time,

pscjdc@... writes:

>

> My sister-in-law's baby is due in a month and I am sooooo worried. We

> haven't even discussed cf and I know they haven't even thought about it.

Hi , I have nephews who are 2 and 1 and they haven't been tested or

even thought about being tested. I would like to say something to her but

feel it isn't my place. I know they are young to be tested w/out any major

symptoms but I would atleast like to know that it is in the back of her mind.

Not that I want to worry her, just basically inform her.

Sally

Mom of Bri, & 6w/cf & ds

[Guest guest]

,

First of all, I am not sure there is a clear connection between ear

infections and tubes since lots of other kiddos get them too. HOwever, the

only two of my 5 kids that had to have tubes are the two with CF. Both of

them had very thick drainage out of the ears, looked like very thick snot.

As far as the enzymes go, I had forgotten this til reading Torsten's post.

But, before Mallory was actually diagnosed with CF, the ped. put her on

enzymes b/c her stools stayed so runny after 3-4 weeks of rotavirus. Some

time after that the Pulm told us to stop giving her enzymes (no diagnosis

yet) and then she started puking every meal and the diahreah came right back.

Mallory had a leaky, runny, foul BM that leaked all over the Ped's kitchen

floor one night...and he said, maybe she needs more enzymes, we replied, oh,

we stopped giving those b/c the pulm told us to. He put her right back on

the enzymes and told us we'd better not stop them without his direct order.

Puking stopped and so did diarheah. We tried this one more time about a

month later....puking and diarhea came back. (the puking is not a common

result of malabsorption in young children, though a specialty cfcenter we

consulted said they sometimes see that in older kids). Anyway, now the only

time she pukes if she coughs til she pukes or the rare occasion when we

thought she took enzymes and she didn't (miscommunication between mommy and

daddy--happened only twice...the runs just were not worth that!)

Anyway, thats all I can offer.....

Hope it helps

Jen

[Guest guest]

Katy,

Wow what a wonderful outlook you have! I only wish I could have the same

attitude, though your post has made me think a bit. I'm getting ready to pack

the kids up and go to Target, so I will think of you and your e-mail when

someone comes running up to Jes whining " she's sooooo tiny! " Lately, my

answer to that is - " yes, she is " and walk away. Is that bad? - It just seems

like such a dumb thing to say...DUH, yeah she's tiny, though most of the time

it's followed up with a , oh and so cute too(as if they realized what they

said). Anyway, I just wanted to thank you for that viewpoint, it's a good

one!!!

, Mom to (a tiny 23mos at 9lbs 9oz, on MY scale) and her BIG

sister, (4 3/4)

[Guest guest]

Hi Cheryl,

Thanks for your email...sometimes I forget that parents are dealing with far

more than eating or growth problems. I certainly was fascinated by the

technology of the implants. I think if it were our child it would be hard to

ignore the opportunity...

Our Dr.H. appointment isn't until 3 in the afternoon (:-(), so we won't be able

to meet (If we do meet, it would mean that you had to wait there all day! I hope

that doesn't happen to you! :-)).

Lots of luck to you.....I'll be curious to hear what you think of your visit.

Katy

[Guest guest]

THanks for your warm words, !

Okay, I have to admit that my " wonderful outlook " takes a lot of work sometimes,

and isn't always there--My husband would probably say, " Who is this " strong "

woman? What have you done with my whiny wife?! " !!!!! (as when 2 3 year olds sat

on in the playground yesterday, and I saw 's hurt expression in his

eyes...I " rescued " him, but realize that I'm going to have to really let him

learn how to fight these battles. The battles will be tougher, but I think it

will go a long way to his being a really strong adult).

Katy

[Guest guest]

Katy,

We're going to Dr. H on 3/21 too! My appt. is for 9:00 a.m. Boy, maybe we can

meet. Wouldn't that be great. This will be our first visit to her (and

possibly

our only do to insurance, but we'll see).

I did see GMA on Thursday. Cochlear implants are a hot topic in our house these

days. is severe to profound deaf and we've opted to give him the

implant to

give him an opportunity to hear. The story on GMA was about two brothers with

families, one brother is deaf, the other is not. Both brothers have one child

that

is deaf. The deaf brother has opted not to do CI. He and his wife are both

deaf

and believe living in a Deaf Culture is fine. The other brother and wife can

hear.

They've opted for CI. It's litterly tearing the family apart over this. The

grandparents are trying to encourage the deaf brother to give CI to his daughter

and

they just plain old don't want too. I think some of that stems from their

insecurities of being deaf and how do you teach a child to speak when you are

deaf. Just my own opinion. Anyway, the documentary hasn't aired yet. They

said it

would be due out this fall. I don't remember the name they called it, but you

can

sure bet I'll be keeping my eyes out on it for many, many reasons.

