Guest guest Posted October 30, 1999 Report Share Posted October 30, 1999 In a message dated 10/30/99 9:27:08 PM Central Daylight Time, susuw@... writes: << back and say we have cancer, the message will be the same also except to change RP for cancer. It's a gimmick I think. >> ROFLMAO! how true! (thanks for the alugh, I was in bad need of a good one) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 1999 Report Share Posted October 30, 1999 In a message dated 10/30/1999 7:14:13 PM Pacific Daylight Time, Idigflower@... writes: << P.S. Betty from the beginning has been " seeking out " an all " Natural " approach (no drugs) for her sons DX with RP, I spoke with her and her husband a while back and they told me. >> Told you what ? Roy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 1999 Report Share Posted October 30, 1999 In a message dated 10/30/1999 7:26:53 PM Pacific Daylight Time, susuw@... writes: << I got this same message when I went to that message board. I'll bet if we go back and say we have cancer, the message will be the same also except to change RP for cancer. It's a gimmick I think. >> Cool susan. That would be fun. Lets tell it we have Carbuncular tralepsy. dont know what it is, but sounds bad. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 1999 Report Share Posted October 30, 1999 In a message dated 10/30/1999 9:16:24 PM Pacific Daylight Time, susuw@... writes: << Hey, I'm blonde, but honest!!! LOL >> You are up late also. Cant sleep? Christy is up also. Tis 12:30 by you two. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 1999 Report Share Posted October 30, 1999 In a message dated 10/30/1999 9:19:17 PM Pacific Daylight Time, susuw@... writes: << I dare ya!!! LOL >>>>>>>>>>> go back and say we have cancer, the message will be the same also except to change RP for cancer. It's a gimmick I think. >> Cool susan. That would be fun. Lets tell it we have Carbuncular tralepsy. >> send me the site address. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 1999 Report Share Posted October 30, 1999 In a message dated 10/30/99 11:21:41 PM Central Daylight Time, Rlr1999@... writes: << < Hey, I'm blonde, but honest!!! LOL >> You are up late also. Cant sleep? Christy is up also. Tis 12:30 by you two. >> hey we get an extra hour to sleep tonight....remember so its actually not as late as you think...hehe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 1999 Report Share Posted October 30, 1999 In a message dated 10/30/1999 9:23:47 PM Pacific Daylight Time, susuw@... writes: << Yeah, we figured we'd get an extra hour of sleep tonight so why waste it??? LOL >> Oh yeah, I had forgotten. I should have scheduled a business trip for tonight. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 1999 Report Share Posted October 30, 1999 I agree Roy about checking them out thouroughly but hey it couldn't hurt to read up on it. I know for me I could never follow a strict diet like that. So I would be one of the ones it wouldn't work for anyway. But that letter is in response to a letter sent to them from a mother of an 18 year old with RP. Love and Gentle Hugs, Angie http://www.onelist.com/subscribe/SantaLetters http://www.geocities.com/acenneno_1999 http://hometown.aol.com/RLR1999/HomeRP.html http://members.tripod.com/~autoimmune Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 1999 Report Share Posted October 30, 1999 In a message dated 10/30/1999 10:27:04 PM Eastern Daylight Time, susuw@... writes: << I got this same message when I went to that message board. I'll bet if we go back and say we have cancer, the message will be the same also except to change RP for cancer. It's a gimmick I think. >> you know that woman in NC that has an 18 year old son with RP she wrote to them and that is the reply she got. I wanted to know if anyone heard of it and also thought it was interesting. I didn't even go to the web site yet. write to the doc that is listed with his email addy and I will you say you have RP and I will come up with something and see what kind of response we get from him Love and Gentle Hugs, Angie http://www.onelist.com/subscribe/SantaLetters http://www.geocities.com/acenneno_1999 http://hometown.aol.com/RLR1999/HomeRP.html http://members.tripod.com/~autoimmune Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 1999 Report Share Posted October 30, 1999 In a message dated 10/30/1999 11:34:30 PM Eastern Daylight Time, Rlr1999@... writes: << P.S. Betty from the beginning has been " seeking out " an all " Natural " approach (no drugs) for her sons DX with RP, I spoke with her and her husband a while back and they told me. >> >> for a family that are seeking an all natural approach to treatment can you explain why then he is on so much [pred, remember