Guest guest Posted March 30, 2004 Report Share Posted March 30, 2004 Guess I am just curious if any of you had to wait a bit longer for that " surge " to happen with your child's speech while on the ProEFA? My son (4yrs5mo.) has been on it(now 2 caps/day) for a little over a month and a half and although we see some increases in isolated sounds and attention, still no words or glorious breakthrough. Just need my hope restored a bit, I guess. It is so exciting to hear of others who have had success, but I am wondering if any of you had to wait a bit longer to get there (3-6 months or more)? Am I the only one? Some reassurance and testimony would be great. Hope it's just a matter of a little more time for my son. Still waiting to hear Mommy among many others. Thanks for you time....... colleen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2004 Report Share Posted March 30, 2004 Colleen-- You are FAR from alone in not having a surge right away. You probably just read about Drew's surge yesterday (and so far, it seems like a one day thing-- I decided not to pressure Drew anymore than I already have been to use his words and even two word combos, but no repeats of yesterday's performance yet). Drew's been doing EFAs (we've been doing Coromega and then a Coromega/4 drops of Borage oil since I bought that, and have a huge supply to get rid of before going and buying some ProEFA, but the levels are about the same) since he was diagnosed just over 6 months ago, and it's taken THIS LONG-- 6 months and 1 week-- to get the surge he got yesterday. So like I said, you are FAR from alone on that. I really was starting to convince myself it was going to be a very long time before hearing two words or two syllables come out of his mouth, so as I said, just hearing his approximation of " lollipop " was a miracle to me, and to get the bonuses of " blue egg " , " red egg " and " Mom do " were fantastic. I have high hopes for Drew since he got so many words out of his mouth in one day, but I know due to the nature of apraxia, it could be here today, gone tomorrow, so we'll just keep reviewing with him and encouraging him. I know has her cool theory about G-forces, but I'm starting to think just getting Drew walking a lot does the trick. Now mind you, he does have hypotonia and tires easily, and I'll take breaks and rest with him, but it seems like in the last half of a week or so, after Drew's gone on long walks, he seems to be doing really well. We had a nice day outside last week, and walked about a quarter of a mile and back to go have lunch at a local bagel place. After lunch, he had OT, and he was attending better than he had in weeks. Yesterday, I walked him through several stores. Sometimes he rode in a cart, and sometimes he walked, but he still got a lot of walking in, and behold, this surge. I've always known there was a whole body thing that can happen in relation to apraxia, but after these incidents, I'm thinking I have to get Drew a kiddie treadmill! Keep up the EFAs, though! It took *6 months* before it kicked in with Drew. I just figured that even if he didn't get the surge, it was still healthy for him to take them since there's heart disease in my family and we don't eat fish (I don't cook it since I can't stand seafood of any kind). Looks like between hard work and EFAs, it may finally be kicking in! Hooray! Hope this helps. le (SAHM to Drew, almost 2.10 yrs. apraxia, DSI and hypotonia) > Guess I am just curious if any of you had to wait a bit longer for > that " surge " to happen with your child's speech while on the ProEFA? > My son (4yrs5mo.) has been on it(now 2 caps/day) for a little over a > month and a half and although we see some increases in isolated > sounds and attention, still no words or glorious breakthrough. Just > need my hope restored a bit, I guess. It is so exciting to hear of > others who have had success, but I am wondering if any of you had to > wait a bit longer to get there (3-6 months or more)? Am I the only > one? Some reassurance and testimony would be great. Hope it's just a > matter of a little more time for my son. Still waiting to hear Mommy > among many others. Thanks for you time....... > > colleen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2004 Report Share Posted March 30, 2004 Colleen- I just want you to know that I can hear your concern through your words, and I feel for you. My son is 4.11 - and let me tell you at two years old I never heard anything close to what Drew said. I think at that point I had ma and ha (hot) and ba (bus). was fully 4 before he ever put two words together, and it is not a sure thing even today. He is on 2 EFAs per day, has been since Christmas - he started at 1 per day last May. We have never had any miraculous spurts- but have seen noticeable improvements that I attribute to the EFAs and 6-30 minute sessions of speech therapy per week. We all want a miracle - but for most of us it doesn't happen that way. now says some 4-6 word sentances that are " memorized " - Can I have, I want, I need type phrases. His spontaneous utterances are mostly 2-3 words, with more coming daily. My guess, at this point, is that his expressive language would test at about 2 YO. We're in the process of that evaluation right now as I battle the school system over not sending him to kindergarten next year. Please know that many of us wait for a surge that never happens. The first thing I noticed when started on EFAs was an almost instant ability to answer yes/no questions - both attending to the question immediately and answering by nodding his head - that I had never seen before. So play close attention to these signs, as wel. Otherwise, in my house, we are living the fable of the tortoise and the hare...SLOW AND STEADY WINS THE RACE.. Good luck- > Guess I am just curious if any of you had to wait a bit longer for > that " surge " to happen with your child's speech while on the ProEFA? > My son (4yrs5mo.) has been on it(now 2 caps/day) for a little over a > month and a half and although we see some increases in isolated > sounds and attention, still no words or glorious breakthrough. Just > need my hope restored a bit, I guess. It is so exciting to hear of > others who have had success, but I am wondering if any of you had to > wait a bit longer to get there (3-6 months or more)? Am I the only > one? Some reassurance and testimony would be great. Hope it's just a > matter of a little more time for my son. Still waiting to hear Mommy > among many others. Thanks for you time....... > > colleen Quote Link to comment Share on other sites More sharing options...
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