Cheryl

Mom to , , - 25 months

katy badt-frissora wrote:

>

>

> Hi Everyone,

> I hope you are having a relaxing weekend! Here are some miscellaneous topics

> I've been thinking about.

>

> 1. First, I wanted to announce that finally got approved for GHT from

> MEDCO. We visit Dr. H. on 3/21 to get his bone age, weight/height checked,

and

> then training on administering the med. Ken, and others who wonder whether

to

> give GHT for non-GHD kids...I'm going to go in and ask Dr. H. all the

questions

> we have been discussing here (e.g. final adult height, sterility risk,

diabetes

> risk, predicting height, etc....) before we make the final " plunge " . I also

> found some great email-chat on HGF-Peds on techniques to start GHT with a

young

> toddler...I'll put them together and post here.

>

> 2. Did any of you catch Good Morning America the other morning? I'm not going

> to do it justice here, because I had 2 toddlers running around while watching

> it, but: Bottom line: Deaf parents refuse to give their child cochlear

implants

> (will allow child to hear) because in their view, the deaf world is a

> " beautiful " world. Uncle is calling them abusers...Documentary just made

about

> the family. It was absolutely fascinating to listen to this father make his

very

> impassioned argument that he sees no reason to alter the child's " deaf "

> experience just to fit society's norms. He talks about the beauty of the way

> deaf people express themselves, their range of emotions, the fact that they

need

> to use their facial expressions much more vividly. Anyway, you can imagine

the

> outcry over his decision; I know we can't compare shortness with deafness, but

> the beauty of the story is the focus it had on the parents strength and

> acceptance. If I can get a hold of the name of the documentary, I will. I

know

> that I learned a lot by " listening " to the father's opinions.

>

> 3. Regarding people who ask questions about our small children. Every day I

> get at least 2 people asking me if and (18 months apart) are

> twins. I realize that my approach and reactions will be soaked up by my boys

> like sponges. So, I smile and say, " No, actually, is my big boy. He is

3.

> is 18 months " . And, I leave it at that. Why get mad at a perfectly

> logical question? If they were twins, I would have smiled and said, " yes! " .

> So, is the question offensive, or are we being defensive!? I also always

follow

> it up by a comment, " is so full of energy and curiosity. He keeps us

busy.

> bla blah... " Just full of positive comments. And, why should other people

> " know " about the daily struggles we go through? If we define ourselves and our

> families by the troubles that we go through: the late nights, the struggles

> feeding, the medical problems, etc..then I think I would run the danger of

> always wearing on my face the attitude of " If you only knew how much we

suffer,

> you ignorant person! " . I think it helps me to realize that it is more

important

> to define ourselves by what we are: a family unit made up of unique people who

> will have unique futures and contribute in unique ways. Sure, the path to

that

> uniqueness is varied, but that is what defines life. I also realize that

those

> so-called insensitive people who inquire about 's size just haven't had a

> lot of experience with small kids. Also, each one of them is dealing with

their

> own issues that I don't know about: maybe a relative dying, someone in a

nursing

> home, maybe a child who is ill, a job that is in jeopardy, a marriage problem,

> infertility, maybe just a rushed and harried day, etc...WE all don't walk

around

> listing our issues on a t-shirt. So, I find it helps to give people the

benefit

> of the doubt. Of course, I would never tolerate mean-sprited teasing or

cruelty,

> but curiosity? Hey, that is human nature!

>

> Enough of my Saturday morning ramblings!

>

> Katy

> Mom to , RSS, 3 years, 28 pounds, Periactin, Zantac

> and

> , 20 months, 29 pounds

>

> ------------------------------------------------------------------------

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[Guest guest]

,

How did your hairdressers baby's test for CF come back? I was thinking of

her the other day.

Daelynn

[Guest guest]

Daelynn,

Hey girl! I thought I sent a note to group about that but maybe not. It

was good. His name is Gatlin. He had a 10 and 11 and I don't think they

are doing genetic testing. I will have to check. His Mom is so sweet and

precious to us. The pulmonologist they saw (Dr. Mahesh for Joan's benefit,

HEY JOAN!) said he had asthma. He is on Flovent inhaler and nebs as needed

and will start Singulair probably, when he is two. So, so far, so good.

(Gatlin's Mommy) told me she had never been so happy to hear the

words asthma in her life.

Thanks for asking! I hope you are doing well. How was your trip to

Florida, just you and hubby?

Take care,

----------

>

> To: cfparentsonelist

> Subject: Re: Misc

> Date: Tuesday, March 14, 2000 12:49 PM

>

>

>

> ,

> How did your hairdressers baby's test for CF come back? I was thinking

of

> her the other day.

> Daelynn

>

>

>

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> ***********************

> This is a secular list.

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>

> --------------------------------------------------

> The opinions and information exchanged on this list should

> IN NO WAY

> be construed as medical advice.