he also gets pulsed at 1000mgs methotrexate and also a round of cytoxin. what the hell is natural by any of that Love and Gentle Hugs, Angie http://www.onelist.com/subscribe/SantaLetters http://www.geocities.com/acenneno_1999 http://hometown.aol.com/RLR1999/HomeRP.html http://members.tripod.com/~autoimmune Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 1999 Report Share Posted October 30, 1999 In a message dated 10/30/1999 11:37:39 PM Eastern Daylight Time, Rlr1999@... writes: << << It started in her ears >> Angie, did anyone mention ears to them? >> who are we talking about here? Love and Gentle Hugs, Angie http://www.onelist.com/subscribe/SantaLetters http://www.geocities.com/acenneno_1999 http://hometown.aol.com/RLR1999/HomeRP.html http://members.tripod.com/~autoimmune Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 1999 Report Share Posted October 30, 1999 I know angie, they told me when they called me, in the beginning, She would not like to do the meds, but obviously they they are doing them, she just said when she called me she hates to put him on Metho she wasnt totaly against it In a message dated 10/31/99 12:46:17 AM Central Daylight Time, AngieCATW1@... writes: << for a family that are seeking an all natural approach to treatment can you explain why then he is on so much [pred, remember he also gets pulsed at 1000mgs methotrexate and also a round of cytoxin. what the hell is natural by any of that >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 1999 Report Share Posted October 30, 1999 Angie, I got this same message when I went to that message board. I'll bet if we go back and say we have cancer, the message will be the same also except to change RP for cancer. It's a gimmick I think. >>>>>>>>>>>>>>>>>> From: AngieCATW1@... My wife is , who was diagnosed with Relapsing Polychondritis some years back. For over a year she was having episodes. It started in her ears and she bounced around to a variety of doctors until they got the right diagnosis and she landed in the offices of Rodney Bluestone, a rheumatologist in Beverly Hills who was then the head of the Southern California Arthritis Foundation and a highly respected researcher. Most all of the other patients he saw were much much older than (who was about 29 then), and most were there for arthritis. was briefly given prednisone and was advised to keep rested and keep out of the sun. (The sun did seem to have some impact as when we went to Hawaii that year and she got some sun, suddenly she had a flareup.) Anyhow, the bottom line is that we were vegetarian and had been for 7 years, and so we felt we had the nutrition area covered. When my wife had told Dr. Blueston she was vegetarian at the start of treatment, Bluestone responded: " Vegan is best. " I don't think we even really knew what a vegan diet was at the time, but it sort of went in one ear and out the other. Almost a year later when we had returned from a vacation and was resting from another episode, she was reading a book her sister had given her as an Xmas present 9 months earlier. The book was by McDougall, M.D., http://www.drmcdougall.com/ and was called " The McDougall Program. " I think it was that one, or else it was " The McDougall Plan. " In the book he talked about lupus and related autoimmune diseases, and he talked about dairy proteins and benefits that people suffering from these diseases had realized when they eliminated all dairy as well as eggs and meat. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 1999 Report Share Posted October 30, 1999 What the hell is going on with onelist today and night??? I sent one, but not this one. Geez!! I think Onelist needs to get their crap together. This is crazy. >>>>>>>>>>>> Angie, I got this same message when I went to that message board. I'll bet if we go back and say we have cancer, the message will be the same also except to change RP for cancer. It's a gimmick I think. >>>>>>>>>>>>>>>>>> From: AngieCATW1@... My wife is , who was diagnosed with Relapsing Polychondritis some years back. For over a year she was having episodes. It started in her ears and she bounced around to a variety of doctors until they got the right diagnosis and she landed in the offices of Rodney Bluestone, a rheumatologist in Beverly Hills who was then the head of the Southern California Arthritis Foundation and a highly respected researcher. Most all of the other patients he saw were much much older than (who was about 29 then), and most were there for arthritis. was briefly given prednisone and was advised to keep rested and keep out of the sun. (The sun did seem to have some impact as when we went to Hawaii that year and she got some sun, suddenly she had a flareup.) Anyhow, the bottom line is that we