>

> PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

TREATMENTS.

>

> --------------------------------------------------

>

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[Guest guest]

Oh that is such a wonderful outcome for her. My trip alone to Florida was

really nice!!! Got lots of cuddle time in and we went flying in his bosses

'flying machine', and I am always so relieved to have a day or so without

dealing with CF stuff. And I didn't even have to worry, my friend watched

(she has a son with major/severe asthma and CF runs in her family) so

she is comfortable with all the meds and I never have to worry about him

getting his meds either, I know she knows how important they are. What a

relief. If only everyone were so caring.

Take care glad to hear the Tobi is working good for .

Daelynn

[Guest guest]

Hey,

, Sulphur Springs is right down the road a bit (boy does that sound

Texan or what!)

We are buying our first house soon too. Yippee.

Daelynn

[Guest guest]

It seems as gets older, her friends become closer and closer. Two of

them have even written and signed contracts since her party saying they want

to be tissue typed for her. I was a puddle of tears after they approached

me at the party also and so were they...Two of which were teenage

boys...jsut goes to show me how important her friends are.

> Misc

>

>

>

> Jen, I hope everything goes well. I don't live too terribly far,

> remember

> that, if you ever need me. I have traveled to several friends house's out

> of town to help with kiddos before. Are you going to Vanderbilt or

> Knoxville, where? Very best wishes. I certainly hope everything goes

> very

> smooth. Take care.

>

> Happy birthdays to and !!!!!!

>

> Barbara, your note about the friends and transplants really got to me.

> That must have been hard and at the same time heart warming to hear, as I

> sit here in a puddle of tears.

>

> As for little , he is fine. I will call first thing this morning,

> in fact, as soon as I stop typing. He really seems ok. No more blood,

> just a few coughs and a little croupy sounding this morning. I think it

> might be more stomach/reflux related. I just don't know.

>

> , are you guys ok? I need to check back and make sure I haven't

> missed an update on you guys. Hope your ok.

>

> Daelynn, my hubby is still out your way, having a ball! His friend caught

> a 10 9 oz large mouth that he is going to have mounted. I am sure they

> are

> already scheduling another trip next year.

>

> Take care everyone,

>

>

>

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> ***********************

> This is a secular list.

> ***********************

>

> --------------------------------------------------

> The opinions and information exchanged on this list should

> IN NO WAY

> be construed as medical advice.

>

> PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

> TREATMENTS.

>

> --------------------------------------------------

>

>

> Our webpage is at http://www.eohio.net/malbright/cfparents.htm

>

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>

[Guest guest]

Meg,

I don't think that you are overreacting, I was taking Connor to the GP

every 2 weeks when he was 2 over a 2 month period as he had a cough/cold

that wouldn't go away. I mentioned to the GP that I felt a little

foolish bringing him in but she just looked at me and said that I

shouldn't feel that way at all, she reassured me that she understood my

reasons, (cf, passing something to Ainslie, coughs in general).

Then last Spring we started down the same path, although I took him

monthly, once desparately asking for antibiotics for him (and me as I

had exams the following week and he had started to wake through the

night) once the course finished he was coughing again, I mentioned this

and she agress that it may be allergy related. At the same time on

Cystic L there was some talk about Olive oil being used for treating

coughs/colds. I was at the pharmacy in the natural products section and

I purchase a liquid called Olive Life( has olives, rosehips + a number

of other things) his cough/cold went within the week. We will see what

happens next Spring.

Jen

The problems that you seem to have with the medical profession are

everywhere, a close friend of mine always seems to have something

ridiculus happen every time one of her cfers are in the club. The

latest was that her oldest who has chronic sinus problems, has surgery

now at least 3 times a year, was in for ivs and was only getting half of

the dosage for 5 days. This was only picked up when she was having her

son home for a full day and questioned how much medication was given to

her. They also have had to juggle the paed and ent to get the sinuses

sorted.

Terri, mum to Ainslie 7 1/2 wcf and Connor 3 1/2 no cf

[Guest guest]

Terri,

thanks for making me feel like we are not sooooo unlucky. As I said, all in

all, this has been a better one than usual! Gee, lets see, no one in the

last month has given us PROZAC instead of Prilosec for our (then) 2 month old

baby....no one put a central line instead of a Picc line in Mall (as they did

with ), no one tried to give Mall the wrong meds and insist that

Nasalide is really the same thing as NS (normal saline), no one misidentified

any of her bacteria as B. Cepacia.......

so, hey, it has been a good month for medical mistakes....

On the other hand, poor ron is making the boo boos this week...on the way to

the hospital to admit Mallory, he drove in the ditch (yes, with the kids in

the car!) and then on the way home from church Sunday, he rearended someone

(yes again with the kids in the suburban, all but Mallory who was home with

me.....)

Take care,

Jen