were vegetarian and had been for 7 years, and so we felt we had the nutrition area covered. When my wife had told Dr. Blueston she was vegetarian at the start of treatment, Bluestone responded: " Vegan is best. " I don't think we even really knew what a vegan diet was at the time, but it sort of went in one ear and out the other. Almost a year later when we had returned from a vacation and was resting from another episode, she was reading a book her sister had given her as an Xmas present 9 months earlier. The book was by McDougall, M.D., http://www.drmcdougall.com/ and was called " The McDougall Program. " I think it was that one, or else it was " The McDougall Plan. " In the book he talked about lupus and related autoimmune diseases, and he talked about dairy proteins and benefits that people suffering from these diseases had realized when they eliminated all dairy as well as eggs and meat. --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 1999 Report Share Posted October 30, 1999 Sorry, I was in the deleted section and thought onelist had resent my message. OK, time for bed. LOL >>>>>>>>>>>>>>>>>>> What the hell is going on with onelist today and night??? I sent one, but not this one. Geez!! I think Onelist needs to get their crap together. This is crazy. >>>>>>>>>>>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 1999 Report Share Posted October 30, 1999 Only 11:30 here...... I set my watch back already! Christy There is an angel inside of me whom I am constantly shocking. http://christyspage.tripod.com/index.html http://members.tripod.com/~autoimmune/ Re: interesting read >From: Rlr1999@... > >In a message dated 10/30/1999 9:16:24 PM Pacific Daylight Time, >susuw@... writes: > ><< Hey, > I'm blonde, but honest!!! LOL >> > >You are up late also. Cant sleep? Christy is up also. Tis 12:30 by you two. > >>hi and welcome. maybe we can come up with answers that our doctors can't Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 1999 Report Share Posted October 30, 1999 Yeah, we figured we'd get an extra hour of sleep tonight so why waste it??? LOL >>>>>>>>>>>>>>> You are up late also. Cant sleep? Christy is up also. Tis 12:30 by you two. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 1999 Report Share Posted October 31, 1999 In a message dated 10/30/1999 9:47:15 PM Pacific Standard Time, AngieCATW1@... writes: << << It started in her ears >> Angie, did anyone mention ears to them? >> who are we talking about here? >> In the letter about the diet the man mentions that his wifes RP started in her ears. Roy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 1999 Report Share Posted October 31, 1999 In a message dated 10/30/1999 9:06:21 PM Eastern Standard Time, Rlr1999@... writes: << I am also very leary letters like this. I generally suspect them to be from the company selling whatever is being praised. Roy >> Thanks Roy---you are so right Janet Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 1999 Report Share Posted October 31, 1999 In a message dated 10/31/1999 4:10:46 PM Pacific Standard Time, susuw@... writes: << Do it Roy!!! The web site is: http://www.vegsource.com/wwwboard/health/wwwboard.html >> Will do. I will let you know what happens. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 1999 Report Share Posted October 31, 1999 Do it Roy!!! The web site is: http://www.vegsource.com/wwwboard/health/wwwboard.html Cool susan. That would be fun. Lets tell it we have Carbuncular tralepsy. >> send me the site address. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 1999 Report Share Posted November 1, 1999 In a message dated 10/31/99 10:42:26 PM Central Standard Time, AngieCATW1@... writes: << one on RP and one for lymphoma should be interesting >> Angie, Did you do them under different names??? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 1999 Report Share Posted November 1, 1999 Yep you did and funny thing is, you got a reply that sure sounds familar!!! Go look. http://www.vegsource.com/wwwboard/health/wwwboard.html From: AngieCATW1@... I sent in two messages to that board. one on RP and one for lymphoma should be interesting Love and Gentle Hugs, Angie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 1999 Report Share Posted November 1, 1999 In a message dated 11/01/1999 9:23:26 AM Eastern Standard Time, Idigflower@... writes: << one on RP and one for lymphoma should be interesting >> Angie, Did you do them under different names??? >> yes I used my maiden name for the lymphoma questions Love and Gentle Hugs, Angie http://www.onelist.com/subscribe/SantaLetters http://www.geocities.com/acenneno_1999 http://rpolychondritis.tripod.com/index.html http://members.tripod.com/~autoimmune Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.